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CLL Support

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All posts for April 2020

UK Zoom meeting - COVID-19 and shielding update for UK CLL Patients

ZOOM invite details below May 7, 2020, 10:00 AM - Webinar - COVID-19 and shielding update for CLL Leukaemia Care are hosting this webinar in collaboration with...

ZOOM invite details below May 7, 2020, 10:00 AM - Webinar - COVID-19 and shieldi...

Jm954

Administrator•5 years ago

24 Replies

Found a lump 🤔

Hi, new member here, just hoping for some general advice? I got my diagnosis 3 years ago as a result of unrelated blood tests, I have no symptoms. A few days...

Hi, new member here, just hoping for some general advice? I got my diagnosis 3 ...

Tinkataz

•5 years ago

27 Replies

Covid-19 Vaccines

If the vaccine that they are developing for coved-19 is a live vaccine, what does that mean for us Cll patients who don’t take live vaccines. .

If the vaccine that they are developing for coved-19 is a live vaccine, what doe...

Budd77

•5 years ago

8 Replies

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Surviving Covid19

I am new to this forum. I was diagnosed with CLL 12 years ago and was on watch and wait for 10 years. I started treatment because of large lymph nodes in my...

I am new to this forum. I was diagnosed with CLL 12 years ago and was on watch a...

Fenella

•5 years ago

10 Replies

Shielding letter

Can I thank everyone for their advice . It has taken 3 weeks nearly and a lot of calls and emails. But finally received my shielding letter this morning. So...

Can I thank everyone for their advice . It has taken 3 weeks nearly and a lot of...

Frodo21

•5 years ago

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Scenarios for ending lockdown and how this will impact on those with CLL

In encouraging news for the world, New Zealand and Australia have done so well bringing the spread of the SARS-Cov-2, coronavirus under control, with very few...

In encouraging news for the world, New Zealand and Australia have done so well b...

AussieNeil

Administrator•5 years ago

10 Replies

good news and bad news

Good news & bad news today . I had my rutine blood sample taken yesterday and Dr called me today instead going to the Clinic .My inmunoglobulins have risen (...

Good news & bad news today . I had my rutine blood sample taken yesterday and Dr...

antonb

•5 years ago

3 Replies

Shielding letter from NHE

I received my shielding letter from NHE today. I am on watch & wait. I’ll see if any supermarket contacts me with priority slots. Fortunately I was able to...

I received my shielding letter from NHE today. I am on watch & wait. I’ll see if...

Miggins60

•5 years ago

16 Replies

Leukemia And COVID-19

I wanted to get the link to this article on our site the moment I read it this Morning. I've seen so many questions about whether or not CLL patients are at...

I wanted to get the link to this article on our site the moment I read it this M...

wizzard166

•5 years ago

36 Replies

Venetoclax 17p patient

Just a question, I read an article of a profesionals about Venetoclax responses, and it says that for young patients with 17p with cll than relapsed to...

Just a question, I read an article of a profesionals about Venetoclax responses,...

Cgr2018

•5 years ago

13 Replies

Sheilding letter - I got one

Hi All I received this email see below - then forwarded it to my Dr surgery and they confirmed i should off had a letter and one arrived the next day....

Hi All I received this email see below - then forwarded it to my Dr surgery and...

TheFlyer

•5 years ago

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Dr. Neil Kay: CLL Society Webinar, Just Diagnosed: What Do I Need to Know?

HI, Please join us for a CLL Society Webinar, Just Diagnosed: What Do I Need to Know? on Tuesday, April 28, 2020 at 10 AM PT / 11 AM MT/ 12 PM CT/ 1 PM ET....

HI, Please join us for a CLL Society Webinar, Just Diagnosed: What Do I Need to ...

bkoffman

CLL CURE Hero•5 years ago

10 Replies

Imbruvuca cost one last time.

I have rechecked all the figures, have again called Diplomat Pharmacy. My last post was exactly correct. Abbvie has increased the price of 28 420 mg. tablets...

I have rechecked all the figures, have again called Diplomat Pharmacy. My last p...

DelrayDave

•5 years ago

10 Replies

Good news

I had my Pet/Cat scan at last and the good news is I do not have Ritchers Transformation . My night sweats have decreased although I am getting very hot at...

I had my Pet/Cat scan at last and the good news is I do not have Ritchers Transf...

JanEyre

•5 years ago

20 Replies

Imbruvica and Gazyva

Newly diagnosed with CLL in January 2020 with del(17p) TP53 mutation. I have been on Imbruvica 3 months with really no major side effects but lab work is...

Newly diagnosed with CLL in January 2020 with del(17p) TP53 mutation. I have bee...

HeyWhat72

•5 years ago

17 Replies

Has anyone experience face and neck swelling while taking Imbruvica?

I have been on Imbruvica for 9 months. I had a rocky start and encountered many side effects (nosebleeds, bruising, severe heartburn, difficulty swallowing)...

I have been on Imbruvica for 9 months. I had a rocky start and encountered many ...

lizfuccillo

•5 years ago

3 Replies

Can't accept CLL diagnosis.

Hello. I have posted a couple of posts before. My history is I was diagnosed with stage A CLL in January this year. No symptoms apart from tiredness and one...

Hello. I have posted a couple of posts before. My history is I was diagnosed wit...

Dracaena

•5 years ago

80 Replies

Mouth ulcer that does not go away.

Hey gang hope everyone's safe and not going crazy locked up in the home. I was diagnosed with CLL about a year ago, about a year and a half ago I got this...

