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CLL Support

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All posts for January 2023

Updated Guidance for U.K. people at higher risk with COVID

The U.K.GOV website has today updated this guidance, perhaps in anticipation of the result of the NICE technical appraisal of COVID therapeutics and pre...

The U.K.GOV website has today updated this guidance, perhaps in anticipation of ...

Jm954

Administrator•2 years ago

11 Replies

CLL Treatment concerns

Hello all, I have different options for my treatment, I have a lot of enlarged lymph nodes in my abdomen as per cat scan, it is causing me a lot of discomfort...

Hello all, I have different options for my treatment, I have a lot of enlarged ...

CA28

•2 years ago

14 Replies

CLL and Chickenpox

My 6 year old grandson has chicken pox. I have isolated from him since first sign of spots( before they blistered,) I have CLL and take ibrutinib. I have had...

My 6 year old grandson has chicken pox. I have isolated from him since first sig...

Alex15alex

•2 years ago

12 Replies

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SLL/CLL travel insurance questions

when you complete the questions for a travel insurance quote, why do they ask if your SLL/CLL was diagnosed before or after your 60th birthday?

when you complete the questions for a travel insurance quote, why do they ask if...

Freedom202

•2 years ago

16 Replies

Covered with red spots and blotches

Just finished my first month of IMBRUVICA and I am covered with itchy red spots and blotches. Benadryl marginally effective. Most of my torso and arms covered....

Just finished my first month of IMBRUVICA and I am covered with itchy red spots ...

Wranglerls

•2 years ago

15 Replies

Severe Anemia and Imbruvica

I have been on 400mm Imbruvica for 6 years fighting CLL/SLL. I understand most patients consider them the same, I do not as I am tested every 4 months for...

I have been on 400mm Imbruvica for 6 years fighting CLL/SLL. I understand most...

MCarter1954

•2 years ago

4 Replies

An extended interval between vaccination and infection enhances hybrid immunity against SARS-CoV-2 variants

A newly published study https://insight.jci.org/articles/view/165265 takes a close look at the temporal aspects of hybrid immunity - i.e. humoral immunity...

A newly published study https://insight.jci.org/articles/view/165265 takes a cl...

bennevisplace

•2 years ago

3 Replies

Fluctuation of Platelet Count

Good day. Since May 2022 through January 2023 I have had 4 Blood Draws. The first showed Platelets stable at 150. Then they dropped considerably (31 pts) to...

Good day. Since May 2022 through January 2023 I have had 4 Blood Draws. The fi...

Floydpup

•2 years ago

22 Replies

Muscular skeletal problems with acalabrutinib ?

Has anymore had problems since starting their rx?

DarrenTip

•2 years ago

7 Replies

Venclexta and reflux

I started Venclexta 2 weeks ago (ramping up from 20mg to 100mg today). Lately I suffer from a painful reflux . I used to suffer from reflux in the past but...

I started Venclexta 2 weeks ago (ramping up from 20mg to 100mg today). Lately...

GIDI

•2 years ago

9 Replies

Restarting Calquence

I had to get off Calquence for a procedure for 12 days. I restarted this past Wednesday night. I was down to 1 pill a day and doing well. I got blood work at...

I had to get off Calquence for a procedure for 12 days. I restarted this past We...

schmooth97

•2 years ago

5 Replies

List of Blood Test for CLL with explanations?

Hello, Is there a list of blood tests for CLL with values and explanations?

Mumu1

•2 years ago

4 Replies

Flow cytometry results for mlus

Last September my cbc at my physical was all over the place. Low white count, low neutrophils, high monocytes. It continued for several months so I was...

Last September my cbc at my physical was all over the place. Low white count, l...

Msmilley

•2 years ago

7 Replies

Rigor

My husband is about to start his treatment for CLL after 8 years of monitoring. He recently had a rigor attack. Do you think that could be connected to his...

My husband is about to start his treatment for CLL after 8 years of monitoring. ...

Rocky0181

•2 years ago

6 Replies

Swollen hands since starting Acalabrutinib

Hi, Just wondering if anyone has had issues with hands swelling up so much you can make a fist whilst on Acalabrutinib? I started treatment 2.5 months ago,...

Hi, Just wondering if anyone has had issues with hands swelling up so much you ...

Gampo

•2 years ago

6 Replies

Iron Levels with CLL

Ive been having issues with low iron and as a result I'm on/off iron supplements. I also started taking acalabrutinib in May. I see a local doctor who didn't...

Ive been having issues with low iron and as a result I'm on/off iron supplements...

susq9948

•2 years ago

27 Replies

Hives like sores on scalp

I started acalabrutinib in May and only taking one dose per day. A few weeks ago I started with sores on my scalp that itch. I've switched certain products...

I started acalabrutinib in May and only taking one dose per day. A few weeks ag...

susq9948

•2 years ago

6 Replies

4 weeks into starting acalabrutinib

I started acalabrutinib 4weeks ago. When I started my white cells were at 85, red cell 127, and platelets at 80. My spleen was 20 cm and many lymph nodes in...

I started acalabrutinib 4weeks ago. When I started my white cells were at 85, re...

