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CLL Support

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All posts for September 2024

Chemo-Free Triplet Yields 68% Response Rate in Richter Transformation

Original article citation: Tedeschi, A., Frustaci, A. M., Condoluci, A., Coscia, M., Chiarle, R., Zinzani, P. L., Motta, M., Gaidano, G., Quaresmini, G.,...

Original article citation: Tedeschi, A., Frustaci, A. M., Condoluci, A., Cosci...

Classicaljazz

•3 hours ago

1 Reply

persistent expectoration + venetoclax

Dear all, has anyone been taking venetoclax and gotten a kind of persistent expectoration and sometimes a cough, especially at night? I still haven't figured...

Dear all, has anyone been taking venetoclax and gotten a kind of persistent expe...

BMFCDRW

•5 hours ago

1 Reply

cataract surgery while on Zanubrutinib

I am having cataract surgery on my right eye in about a month. I will discuss at my next oncology visit how long I have to stop Zanubrutinib, but I wanted to...

I am having cataract surgery on my right eye in about a month. I will discuss a...

Bethsaida

•10 hours ago

3 Replies

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colonoscopy

The operation isn’t painful or difficult so don’t despair. I think with all the interventions we’ve been through with our CLL it’s another operation that...

The operation isn’t painful or difficult so don’t despair. I think with all the ...

dontruminate

•11 hours ago

4 Replies

Rituximab and high blood pressure

Can Rituximab cause your blood pressure to go high? At the end of a Rituximab treatment blood pressure had gone up quite high and is still high three days...

Can Rituximab cause your blood pressure to go high? At the end of a Rituximab tr...

Redkatt

•14 hours ago

1 Reply

Consistenly low platelets and neutrophils

As this website is a wonderful source of support and knowledge for those with Lymphoma I’m hoping someone will have some useful information/advice for me. I...

As this website is a wonderful source of support and knowledge for those with L...

Penicillen

•16 hours ago

1 Reply

Appetite, weight, energy....

So, I am 13q deletion, mutated, watch and wait for about 7 years. Latest white count 53.6 and it is going up quite slowly. I've been told sudden inexplicable...

So, I am 13q deletion, mutated, watch and wait for about 7 years. Latest white c...

battanim

•1 day ago

7 Replies

How do they decide which treatment?

Hello. Back on August 21 at my bi-annual hematology checkup, my hematologist said she wanted to see me again in six weeks because my WBC had gone from 25.1...

Hello. Back on August 21 at my bi-annual hematology checkup, my hematologist sai...

Myfavoritecat

•1 day ago

8 Replies

CLL treatment

Hi all I was diagnosed with CLL in 2021 & was on watch& wait until jan this year.I had a blood test & went to see a haemotologist .Bythis time my wbc was 600...

Hi all I was diagnosed with CLL in 2021 & was on watch& wait until jan this yea...

Grandadsboys

•2 days ago

17 Replies

Is there anyone with experience in bladder cancer treatment?

I am 74 and in CLL remission after a 24-month course of Venetoclax plus Rituximab completed in September 2023. In July 2023 I was diagnosed with low grade,...

I am 74 and in CLL remission after a 24-month course of Venetoclax plus Rituxima...

RamsesII

•2 days ago

4 Replies

Continued Journey

First, thank you to all of people that send me encouraging comments. I understand in your heart and minds the empathy and wishful thoughts everyone has on this...

First, thank you to all of people that send me encouraging comments. I understan...

FiArt12X

•2 days ago

4 Replies

Venclexa side effects

I’m on gazyva and 100 mg venclexta. I’ve had no side effects at al. But the past 2 days my arms and upper legs were it hi g. Benadryl took it away. I’m...

I’m on gazyva and 100 mg venclexta. I’ve had no side effects at al. But the p...

elm1

•2 days ago

2 Replies

Two weeks, no change in WBC

This is just an update. Yesterday, Friday, I had my blood tested again and there was absolutely no change in white blood cell counts, (123 on August 30 and 123...

This is just an update. Yesterday, Friday, I had my blood tested again and there...

Tajie

•2 days ago

1 Reply

Gilly

I currently have CLL & was diagnosed in December 2022. I’m in good health & have regular blood tests then I see my haematologist. I’m on watch & wait. I...

I currently have CLL & was diagnosed in December 2022. I’m in good health & have...

Brugeslover

•2 days ago

6 Replies

Abs Lymphs going up after shingles

We saw the doctor for the first time after having shingles. Before shingles his Abs. Lymphs were 2.3 1000/mm3. Now 5 months later it is 3.5 1000/mm3. The...

We saw the doctor for the first time after having shingles. Before shingles h...

Pinhead1

•3 days ago

9 Replies

I am still waiting for my CT scan results.

I am still awaiting my CT scan results which were done 4 weeks ago now. Hoping no news is good news for me? Started seeing a Psychiatrist this week to help me...

I am still awaiting my CT scan results which were done 4 weeks ago now. Hoping n...

Curry777

•4 days ago

15 Replies

Weight loss after Covid

Hi everyone I had covid in June also with a relapse after taking Paxlovid, and lost 3 KG in weight,no matter how much I eat its staying the same and not going...