Hey gang hope everyone's safe and not going crazy locked up in the home. I was ...

Michael199

•5 years ago

19 Replies

Going down the allotment

Hi people I am at stage A with something like 300 white cells count. My allotment is 5 mins away and few people on it - all very much socially distanced. Can I...

Hi people I am at stage A with something like 300 white cells count. My allotmen...

anapurna

•5 years ago

4 Replies

Ventoclax. Node bigger than 2 months ago

On febrery, the lab tests of my brother are wonderful. Everything is great, and see will have his next lab tests on April. He he in imbruvica since 2018, and...

On febrery, the lab tests of my brother are wonderful. Everything is great, and ...

Cgr2018

•5 years ago

4 Replies

Imbruvica cost exact figures

I now have from my part D insurer (United Health Care) the exact figures. It seems I was right the first time, at least according to them. In December, 2019,...

I now have from my part D insurer (United Health Care) the exact figures. It see...

DelrayDave

•5 years ago

61 Replies

Covid-19: What, if anything, can we learn from integrative oncology experts?

I have just read a long article addressing possible concrete responses to Covid-19 by a doc specializing in integrative oncology. It was written for lay...

I have just read a long article addressing possible concrete responses to Covid-...

hsouter

•5 years ago

12 Replies

Is everyone with CLL on the UK Government Vulnerable/Shielding List ?

I am 2 years into W&W and still have no symptoms. I was advised in January that it would probably be "many years" before treatment was necessary. The...

I am 2 years into W&W and still have no symptoms. I was advised in January that ...

FairweatherSailor

•5 years ago

39 Replies

Dapsone and Diabetes

Hi, I was diagnosed with CLL 17 years ago, and am now on Ibrutinib and Privigen. To prevent lung infections, I take dapsone, (allergic to Septrin). Does...

Hi, I was diagnosed with CLL 17 years ago, and am now on Ibrutinib and Privigen....

Gary53

•5 years ago

2 Replies

COVID-19: Maybe Just Say NO? — Nitric oxide precursors should be tried for prevention

COVID-19: Maybe Just Say NO? — Nitric oxide precursors should be tried for prevention by Heath McAnally, MD April 2, 2020 “I’ve just submitted a hypothesis...

COVID-19: Maybe Just Say NO? — Nitric oxide precursors should be tried for preve...

hsouter

•5 years ago

4 Replies

Update On COVID 19 AND STROKES

I realize that this article has nothing to do with CLL, but as a member of this site I feel it important to alert my fellow CLL group of new medical findings...

I realize that this article has nothing to do with CLL, but as a member of this ...

wizzard166

•5 years ago

5 Replies

Covid-19: Another good reason to get control our blood sugars?

Farxiga Tested as COVID-19 Tx; Intensify Metabolic Control for Prevention “New research from Glytec suggests that in-hospital mortality is more than...

Farxiga Tested as COVID-19 Tx; Intensify Metabolic Control for Prevention “New ...

hsouter

•5 years ago

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ASCO Outlines Oncologists' Role in COVID-19 Pandemic — Guidance for allocating scarce resources

ASCO Outlines Oncologists' Role in COVID-19 Pandemic — Guidance for allocating scarce resources “One of the most difficult challenges of the COVID-19 pandemic...

ASCO Outlines Oncologists' Role in COVID-19 Pandemic — Guidance for allocating s...

hsouter

•5 years ago

Be the first to reply

Can Boosting Nitric Oxide Prevent Coronavirus? Forum Know-it-alls what's your opinion.

Prevent Coronavirus by boosting Nitric Oxide in blood. Eating Beetroot garlic fresh meat can do this! I'm a CLL patient and I'm looking at things that can...

Prevent Coronavirus by boosting Nitric Oxide in blood. Eating Beetroot garlic fr...

Hidden

•5 years ago

15 Replies

Just beginning...

This is my first post. I have nothing to contribute so far. Had first visit with hemotologist in Dec. with a follow up visit to be this month. That was...

This is my first post. I have nothing to contribute so far. Had first visit with...

redhead1287

•5 years ago

12 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for April 2020

UK Zoom meeting - COVID-19 and shielding update for UK CLL Patients

Found a lump 🤔

Covid-19 Vaccines

Surviving Covid19

Shielding letter

Scenarios for ending lockdown and how this will impact on those with CLL

good news and bad news

Shielding letter from NHE

Leukemia And COVID-19

Venetoclax 17p patient

Sheilding letter - I got one

Dr. Neil Kay: CLL Society Webinar, Just Diagnosed: What Do I Need to Know?

Imbruvuca cost one last time.

Good news

Imbruvica and Gazyva

Has anyone experience face and neck swelling while taking Imbruvica?

Can't accept CLL diagnosis.

Mouth ulcer that does not go away.

Going down the allotment

Ventoclax. Node bigger than 2 months ago

Imbruvica cost exact figures

Covid-19: What, if anything, can we learn from integrative oncology experts?

Is everyone with CLL on the UK Government Vulnerable/Shielding List ?

Dapsone and Diabetes

COVID-19: Maybe Just Say NO? — Nitric oxide precursors should be tried for prevention

Update On COVID 19 AND STROKES

Covid-19: Another good reason to get control our blood sugars?

ASCO Outlines Oncologists' Role in COVID-19 Pandemic — Guidance for allocating scarce resources

Can Boosting Nitric Oxide Prevent Coronavirus? Forum Know-it-alls what's your opinion.

Just beginning...

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