Posts - CLL Support | HealthUnlocked

CLL Support

22,732 members • 38,994 posts

All posts for June 2024

To Bone marrow biopsy or not to bone marrow biopsy that is the question.

Hi everyone, I’m not sure if this is the right forum. Previously it was thought I had pernicious anaemia (I’m in that forum too) but then they weren’t sure. I...

Hi everyone, I’m not sure if this is the right forum. Previously it was thought...

Tellingbones

•2 hours ago

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First Treatment for Richter’s Today

I was admitted into the hospital today for 5 days of DA EPOCH R w Venetoclax for large diffuse large b cell lymphoma, Richter’s Transformation, of my CLL....

I was admitted into the hospital today for 5 days of DA EPOCH R w Venetoclax for...

ReneeSusan

•8 hours ago

10 Replies

Was Just Approved For A Grant To Pay For My Monthly Insurance Premiums.

I've always known the Leukemia Lymphoma Society offered grants for copay assistance, but just recently discovered the grants can also be used to pay for...

I've always known the Leukemia Lymphoma Society offered grants for copay assista...

Luv2Craft

•2 days ago

11 Replies

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zanubrutinib

hi, The person I’m caring for has had non-Hodgkin b cell lymphoma 3 times. This time they are treating her with Zanubrutinib. She’s been on it for 2 weeks...

hi, The person I’m caring for has had non-Hodgkin b cell lymphoma 3 times. Thi...

Buster2024

•2 days ago

3 Replies

Month 21 of 24 Rituximab and Venetoclax

I'm doing well with this treatment CLL wise with all bloods within normal range. Antibody levels are however below being of much use.Past 10 weeks I've had...

I'm doing well with this treatment CLL wise with all bloods within normal range....

Fastbike14

•2 days ago

22 Replies

Just 5% of therapies tested in animals end up as as human drugs, new study shows. CLL research has particular challenges due to the TME

There's a long and challenging journey from microscope observations of cancer cells hopefully dying while exposed to candidate therapies, that is, 'in vitro'...

There's a long and challenging journey from microscope observations of cancer ce...

AussieNeil

Administrator•2 days ago

9 Replies

W&W SEPSIS

My twin brother is on watch and wait. He had a minor day case operation to remove a small cancerous lump. 36 hrs later he was readmitted with sepsis. He's...

My twin brother is on watch and wait. He had a minor day case operation to remov...

Fastbike14

•3 days ago

27 Replies

Update on skin issues

Got a phone call to have more biopsies today and went in to dermatology where they took six swabs for bacterial and fungal from different body sites . And 4...

Got a phone call to have more biopsies today and went in to dermatology where th...

cartwheels

•4 days ago

1 Reply

imbruvica and no side effects 2 yrs strong

i was diagnosed in 2017 cll.I been on imbruvica since march 2022 and i must say my numbers are great,im healty,work every day and see my oncologist every 3 mos.

i was diagnosed in 2017 cll.I been on imbruvica since march 2022 and i must say ...

Rhodeguy

•5 days ago

8 Replies

Fake scientific papers-part three - the continuing rise of AI

In part two I reported on the ways in which publishers, aided by a small but dedicated band of sleuths, are countering the threat of plagiarised and phony...

In part two I reported on the ways in which publishers, aided by a small but ded...

bennevisplace

•5 days ago

10 Replies

Richters Transformation Update- Treatment

I met with the local oncologist today to do treatment plan for confirmed Richters. I will be admitted on Monday to start 5 days of DA EPOCH - R with...

I met with the local oncologist today to do treatment plan for confirmed Richter...

ReneeSusan

•6 days ago

53 Replies

Swollen Lymph Nodes

I'm on year eight of W & W and was curious has to number of swollen lymph nodes you folks are experiencing. It has become something of a joke for us (my...

I'm on year eight of W & W and was curious has to number of swollen lymph nodes ...

StobiMan

•7 days ago

7 Replies

Blood test results

Hi w and w six years, numbers I am concerned about lymphocyte count 72.7 platelet 123 rbc 4.38 monocyte 2.5 wbc 79,2 slowly increased every 6 months love to...

Hi w and w six years, numbers I am concerned about lymphocyte count 72.7 plate...

Feavers

•7 days ago

6 Replies

first hike of summer

Awe what a beautiful day in the mountains. After a URI requiring 5 weeks of antibiotics and 3 surgeries I made it out for a fairly rigorous hike based on my...

Awe what a beautiful day in the mountains. After a URI requiring 5 weeks of ant...

skipro

•9 days ago

40 Replies

Recent Chest CT scan to check for SLL progression, June 7, 2024 (part 2 of 2 posts)

IMPRESSION- Compared to May 30, 2024 The following is the chest CT scan. I'd appreciate your words of wisdom, encouragement, and advise. Treatment, it...

IMPRESSION- Compared to May 30, 2024 The following is the chest CT scan. I'd...

bagelstreet225

•9 days ago

30 Replies

Recent CT abdomen and pelvis scan to check for SLL progression, June 7, 2024 (part 1 of 2 posts)

I was diagnosed on May 25, 2023, and classified as watch and wait. Treatment, I believe, is warranted. I'll see the hem/onc on June 20, 2024. I'd greatly...

I was diagnosed on May 25, 2023, and classified as watch and wait. Treatment, I...

bagelstreet225

•9 days ago

Anyone had an iron infusion

My husband has CLL and has a problem with low B12 and folate. His ferritin is also stubbornly low for which he’s been recommended an iron infusion for...

