Posts - CLL Support | HealthUnlocked

CLL Support

23,337 members•40,046 posts

All posts for June 2024

starting soon

hi all, I will be starting OV treatment soon for CCL, have you got any advice?

hi all, I will be starting OV treatment soon for CCL, have you got any advice? ...

Greenfingers58

•5 months ago

5 Replies

CT scan Boney lesions, I have just had a CT scan and boney lesions have been detected on my pelvis and lower spine, is this CLL related.

diagnosed 9 years ago, my platelets have started to drop from 240 to 144 in the last 6 months or so. Also had a CT scan recently lots of lymph node’s...

diagnosed 9 years ago, my platelets have started to drop from 240 to 144 in the...

MrsB1963

•5 months ago

12 Replies

CLL and Osteoporosis

Need to start treatment for osteoporosis and have read there are concerns it might cause progression in CLL. Is anyone on an osteoanabolic with CLL? Ty

Need to start treatment for osteoporosis and have read there are concerns it mig...

Limelake

•5 months ago

21 Replies

Want to take advantage of all our features? Just log in!

Treatment starts 9th July

Hi All Well after 14 years on watch and wait treatment starts for me on the 9th July. Obinutuzumab and Venetoclax 12 x 28 days Cycles. I will be at the...

Hi All Well after 14 years on watch and wait treatment starts for me on the 9t...

TheFlyer

•5 months ago

5 Replies

WBC Dropped 50%

No change in symptoms but last two routine labs have shown about 50% drop in WBC from about12,000 to about 6,000. Platelets and INR ok. I'm treatment naive,...

No change in symptoms but last two routine labs have shown about 50% drop in WBC...

whitravis

•5 months ago

7 Replies

Specialsts

Just a question really, has it happened to anyone! Got my diagnosis a year and half ago CLL, never seen the specialist in all that time, got the diagnosis...

Just a question really, has it happened to anyone! Got my diagnosis a year and h...

PusscatsGoodies

•5 months ago

76 Replies

Dental work during W and W pre treatment in 8 weeks

Hi, I've just seen a post on root canals and it's sparked my few brain cells to wondering. I am / was thinking of having my teeth either veneers or implants....

Hi, I've just seen a post on root canals and it's sparked my few brain cells to ...

sidesy

•5 months ago

3 Replies

Continued Journey

I’ve had the Bone Marrow Transplant!!! That was actually the easiest part. 5 hours of fluids leading up to the BMT and the previous 5 days of chemo infusions...

I’ve had the Bone Marrow Transplant!!! That was actually the easiest part. 5 hou...

FiArt12X

•5 months ago

12 Replies

Can't login as Ezabella

I've created a new profile with user name: Noele, as I wasn't able to login with my existing user name: Ezabella (Can't remember the password) and I would like...

I've created a new profile with user name: Noele, as I wasn't able to login with...

Hidden

•5 months ago

2 Replies

A recent MRI of the Abdomen

6/28/24- I am about to start calquence. I would appreciate your words of encouragement and advice. Follow-up mLeft upper pole 1.8 cm hypoenhancing solid...

6/28/24- I am about to start calquence. I would appreciate your words of en...

bagelstreet225

•5 months ago

8 Replies

root canals

hi all , I have been on the W and W program. My blood dis-order was discovered in 2019. I referred to it as a blood disorder as they still haven’t...

hi all , I have been on the W and W program. My blood dis-order was discov...

Jrugg

•5 months ago

25 Replies

Exercise for aging people: where to begin, and how to minimize risk while maximizing potential, by Peter Attia M.D.

Further to this recent post on how exercise can boost immune protection...

bennevisplace

•5 months ago

11 Replies

Acalabrutinib and Swollen Feet/Ankles

First I apologise if this has been readily discussed before. My success with the search tool here leaves a lot to be desired. For background I am on a once...

First I apologise if this has been readily discussed before. My success with t...

ScruffyDuck

•5 months ago

9 Replies

Update on FIL -Venetoclax as a Monotherapy, Pancytopenia and Myelodysplasia

Hi everyone I have been meaning to post an update for months but things have been changing so rapidly, every day would have been a different story. So we did...

Hi everyone I have been meaning to post an update for months but things have be...

JoeMcDote

•5 months ago

2 Replies

Good explanation of BTK Degrader

A pretty simple explanation of the mechanism and how it may avoid BTK mutation causing tolerance. Wonder if degraders will help with T Cell Exhaustion as...

A pretty simple explanation of the mechanism and how it may avoid BTK mutation ...

Rando21

•5 months ago

1 Reply

T Cell exhaustion & Ibrutinib.

CLL Society video on T Cell exhaustion & Ibritinib. https://youtu.be/NX2l7xrFRGw?si=UGKRpKm2DMdvPPYZ

CLL Society video on T Cell exhaustion & Ibritinib. https://youtu.be/NX2l7xr...

