Posts - CLL Support | HealthUnlocked

CLL Support

23,337 members•40,045 posts

All posts for January 2017

Dealing with malaria and mosquito's on holiday

Hi Everyone. My husband has CLL and finished FCR treatment 21/2 years ago. So far all is good - bloods normal WBC in normal range and stable. We are now...

Hi Everyone. My husband has CLL and finished FCR treatment 21/2 years ago. So fa...

Hidden

•8 years ago

4 Replies

Spleen treatments

Hi everybody, my husband has cll and six years ago underwent chemo. This worked very well and went into remission. Todayhis spleen is very enlarged and...

Hi everybody, my husband has cll and six years ago underwent chemo. This worked ...

Broadbent

•8 years ago

11 Replies

3 weeks in flair trial ......

Received my first infusion rituximab and ibrutinib tablets 3 weeks ago ....my bloods just before treatment was ...WBC....287,000 PLTS....165 AND HB ...139...

Received my first infusion rituximab and ibrutinib tablets 3 weeks ago ....my bl...

stewie

•8 years ago

6 Replies

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Key questions to ask your consultant

Hi everyone, sorry if you thought from the title of this message that I am providing the answers - instead, I would like your views. If you want the main...

Hi everyone, sorry if you thought from the title of this message that I am provi...

Davdow

•8 years ago

3 Replies

Travel and Maleria

Appeared this morning on BBC news, I think, as we are immuno-compromised it is worth a quick read for anyone heading to a 'malaria area'....

Appeared this morning on BBC news, I think, as we are immuno-compromised it is w...

Oleboyredw-uk

•8 years ago

1 Reply

swollen lymph nodes in leg ?

Hello, I was diagnosed back in Jan 2016 and have been on WW since. I'm 11q del, unmutated and complex karyotype, that's called the triple whammy! although my...

Hello, I was diagnosed back in Jan 2016 and have been on WW since. I'm 11q del, ...

garrick66

•8 years ago

16 Replies

Very worried by latest blood test results

I have CLL and on watch and wait, however WBC has shot up to 49, smudge cells 22 and lymphocytes 26, is it time for treatment?

I have CLL and on watch and wait, however WBC has shot up to 49, smudge cells 22...

Nanapapa6

•8 years ago

2 Replies

Treatment Options

Soon my husband will need to start treatment for his CLL. What are the various treatments available and what are side effects. What can I do to support him.

Soon my husband will need to start treatment for his CLL. What are the various t...

Robinnordhoff

•8 years ago

3 Replies

Excellent Overview of Immunotherapies and Other Treatments for Lymphoma

This is a great summary of the range of treatment options currently available for lymphoma, including CLL. I found it enlightening and full of hope. Enjoy!...

This is a great summary of the range of treatment options currently available fo...

Eagle5327

•8 years ago

4 Replies

All my Results

Date HG WBC LYM PLATELETS 1/4/10 17.3 35 292 29/4/10 17.4...

Date HG WBC LYM PLATELETS 1/4/10 ...

TheFlyer

•8 years ago

6 Replies

Gastroscopy/Endoscopy

I have a question I was hoping my CLL friends could help me with. As many of you already know I found out I had CLL when I went to the doctors back in...

I have a question I was hoping my CLL friends could help me with. As many of yo...

BCTexas

•8 years ago

34 Replies

Nasty Bronchitis

I'm writing this at 7 a.m. having had very little sleep because every time I lie down I have a coughing fit. I can get some sleep in a chair, but still wake...

I'm writing this at 7 a.m. having had very little sleep because every time I lie...

johnl

•8 years ago

11 Replies

Most Cancer Patients Reduce Physical Activity Despite Potential Benefits

We've had plenty of past posts about the benefits of exercise for better health with cancer, yet it seems the message isn't being delivered or received as well...

We've had plenty of past posts about the benefits of exercise for better health ...

AussieNeil

Administrator•8 years ago

39 Replies

SO I'M NOT CRAZY

THANKS TO ALL OF YOU FOR CONFIRMING THAT A PART OF IMBRUTINIB TREATMENT DOES RESULT IN WEIGHT GAIN REGARDLESS OF WHAT THE DOCTORS, DRUG REPS AND PHARMACISTS...

THANKS TO ALL OF YOU FOR CONFIRMING THAT A PART OF IMBRUTINIB TREATMENT DOES RES...

IAMSUEBW

•8 years ago

17 Replies

Update for followers

I note I have 11 followers and I'm surprised I have not provided an update for quite a while. I started Obinutuzumab and venetoclax in march 2016 with 75...

I note I have 11 followers and I'm surprised I have not provided an update for q...

Corin850

•8 years ago

11 Replies

I'm new on here - Susiecarer

Hi All, my husband has within the last few days been diagnosed with CLL. He is 69, 70 in May. Blood tests have revealed that he has iron deficient anaemia and...

Hi All, my husband has within the last few days been diagnosed with CLL. He is 6...

Susiecarer

•8 years ago

22 Replies

WEIGHT GAIN?

HAVE BEEN DIAGNOSED WITH CLL IN 2012. HAD ROUND OF CHEMO FOR 6 MOS. AND THINGS STAYED GOOD FOR ABOUT 3 YEARS. THEN MY LYMPH NODES STARTED GETTING SLIGHTLY...

HAVE BEEN DIAGNOSED WITH CLL IN 2012. HAD ROUND OF CHEMO FOR 6 MOS. AND THINGS...

