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CLL Support

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All posts for February 2024

13q deleted. What are first treatment options.

what are best first treatment options. I’m really scared of tumor lysis.

elm1

•2 months ago

9 Replies

how common is tumor lysis syndrome after infusions?

Im reading about cll infusion treatment. A side effect is tumor lysis syndrome. I'm wondering how common that is

Im reading about cll infusion treatment. A side effect is tumor lysis syndrome....

elm1

•2 months ago

20 Replies

Leukemia Article

I thought I would share this interesting study I came across. https://www.hindawi.com/journals/omcl/2015/454659/

I thought I would share this interesting study I came across. https://www.hin...

ASUgrad2021

•2 months ago

2 Replies

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on watch and wait for 6 years. Numbers are going up and doc this treatment is coming

So what have people been taking for first time treatments. My numbers are going up and it seems that treatment will be inevitable. My doctor suggested a...

So what have people been taking for first time treatments. My numbers are going...

elm1

•2 months ago

32 Replies

Afraid of Low blood counts

Hello everyone - wishing you all a healthy journey/recovery. My Mother has started venetoclax since December, was on calquence previously but had to switch due...

Hello everyone - wishing you all a healthy journey/recovery. My Mother has start...

LeeB75

•2 months ago

5 Replies

Looks like here we go again...to treatment.

I have not been on this site a lot lately (apologies) but have found it very useful, knowledgeable and kind. In 2020, after 10 years, my CLL became active, I...

I have not been on this site a lot lately (apologies) but have found it very use...

Dodger47

•2 months ago

10 Replies

Acalabrutinib and brain fog

Hi! I am in my 4th week of taking acalabrutinib for CLL and every morning my brain feels like its had a sleeping tablet or a large slug of alcohol, but the...

Hi! I am in my 4th week of taking acalabrutinib for CLL and every morning my bra...

Tivi19

•2 months ago

3 Replies

Criteria to treat CLL

Good morning, My Haematologist has again recommended I start treatment for CLL. Yet, I know that I've read on here that there are set criteria for doing so....

Good morning, My Haematologist has again recommended I start treatment for CLL....

Ange324

•2 months ago

12 Replies

People with high blood levels of niacin, (vitamin B3), may be more likely to have a heart attack or stroke than those with lower levels

I have a confession to make: I take vitamin supplements. Why is this a confession? Well, because research has indicated for years that dietary supplements...

I have a confession to make: I take vitamin supplements. Why is this a confessio...

AussieNeil

Administrator•2 months ago

9 Replies

CLL specialists

Hello, My CLL specialist left town and I am left with only her NP. I am at a decision tree about my V + O treatment and am trying to find a CLL center in...

Hello, My CLL specialist left town and I am left with only her NP. I am at a ...

skipro

•2 months ago

35 Replies

residual CLL in lymphnodes

Hi everyone, I am trying to recall and find an article that discusses residual disease in lymphnodes and soft tissue masses even after the bone marrow is...

Hi everyone, I am trying to recall and find an article that discusses residua...

skipro

•2 months ago

1 Reply

Beaconthecat

Diagnosed last April thru a lymph node biopsy....results SLL...currently on W&W...a few more nodes have emerged but feel good, no symptoms, exercise hard and...

Diagnosed last April thru a lymph node biopsy....results SLL...currently on W&W....

Beaconthecat

•2 months ago

4 Replies

Quercetin

I am taking Vimerson Health's Tumeric/Quercetin/Bromelain combination. Presently only taking the recommended two capsules per day in the morning. Been on...

I am taking Vimerson Health's Tumeric/Quercetin/Bromelain combination. Presentl...

CBME

•2 months ago

10 Replies

Small bowel intestinal overgrowth

I have been diagnosed by my gastroenterologist with sibo after a breath test. The treatment prescribed is xifaxan. I’m waiting for approval by insurance. I’m...

I have been diagnosed by my gastroenterologist with sibo after a breath test. T...

Bethsaida

•2 months ago

6 Replies

Prostate Biopsy / Ibrutinib

I am on Ibrutinib for my CLL. Do I stop taking my Ibrutinib for a few days prior and after the biopsy? Thank you.

I am on Ibrutinib for my CLL. Do I stop taking my Ibrutinib for a few days prior...

Dyba

•2 months ago

4 Replies

Covid & Plaxoide

hi all, it’s been 5 days on plaxoide and not feeing very well. I’ve been nauseous and no energy lost my appetite 5 days ago drinking plenty fluids. I’m...

hi all, it’s been 5 days on plaxoide and not feeing very well. I’ve been nauseou...

Pekingese

•2 months ago

14 Replies

The 2024 Global Patient Survey invites CLL patients and caregivers to share their experiences

Every two years, the Lymphoma Coalition, a worldwide network of patient groups with a full or partial focus on providing support to lymphoma patients,...

Every two years, the Lymphoma Coalition, a worldwide network of patient groups ...

