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CLL Support

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All posts for December 2015

Minor but unwelcome surprise on lab test

Hi friends Well my CBC was good, but my usually reliably normal liver enzymes unexpectedly were elevated. It is likely nothing significant, but if you are...

Hi friends Well my CBC was good, but my usually reliably normal liver enzymes u...

bkoffman

CLL CURE Hero•8 years ago

8 Replies

Why 1 in 5 cancer clinical trials fizzle

"Clinical trials are the scientific soul of cancer-cure advances, but nearly 20 percent of these publicly funded studies fail to draw enough patients to...

"Clinical trials are the scientific soul of cancer-cure advances, but nearly 20 ...

AussieNeil

Administrator•8 years ago

10 Replies

Just hoping

Just hoping you all had a great Christmas with no mishaps . We decided to stay home this year and the family come to us .My husband insisted that he was going...

Just hoping you all had a great Christmas with no mishaps . We decided to stay h...

PE1234

•8 years ago

8 Replies

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Prevalence and Economic Burden of Chronic Lymphocytic Leukemia (CLL) in the Era of Oral Targeted Therapies

This has been a banner year for developments in the treatment of CLL. In this last week of 2015 on the CLL Society website (http://cllsociety.org), in our...

This has been a banner year for developments in the treatment of CLL. In this la...

bkoffman

CLL CURE Hero•8 years ago

6 Replies

Vaccinations

This a odd first question for someone who has newly been diagnosed with CLL Stage A. I'm a teacher and I'm going to teach for a few months in Turkey. Does...

This a odd first question for someone who has newly been diagnosed with CLL Stag...

hatter_72

•8 years ago

5 Replies

Is it safe to go swimming in public pools if you have CLL?

Several members have asked this question over the years and recently I was sorely tempted on seeing a sparkling blue public swimming pool with very few...

Several members have asked this question over the years and recently I was sorel...

AussieNeil

Administrator•8 years ago

15 Replies

Merry Christmas

Merry Christmas to some very wise and wonderful people. I honestly don't know who or where I would go if I couldn't come here to share and learn. A Christmas...

Merry Christmas to some very wise and wonderful people. I honestly don't know wh...

meemsdream

•8 years ago

3 Replies

Christmas

Merry Christmas to you all. I hope you have a blessed day. 🎄🎄

Chriskw68

•8 years ago

1 Reply

Merry Christmas

Merry Christmas friends, thanks for your support. I got my diagnosis 2 years today, on my birthday not the best present but no treatment so far, still on wait...

Merry Christmas friends, thanks for your support. I got my diagnosis 2 years tod...

sue2412

•8 years ago

4 Replies

Ibrutinib/Gazyva

After being on Ibrutinib for 8 months, my numbers started to crawl up, so Gazyva was added to the mix. Since then, I have been so nauseated I barely go out of...

After being on Ibrutinib for 8 months, my numbers started to crawl up, so Gazyva...

Meesh31547

•8 years ago

10 Replies

Happy Festivus

Happy Festivus, Merry Christmas and all that seasonal stuff to all my family on this forum...have a great one

Happy Festivus, Merry Christmas and all that seasonal stuff to all my family on ...

DocM

•8 years ago

2 Replies

Temporarily stopping Ibrutinib

I have been fortunate enough to be on the fabulous Ibrutinib for just over a year, and it has brought my Lymphocyte count down from 252 to 5. Now, I require a...

I have been fortunate enough to be on the fabulous Ibrutinib for just over a yea...

Graham2222

•8 years ago

3 Replies

Rituximab and bendamustine

Hi all fellow cllers. Is anyone else on rituximab and bendamustine at the moment? I just started last Thursday- a half dose of each of them on 2 successive...

Hi all fellow cllers. Is anyone else on rituximab and bendamustine at the momen...

Donegal

•8 years ago

24 Replies

Happy Christmas - one and all

Due to a combination of having been away on holiday and being mega-busy on my return I've had minimal involvement over the last six weeks with the community....

Due to a combination of having been away on holiday and being mega-busy on my re...

Oleboyredw-uk

•8 years ago

3 Replies

lymphoeytes

just a post to say that my lymphoeytes witch were increasing by i-2% at each 3 mth visit to my blood work up has decreased for the first time last visit. I can...

just a post to say that my lymphoeytes witch were increasing by i-2% at each 3 m...

brad8

•8 years ago

20 Replies

Treatment

Just curious. Has anyone in this blog, either now or in the past, refused all treatment? If so, what happened?

Just curious. Has anyone in this blog, either now or in the past, refused all t...

RK66

•8 years ago

26 Replies

Radiation Doses- What to Worry about and What to Shrug Off when we have CLL

Hi friends I just revisited the issue of radiation risk on my blog http://bkoffman.blogspot.com with a focus on the exposures at very low doses. Bottom line-...

Hi friends I just revisited the issue of radiation risk on my blog http://bkoff...

bkoffman

CLL CURE Hero•8 years ago

9 Replies

Starting treatment in January

I was told at my appoint on the 13th December that I would need to start chemotherapy in January. Until now I've have been relatively healthy apart from...

