Posts - CLL Support | HealthUnlocked

CLL Support

23,337 members•40,046 posts

All posts for January 2021

Nausea on venetoclax

Nausea without vomiting on venetoclax any suggestions

Kyson3090

•4 years ago

32 Replies

Research site

For those interested in research I hadn't come across this site before and hopefully it's some use to someone else. It's a huge repository of open source...

For those interested in research I hadn't come across this site before and hopef...

Strube

•4 years ago

1 Reply

Turmeric Reactions. Be sure to tell your doctor what supplements you take.

Many CLL people take turmeric. This article is relevant. We need to make sure our doctors know what we are taking. "Woman's Liver Problems Tied to Her Turmeric...

Many CLL people take turmeric. This article is relevant. We need to make sure ou...

davidgrush

•4 years ago

2 Replies

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Ivermectin Would prevent or Treat Covid?

There are news on that.. coming mainly from tests in Australia... Would you have any confirmation on that?

There are news on that.. coming mainly from tests in Australia... Would you have...

AshGS

•4 years ago

2 Replies

Sinopharm or AstraZeneca?

As I am on Ibrutinib for 6 months now for CLL. As I don't want to go for mRNA based vaccines. So I would like to have your views/experience on which is...

As I am on Ibrutinib for 6 months now for CLL. As I don't want to go for mRNA ...

AshGS

•4 years ago

5 Replies

Vaccine Response

Wonder if there will ever be a recommendation, for those who do not respond to first two covid vaccines to get a third dose.

Wonder if there will ever be a recommendation, for those who do not respond to f...

Davidcara

•4 years ago

5 Replies

alemtuzamab + rituxan

anyone have this combo to control CLL growth?

greygirl

•4 years ago

8 Replies

rituxan hycela

anyone tried this yet? how did it go?

greygirl

•4 years ago

3 Replies

Webinar - Living well with CLL - 3.30pm Monday 15th Feb

Lymphoma Action and Leukaemia Care are back with their next joint webinar on Monday 15th February 2021 at 3,30pm Please join to explore strategies that may aid...

Lymphoma Action and Leukaemia Care are back with their next joint webinar on Mon...

Jm954

Administrator•4 years ago

9 Replies

Bumpy ride

My CLL journey of a&e admission, neutropenic sepsis, failed chemo, many blood transfusions, IVIG and Ibrutinib. Now, Squamous Cell Carcinoma and Oropharyngeal...

My CLL journey of a&e admission, neutropenic sepsis, failed chemo, many blood tr...

Meic13

•4 years ago

23 Replies

Vitamin D strengths - beware

Like many CLL patients I always take Vitamin D in the winter. I have to be honest that I’ve not paid much attention to dose strengths until the Covid pandemic....

Like many CLL patients I always take Vitamin D in the winter. I have to be hones...

Snellybob

•4 years ago

15 Replies

Has the Vaccine.

Just a quick note. My wife and I both had the Oxford Vaccine on Wednesday, without problem. However, we were both quite ill on Thursday with flu like...

Just a quick note. My wife and I both had the Oxford Vaccine on Wednesday, with...

Eric70

•4 years ago

6 Replies

Completed 1 week of calquence for CLL with no side effects. Is it safe to assume I will not get the much dreaded side effects later?

Side effects of calquence

Mackiec1108

•4 years ago

9 Replies

How long to self isolate after 10days

Hi everyone, thanks for all your support. Husbands ten day isolation period is up on Sunday, I wondered if anyone knows how long he might still be shedding the...

Hi everyone, thanks for all your support. Husbands ten day isolation period is u...

jendur

•4 years ago

12 Replies

I am experiencing varicose leg pain. Is this associated with calquence?

Varicose leg pain

Mackiec1108

•4 years ago

2 Replies

False covid negative and my covid journey

Dear All, On January 5 I began to feel ill, like really ill. Streams and streams of mucus from both nose and eyes, painful sinuses, painful teeth, painful...

Dear All, On January 5 I began to feel ill, like really ill. Streams and streams...

Provence

•4 years ago

40 Replies

Aftermath of horrible pimply rash on skull with Ibrutinib

Hello dear All, I have not written for many weeks although I had intended to do so and let you know how my problem has been resolved. Another illness...

Hello dear All, I have not written for many weeks although I had intended to do ...

Provence

•4 years ago

4 Replies

How sick am I ?

I have had several FLOW tests in the past, which include a measurement of the percentate of cells having CD19+ markers. This % was around 11% when first...

I have had several FLOW tests in the past, which include a measurement of the pe...

markjeep51

•4 years ago

6 Replies

Indigestion and head pain

Hello, all. So, my father was diagnosed back in November time. He's currently in the watch and wait stage and is not due more bloods until May. He has also...

Hello, all. So, my father was diagnosed back in November time. He's currently i...

