Posts - CLL Support | HealthUnlocked

CLL Support

23,337 members•40,046 posts

All posts for September 2024

UK Telegraph Newspaper report

Mike Peters from a Welsh music band The Alarm had CLL for 29 years but was diagnosed with a Richters transformation this year. He received treatment in the UK...

Mike Peters from a Welsh music band The Alarm had CLL for 29 years but was diagn...

Jm954

Administrator•2 months ago

7 Replies

Has Anyone on Here Got Richters Transformation

Hi AllI have had chemo for high grade B cell and Richters Cll. In remission for 2 years but now regressed with nodes in 3 areas. Am on Watch Wait to see how...

Hi AllI have had chemo for high grade B cell and Richters Cll. In remission for ...

Mahler5

•2 months ago

3 Replies

Acalabrutinib

I’m taking Acalabrutinib with an antibiotic . I can’t understand that if I was to have infusion and a tablet I would only be on it for 7 months. But the same...

I’m taking Acalabrutinib with an antibiotic . I can’t understand that if I was t...

Haggar

•2 months ago

5 Replies

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Acalabrutinib for mantle cell lymphoma

Hello, My dad started 100mg/daily of Calquence for manle cell lymphoma on September 9, 2024- a smaller dose because of his age, and high risk status. He has...

Hello, My dad started 100mg/daily of Calquence for manle cell lymphoma on Septe...

Newdelhiindia

•2 months ago

3 Replies

Safe to have Radiation while on Venclexta?

unfortunately my husband has just found out that his prostate cancer has spread into his pelvic area near his bowel and ureter. He has been on Venclexta for...

unfortunately my husband has just found out that his prostate cancer has spread ...

Retiredlady

•2 months ago

3 Replies

Fall in the Wasatch Mountains

Awe, can't say enough how grateful and happy and excited about being in God's beautiful mountains every season of the year. My only regret is that my Iphone...

Awe, can't say enough how grateful and happy and excited about being in God's be...

skipro

•2 months ago

40 Replies

So far, so good

At my oncologist's yesterday, I learned that my white blood count had lowered again, but only from 123 to 117. I am really glad it is going down but hope it...

At my oncologist's yesterday, I learned that my white blood count had lowered ag...

Tajie

•2 months ago

5 Replies

Treatment

I’ve been in Acalabrutinib for 3 months now. At first I had a few side affects ie Headaches, Light headed. Feeling a little nauseous . But most of that has...

I’ve been in Acalabrutinib for 3 months now. At first I had a few side affects i...

Haggar

•2 months ago

7 Replies

CLL Fatigue

I am on W&W and constantly tired. How does it occur ? My bloods are good only increasing in white lymphocytes.

I am on W&W and constantly tired. How does it occur ? My bloods are good only in...

MSCarolyn62

•2 months ago

17 Replies

RSV vax and Brukinsa

I have CLL and have been on Brukinsa about a year now. I wonder if anyone on Brukinsa has taken the RSV vax?

I have CLL and have been on Brukinsa about a year now. I wonder if anyone on Bru...

Silvafoxe

•2 months ago

6 Replies

Treatment

I am due to start CLL targeted treatment in late October. Can anyone please tell me of their experiences please?

I am due to start CLL targeted treatment in late October. Can anyone please tell...

Coldplaybest

•2 months ago

23 Replies

CLL Group

Reading some of your posts on here. I feel mine is so minimal. Right now I just bruise easily. I wish you all the best and stay strong.

Reading some of your posts on here. I feel mine is so minimal. Right now I just ...

Letarosella1966

•2 months ago

6 Replies

Hi everyone,

Rang up my cancer specialist nurses to ask about my full body scan results as of 5 weeks ago now. The nurse told me I would be contacted if there was a...

Rang up my cancer specialist nurses to ask about my full body scan results as of...

Curry777

•2 months ago

27 Replies

secondary occurrence?

Anyone know anything about esophageal cancer and the clinical trials where they were testing inbutranib (imbruvica) as a treatment? Bf just got pet scan...

Anyone know anything about esophageal cancer and the clinical trials where they ...

Beefcakesgirl

•2 months ago

1 Reply

Dodger47 Update

Hi everyone. Just wanted to update those that responded to my plight of CLL/AHIA and COVID and seek additional thoughts since, at this level I have low...

Hi everyone. Just wanted to update those that responded to my plight of CLL/AHIA...

Dodger47

•2 months ago

3 Replies

first week of obintuzinab

I’ve just had my first two days of O. Numbers are dramatically better! But man, I can’t stop taking naps today. I think I’m supposed to stay very active, but...

I’ve just had my first two days of O. Numbers are dramatically better! But man, ...

DogmomLM

•2 months ago

9 Replies

Sll questions

I was diagnosed with sll in july 24 and started acalabrutinib in late August. I saw my oncologist once when first diagnosed and have had two follow up visits...

