Posts - CLL Support | HealthUnlocked

CLL CURE Hero•11 years ago

Diagnosed 2 years ago, but probably the process began further back. Just went undetected. Having increased nightly leg cramps which started about 2 years ago....

CLL and night time leg cramping: Has anyone else experienced this? & Shingles vacine

Diagnosed 2 years ago, but probably the process began further back. Just went un...

Soflajoe

•11 years ago

14 Replies

Go nuts for better health?

While not specifically CLL related, I found Dr Koffman's recent blog covering the paper "Association of Nut Consumption with Total and Cause-Specific...

While not specifically CLL related, I found Dr Koffman's recent blog covering th...

Administrator•11 years ago

Just a reminder that you will not see private Posts and Questions in the 'Last activity' and 'News feed' pages. To find these, you need to click on the...

Want to take advantage of all our features? Just log in!

Don't forget to check Posts and Questions for items viewable only by members

Just a reminder that you will not see private Posts and Questions in the 'Last a...

Administrator•11 years ago

Good new research. More and more the heterogeneous nature of Chronic Lymphocytic Leukaemia is being explored at the genomic level. Whole genome and exome...

Slowly new research is working to understand CLL

Good new research. More and more the heterogeneous nature of Chronic Lymphocyti...

•11 years ago

Hi friends In Part 4 of my conversation with Dr. Sharman at iwCLL 2013, we start by discussing the lousy tired feeling that sadly so many of us are all too...

iwCLL 2013: Dr. Sharman discusses why we feel so lousy, and much more.

Hi friends In Part 4 of my conversation with Dr. Sharman at iwCLL 2013, we star...

'Late starters' still have much to gain by exercising This research shows that it is NEVER too late… http://www.bbc.co.uk/news/health-25087047...

CLL CURE Hero•11 years ago

13 Replies

'Late starters' still have much to gain by exercising

'Late starters' still have much to gain by exercising This research shows that i...

•11 years ago

Our current poll seeks your input on what hardware you expect to be using in a year or so to access the CLLSA website http://www.cllsupport.org.uk/index.htm...

Laptop and Desktop Hardware Upgrades - are they worth it?

Our current poll seeks your input on what hardware you expect to be using in a y...

Administrator•11 years ago

Eyes-On Glasses let nurses see patients' veins through their skin: http://www.gizmag.com/evena-medical-eyes-on-glasses/29916/ "The glasses can be worn over...

These Veinity Glasses should bring a smile to your face at your next blood test!

Eyes-On Glasses let nurses see patients' veins through their skin: http://www.gi...

Administrator•11 years ago

'Marble Bone' is usually a congenital problem as far as I am aware. Mine developed soon after CLL was diagnosed and midway through FCR treatment. It would be...

I would be interested to hear if anyone else in the community has heard of any link between CLL and Osteopetrosis - "Marble Bone".

'Marble Bone' is usually a congenital problem as far as I am aware. Mine develop...

jiajia

•11 years ago

7 Replies

FISH Testing in UK

FISH Testing. This being a UK company the price of a FISH test might become lower, and thus the NHS use these tests more frequently. Cytocell Ltd. Of...

FISH Testing. This being a UK company the price of a FISH test might become low...

•11 years ago

Silicon Valley company Theranos has recently sealed a deal with Walgreen’s Pharmacy (the largest pharmacy chain in the USA) to deliver on-site laboratory...

Blood testing coming to a pharmacy near you!

Silicon Valley company Theranos has recently sealed a deal with Walgreen’s Pharm...

Notification of this interview came out a fortnight ago, but I've posted the link here should anyone wish to discuss this video or treatment for elderly CLL...

Administrator•11 years ago

2 Replies

Positive News for Elderly CLL Patients (Patient Power interview with Dr. Valentin Goede at iwCLL)

Notification of this interview came out a fortnight ago, but I've posted the lin...

Administrator•11 years ago

The NHS has a site for you to check out heath apps before you download, ensuring they are medically useful and respect data protection apps.nhs.uk

Check out your health app before you download

The NHS has a site for you to check out heath apps before you download, ensuri...

Myrddin

•11 years ago

"Health authorities have been struggling to convince the public that the threat of totally drug-resistant bacteria is a crisis. Earlier this year, British...

More on Bacteria developing Antibiotic Resistance

"Health authorities have been struggling to convince the public that the threat ...