My husband has CLL and has a problem with low B12 and folate. His ferritin is al...

Noelnoel

•9 days ago

17 Replies

Wow! My lymphocytes got crushes

I have been on Acala for a month where my lymphocytes have been in the 200’s and just finished my first 100mg and 900mg of Obin back to back. Holy crap, my...

I have been on Acala for a month where my lymphocytes have been in the 200’s and...

Mining_Guy

•9 days ago

12 Replies

Leukemia-associated macrophages, their role in the CLL Tumor Micro-environment and how they affect progression and therapy response

Understanding how the CLL Tumor Micro-environment (TME) functions is crucial to improving CLL therapy. CLL cells are not as robust as healthy B cells and they...

Understanding how the CLL Tumor Micro-environment (TME) functions is crucial to ...

AussieNeil

Administrator•9 days ago

7 Replies

Results and looking forward to going on holidays....

Just had my 6 month appointment one week ago. WBC at 46 ( 42 in January). Hemoglobin at 14.6 (stable) and plaquets at 260 (stable). Next one in December. My...

Just had my 6 month appointment one week ago. WBC at 46 ( 42 in January). Hemogl...

povhgc

•10 days ago

6 Replies

Excellent Overview From Dr. Wierda

“And I think the main message to be optimistic for patients about is, most of us in the academic world and doing research in this area are focused on...

“And I think the main message to be optimistic for patients about is, most of us...

PennyLane2024

•11 days ago

8 Replies

Does anyone have a CBC Tracker that works in Google Docs?

My apologies if this has been answered and I couldn't find in pinned posts or history. I have an old one that I downloaded from here at the beginning but it...

My apologies if this has been answered and I couldn't find in pinned posts or hi...

PoisonDwarf

•11 days ago

11 Replies

Core Biopsy done today

Core biopsy done which allows for more tissue to be sampled compared to just aspiration. They took 4 specimens from the largest brightest node in my neck...

Core biopsy done which allows for more tissue to be sampled compared to just asp...

ReneeSusan

•11 days ago

10 Replies

Cll and age of diagnosis

My husband was diagnosed last year at age 83 with CLL. He had been doing well, not yet on any treatment and at his last appointment last month, his Dr. said...

My husband was diagnosed last year at age 83 with CLL. He had been doing well, ...

janno

•11 days ago

8 Replies

Confused? Venetoclax 400 v. 300

I have posted a few times in response to others about my treatment. Now in Mth 9 and yesterday my Venetoclax dosage was lowered from 400 to 300. I was a bit...

I have posted a few times in response to others about my treatment. Now in Mth ...

Steffi50

•11 days ago

26 Replies

Can someone interpret this for me?

Regarding my blood draw that I do every two months, the oncologist says I'm doing well and the various items on the results page are within reasonable range....

Regarding my blood draw that I do every two months, the oncologist says I'm doin...

GettinThruIt

•11 days ago

32 Replies

2 Years in.....

So I am two years in after coming off treatment due to an SVT attributed to Ibrutunib. I still have a painful spleen that comes on with infection or vaccines....

So I am two years in after coming off treatment due to an SVT attributed to Ibru...

MovingForward4423

•11 days ago

1 Reply

Brukinsa side effects

My husband (50) has been on Brukinsa for 6 months. Initially did really well on it. Recently the last few weeks he seems to be going backwards. Extreme...

My husband (50) has been on Brukinsa for 6 months. Initially did really well on...

Jill70

•12 days ago

4 Replies

trisomy 21

( yes that's 21 not 12) Has anyone ever seen anything on the gain of trisomy 21 in CLL. Seems i've just picked it up. Never heard of this before. john

( yes that's 21 not 12) Has anyone ever seen anything on the gain of trisomy 21 ...

johnliston

•13 days ago

3 Replies

Propranolol

I have been perscribed propranolol 40mg to cope with some anxiety and elevated resting heath rate. Is this OK with Ibrutinib? I have looked online but didn't...

I have been perscribed propranolol 40mg to cope with some anxiety and elevated r...

RobertCLL

•13 days ago

3 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for June 2024

To Bone marrow biopsy or not to bone marrow biopsy that is the question.

First Treatment for Richter’s Today

Was Just Approved For A Grant To Pay For My Monthly Insurance Premiums.

zanubrutinib

Month 21 of 24 Rituximab and Venetoclax

Just 5% of therapies tested in animals end up as as human drugs, new study shows. CLL research has particular challenges due to the TME

W&W SEPSIS

Update on skin issues

imbruvica and no side effects 2 yrs strong

Fake scientific papers-part three - the continuing rise of AI

Richters Transformation Update- Treatment

Swollen Lymph Nodes

Blood test results

first hike of summer

Recent Chest CT scan to check for SLL progression, June 7, 2024 (part 2 of 2 posts)

Recent CT abdomen and pelvis scan to check for SLL progression, June 7, 2024 (part 1 of 2 posts)

Anyone had an iron infusion

Wow! My lymphocytes got crushes

Leukemia-associated macrophages, their role in the CLL Tumor Micro-environment and how they affect progression and therapy response

Results and looking forward to going on holidays....

Excellent Overview From Dr. Wierda

Does anyone have a CBC Tracker that works in Google Docs?

Core Biopsy done today

Cll and age of diagnosis

Confused? Venetoclax 400 v. 300

Can someone interpret this for me?

2 Years in.....

Brukinsa side effects

trisomy 21

Propranolol

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