Rando21

•5 months ago

3 Replies

People living with CLL treatment as I'm about to start treatment. Thanks John.

Jsceltic67

•5 months ago

9 Replies

calquence

two weeks after start headaches but this are residing. Do others have Calquence experiences?

two weeks after start headaches but this are residing. Do others have Calquence ...

Healthysearcher

•5 months ago

7 Replies

Zanubrutinib

can anyone share their experience with Zanubrutinib please?

Nana1961

•5 months ago

15 Replies

A Secondary Primary Malignancy hit me

The doctors tell us that you don't die from CLL; you die with CLL. What they don't tell you very often is that even though it isn't the CLL that gets you, it...

The doctors tell us that you don't die from CLL; you die with CLL. What they do...

hhk50

•5 months ago

29 Replies

Puzzled

Hi folks! Hope we're all travelling well. Can I tap into your collective wisdom and experience? I've just come back from my regular check up with the CLL...

Hi folks! Hope we're all travelling well. Can I tap into your collective wisdom ...

Guffy

•5 months ago

16 Replies

Acalabrutinib, NYU, Columbia Presbyterian, and Dr. Nicole Lamanna

Good evening, Soon, I will start taking alacabrutinib (also known as Calquence), and NYU is overseeing my care. Could you please provide more information...

Good evening, Soon, I will start taking alacabrutinib (also known as Calquence)...

bagelstreet225

•5 months ago

22 Replies

Ivermectin

I was recently diagnosed with CLL after a year plus of repeating colds and respiratory infections. My whites were in the high 20's sometimes almost doubling in...

I was recently diagnosed with CLL after a year plus of repeating colds and respi...

Bornagain514

•5 months ago

12 Replies

Can you have two blood cancers?

Might be a silly question to ask but can you have two blood cancers? Eg. CLL and MZL?

Might be a silly question to ask but can you have two blood cancers? Eg. CLL and...

Redkatt

•5 months ago

29 Replies

obinutuzamab fatigue

I had my second infusion of Obi Friday. All went well with no reaction. Had some sleeping issues from steroids but that has passed. Curious if people...

I had my second infusion of Obi Friday. All went well with no reaction. Had so...

Nbk59ct

•5 months ago

3 Replies

common cold lingers

back in April 2020 i had covid the first time (that was early before we knew anything) since then when i get a cold (head cold, sinus infection, common cold) i...

back in April 2020 i had covid the first time (that was early before we knew any...

pete-paz

•5 months ago

12 Replies

Disease Progression on Pirtobrutinib

After my last two CT scans (3 months apart) the oncologist told me the lymph nodes have grown and the dark monster is back. I was confused because my blood...

After my last two CT scans (3 months apart) the oncologist told me the lymph nod...

steve_canada

•5 months ago

34 Replies

new to the site

was diagnosed with CLL just about a year ago but think it actually started in 2021. that is when my labs started showing increases in my white blood cells. i...

was diagnosed with CLL just about a year ago but think it actually started in 20...

pete-paz

•5 months ago

25 Replies

Continued Journey

Getting my forth chemo treatment today. This has been much easier than the O CHOP. It has been smooth sailing especially with the surgically implanted port.( I...

Getting my forth chemo treatment today. This has been much easier than the O CHO...

FiArt12X

•5 months ago

16 Replies

Cramp

I would like to thank each and everyone of you for your most informative and positive replies and support for my husband and his severe cramp. I have...

I would like to thank each and everyone of you for your most informative and pos...

opal11uk

•5 months ago

2 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for June 2024

starting soon

CT scan Boney lesions, I have just had a CT scan and boney lesions have been detected on my pelvis and lower spine, is this CLL related.

CLL and Osteoporosis

Treatment starts 9th July

WBC Dropped 50%

Specialsts

Dental work during W and W pre treatment in 8 weeks

Continued Journey

Can't login as Ezabella

A recent MRI of the Abdomen

root canals

Exercise for aging people: where to begin, and how to minimize risk while maximizing potential, by Peter Attia M.D.

Acalabrutinib and Swollen Feet/Ankles

Update on FIL -Venetoclax as a Monotherapy, Pancytopenia and Myelodysplasia

Good explanation of BTK Degrader

T Cell exhaustion & Ibrutinib.

People living with CLL treatment as I'm about to start treatment. Thanks John.

calquence

Zanubrutinib

A Secondary Primary Malignancy hit me

Puzzled

Acalabrutinib, NYU, Columbia Presbyterian, and Dr. Nicole Lamanna

Ivermectin

Can you have two blood cancers?

obinutuzamab fatigue

common cold lingers

Disease Progression on Pirtobrutinib

new to the site

Continued Journey

Cramp

Search posts

Pinned Posts

Latest poll

Part 2 of How well do you know HealthUnlocked's features? Rate yourself on this multichoice poll. Answers later or you can check Help!

Topics

Archive