IAMSUEBW

•8 years ago

64 Replies

Some questions...

Hi, I was diagnosed with CLL a year ago and am on watch & wait. I'm wondering why the lymphocyte number actually decreases sometimes? Also, I have been sick...

Hi, I was diagnosed with CLL a year ago and am on watch & wait. I'm wondering w...

KHuff

•8 years ago

8 Replies

Blood results

Hi I mentioned earlier about having a cough that is hanging around so at the drs today he gave me some anti biotics and went for a Blood test he just called...

Hi I mentioned earlier about having a cough that is hanging around so at the drs...

TheFlyer

•8 years ago

15 Replies

Curbing Fluoroquinolone Antibiotics Tied to Britain's Drop in C.Diff

We've had previous warning posts about the worrying risk of severe side effects from Fluoroquinolone Antibiotics as well as posts about how difficult it is to...

We've had previous warning posts about the worrying risk of severe side effects ...

AussieNeil

Administrator•8 years ago

20 Replies

Deep learning algorithm diagnoses skin cancer as well as seasoned dermatologists

There's been an encouraging development with Artificial Intelligence detection of skin cancers. The Google neural net is 'helping catch skin cancer now,...

There's been an encouraging development with Artificial Intelligence detection o...

AussieNeil

Administrator•8 years ago

8 Replies

Starting Ibrutinib plus Venetoclax Trial at MDA

I will be starting the Ibrutinib plus Venetoclax trial at MDA. My platelets have dropped from around 150 to 28 in just a couple of months. My WBC is about 40...

I will be starting the Ibrutinib plus Venetoclax trial at MDA. My platelets have...

lukejensen27

•8 years ago

86 Replies

Good News of my CLL

Hi, I recently got more good news on CLL from Dr. Byrd out of Ohio State. My clone that is resistant to ibrutinib had stopped its relentless growth after...

Hi, I recently got more good news on CLL from Dr. Byrd out of Ohio State. My clo...

bkoffman

CLL CURE Hero•8 years ago

13 Replies

Acrocyanosis, CLL and CAD

hI, some time ago my husband was diagnosed with CLL then changed to SLL, as well as CAD. He underwent steroid treatment with unpleasant side effects but no...

hI, some time ago my husband was diagnosed with CLL then changed to SLL, as wel...

Ewuraja

•8 years ago

7 Replies

Imbruvica and Food Issues

My husband is starting His 4th month of Imbruvica and eating is becoming a real problem. Nothing seems to taste good to him, and once he's eaten whatever, he...

My husband is starting His 4th month of Imbruvica and eating is becoming a real ...

Margobleu

•8 years ago

9 Replies

Five common myths about the ageing brain and body

With CLL being a chronic illness, we tend to blame it for all our new health ills. But we need to remember that we are susceptible to the same health...

With CLL being a chronic illness, we tend to blame it for all our new health ill...

AussieNeil

Administrator•8 years ago

3 Replies

Health Check: how do you know if you’re obsessed with your health?

An Australian population survey found illness anxiety affects 5.7% of Australians at some point in their lives. Given the uncertainty of living with CLL, I...

An Australian population survey found illness anxiety affects 5.7% of Australian...

AussieNeil

Administrator•8 years ago

2 Replies

Imbruvica & HgB

Does Imbruvica affect Hgb much? Mine has dropped to barely above 10 in 2 months of Imbruvica treatment (although I've also had colds & sinus infections)....

Does Imbruvica affect Hgb much? Mine has dropped to barely above 10 in 2 months...

tryandtry

•8 years ago

5 Replies

Targeted therapy can restore bacterial susceptibility to antibiotics

A new targeted therapy drug, which neutralises the enzyme used by bacteria to provide resistance to antibotics, should be ready for human testing in about...

A new targeted therapy drug, which neutralises the enzyme used by bacteria to pr...

AussieNeil

Administrator•8 years ago

2 Replies

Natural does not mean safer. Red Yeast Rice, sold as Statin alternative, has similar risks!

...the common perception that natural is safer didn't pan out in the study of the Italian Surveillance System of Natural Health Products, similar to the...

...the common perception that natural is safer didn't pan out in the study of th...

AussieNeil

Administrator•8 years ago

4 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for January 2017

Dealing with malaria and mosquito's on holiday

Spleen treatments

3 weeks in flair trial ......

Key questions to ask your consultant

Travel and Maleria

swollen lymph nodes in leg ?

Very worried by latest blood test results

Treatment Options

Excellent Overview of Immunotherapies and Other Treatments for Lymphoma

All my Results

Gastroscopy/Endoscopy

Nasty Bronchitis

Most Cancer Patients Reduce Physical Activity Despite Potential Benefits

SO I'M NOT CRAZY

Update for followers

I'm new on here - Susiecarer

WEIGHT GAIN?

Some questions...

Blood results

Curbing Fluoroquinolone Antibiotics Tied to Britain's Drop in C.Diff

Deep learning algorithm diagnoses skin cancer as well as seasoned dermatologists

Starting Ibrutinib plus Venetoclax Trial at MDA

Good News of my CLL

Acrocyanosis, CLL and CAD

Imbruvica and Food Issues

Five common myths about the ageing brain and body

Health Check: how do you know if you’re obsessed with your health?

Imbruvica & HgB

Targeted therapy can restore bacterial susceptibility to antibiotics

Natural does not mean safer. Red Yeast Rice, sold as Statin alternative, has similar risks!

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