Posts - CLL Support | HealthUnlocked

CLL Support

23,337 members•40,046 posts

All posts for September 2016

Accidental Cure For Blood Cancers

See this and thought well worth a share with community....

Hidden

•8 years ago

2 Replies

Surprisingly simple common cold vaccine may defend against many strains

'As common as the common cold is, scientists have so far been unable to develop a viable vaccine against it, largely due to the fact that there are over 100...

'As common as the common cold is, scientists have so far been unable to develop ...

AussieNeil

Administrator•8 years ago

1 Reply

ALC numbers

Hi all, Just an update on my earlier post last month following a bout of the flu when my ALC had moved from 38 to 43.11 in a week. Now happy to say still at 43...

Hi all, Just an update on my earlier post last month following a bout of the flu...

Hidden

•8 years ago

2 Replies

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The Americas declared the first region to eliminate the measles

As it was with smallpox, polio, rubella and congenital rubella syndrome, the Americas has become the first region in the world to eliminate measles. The...

As it was with smallpox, polio, rubella and congenital rubella syndrome, the Ame...

AussieNeil

Administrator•8 years ago

3 Replies

Dandelion root?

This is a link sent to me by my daughter - as always, it needs more in-depth research and lacks references. I'd be interested to know if anyone has more...

This is a link sent to me by my daughter - as always, it needs more in-depth res...

deveritt

•8 years ago

9 Replies

EFT & CLL

Anyone in our CLL support group (or elsewhere) using EFT*? For anyone curious or interested, please visit:...

Anyone in our CLL support group (or elsewhere) using EFT*? For anyone curious ...

gotCLL

•8 years ago

1 Reply

Thyroid side effect from Checkpoint inhibitors (PD-1/PD-L1)

A heads up alert to patients considering or now using Therapies containing PD-1 or PD-L1 Checkpoint inhibitors....

A heads up alert to patients considering or now using Therapies containing PD-1 ...

ThreeWs

•8 years ago

3 Replies

Meeting in New Jersey on Oct 6th?

Hi, If just one more person signs up, I will be in New Jersey Oct 6th for a CLL meeting if you want to meet in person. I will be talking about support groups...

Hi, If just one more person signs up, I will be in New Jersey Oct 6th for a CLL ...

bkoffman

CLL CURE Hero•8 years ago

2 Replies

Acalabrutinib trial in Oxford?

I am in a clinical trial in Salt Lake City Utah, receiving 200mg/day ACP-196 since may 2015 with good results and almost no side effects. As I am moving to...

I am in a clinical trial in Salt Lake City Utah, receiving 200mg/day ACP-196 si...

clemens

•8 years ago

2 Replies

Let there be light !

Does anybody know any books at all that have any 'positivity' about how to live with CLL. Since I was diagnosed five years ago all I encounter is dark despair....

Does anybody know any books at all that have any 'positivity' about how to live ...

markie1

•8 years ago

10 Replies

Google Scholar

For those who look up everything and may not know about Google Scholar... This search engine searches scholarly and published papers, journal articles etc. You...

For those who look up everything and may not know about Google Scholar... This s...

virdieblue

•8 years ago

4 Replies

Itchy skin

Hi first post to this site though I've read others and it doesn't appear that any post is seen as trivial. I was diagnose with nhl about 13 years ago which was...

Hi first post to this site though I've read others and it doesn't appear that an...

Lolleper

•8 years ago

7 Replies

ACP 196

I'm waiting to find out if I'm IGHV mutated or not. If I am I'm less willing to undertake FCR. Does anybody know anything about the btk inhibitor ACP 196. How...

I'm waiting to find out if I'm IGHV mutated or not. If I am I'm less willing to ...

Kenn123

•8 years ago

1 Reply

ACP-196 trial in EU New here, need Ur help

I am in a clinical trial in Salt Lake City Utah, receiving 200mg/day ACP-196 since may 2015 with good results and almost no side effects. As I am moving to...

I am in a clinical trial in Salt Lake City Utah, receiving 200mg/day ACP-196 si...

clemens

•8 years ago

2 Replies

Starting Ibrutinib

Hello all, I've been w&w for 6 years and now have several bothersome nodes, severe fatigue and labs are indicating CLL progression. Due to my non-mutated...

Hello all, I've been w&w for 6 years and now have several bothersome nodes, seve...

kimiD

•8 years ago

19 Replies

Hello all

Just joined and appreciate all the folks who contribute!!

Psalm4610

•8 years ago

6 Replies

Frontlien Therapy, CLL Doctors list and Newsletter

Hi, This week in The Basics section, we’ve posted an article about Frontline Therapy I wrote about what factors are considered when making treatment decisions...

Hi, This week in The Basics section, we’ve posted an article about Frontline The...

bkoffman

CLL CURE Hero•8 years ago

3 Replies

Making drug development less secretive could lead to quicker, cheaper therapies

'Our new research, published today in the journal ACS Central Science, shows that with the right investment, an open source drug discovery system – based on...

'Our new research, published today in the journal ACS Central Science, shows tha...

