Posts - CLL Support | HealthUnlocked

CLL Support

23,337 members•40,045 posts

All posts for October 2014

On the fundraising trail

Hi All We had a fantastic day fundraising at Barclaycard head office today, in total we raised 1258.80 for Leukaemia and Lymphoma research. We now have...

Hi All We had a fantastic day fundraising at Barclaycard head office today, in ...

Hidden

•10 years ago

2 Replies

In year two, MD Anderson Moon Shots Program begins to generate innovations

Interesting to see what's coming out the the 'Moon Shots Program'. CLL is only one of the areas of focus, but look at how treatment is changing: "Only 15...

Interesting to see what's coming out the the 'Moon Shots Program'. CLL is only ...

AussieNeil

Administrator•10 years ago

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Black Cumin (Nigella Sativa) Oil and medical mushrooms extract for CLLs trisomy 12. B12 boosting safety?

Dear all I am 36 years old and I have trisomy 12 and IGHV mutated status, lymphocytes count 78%. I found that I am low on vitamin B12. I am on W&W for two year...

Dear all I am 36 years old and I have trisomy 12 and IGHV mutated status, lympho...

vlada

•10 years ago

11 Replies

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The Big C....

Morning all, just wanted to ask if there is anyone who is in the same boat and can offer any explanation apart from " it's the luck of the draw" .... I was...

Morning all, just wanted to ask if there is anyone who is in the same boat and c...

JanetG

•10 years ago

25 Replies

Epigenetic code cracker: why skin cells are skin cells and not neurons

Ryan Lister, Professor of Genetics at University of Western Australia (UWA), is one of four recipients of the Australian Prime Minister's Science Prize for...

Ryan Lister, Professor of Genetics at University of Western Australia (UWA), is ...

AussieNeil

Administrator•10 years ago

6 Replies

Driving cancer cells to suicide

Chemotherapy of malignant tumors is complicated by the fact that, over time, rapidly dividing cancer cells tend to become resistant to the drugs used. "One way...

Chemotherapy of malignant tumors is complicated by the fact that, over time, rap...

shazie

•10 years ago

2 Replies

Dr Sharman's survey to assess the CLL community's understanding of new treatments is now closed

Dr Jeff Sharman is curious to understand what people know / think they know about the new drugs Ibrutinib, Idelalisib and obinutuzumab. His latest blog was a...

Dr Jeff Sharman is curious to understand what people know / think they know abou...

AussieNeil

Administrator•10 years ago

12 Replies

Tiny Flat Red Dots on Skin

I have noticed that on both of my arms and on my upper thighs, there are tiny, pinpoint sized, spread out, blood red, and they do not itch or hurt, and are...

I have noticed that on both of my arms and on my upper thighs, there are tiny, p...

soberGamzee

•10 years ago

8 Replies

10 steps to erase your digital footprint

Despite the existence of legislation passed to protect us from discrimination (depending on where you live), unfortunately, once you let slip that you have an...

Despite the existence of legislation passed to protect us from discrimination (d...

AussieNeil

Administrator•10 years ago

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CLL as an autoimmune disease?

CLL manifests in a wide spectrum of autoimmune dysfunction from immune non response to pathogens to auto immune attacks on self as in ITP (Idiotype...

CLL manifests in a wide spectrum of autoimmune dysfunction from immune non respo...

ThreeWs

•10 years ago

2 Replies

DCA

Just heard something on TV re DCA IIn regards to helping to cure cancer !! Helping the drugs to work better and not damage healthy cells. Anyone know about...

Just heard something on TV re DCA IIn regards to helping to cure cancer !! Help...

Elliot43

•10 years ago

13 Replies

Ibrutinib rash

Hi. My husband, John, started Ibrutinib treatment on October 13. He noticed today that he is breaking out in a rash all over his back, chest, upper arms and...

Hi. My husband, John, started Ibrutinib treatment on October 13. He noticed toda...

barb19008

•10 years ago

4 Replies

Mutations Linked to Blood Cancers Rise With Age, Study Shows

Blood cell mutations linked to the blood cancers leukemia and lymphoma increase as people get older....

Blood cell mutations linked to the blood cancers leukemia and lymphoma increase ...

shazie

•10 years ago

4 Replies

Coffee in Moderation is Good for Liver Health

Drinking coffee, in moderation, may help support good liver health according to a new study....

Drinking coffee, in moderation, may help support good liver health according to ...

shazie

•10 years ago

7 Replies

Asking the expert

mcints2

•10 years ago

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Update on PCYC-1115-CA Randomised, Phase 3 study of Ibrutinib/Imbruvica versus Chlorambucil in Patients 65 yrs + and untreated with CLL/SLL.

Day 1 of cycle 15 yesterday and continuing onwards and upwards :) FBC looking good with Hg 153.00, WBC 6.7, RBC 4.71, ALC 1.8, platelets 118, neutrophils...

Day 1 of cycle 15 yesterday and continuing onwards and upwards :) FBC looking g...

Mikey47

•10 years ago

2 Replies

Dr Sharman on Lenalidomide and Rituximab in Lymphoma

This latest blog by Dr Sharman only touches briefly on CLL, but for those with a technical interest in non chemo treatments and CD20 antibodies like Rituximab,...

This latest blog by Dr Sharman only touches briefly on CLL, but for those with a...

