Posts - CLL Support | HealthUnlocked

CLL Support

22,514 members • 38,670 posts

All posts for August 2022

Latest BC CDC no longer recommends Evusheld

BC cancer now does not recommend Evusheld as per latest CDC data:...

naddude

•2 years ago

7 Replies

Tomorrow is World CLL Day

If you Tweet or have a FB page there are resources to help you spread the word about CLL on a variety of themes/topics....

If you Tweet or have a FB page there are resources to help you spread the word a...

Jm954

Administrator•2 years ago

5 Replies

Covid Booster

I had a message from my GP Surgery yesterday with an appointment for my booster. I think there has been some discussion about having a flu jab at the same...

I had a message from my GP Surgery yesterday with an appointment for my booster....

Adlucy

•2 years ago

1 Reply

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Imbruvica

I was on Imbruvica for a few years with very little side effects, fatigue and headaches. I had them and they were hardly noticed. I have been off the...

I was on Imbruvica for a few years with very little side effects, fatigue and he...

suncity18

•2 years ago

2 Replies

Optical Genome Mapping: a promising new tool to assess genomic complexity - Part Two

Further to https://healthunlocked.com/cllsupport/posts/148409355/optical-genome-mapping-a-promising-new-tool-to-assess-genomic-complexity-in-cll An update...

Further to https://healthunlocked.com/cllsupport/posts/148409355/optical-genome-...

bennevisplace

•2 years ago

10 Replies

Husband's 3rd week of "O" infusions, getting ready for the "V" ramp up!

After the third "O" infusion, his numbers look amazing, WBC 3.0, Hemoglobin 12.7, Platelets rising at 132, Absolute Lymphocytes .72, Absolute Neutrophils......

After the third "O" infusion, his numbers look amazing, WBC 3.0, Hemoglobin 12.7...

lisakc1

•2 years ago

7 Replies

17p deletion IGHV unmutated tp53absent

Hello everybody. My mother have llc with 17p deletion IGHV unmuted TP53 absent. Anyone have similar status, and what treatment is taking ? Sorry for my bad...

Hello everybody. My mother have llc with 17p deletion IGHV unmuted TP53 absen...

Pvasile

•2 years ago

12 Replies

Notice of data breach

Notified by Chrome of a data breach. Real or scam?

KLW4025

•2 years ago

5 Replies

Crisis for the Evusheld cause!

My latest daily tweet - 17,946 -> 17,974 signatures. A very poor 28 since yesterday. This needs maximum effort to spread the word! 82k+ needed in 26 days...

My latest daily tweet - 17,946 -> 17,974 signatures. A very poor 28 since yest...

JIDD

•2 years ago

3 Replies

paraneoplastic syndrome

Hi I have either high count mbl or very early cll, i will know more when i see my specialist in November. I just wondered if anyone had developed a...

Hi I have either high count mbl or very early cll, i will know more when i see m...

paulgf54

•2 years ago

3 Replies

fatigue extrem

"I'm finished I'm getting too unbelievably tired I had a crisis yesterday then extreme tiredness because I danced I'm fascinated by their energy they don't...

"I'm finished I'm getting too unbelievably tired I had a crisis yesterday then ...

Buhber

•2 years ago

10 Replies

Good news and Bad news?

( IGHV mutated, No 17P or TP53 deletion and borderline for 13Q 6.5% and W&W for 18 years) I recently had bloods drawn and to my surprise WBC went down from...

( IGHV mutated, No 17P or TP53 deletion and borderline for 13Q 6.5% and W&W fo...

bertie260

•2 years ago

6 Replies

Low dose Statin Therapy for Cholestrol - Is this bad for CLL patients ?

I am taking Rosuvastatin, 20mg/day for sllghtly high cholestrol. I currently read that low-dose statin therapy may promote angiogenesis (the growth of new...

I am taking Rosuvastatin, 20mg/day for sllghtly high cholestrol. I currently r...

markjeep51

•2 years ago

21 Replies

Updates on what is happening with STATIC. Since Prof. Hillmen left, it seems to have stalled somewhat.

With only 18 months left on the FLAIR trial and as per another post on here saying Prof. Peter Hillman has left the trial I am a bit worried about STATIC...