AussieNeil

Administrator•8 years ago

7 Replies

UN calls for clinical trial transparency

'In a landmark report released today, the United Nations called on governments worldwide to pass legislation requiring clinical trials to be registered, and...

'In a landmark report released today, the United Nations called on governments w...

AussieNeil

Administrator•8 years ago

Be the first to reply

what's the best diet for pediatric ALL cancer

Child is 9 years old Female. now just completed 2 months severe treatment to kill lymphoblasts. Nurses says don't eat fruits (because they expose to...

Child is 9 years old Female. now just completed 2 months severe treatment to ki...

rajuginne

•8 years ago

1 Reply

10 ways tech is improving cancer research

A Techrepublic article has just highlighted some exciting technological developments, with the following probably more relevant to CLL than the other items,...

A Techrepublic article has just highlighted some exciting technological developm...

AussieNeil

Administrator•8 years ago

2 Replies

Getting regular clinical massages to boost the immune levels.

I was wondering if any of you see a massage therapist or an acupuncturist on a regular basis. If so do you have any stories to share regarding the positive...

I was wondering if any of you see a massage therapist or an acupuncturist on a r...

ozarkharper

•8 years ago

7 Replies

Are you taking appropriate on-line precautions? 500 million Yahoo account access details confirmed stolen

'Yahoo “has confirmed that a copy of certain user account information was stolen from the company’s network in late 2014 by what it believes is a...

'Yahoo “has confirmed that a copy of certain user account information was stolen...

AussieNeil

Administrator•8 years ago

8 Replies

Turmeric, Michael Mosley proves efficacy..

Last episode of "Trust me I'm a doctor" shows positive result of tumeric in combating cancer. Not caps or supplements, but the powder was used effectively...

Last episode of "Trust me I'm a doctor" shows positive result of tumeric in c...

luckyackerl

•8 years ago

20 Replies

Newly Diagnosed CLL plus CTCL

I celebrated my 60th birthday last May by being diagnosed with CTCL (cutaneous T-cell lymphoma) and CLL (Stage 0, all genetic markers in my favor). Initially I...

I celebrated my 60th birthday last May by being diagnosed with CTCL (cutaneous T...

prhamann

•8 years ago

11 Replies

FCR for IGHV unmutated

Hi, I've pulled the FCR arm in a clinical trial in UK (was hoping for Ibrutinib). I've been 5 years w and w and haven't received any treatment. Extreme fatigue...

Hi, I've pulled the FCR arm in a clinical trial in UK (was hoping for Ibrutinib)...

Kenn123

•8 years ago

16 Replies

Smoking Permanently Damages Your DNA, Study Finds

'Smoking scars DNA in clear patterns, researchers reported Tuesday. Most of the damage fades over time, they found — but not all of it. Their study of...

'Smoking scars DNA in clear patterns, researchers reported Tuesday. Most of the ...

AussieNeil

Administrator•8 years ago

4 Replies

ASCO 2016: Dr. O'Brien on Idelalisib and liver inflammation

This week in the Conference Coverage section of the CLL Society website, we’ve posted another interview with Dr. Susan O’Brien out of UCI where we discussed an...

This week in the Conference Coverage section of the CLL Society website, we’ve p...

bkoffman

CLL CURE Hero•8 years ago

2 Replies

Do I need someone to oversee?

This post might be a little long and so I apologize in advance. I was diagnosed with ITP and lymphoma in the spring. At first the doctor said it was not CLL....

This post might be a little long and so I apologize in advance. I was diagnosed ...

Clsmith

•8 years ago

6 Replies

First 3 month follow up after chemo

Well I went to the Cleveland Clinic for my first 3 month follow up after having BR from December to May. I am happy to report that the Dr says I'm in complete...

Well I went to the Cleveland Clinic for my first 3 month follow up after having ...

momof12

•8 years ago

9 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for September 2016

Accidental Cure For Blood Cancers

Surprisingly simple common cold vaccine may defend against many strains

ALC numbers

The Americas declared the first region to eliminate the measles

Dandelion root?

EFT & CLL

Thyroid side effect from Checkpoint inhibitors (PD-1/PD-L1)

Meeting in New Jersey on Oct 6th?

Acalabrutinib trial in Oxford?

Let there be light !

Google Scholar

Itchy skin

ACP 196

ACP-196 trial in EU New here, need Ur help

Starting Ibrutinib

Hello all

Frontlien Therapy, CLL Doctors list and Newsletter

Making drug development less secretive could lead to quicker, cheaper therapies

UN calls for clinical trial transparency

what's the best diet for pediatric ALL cancer

10 ways tech is improving cancer research

Getting regular clinical massages to boost the immune levels.

Are you taking appropriate on-line precautions? 500 million Yahoo account access details confirmed stolen

Turmeric, Michael Mosley proves efficacy..

Newly Diagnosed CLL plus CTCL

FCR for IGHV unmutated

Smoking Permanently Damages Your DNA, Study Finds

ASCO 2016: Dr. O'Brien on Idelalisib and liver inflammation

Do I need someone to oversee?

First 3 month follow up after chemo

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