Rrriver

•2 years ago

4 Replies

Compromised Immunity: So What Does That Really Mean?

Greetings to all my CLL friends! I rarely post questions because I usually find answers to any questions just by reading posts from this forum. Today I do...

Greetings to all my CLL friends! I rarely post questions because I usually find...

P-klenclo

•2 years ago

26 Replies

Feeling a bit down. Slipped disc and just been told that I should start treatment soon.

The start to 2023 has not been great for me. Diagnosed with an L5/S1 prolapse last week. The sciatic pain has literally had me in spasms on our sofa, unable to...

The start to 2023 has not been great for me. Diagnosed with an L5/S1 prolapse la...

FairweatherSailor

•2 years ago

15 Replies

Differential Results

Good day to all. I had a blood draw today from my PCP for my upcoming annual physical scheduled for the first week in February. At the bottom of the...

Good day to all. I had a blood draw today from my PCP for my upcoming annual ph...

Floydpup

•2 years ago

4 Replies

My story - vaccines, Covid, questions and some things I've learned

This is a long hard story to write, but I hope it will help others. I think that is what this forum is about - our experience in an effort to help others....

This is a long hard story to write, but I hope it will help others. I think tha...

marcyh

•2 years ago

22 Replies

Could Vitamin D3 affect hemoglobin levels?

My husband ( 84 years old) has had CLL for at least 20 years. Two years ago they started him on Imbruvica 420 mg daily but stopped it after 14 months because...

My husband ( 84 years old) has had CLL for at least 20 years. Two years ago they...

Seaperson

•2 years ago

7 Replies

The bumpy journey of a relapsed CLL with a weird and confusing chest CT scan

A year ago I had a CT scan to assess my CLL which confirmed my anxieties that I was beginning to relapse. In April/May it became very clear that I would need...

A year ago I had a CT scan to assess my CLL which confirmed my anxieties that I ...

Bethan49

•2 years ago

22 Replies

going to the dentist

I have not had my teeth cleaned since I started taking Imbruvica five months ago. It’s time to schedule a cleaning. question: do you guys do anything...

I have not had my teeth cleaned since I started taking Imbruvica five months ago...

DogmomLM

•2 years ago

19 Replies

FDA APPROVAL FOR ZANUBRUTINIB

Some of you may have seen the original News Release on January 19; however, for those who did not I'm presenting it here. Dana Farber announced that FDA...

Some of you may have seen the original News Release on January 19; however, for ...

wizzard166

•2 years ago

9 Replies

Antivaxx

Just read a tweet from someone who was diagnosed with CLL a week after having the covid vaccine, and thinks it’s related. How dangerous the Antivaxx people...

Just read a tweet from someone who was diagnosed with CLL a week after having th...

MovingForward4423

•2 years ago

38 Replies

BEET JUICE : Beneficial for us ?

Beets are in the news. I discovered organic beet juice without salt. Unfortunately canned beets are packed with salt and I am not set up for cooking beets.

Beets are in the news. I discovered organic beet juice without salt. Unfortunate...

janvog

•2 years ago

25 Replies

When to expect covid negative result after Paxlovid treatment

Hi All. It's been a while since I last posted. Does anyone have insight into when to expect a negative result once 5 days of Pax treatment is complete? I found...

Hi All. It's been a while since I last posted. Does anyone have insight into whe...

Random78

•2 years ago

27 Replies

Independent report: JCVI statement (UK) on the COVID-19 vaccination programme for 2023: 8 November 2022

https://www.gov.uk/government/publications/covid-19-vaccination-programme-for-2023-jcvi-interim-advice-8-november-2022/jcvi-statement-on-the-covid-19-vaccinatio

https://www.gov.uk/government/publications/covid-19-vaccination-programme-for-20...

JigFettler

Volunteer•2 years ago

5 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for January 2023

Updated Guidance for U.K. people at higher risk with COVID

CLL Treatment concerns

CLL and Chickenpox

SLL/CLL travel insurance questions

Covered with red spots and blotches

Severe Anemia and Imbruvica

An extended interval between vaccination and infection enhances hybrid immunity against SARS-CoV-2 variants

Fluctuation of Platelet Count

Muscular skeletal problems with acalabrutinib ?

Venclexta and reflux

Restarting Calquence

List of Blood Test for CLL with explanations?

Flow cytometry results for mlus

Rigor

Swollen hands since starting Acalabrutinib

Iron Levels with CLL

Hives like sores on scalp

4 weeks into starting acalabrutinib

Compromised Immunity: So What Does That Really Mean?

Feeling a bit down. Slipped disc and just been told that I should start treatment soon.

Differential Results

My story - vaccines, Covid, questions and some things I've learned

Could Vitamin D3 affect hemoglobin levels?

The bumpy journey of a relapsed CLL with a weird and confusing chest CT scan

going to the dentist

FDA APPROVAL FOR ZANUBRUTINIB

Antivaxx

BEET JUICE : Beneficial for us ?

When to expect covid negative result after Paxlovid treatment

Independent report: JCVI statement (UK) on the COVID-19 vaccination programme for 2023: 8 November 2022

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