Posts - CLL Support | HealthUnlocked

CLL Support

23,337 members•40,046 posts

All posts for March 2016

THANK YOU ALL!

I posted this on a reply to one of my topics I just wanted to thank all of you for all of your help and assistance during this hard and challenging process....

I posted this on a reply to one of my topics I just wanted to thank all of you f...

Swissnology

•9 years ago

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New HU feature - draw attention of other members to your submissions via In Message Shout-outs (@username)

I can now reveal the major reason for the revamp a week ago in how text is handled when you write a post or reply. This site now allows you to send a...

I can now reveal the major reason for the revamp a week ago in how text is handl...

AussieNeil

Administrator•9 years ago

2 Replies

Bone marrow biopsy

Hello everybody I am going to MD Anderson on Monday for the first visit I haven't seen a doctor yet and I'm told that's standard practice is to get your usual...

Hello everybody I am going to MD Anderson on Monday for the first visit I haven'...

Swissnology

•9 years ago

50 Replies

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13 years of watching and waiting

Now it seems likely that, age 79, I am probably going to need some kind of treatment for CLL. I am wonderng how disabling that will be: living alone with the...

Now it seems likely that, age 79, I am probably going to need some kind of treat...

Polfin

•9 years ago

40 Replies

ASH 2015: Dr. Jones on combining venetoclax with obinutuzumab, and details about the LRF meeting this weekend and new CLL support groups

Friends, This week in the 2015 Conference Coverage section of http://cllsociety.org we have posted an interview from ASH 2015 with Dr. Jeff Jones from Ohio...

Friends, This week in the 2015 Conference Coverage section of http://cllsociety....

bkoffman

CLL CURE Hero•9 years ago

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Outrunning my cancers

Hi everybody, I will be running a marathon on April 10th (2 weeks from now) and would appreciate your support even if it is just thoughts and prayers. This is...

Hi everybody, I will be running a marathon on April 10th (2 weeks from now) and ...

notgivingup_2

•9 years ago

3 Replies

1) Prednisone and lymph nodes 2) ultrasounds

My podiatrist prescribed prednisone for a inflamation in my foot. After a few days there was a noticeable decrease in the size of my lymph nodes. Does anyone...

My podiatrist prescribed prednisone for a inflamation in my foot. After a few da...

virdieblue

•9 years ago

16 Replies

Genomic Sequencing

I have a consult scheduled with a new doctor (on the ACOR CLL Expert list) who asked me if I were interested in genomic sequencing of my CLL, which is routine...

I have a consult scheduled with a new doctor (on the ACOR CLL Expert list) who a...

gemit2000

•9 years ago

40 Replies

Editing problem bugs with iPhones and iPads have been reported to HU

HU have recently enhanced text entry handling so that on PCs you can easily use Ctrl+b, Ctrl+i and Ctrl+u to format following text to bold, italic or...

HU have recently enhanced text entry handling so that on PCs you can easily use ...

AussieNeil

Administrator•9 years ago

14 Replies

Meningitis B row shows flaws in how vaccine decisions are made (NICE - UK)

The current UK debate over whether the Meningitis B vaccine should be extended to children over 1 year old might result in a shake-up of the NICE rules for...

The current UK debate over whether the Meningitis B vaccine should be extended t...

AussieNeil

Administrator•9 years ago

1 Reply

Stomach and mood disorders: how your gut may be playing with your mind

This post is only peripherally related to CLL in that it touches on the effects of inflammation on the gut/brain interface, but I'm sure will be of particular...

This post is only peripherally related to CLL in that it touches on the effects ...

AussieNeil

Administrator•9 years ago

20 Replies

Smartphone app brings the doctor to your phone

Improving Internet capacity has brought the promise of telehealth ever closer to reality. There's a real need for such a service in Australia, with much of...

Improving Internet capacity has brought the promise of telehealth ever closer to...

AussieNeil

Administrator•9 years ago

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Gene editing could provide a cure for HIV (and perhaps a cure for other viruses and even blood cancers?)

"While antiretroviral drugs do a good job of keeping HIV infections under control, scientists are working hard to come up with a full cure for the...

"While antiretroviral drugs do a good job of keeping HIV infections under contro...

AussieNeil

Administrator•9 years ago

10 Replies

Moderate Alcohol Consumption May Not Lead to Longer Life

While not CLL related, the question of whether we should cut back/halt our alcohol consumption is a common question at diagnosis. We now have a study that...

While not CLL related, the question of whether we should cut back/halt our alcoh...

AussieNeil

Administrator•9 years ago

10 Replies

To be or not to be

I have been going to specialist after specialist for months. I haven't gotten any answers. However most recently my labs came back slightly abnormal. My IgG...

I have been going to specialist after specialist for months. I haven't gotten an...

madamp

•9 years ago

8 Replies

Lower Vitamin D Levels Predict Poor Survival Outcomes in Melanoma, Breast Cancer and CLL

The Cancer Network has reported research findings that mirror those found for CLL and Vitamin D:...

The Cancer Network has reported research findings that mirror those found for CL...

AussieNeil

Administrator•9 years ago

13 Replies

Article - Drug pricing in America

Interesting article, especially concerning cancer drug pricing, by Leigh Purvis (AARP) In National Women's Health Activist newsletter....

Interesting article, especially concerning cancer drug pricing, by Leigh Purvis ...

virdieblue

•9 years ago

4 Replies

Monocytes

Had check up this time monocytes over the limit o f 1 , mine 2.3 White blood and lymphocytes up another 15 percent meaning in 6 months doubled Next test...