AussieNeil

Administrator•10 years ago

2 Replies

Of wins and losses...

On his blog this week, Andrew Schorr shares thoughts and feelings about the wins and losses we all experience in this world of cancer as it plays out in social...

On his blog this week, Andrew Schorr shares thoughts and feelings about the wins...

mcints2

•10 years ago

6 Replies

High Cancer Treatment Costs Force Patients to Compromise on Care

A recent national survey in the United States, found that the financial burden of cancer treatment leads many patients to make potentially harmful medical care...

A recent national survey in the United States, found that the financial burden o...

AussieNeil

Administrator•10 years ago

1 Reply

My Daughter's Perspectrive on My CLL

Many people know I have lived with CLL since 1996, fortunately, mostly pretty well. When I was diagnosed my daughter, Ruthie, was only 3. When I started...

Many people know I have lived with CLL since 1996, fortunately, mostly pretty we...

andrewschorr

•10 years ago

2 Replies

HU Site Updates

HealthUnlocked are releasing the following new features, improvements and bug fixes. ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~...

HealthUnlocked are releasing the following new features, improvements and bug fi...

AussieNeil

Administrator•10 years ago

2 Replies

October 2014 on-line CLL Support Association community administrators' report

CLL Support Association On-line Community Report October 2014 June saw HealthUnlocked release a new version of the CLLSA on-line community site. The...

CLL Support Association On-line Community Report October 2014 June saw HealthU...

HAIRBEAR_UK

Founder Admin•10 years ago

2 Replies

London meeting.

I would like to come but it is about a 7 hour journey for me by coach,so I guess I will just have to look at the reports afterwards. I wish you all, all the...

I would like to come but it is about a 7 hour journey for me by coach,so I guess...

littleriver

•10 years ago

4 Replies

Infographic: how UK health spending compares to other OECD countries

How well does your country perform on health outcomes for the funding invested? This infographic from The Conversation editors, shows at a glance, the...

How well does your country perform on health outcomes for the funding invested? ...

AussieNeil

Administrator•10 years ago

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Trails and Trials

Guest blogger, Susan Bottega, shares the trail and trials that cancer has imposed upon her and her husband. She writes, "We have come to understand each other...

Guest blogger, Susan Bottega, shares the trail and trials that cancer has impose...

mcints2

•10 years ago

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Ibrutinib

Probably because it is a new drug there seem to be many instances of possible side effects. At the risk of boring people can I ask if anyone else has had lumps...

Probably because it is a new drug there seem to be many instances of possible si...

isambard

•10 years ago

5 Replies

ASCO 2014: Dr. Kipps on ABT-199 and ROR1: "Cancer is not an alien from outer space, cancer is us"

Friends, In my latest post on my blog ( http://bkoffman.blogspot.com ), I have an interview with Dr. Kipps from ASCO earlier this year that helps explain why...

Friends, In my latest post on my blog ( http://bkoffman.blogspot.com ), I have...

bkoffman

CLL CURE Hero•10 years ago

3 Replies

Do you have your Digital Estate Planning in order?

Most of us have enough difficulty getting our affairs in order without worrying about our digital assets, but increasingly, this is something we'll need to...

Most of us have enough difficulty getting our affairs in order without worrying ...

AussieNeil

Administrator•10 years ago

1 Reply

Blood Stem Cell Transplant

Hi I m a 46 year old woman diagnosed with Cll in April 2014 with 17p deletion. I have been in watchful Waiting but now doctors have suggested I take Imbrivica...

Hi I m a 46 year old woman diagnosed with Cll in April 2014 with 17p deletion. ...

Jameelah

•10 years ago

10 Replies

How long have I got DR>>>?

I keep reading of different survival times for CLL patients depending on genetic factors,response to treatment etc. What I don't understand s where they start...

I keep reading of different survival times for CLL patients depending on genetic...

romarin

•10 years ago

14 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for October 2014

On the fundraising trail

In year two, MD Anderson Moon Shots Program begins to generate innovations

Black Cumin (Nigella Sativa) Oil and medical mushrooms extract for CLLs trisomy 12. B12 boosting safety?

The Big C....

Epigenetic code cracker: why skin cells are skin cells and not neurons

Driving cancer cells to suicide

Dr Sharman's survey to assess the CLL community's understanding of new treatments is now closed

Tiny Flat Red Dots on Skin

10 steps to erase your digital footprint

CLL as an autoimmune disease?

DCA

Ibrutinib rash

Mutations Linked to Blood Cancers Rise With Age, Study Shows

Coffee in Moderation is Good for Liver Health

Asking the expert

Update on PCYC-1115-CA Randomised, Phase 3 study of Ibrutinib/Imbruvica versus Chlorambucil in Patients 65 yrs + and untreated with CLL/SLL.

Dr Sharman on Lenalidomide and Rituximab in Lymphoma

Of wins and losses...

High Cancer Treatment Costs Force Patients to Compromise on Care

My Daughter's Perspectrive on My CLL

HU Site Updates

October 2014 on-line CLL Support Association community administrators' report

London meeting.

Infographic: how UK health spending compares to other OECD countries

Trails and Trials

Ibrutinib

ASCO 2014: Dr. Kipps on ABT-199 and ROR1: "Cancer is not an alien from outer space, cancer is us"

Do you have your Digital Estate Planning in order?

Blood Stem Cell Transplant

How long have I got DR>>>?

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