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CLL Support

23,337 members•40,045 posts

All posts for December 2021

MONOCLONAL ANTIBODY INFUSIONS TOO SOON?

After I was exposed recently to a two year old who had symptoms and tested positive for COVID, I called the ER of a local hospital where I knew they would be...

After I was exposed recently to a two year old who had symptoms and tested posit...

wizzard166

•3 years ago

61 Replies

UK medicines regulator approves Pfizer’s ‘life-saving’ Covid pill

"UK regulators have approved Pfizer’s “life-saving” antiviral drug Paxlovid, which boasts nearly 90% success in preventing severe illness among vulnerable...

"UK regulators have approved Pfizer’s “life-saving” antiviral drug Paxlovid, whi...

Harvist

•3 years ago

7 Replies

SLL now added to CLL

Anyone else have CLL, in remission, then told you now have SLL?

lsutigers2018

•3 years ago

9 Replies

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Response after 2nd booster

Hi, I am an active monitoring (actually not very active, was due to be seen in September) CLL sufferer. My GP gave me a 2nd booster of Pfizer on Wednesday and...

Hi, I am an active monitoring (actually not very active, was due to be seen in S...

LizGB

•3 years ago

5 Replies

Monoclonal treatment,how to get help?

Hi,hope everyone is doing ok and he all managed to find joy over moments at Christmas :) My dad has cll,on watch and wait for the past three years and touch...

Hi,hope everyone is doing ok and he all managed to find joy over moments at Chri...

abby_87

•3 years ago

6 Replies

Fasting Mimicking Diet

Someone posted regarding Fasting Mimicking Diet earlier—don’t remember the date, but before Dec 9. Longo answers questions at 46:40. I asked the CLL question...

Someone posted regarding Fasting Mimicking Diet earlier—don’t remember the date,...

Lavinia-Blue

•3 years ago

2 Replies

The end of Covid-19

https://youtu.be/8EDBJBmlvXY

zaax

•3 years ago

6 Replies

How do majority of CLL patients respond to Rituximab and venetoclax and what are common side effects?

Calquence not working to clear cll from bone marrow. Can person continue to do rather heavy work while on V and R?

Calquence not working to clear cll from bone marrow. Can person continue to do r...

smirnof

•3 years ago

4 Replies

Shopping on AmazonSmile helps your CLL Charity!!!

I just received this for my CLL Society Charity: This is the quarterly notification to inform you that AmazonSmile has made a charitable donation to the...

I just received this for my CLL Society Charity: This is the quarterly notificat...

WinJ3

•3 years ago

7 Replies

Interpretation of blood tests and other markers?

I have been diagnosed with CLL from February 2021. My doctor started me on Calquence shortly after diagnosis. My white blood cell count Shot up to 66K and...

I have been diagnosed with CLL from February 2021. My doctor started me on Calqu...

Flip123

•3 years ago

3 Replies

Omicron variant and the immunocompromised

Is the Omicron variant less dangerous for the immunocompromised than the Delta variant?

Is the Omicron variant less dangerous for the immunocompromised than the Delta v...

Lindaan

•3 years ago

23 Replies

side effects after Sinopharm vaccine?

My brother 57 years old usually takes Ibrutinib 140 mg 3 times a day for just over a year and felt well. Now he has swollen lymph nodes in his stomach and high...

My brother 57 years old usually takes Ibrutinib 140 mg 3 times a day for just ov...

Green202

•3 years ago

13 Replies

Booster-as 4th shot

Who has had a full dose series of 3 Moderna plus a Moderna booster? If so, any side effects or concerns? Had my 3rd moderna nearly 5 months ago; hoping to...

Who has had a full dose series of 3 Moderna plus a Moderna booster? If so, an...

ElMaga

•3 years ago

6 Replies

CLL and SPO2 Readings (Pulse Oximeter)

I hope this has not been covered already, My search. did not turn anything much up. Just purchased a Pulse Oximeter as part of my tools in respect of...

I hope this has not been covered already, My search. did not turn anything much...

ScruffyDuck

•3 years ago

21 Replies

publications

Hello. Almost a week ago I have not received mail from this page. maybe there are no posts? or just don't get it? Thank you

Hello. Almost a week ago I have not received mail from this page. maybe there ...

Bixilon

•3 years ago

4 Replies

Revisiting Richter transformation in the era of novel CLL agents

September 2021 A thorough review of where we are with the understanding and treatment of Richter's. Sadly, still not looking good but hopefully more...

September 2021 A thorough review of where we are with the understanding and trea...

Jm954

Administrator•3 years ago

14 Replies

COVID and CLL -- A little good news

I was diagnosed with CLL 2 years ago and ever since then the world has been engulfed with the COVID pandemic. The word has always been that CLL patients are...

I was diagnosed with CLL 2 years ago and ever since then the world has been engu...

DylanPxxx

•3 years ago

13 Replies

Antibodies in place of 4th shot.

