Posts - CLL Support | HealthUnlocked

The profound lymphopenia caused by fludarabine, bendamustine, pentostatin cladrabine...renders patients susceptible to transfusion-associated graft versus...

Top Poster CURE Hero•12 years ago

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Do you know about Fludarabine and the lifelong need for irradiated blood?

The profound lymphopenia caused by fludarabine, bendamustine, pentostatin cladr...

Click on polls and you can suggest a poll. There are many topics that we could investigate that may aid the development of CLL care and support....

Top Poster CURE Hero•12 years ago

17 Replies

Can you think off a poll that investigates an aspect of CLL life that may make a difference?

Click on polls and you can suggest a poll. There are many topics that we could i...

HAIRBEAR_UK

Founder Admin•12 years ago

14 Replies

Want to take advantage of all our features? Just log in!

Further development of http://www.cllsupport.org.uk this is your chance to contribute.

Thank you for bearing with me and taking part in recent polls that may aid in the development of the CLLSA website www.cllsupport.org.uk . The working group is...

Thank you for bearing with me and taking part in recent polls that may aid in th...

HAIRBEAR_UK

Founder Admin•12 years ago

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Is there anyone else in Cornwall or Devon, who has CLL and wants to form a support group?

hazelmark

•12 years ago

23 Replies

Wife of sufferer

My Husband was diagnosed almost 2 years ago at the age of 71, as with others it was picked up in his annual MOT and came as a shock! our first appointment was...

My Husband was diagnosed almost 2 years ago at the age of 71, as with others it ...

engineer

•12 years ago

6 Replies

This blog is great!!!!

I have only just discovered this blog, and think it is really great. At last I can be part of a community of people who understand what CLL means and have...

I have only just discovered this blog, and think it is really great. At last I c...

mitzi2

•12 years ago

3 Replies

Surprised to see Allopurinol mentioned, I used to take this for gout. Don't suffer from it now but how does it help CLL patients ?

barmouthb2

•12 years ago

6 Replies

Although my white cell count has risen to just 35 in two years I am unable to overcome colds etc, easily. Do you have any suggestions ?

barmouthb2

•12 years ago

10 Replies

London 2 Paris 6th-9th June 2013

Hi All I was diagnosed with CLL out of the blue in May 2010 after a routine blood test I was 47 at the time. I had the good Cancer to get bit and...

Hi All I was diagnosed with CLL out of the blue in May 2010 after a r...

I wonder if site members would feel able to provide even basic information on their profile as it makes it so much easier to relate to a person if you at least...

•12 years ago

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Could I make a cheeky plea?

I wonder if site members would feel able to provide even basic information on th...

Newdawn

Administrator•12 years ago

34 Replies

Is there anyone out there who has been on the Arctic trial to treat their CLL

I finished 6 months of treatment 10 weeks ago and have been more unwell post treatment than before. My back is very painful and I was in hospital for 3 days...

I finished 6 months of treatment 10 weeks ago and have been more unwell post tre...

ruthpen

•12 years ago

8 Replies

Has anyone been on the maintenance trial for Lenalidomide? has it been effective? in my case I was removed because of side effects

roan

•12 years ago

2 Replies

Hurt and puzzled

Don't you just hate it when close friends discover that you have CLL and start avoiding you like you have some sort of infectious disease? I understand they...

Don't you just hate it when close friends discover that you have CLL and start a...

Safta

•12 years ago

31 Replies

Anyone have any experience of acute neutropenia ?

This is the 'touchstone' document for the various aspects and treatment of CLL. 90% of patient's questions can be answered by reading this document....

•12 years ago

6 Replies

CURRENT CLL TREATMENT GUIDELINES - 2008

This is the 'touchstone' document for the various aspects and treatment of CLL. ...

Top Poster CURE Hero•12 years ago

You may be thinking “A slightly odd question to post on a site about cancer for people with cancer”. Let me describe the antecedents. I was reading a post,...

Are Taboos a Crime against Humanity?

You may be thinking “A slightly odd question to post on a site about cancer for ...

I was diagnosed with CLL in 1997. I have had two lots of chemo in 2004 and 2008, and will be starting another course in Feb 2013. A friend, who is the...

•12 years ago

3 Replies

Life Over Cancer by Keith I Block M.D. www.lifeovercancer.com

I was diagnosed with CLL in 1997. I have had two lots of chemo in 2004 and 2008...

Tanagergreen

•12 years ago

4 Replies

Drug interactions with Grapefruit juice

This is the complete list of drugs that interact with grapefruit juice from the Canadian study. Perhaps worth a bookmark......

This is the complete list of drugs that interact with grapefruit juice from the ...

So pleased to have found this site. I was diagnosed a year ago now. In the early stages but my count seems to be rising, so watch and wait becomes watch and...

Top Poster CURE Hero•12 years ago

4 Replies

I'm new too!

So pleased to have found this site. I was diagnosed a year ago now. In the ear...

jules33x

•12 years ago

7 Replies

Hello everyone. Do most people here have an LDH test as part of their blood test?

I was diagnosed 9 years ago at the age of 36 and this has been a constant through out. My haemotologist says it is nothing he has come across before with CLL...

•12 years ago

8 Replies

Hi everyone, I am relatively new to the site but wanted to find out whether any one experiences muscular/skeletal pain?

I was diagnosed 9 years ago at the age of 36 and this has been a constant throug...

mairin

•12 years ago

11 Replies

Where do they go?

During a recent hospitalization for a complicated endocrine crisis, my WBC would jump from 80,000 one day to 117,000 the next, down to 78,000 the next and...

During a recent hospitalization for a complicated endocrine crisis, my WBC would...

Kjohnsonmay

•12 years ago

Welcome everyone, what an incredible response to the launch of our new on-line community. Thank you for your early support and sharing. It is hard to believe...

Welcome and information about polls to aid in the development of the CLLSA website: http://www.cllsupport.org.uk

Welcome everyone, what an incredible response to the launch of our new on-line c...

HAIRBEAR_UK

Founder Admin•12 years ago

5 Replies

When you catch a cold should you try and fight it without any treatment or start taking antibiotics straight away.

Boardman

•12 years ago

11 Replies

hi everyone i work in the health service and should know this , can we get our levels of anti bodies checked (response) following flu vac ?

Have we a good response or low response .... Stewie

stewie

•12 years ago

My mum was diagnosed will CLL over 7yrs ago and so far has not had to have treatment; her white cell count has steadily increased and her spleen is enlarged so...

What support will my mum need when she has treatment

My mum was diagnosed will CLL over 7yrs ago and so far has not had to have treat...

roo174

•12 years ago

5 Replies

Tests to judge if need more FCR

Hi. Thank you for setting up this site; I am sure it will be a great help to us all. I have had CLL for a number of years, on reflection probably 7 years at...

Hi. Thank you for setting up this site; I am sure it will be a great help to us...

Jupiter

•12 years ago

4 Replies

Im new!

Hi to everyone I'm new. What a relief to find this online support at last as I have felt so isolated from other people who have CLL because there is nothing up...

Hi to everyone I'm new. What a relief to find this online support at last as I h...

mairin

•12 years ago

11 Replies

Dirty Hotels... concerns for the immunocompromised

Canadian investigation probably applies everywhere to some degree... Perhaps the last place you may want to be with CLL and a compromised immune system is a...

Canadian investigation probably applies everywhere to some degree... Perhaps ...

Top Poster CURE Hero•12 years ago