I was told at my appoint on the 13th December that I would need to start chemoth...

Louiej

•8 years ago

16 Replies

prognosis for 11q deletion and unmutated stage 2 cll

I was diagnosed with Stage 2 cll with 11q deletion, not mutated and the CD38 marker on November 30,2015. I am 44 years old and have Type 1 diabetes. Does...

I was diagnosed with Stage 2 cll with 11q deletion, not mutated and the CD38 mar...

tammi71

•8 years ago

2 Replies

Newly diagnosed

I recently was diagnosed with stage 2 cll. I have had a cold and ran a fever off and on for about 6 weeks now. Is this something that I need to be concerned...

I recently was diagnosed with stage 2 cll. I have had a cold and ran a fever off...

tammi71

•8 years ago

5 Replies

CLL Christmas

Hi everyone, I just wanted to wish my fellow CLLrs all over the world a "Merry Christmas " and Happy NewYear. Make this the time you appreciate those around...

Hi everyone, I just wanted to wish my fellow CLLrs all over the world a "Merry...

BCTexas

•8 years ago

3 Replies

Another Forum for UK CLL

Whilst doing a bit of Googling on CLL, I stumbled across the following site. This does not seem to be well publicised, but seems quite comprehensive, with good...

Whilst doing a bit of Googling on CLL, I stumbled across the following site. Thi...

MR2Don

•8 years ago

4 Replies

Have Johnson & Johnson and AstraZeneca done one better than AbbVie, purchasing 55 percent of Acerta Pharma for acalabrutinib (ACP-196)?

"Earlier this year, AbbVie won an intense bidding war for Pharmacyclics, paying $21 billion for the company and the right to split sales of its potential...

"Earlier this year, AbbVie won an intense bidding war for Pharmacyclics, paying ...

AussieNeil

Administrator•8 years ago

10 Replies

Five UK CLL Patients to Sound Off

As mentioned earlier, I am leading an online discussion in January featuring CLL patients from around the world in an online "meet-up" with pharmaceutical...

As mentioned earlier, I am leading an online discussion in January featuring CLL...

andrewschorr

•8 years ago

9 Replies

Offer of enrolling on CALiBRe trial

This is my 1st post. I was diagnosed with cll in May 2008 and been on w&w since. In march this year nodes mainly on left side of neck became more pronounced...

This is my 1st post. I was diagnosed with cll in May 2008 and been on w&w since....

kendo1

•8 years ago

33 Replies

Obinutuzumab and heart disease experience - it's essential drug be given slower than usual

I have just finished a six-month course of Chlorambucil and obinituzumab (I have heart disease that was recently sorted by stents). For anyone with heart...

I have just finished a six-month course of Chlorambucil and obinituzumab (I have...

MrMidnight

•8 years ago

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colds and coughs

My husband and I both had head colds last week. His had settled in his chest with a fearsome cough, low grade fever and general misery. We have been to...

My husband and I both had head colds last week. His had settled in his chest wi...

dwolden

•8 years ago

8 Replies

Am I a hypochondriac?

Hi all - I'd welcome your comments on a problem I've got. Diagnosed four years ago, and lucky enough to be WAW for most of the time. But my problem is this,...

Hi all - I'd welcome your comments on a problem I've got. Diagnosed four years a...

DMF_online

•8 years ago

8 Replies

Effect of CLL on common illnesses

Hi, First, background. Male, 69, diagnosed early 2015, W&W, lympho count 17 and stable to date. Right, recently got a nasty bout of "common cold"; this one is...

Hi, First, background. Male, 69, diagnosed early 2015, W&W, lympho count 17 and ...

MR2Don

•8 years ago

14 Replies

Trying to find what happens

Sorry for my english...our wbc was 29100 15 months ago...we decided to follow an antioxidant died which includes the juice of red beets carrots apples...

Sorry for my english...our wbc was 29100 15 months ago...we decided to follow an...

zoita

•8 years ago

11 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for December 2015

Minor but unwelcome surprise on lab test

Why 1 in 5 cancer clinical trials fizzle

Just hoping

Prevalence and Economic Burden of Chronic Lymphocytic Leukemia (CLL) in the Era of Oral Targeted Therapies

Vaccinations

Is it safe to go swimming in public pools if you have CLL?

Merry Christmas

Christmas

Merry Christmas

Ibrutinib/Gazyva

Happy Festivus

Temporarily stopping Ibrutinib

Rituximab and bendamustine

Happy Christmas - one and all

lymphoeytes

Treatment

Radiation Doses- What to Worry about and What to Shrug Off when we have CLL

Starting treatment in January

prognosis for 11q deletion and unmutated stage 2 cll

Newly diagnosed

CLL Christmas

Another Forum for UK CLL

Have Johnson & Johnson and AstraZeneca done one better than AbbVie, purchasing 55 percent of Acerta Pharma for acalabrutinib (ACP-196)?

Five UK CLL Patients to Sound Off

Offer of enrolling on CALiBRe trial

Obinutuzumab and heart disease experience - it's essential drug be given slower than usual

colds and coughs

Am I a hypochondriac?

Effect of CLL on common illnesses

Trying to find what happens

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