Hi everyone I had covid in June also with a relapse after taking Paxlovid, and ...

Kiwi77

•4 days ago

1 Reply

still positive for covid

was negative after 8 days for 2 days then have what I am pretty sure is a covid rebound. It is day 14 and am still very positive on a test. How long do most...

was negative after 8 days for 2 days then have what I am pretty sure is a covid ...

ap64

•4 days ago

15 Replies

Real-world treatment switching and sequencing to next line of therapy of zanubrutinib, acalabrutinib, and ibrutinib in CLL/SLL

Acalabrutinib (Calquence) and zanubrutinib (Brukinsa) have been found to be much better tolerated than than ibrutinib, with lower adverse event and side effect...

Acalabrutinib (Calquence) and zanubrutinib (Brukinsa) have been found to be much...

AussieNeil

Administrator•5 days ago

2 Replies

NIH visit and Richters discussion

As some of you have posted about previously, today I also entered the NIH natural history study for CLL. The visit was good, efficient and pretty painless....

As some of you have posted about previously, today I also entered the NIH natura...

BigfootT

•5 days ago

10 Replies

efudex ( fluorouracil 5)

My dermatologist has suggested and prescribed the above medications for my face and neck for my ongoing battle with actinic keratosis and squamous cell...

My dermatologist has suggested and prescribed the above medications for my face ...

Claybuster

•5 days ago

16 Replies

End of fixed duration treatment

Completed 2 yr treatment on Rituximab and Venetoclax approximately 4 weeks ago. Consultant says I'm in remission and not to worry there are other treatments I...

Completed 2 yr treatment on Rituximab and Venetoclax approximately 4 weeks ago. ...

Fastbike14

•5 days ago

26 Replies

thoughts on brukinsa treatment

Hi ALL from Florida. 1st follow up after June diagnosis. Blood work remains 99% perfect and still feeling physically normal but mentally I have struggled....

Hi ALL from Florida. 1st follow up after June diagnosis. Blood work remains 99% ...

Reetywell71

•6 days ago

15 Replies

Latest bloods

Latest bloods not that great.Ibrutinib nearly 8 years, although been slipping last two . HB bloods 142 WBC 34.4 Neutrophils 3.2 Lymphocytes 29.4 Platelets 120...

Latest bloods not that great.Ibrutinib nearly 8 years, although been slipping la...

cartwheels

•6 days ago

3 Replies

Our story !

Six months ago I lost my mother A strong fighter for lymphoma that was diagnosed in 2016 with CLL The situation get worse .. for more what we called...

Six months ago I lost my mother A strong fighter for lymphoma that was d...

htam

•6 days ago

20 Replies

Starting V&O treatment

I have SLL and will be starting V&O treatment next week. Apparently I will have two months of obinutuzumab (typical cycle 1 ramp up and a second cycle) before...

I have SLL and will be starting V&O treatment next week. Apparently I will have ...

roninwarior007

•6 days ago

18 Replies

Thankyou

just a little note but I big Thankyou to everyone who got in touch after my post . It has been good to hear from you all once again and I will keep in touch ....

just a little note but I big Thankyou to everyone who got in touch after my pos...

Hilo13

•7 days ago

3 Replies

runny nose

Have had a runny nose for months and can only attribute this to either CLL- I am in remission- or continuous taking of Acalabrutinib (Calquence). Anyone have...

Have had a runny nose for months and can only attribute this to either CLL- I am...

Nucleusman

•7 days ago

5 Replies

What Causes CLL Development?

Hi All! I've got a dx of MBL and haven't been given any info on at all. I'm wondering 1) What caused the MBL, and 2) What can cause it to develop into CLL....

Hi All! I've got a dx of MBL and haven't been given any info on at all. I'm wond...

ButterflyWine

•7 days ago

3 Replies

low dose aspirin

My cardiologist wants me to take a baby aspirin daily but I’m on brukinsa. I wonder if there will be issues. I will call oncology before I start taking it....

My cardiologist wants me to take a baby aspirin daily but I’m on brukinsa. I won...

Silvafoxe

•7 days ago

13 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for September 2024

Chemo-Free Triplet Yields 68% Response Rate in Richter Transformation

persistent expectoration + venetoclax

cataract surgery while on Zanubrutinib

colonoscopy

Rituximab and high blood pressure

Consistenly low platelets and neutrophils

Appetite, weight, energy....

How do they decide which treatment?

CLL treatment

Is there anyone with experience in bladder cancer treatment?

Continued Journey

Venclexa side effects

Two weeks, no change in WBC

Gilly

Abs Lymphs going up after shingles

I am still waiting for my CT scan results.

Weight loss after Covid

still positive for covid

Real-world treatment switching and sequencing to next line of therapy of zanubrutinib, acalabrutinib, and ibrutinib in CLL/SLL

NIH visit and Richters discussion

efudex ( fluorouracil 5)

End of fixed duration treatment

thoughts on brukinsa treatment

Latest bloods

Our story !

Starting V&O treatment

Thankyou

runny nose

What Causes CLL Development?

low dose aspirin

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