Had check up this time monocytes over the limit o f 1 , mine 2.3 White blood and...

Jsk1950

•9 years ago

3 Replies

CLL - dental problems link

I had an infection under a tooth & it was agreed the dentist would extract the tooth (I had Amoxicillin as antibiotic - as a side issue it was interesting for...

I had an infection under a tooth & it was agreed the dentist would extract the ...

dougstalbans

•9 years ago

4 Replies

Hello

Hello everyone, I'm 51 and was diagnosed with CLL 4 months ago and on watch and wait. I have always been very healthy but while on my honeymoon in November I...

Hello everyone, I'm 51 and was diagnosed with CLL 4 months ago and on watch and ...

Mommeekins

•9 years ago

7 Replies

Venetoclax in Relapsed deletion 17 CLL

Friends, This week in the 2015 Conference Coverage section of the CLLSociety.org we have posted my final interview with Dr. Stephan Stilgenbauer while we were...

Friends, This week in the 2015 Conference Coverage section of the CLLSociety.or...

bkoffman

CLL CURE Hero•9 years ago

2 Replies

Went for my 6 month check up.

I was a bit worried seeing my new doctor for the second time, but he's the best, I had an infection a few weeks ago but its gone, when the nurse and doc came...

I was a bit worried seeing my new doctor for the second time, but he's the best,...

ballyhoo

•9 years ago

8 Replies

The Benefits and Consequences of Legalized Marijuana

USA Centric, but no doubt there will be other states/countries looking to follow the states in the USA in legalising marijuana for at least medical use......

USA Centric, but no doubt there will be other states/countries looking to follow...

AussieNeil

Administrator•9 years ago

7 Replies

Health Check: is it bad to pop your pimples?

While not CLL specific, this article by Michelle Rodrigues, Consultant Dermatologist, St Vincent's Hospital, Melbourne may be of interest to those of us still...

While not CLL specific, this article by Michelle Rodrigues, Consultant Dermatolo...

AussieNeil

Administrator•9 years ago

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Cap reduces hair loss

This resource may be helpful to someone. http://cancer.unm.edu/2016/01/04/fda-clears-marketing-approval-for-device-to-reduce-hair-loss-during-chemotherapy-2/

This resource may be helpful to someone. http://cancer.unm.edu/2016/01/04/fda-...

magnolia_cat

•9 years ago

2 Replies

ACP-196 (BTK inhibitor acalabrutinib) Trial

Well, my husband is now at the 12 month point on this trial. Bloods etc are all OK. He had a bone marrow biopsy while we were at Kings last Monday and will...

Well, my husband is now at the 12 month point on this trial. Bloods etc are all...

babswade

•9 years ago

19 Replies

CLL Diagnosis Just 3 months ago

No treatment or cure the doctor said. Just watch and wait. Uh huh, just trees are born to watch and wait I thought. Found the only doctor brave enough to do...

No treatment or cure the doctor said. Just watch and wait. Uh huh, just trees ar...

JosephVidmar

•9 years ago

28 Replies

Worried

I have been on W and W since 2007. Visits to Consultant gradually moved to annual which I was pleased about. I went on Friday for this check to find my blood...

I have been on W and W since 2007. Visits to Consultant gradually moved to annu...

Spiritlove

•9 years ago

18 Replies

CLL new to list, Cold Virus and Swollen Nodes

Hi my name is Donna, I just found this list while searching for help with a problem I'm having. I have a cold and my lymph nodes are REALLY BIG and sore, My...

Hi my name is Donna, I just found this list while searching for help with a prob...

Hidden

•9 years ago

9 Replies

MRSA superbug’s resistance to antibiotics is broken!

Interesting multi-prong approach to killing bacteria - similar to that used in cancer treatment. Newly discovered chemical compounds can make MRSA bacteria...

Interesting multi-prong approach to killing bacteria - similar to that used in c...

AussieNeil

Administrator•9 years ago

1 Reply

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for March 2016

THANK YOU ALL!

New HU feature - draw attention of other members to your submissions via In Message Shout-outs (@username)

Bone marrow biopsy

13 years of watching and waiting

ASH 2015: Dr. Jones on combining venetoclax with obinutuzumab, and details about the LRF meeting this weekend and new CLL support groups

Outrunning my cancers

1) Prednisone and lymph nodes 2) ultrasounds

Genomic Sequencing

Editing problem bugs with iPhones and iPads have been reported to HU

Meningitis B row shows flaws in how vaccine decisions are made (NICE - UK)

Stomach and mood disorders: how your gut may be playing with your mind

Smartphone app brings the doctor to your phone

Gene editing could provide a cure for HIV (and perhaps a cure for other viruses and even blood cancers?)

Moderate Alcohol Consumption May Not Lead to Longer Life

To be or not to be

Lower Vitamin D Levels Predict Poor Survival Outcomes in Melanoma, Breast Cancer and CLL

Article - Drug pricing in America

Monocytes

CLL - dental problems link

Hello

Venetoclax in Relapsed deletion 17 CLL

Went for my 6 month check up.

The Benefits and Consequences of Legalized Marijuana

Health Check: is it bad to pop your pimples?

Cap reduces hair loss

ACP-196 (BTK inhibitor acalabrutinib) Trial

CLL Diagnosis Just 3 months ago

Worried

CLL new to list, Cold Virus and Swollen Nodes

MRSA superbug’s resistance to antibiotics is broken!

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