CLLerinOz

Administrator•2 months ago

1 Reply

more by moonlight

breath taking

skipro

•2 months ago

10 Replies

By the light of the full moon

Awe I love the beautiful creations in nature These were taken out snowshoeing in the light of the full moon. Technically this one is called the “Snow Moon”...

Awe I love the beautiful creations in nature These were taken out snowshoeing ...

skipro

•2 months ago

26 Replies

PNH - blood test

I just received this PNH test result and was wondering if anyone knows what it was testing for. I don't see my doctor until next week and I am curious....

I just received this PNH test result and was wondering if anyone knows what it w...

rcusher

•2 months ago

8 Replies

Dental treatment and CLL

My husband has been taking Acalabrutinib for nearly two years. His lymphocyte count is around 40 and other blood results normal. His dentist says he needs 4...

My husband has been taking Acalabrutinib for nearly two years. His lymphocyte c...

Leo71

•2 months ago

9 Replies

Immunoglobulin tests

Hi again. Yesterday I asked my GP if I could have my blood immunoglobulin levels checked as I like to keep a handle on those parameters which can indicate the...

Hi again. Yesterday I asked my GP if I could have my blood immunoglobulin levels...

Fogey

•2 months ago

90 Replies

Shingrix side effects

just wondered what people’s experiences are with side effects after Shingrix? I had the first vaccine and was ill the next day with headaches, chills and...

just wondered what people’s experiences are with side effects after Shingrix? I ...

Mandy56

•2 months ago

30 Replies

“N95 Masks vs. KN95 Masks: Which Face Coverings Should We Be Wearing Right Now?”

Rolling Stone compares. https://www.rollingstone.com/product-recommendations/lifestyle/n95-vs-kn95-masks-1044184/

Rolling Stone compares. https://www.rollingstone.com/product-recommendations/li...

Lavinia-Blue

•2 months ago

28 Replies

“Look up”

Awe, what a view while out on my snowshoes tonight. Made me think about the theme to look up to notice things like Gods beautiful creations Mindfulness...

Awe, what a view while out on my snowshoes tonight. Made me think about the th...

skipro

•2 months ago

6 Replies

Survival Rates

Good afternoon. I have now had CLL for one month and had a question for more knowledgable individuals. In this forum and my in-person CLL group, I keep hearing...

Good afternoon. I have now had CLL for one month and had a question for more kno...

EastBayDad

•2 months ago

49 Replies

Pre diabetic

Pre diabetic ive been diagnosed with this no advice and i have lots of other commodities .my BMI is in range .my question is can CLL which i have cause pr...

Pre diabetic ive been diagnosed with this no advice and i have lots of other com...

pet-lamb

•2 months ago

7 Replies

Hair Transplant anyone?

So my vanity plagues me, I'm on watch and wait for 4.5 years, last blood count around 60k. I know many of you have bigger concerns but i can get one of these...

So my vanity plagues me, I'm on watch and wait for 4.5 years, last blood count a...

Research123

•2 months ago

3 Replies

ASH 2023 Unveils A “New Gold Standard” for CLL TreatmentUpdated Jan 17, 2024ByRuth FeinMedical ReviewerKerry A. Rogers, MD

I came across this amazing article. CLL/SLL is moving closer to a functional cure. I think it's practice-changing....

I came across this amazing article. CLL/SLL is moving closer to a functional cu...

bagelstreet225

•2 months ago

12 Replies

Anyone with CLL and Myelodysplasia

Anyone with CLL and Myelodysplasia? A month ago I was diagnosed with Myelodysplasia after undergoing a biopsy when I was at the end of the Venetoclax...

Anyone with CLL and Myelodysplasia? A month ago I was diagnosed with Myelodyspla...

Priss69

•2 months ago

4 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for February 2024

13q deleted. What are first treatment options.

how common is tumor lysis syndrome after infusions?

Leukemia Article

on watch and wait for 6 years. Numbers are going up and doc this treatment is coming

Afraid of Low blood counts

Looks like here we go again...to treatment.

Acalabrutinib and brain fog

Criteria to treat CLL

People with high blood levels of niacin, (vitamin B3), may be more likely to have a heart attack or stroke than those with lower levels

CLL specialists

residual CLL in lymphnodes

Beaconthecat

Quercetin

Small bowel intestinal overgrowth

Prostate Biopsy / Ibrutinib

Covid & Plaxoide

The 2024 Global Patient Survey invites CLL patients and caregivers to share their experiences

more by moonlight

By the light of the full moon

PNH - blood test

Dental treatment and CLL

Immunoglobulin tests

Shingrix side effects

“N95 Masks vs. KN95 Masks: Which Face Coverings Should We Be Wearing Right Now?”

“Look up”

Survival Rates

Pre diabetic

Hair Transplant anyone?

ASH 2023 Unveils A “New Gold Standard” for CLL TreatmentUpdated Jan 17, 2024ByRuth FeinMedical ReviewerKerry A. Rogers, MD

Anyone with CLL and Myelodysplasia

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