Shanetheson

•4 years ago

2 Replies

'Rare Sontaneous Cure'

Hi All, I have just read Tortilla's post, on CLL, and he mentions' Rare Spontaneous Cure', Can anyone give any medical reponse to this, as I have never heard...

Hi All, I have just read Tortilla's post, on CLL, and he mentions' Rare Spontane...

Vindicatrix

•4 years ago

2 Replies

Novavax vaccine proves effective in clinical trials

More good news today on the vaccine front https//www.bbc.co.uk/news/amp/uk-55850352 The UK has ordered 60 million shots.

More good news today on the vaccine front https//www.bbc.co.uk/news/amp/uk-55850...

bennevisplace

•4 years ago

1 Reply

The passing of a CLL pioneer and hero: Joe Greenblatt

Sad news. My long time CLL buddy and a founding member of the CLL Society Patient Advisory Board, Joe Greenblatt sailed away on January 23, 2021 after a long...

Sad news. My long time CLL buddy and a founding member of the CLL Society Patien...

bkoffman

CLL CURE Hero•4 years ago

18 Replies

CLL Glandular Fever - Diet -M.E known as chronic fatigue

Sorry every one 🙈 these things keep popping in to my head . Sorry if these questions have already been answered in the past . Just wondered if anyone has...

Sorry every one 🙈 these things keep popping in to my head . Sorry if these ques...

Stavrou1

•4 years ago

6 Replies

Richter’s Transformation - Results of my Pseudo Richter Human Genome study

Hi. As I mentioned earlier, Professor Elias Campo did a study of my Ricther to try to understand the behavior I copy and paste the result Our cases are helping...

Hi. As I mentioned earlier, Professor Elias Campo did a study of my Ricther to t...

Priss69

•4 years ago

Be the first to reply

Germany says Astrazeneca's vaccine is not for over 65s, European regulator statement due tomorrow.

The German vaccination authority is reported to have blocked the use of AZ's vaccine in people age over 65, because, they say, its efficacy in older people has...

The German vaccination authority is reported to have blocked the use of AZ's vac...

bennevisplace

•4 years ago

28 Replies

Latest test results , done in Dec

Hi All Hope your keeping well , and doing well . These were my latest results , is there anything I should be concerned about , am a worrier. Was...

Hi All Hope your keeping well , and doing well . These were my latest resul...

Stavrou1

•4 years ago

16 Replies

Food and nutrition for CLL

There are lots of things you can do with food and nutrition. My husband has CLL we were told there was nothing to do but wait and watch. Then 4 months later...

There are lots of things you can do with food and nutrition. My husband has CLL...

Abbysmom

•4 years ago

6 Replies

Richter's in Remission - 11 months post transplant

I've been away from HealthUnlocked for some time following my allogenic bone marrow transplant for Richter's Transformation 11 months ago at MDA Houston. I'm...

I've been away from HealthUnlocked for some time following my allogenic bone mar...

SarasotaPaul

•4 years ago

17 Replies

Join CLL Ireland new Facebook private chat group

Hi all CLL Ireland has a new private Facebook group page to allow patients and their families to connect with each other. We are trying to create a more...

Hi all CLL Ireland has a new private Facebook group page to allow patients and ...

Irishcll

•4 years ago

3 Replies

Richter’s Transformation - Update 27-01-2021

I share the case of a boy who is in our Ricther Transformation group. He went from entering Palliative to complete remission without transplantation. I wanted...

I share the case of a boy who is in our Ricther Transformation group. He went fr...

Priss69

•4 years ago

13 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for January 2021

Nausea on venetoclax

Research site

Turmeric Reactions. Be sure to tell your doctor what supplements you take.

Ivermectin Would prevent or Treat Covid?

Sinopharm or AstraZeneca?

Vaccine Response

alemtuzamab + rituxan

rituxan hycela

Webinar - Living well with CLL - 3.30pm Monday 15th Feb

Bumpy ride

Vitamin D strengths - beware

Has the Vaccine.

Completed 1 week of calquence for CLL with no side effects. Is it safe to assume I will not get the much dreaded side effects later?

How long to self isolate after 10days

I am experiencing varicose leg pain. Is this associated with calquence?

False covid negative and my covid journey

Aftermath of horrible pimply rash on skull with Ibrutinib

How sick am I ?

Indigestion and head pain

'Rare Sontaneous Cure'

Novavax vaccine proves effective in clinical trials

The passing of a CLL pioneer and hero: Joe Greenblatt

CLL Glandular Fever - Diet -M.E known as chronic fatigue

Richter’s Transformation - Results of my Pseudo Richter Human Genome study

Germany says Astrazeneca's vaccine is not for over 65s, European regulator statement due tomorrow.

Latest test results , done in Dec

Food and nutrition for CLL

Richter's in Remission - 11 months post transplant

Join CLL Ireland new Facebook private chat group

Richter’s Transformation - Update 27-01-2021

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