My Oncologist informed me today that there will not be a 4th shot for me. 6 months after 3rd shot I will receive Monoclonal Antibodies by injection instead....

My Oncologist informed me today that there will not be a 4th shot for me. 6 mont...

Hugo51

•3 years ago

5 Replies

Pfizer pill interaction

I read where the new covid pill (Pfizer) interacts with ibrutinib; I wonder how many days we must be off ibrutinib before we can take the pill, should we need...

I read where the new covid pill (Pfizer) interacts with ibrutinib; I wonder how ...

ElMaga

•3 years ago

9 Replies

Fixed Duration A & O Phase 2 Study...anyone?

Hello to this wonderful community and happy holidays to all! I have been clicking and reading and listening for the past 20 years while on w&w. I was diagnosed...

Hello to this wonderful community and happy holidays to all! I have been clickin...

Bethro

•3 years ago

19 Replies

Evusheld

Wondering if anyone knows of Evusheld availability in California/ Los Angeles County? I have found some health care organizations specific guidelines for...

Wondering if anyone knows of Evusheld availability in California/ Los Angeles Co...

Davidcara

•3 years ago

27 Replies

Ibrutinib and diarrhea

Hello, I'm wondering if anyone taking Ibrutinib has experienced diarrhea. grateful for tips on how to deal with this problem.

Hello, I'm wondering if anyone taking Ibrutinib has experienced diarrhea. gratef...

Green202

•3 years ago

14 Replies

Ibrotinib and high level of TSH

Hello, I'm wondering if anyone taking Ibrutinib has experience with treatment for high levels of TSH regarding thyroid. Thankful for feedback.

Hello, I'm wondering if anyone taking Ibrutinib has experience with treatment ...

Green202

•3 years ago

6 Replies

New guidance issued Christmas eve:

https://www.gov.uk/government/publications/covid-19-guidance-for-people-whose-immune-system-means-they-are-at-higher-risk/covid-19-guidance-for-people-whose-imm

https://www.gov.uk/government/publications/covid-19-guidance-for-people-whose-im...

AutumnJ

•3 years ago

27 Replies

Booster- not

I’m waiting for 10th booster .. so excited, how about you?

Robws

•3 years ago

12 Replies

Venetoclax - Rituximab and diarrhea

Hello everyone, my mother has been on Venetoclax (400 mg a day) in combination with Rituximab (ones a month) for 2 months now. Bloods are improving but last...

Hello everyone, my mother has been on Venetoclax (400 mg a day) in combination ...

Marymary19

•3 years ago

13 Replies

With omicron, you need a mask that means business

"With another coronavirus variant racing across the U.S., once again health authorities are urging people to mask up indoors. Yes, you've heard it all before....

"With another coronavirus variant racing across the U.S., once again health auth...

Lavinia-Blue

•3 years ago

4 Replies

Filled in a GP econsult form asking if they knew what I do if PCR positive

Basically ? No. Ring 119 seems to be the only route and if I feel "awful" try 111. I think we're going to need a lot of effort to get the early treatments in...

Basically ? No. Ring 119 seems to be the only route and if I feel "awful" try 11...

Harvist

•3 years ago

9 Replies

Remdesivir revisited

Hitherto, Remdesivir has been used to treat Covid patients who are hospitalised and severely ill, with limited success. Two articles were published in the NEJM...

Hitherto, Remdesivir has been used to treat Covid patients who are hospitalised ...

bennevisplace

•3 years ago

8 Replies

Good news

We, my husband, also has good news. Don't feel guilty. When he was very unwell the good news from others gave us hope. Let us share the good to give a bit of...

We, my husband, also has good news. Don't feel guilty. When he was very unwell t...

Jucl

•3 years ago

5 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for December 2021

MONOCLONAL ANTIBODY INFUSIONS TOO SOON?

UK medicines regulator approves Pfizer’s ‘life-saving’ Covid pill

SLL now added to CLL

Response after 2nd booster

Monoclonal treatment,how to get help?

Fasting Mimicking Diet

The end of Covid-19

How do majority of CLL patients respond to Rituximab and venetoclax and what are common side effects?

Shopping on AmazonSmile helps your CLL Charity!!!

Interpretation of blood tests and other markers?

Omicron variant and the immunocompromised

side effects after Sinopharm vaccine?

Booster-as 4th shot

CLL and SPO2 Readings (Pulse Oximeter)

publications

Revisiting Richter transformation in the era of novel CLL agents

COVID and CLL -- A little good news

Antibodies in place of 4th shot.

Pfizer pill interaction

Fixed Duration A & O Phase 2 Study...anyone?

Evusheld

Ibrutinib and diarrhea

Ibrotinib and high level of TSH

New guidance issued Christmas eve:

Booster- not

Venetoclax - Rituximab and diarrhea

With omicron, you need a mask that means business

Filled in a GP econsult form asking if they knew what I do if PCR positive

Remdesivir revisited

Good news

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