I was interested to come across this 'study' into the business impact of poor hygiene by an Australian company that naturally specialises in providing...

Administrator•11 years ago

11 Replies

The true cost of poor hygiene in the workplace

I was interested to come across this 'study' into the business impact of poor hy...

Administrator•11 years ago

The only way to keep information perfectly private is to stop generating it, which is next to impossible. Peter Eckersley, a director at the Electronic...

What's your Net worth: How to reclaim your personal data (New Scientist article)

The only way to keep information perfectly private is to stop generating it, whi...

Hi Everybody who replied to my post and thankyou for the information. I shall carry on with my exercise regime all the while that I am able to. The figures for...

Administrator•11 years ago

3 Replies

Exercise, and being grateful for long lives

Hi Everybody who replied to my post and thankyou for the information. I shall ca...

john133

•11 years ago

23 Replies

New members - How to quickly find the content you need

This site isn't the easiest to navigate and improvements are planned. I could even say it was a bit prickly to use, but there's some great content - just like...

This site isn't the easiest to navigate and improvements are planned. I could ev...

Administrator•11 years ago

The recent discussion highlighting the challenges newly diagnosed members have finding suitable content reminded me that we can selectively filter site content...

Categorising Posts and Questions - why you may find your submission edited by AussieNeil

The recent discussion highlighting the challenges newly diagnosed members have f...

Administrator•11 years ago

This inspiring story about a woman first diagnosed in 2002, with an aggressive form of CLL, shows how CLL can be kept under control. Various treatments were...

A good story of hope when diagnosed with CLL

This inspiring story about a woman first diagnosed in 2002, with an aggressive f...

My Thanks to all for your advice about exercising, I do get tired but always feel better having done a work out so that can't be bad. Can anybody tell me what...

•11 years ago

2 Replies

What blood counts can I expect with CLL?

My Thanks to all for your advice about exercising, I do get tired but always fee...

john133

•11 years ago

[This post has been edited to remove an unauthorised survey]

Hi everyone we are a group of university students volunteering at a new cancer association. We are seeking to help them get started.

VolunteerCancerGroup

•11 years ago

4 Replies

CLL and Exercise - Can it do you any harm?

I am on my 3rd Cycle of Ofatumumap and Bendamustine having been diagnosed with CLL back in April this year. I cannot...

I am on my 3rd Cycle of Ofatumumap and Bendamustine having been diagnosed with C...

john133

•11 years ago

does anyone have information on CMML?

ann08

•11 years ago

Friends, In the third of my conversation with Dr. Sharman from iwCLL 2013, he discusses the thorny issues of how to treat someone with a 17p del with today's...

iwCLL 2013: Dr. Jeff Sharman Discusses how He Approaches High Risk Patients

Friends, In the third of my conversation with Dr. Sharman from iwCLL 2013, he d...

CLL Trials in the U.K. This leaflet has been updated by the CLLSA from the original which was written by Professor Peter Hillmen Consultant...

CLL CURE Hero•11 years ago

3 Replies

CLL Trials in the UK

CLL Trials in the U.K. This leaflet has been updated by the CLLSA fr...

HAIRBEAR_UK

Founder Admin•11 years ago

2 Replies

Dr. Sharman Part 2 of the Interview on Prognostic Factors

My blog: http://bkoffman.blogspot.com sports the second part of the interview with Dr. Sharman, plus my discussion of predictive versus prognostic markers, and...

My blog: http://bkoffman.blogspot.com sports the second part of the interview wi...

The WAR on Cancer.. How can it be a WAR, when we are on WATCH and WAIT.? Or shall we just blame Richard Nixon for inappropriate terminology.? For details...

CLL CURE Hero•11 years ago

4 Replies

The ' WAR ' on cancer.

The WAR on Cancer.. How can it be a WAR, when we are on WATCH and WAIT.? Or sh...

Inside this Issue Page 1 Chairman’s Foreword Page 2 Interview with Prof. Leclair Page 3 Interview Continued Page 4 Southampton Meeting Report Page 5...

•11 years ago

8 Replies

Autumn Newsletter Of The CLL Support Association - CLL News

Inside this Issue Page 1 Chairman’s Foreword Page 2 Interview with Prof. Lecl...

HAIRBEAR_UK

Founder Admin•11 years ago