I was diagnosed with sll in july 24 and started acalabrutinib in late August. I ...

1reb

•2 months ago

9 Replies

CLL treatment and Lymphoma detected.

Hi my mom just started treatment for her CLL 4 months ago. Her doc put her on Brukinsa (Zanubrutinib). After her 1 month and 3 month follow-up, her WBC are...

Hi my mom just started treatment for her CLL 4 months ago. Her doc put her on B...

AM0000

•2 months ago

5 Replies

London Conference

Thanks to all involved in running the CLL Support conference on Tuesday. I gained so much from the day. Although I really value this community and could...

Thanks to all involved in running the CLL Support conference on Tuesday. I gai...

keeptalking

•2 months ago

6 Replies

V and O treatment

Just curious about something... I received V and O treatment as a part of a trial and am in my year 2 post treatment. Feeling good over all, however I do...

Just curious about something... I received V and O treatment as a part of a tri...

Gardengirl44

•2 months ago

29 Replies

CLL and viruses

I have a virus infection which isn’t clearing up quickly. Any advice?

Jakey16

•2 months ago

10 Replies

CLL and sleep issues

Hi, CLLers, I’ve been absent from this site for some time so just a recap- CLL diagnosed 5 years ago, on watch and wait. my question: is anyone having sleep...

Hi, CLLers, I’ve been absent from this site for some time so just a recap- CLL d...

LisaAlice

•2 months ago

32 Replies

GailCat3

I’ve had CLL B cell for 16 years. I had a great Oncologist but she moved 11/2 years ago so she used to do bone marrow biopsies to check my CLL. My new...

I’ve had CLL B cell for 16 years. I had a great Oncologist but she moved 11/2 y...

GailCat3

•2 months ago

18 Replies

Covid/ Travel

I would like to ask the group for some advice. I am going on a cruise for my husband’s 70th Birthday. It is round Europe. 14 Days. If I catch Covid whilst...

I would like to ask the group for some advice. I am going on a cruise for my hu...

21Bedlam21

•2 months ago

14 Replies

RSV Vaccine

I am due to have the RSV vaccine tomorrow at my GP surgery - at my insistence as my GP says he knows nothing about it. I am a little wary as this is a new...

I am due to have the RSV vaccine tomorrow at my GP surgery - at my insistence as...

Pocketdog

•2 months ago

58 Replies

Has anyone used Venetoclax?

My ex was diagnosed with CLL about 6 years ago and was at stage zero until this year. She is starting Venetoclax and immunotherapy this week and I was just...

My ex was diagnosed with CLL about 6 years ago and was at stage zero until this ...

bbrowning84

•2 months ago

12 Replies

V and O treatment and low Hemoglobin

My journey continues. I am hospitalized due to AIHA/CLL and Covid. Very low hemoglobin is the issue. Dr. decided it was time to treat the CLL and that would...

My journey continues. I am hospitalized due to AIHA/CLL and Covid. Very low hemo...

Dodger47

•2 months ago

19 Replies

paxlovid for covid

Hi. I just got over having COVID and my Oncologist prescribed the lower dose of Paxlovid because I am taking Zanubrutinib. The lower dose is 2 pills instead of...

Hi. I just got over having COVID and my Oncologist prescribed the lower dose of ...

Rrriver

•2 months ago

6 Replies

CLL and heart failure

I am a 78 year old female. I was diagnosed with CLL in 2012, was on w&w until 2015, then had 4 rounds of chemotherapy. I have been on Imbruvica since 2020....

I am a 78 year old female. I was diagnosed with CLL in 2012, was on w&w until 2...

Judami

•2 months ago

10 Replies

Pirtobrutinib

Is anyone on Pirtobrutinib and have a constant salty taste in mouth? I was told that I didn’t have to drink a lot of water while on this drug. I’m wondering if...

Is anyone on Pirtobrutinib and have a constant salty taste in mouth? I was told ...

difor29

•2 months ago

10 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for September 2024

UK Telegraph Newspaper report

Has Anyone on Here Got Richters Transformation

Acalabrutinib

Acalabrutinib for mantle cell lymphoma

Safe to have Radiation while on Venclexta?

Fall in the Wasatch Mountains

So far, so good

Treatment

CLL Fatigue

RSV vax and Brukinsa

Treatment

CLL Group

Hi everyone,

secondary occurrence?

Dodger47 Update

first week of obintuzinab

Sll questions

CLL treatment and Lymphoma detected.

London Conference

V and O treatment

CLL and viruses

CLL and sleep issues

GailCat3

Covid/ Travel

RSV Vaccine

Has anyone used Venetoclax?

V and O treatment and low Hemoglobin

paxlovid for covid

CLL and heart failure

Pirtobrutinib

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