With only 18 months left on the FLAIR trial and as per another post on here sayi...

zaax

•2 years ago

6 Replies

"Undetectable Measurable Residual Disease"

The last day of my treatment is Sept 16th, the treatment went without a hitch. After two weeks all my blood test were within the normal range. My question is,...

The last day of my treatment is Sept 16th, the treatment went without a hitch. A...

Test_Tech

•2 years ago

16 Replies

T-pll an other type of leukemia?

. Does this occur on genetic mutations such as TP-53 muted?

spi3

•2 years ago

2 Replies

Successful morning foraging

Worthwhile morning early autumn foraging. Found wild plums and sloes, both the best quality we have ever picked. Two bags of each to freeze. Here's the...

Worthwhile morning early autumn foraging. Found wild plums and sloes, both the...

kitchengardener2

•2 years ago

29 Replies

Study suggests Paxlovid is effective against the Omicron variant in over 65s

...but is it ineffective in younger age groups? The issue is, the study in question...

...but is it ineffective in younger age groups? The issue is, the study in que...

bennevisplace

•2 years ago

1 Reply

Body and face sores

I’m almost 3 years into my CLL diagnosis with fatigue being my main symptom. But lately I’ve been getting these large sores that look like a small boil that...

I’m almost 3 years into my CLL diagnosis with fatigue being my main symptom. Bu...

Willowbug

•2 years ago

6 Replies

Bone Health

just wondering how the ladies with bone issues i e osteoporosis manage it along with Cll. (We can’t talk about things like this in the U.S. mine was caused...

just wondering how the ladies with bone issues i e osteoporosis manage it along ...

Ladydi49

•2 years ago

33 Replies

Starting Venetoclax on Wednesday

Hi everyone, I am scheduled to start on Wednesday this coming week. They are putting a me inpatient on Tuesday until Friday for the start of the ramp up....

Hi everyone, I am scheduled to start on Wednesday this coming week. They are pu...

WittyApricot

•2 years ago

23 Replies

paxlovid

I’m been on W&W for 20 months bloods are reasonably stable Came back from holiday abroad 9 days ago after 6 days developed a cough tested negative for 3 days...

I’m been on W&W for 20 months bloods are reasonably stable Came back from holi...

Barclays

•2 years ago

8 Replies

Ibrutinib timing

Hi everyone, I’ve been successfully on Ibrutinib for 5.5 years, but when I saw my haematologist recently she told me that the average effective length of...

Hi everyone, I’ve been successfully on Ibrutinib for 5.5 years, but when I saw...

BSMI

•2 years ago

15 Replies

Night of cramp

So after having had a lovely day out yesterday. We did quite a long walk,my first since my leg scalding accident. I managed the walk ok and did just short...

So after having had a lovely day out yesterday. We did quite a long walk,my ...

kitchengardener2

•2 years ago

54 Replies

Huge drop in PLT(platelets) while under CLL treatment with RITUXAN

Did anyone experience a huge drop in PLT(platelets) while under CLL treatment with Rituxan? Mine has gone from 389 to 76 after the 4th and last treatment....

Did anyone experience a huge drop in PLT(platelets) while under CLL treatment wi...

larrcow

•2 years ago

7 Replies

Additional drugs stopped. Is this other peoples experience.

I’m on V and O. Well actually just V now. Having finished my O cycles. My consultant has stopped my aciclovir and Cotrimoxazole. My V will continue until...

I’m on V and O. Well actually just V now. Having finished my O cycles. My consul...

Jake_Bullet

•2 years ago

12 Replies

Hair loss on Venetoclax

Hair thinning on Venetoclax- have been on it for over 12 mths-still an issue coming out in clumps after washing and brushing it. Anyone else experienced...

Hair thinning on Venetoclax- have been on it for over 12 mths-still an issue c...

MICHPR

•2 years ago

12 Replies

Evusheld/bivalent vaccines

Colleagues, I am scheduled to get my second series of evusheld next week. I hear that the new bivalent vaccine will be out after labor day. I know you...

Colleagues, I am scheduled to get my second series of evusheld next week. I h...

ElMaga

•2 years ago

9 Replies

Now a possible fungal infection

week 6 of covid and day 8 of hospital I have pnemonia and have been pumped full of the best antibiotics - The blood test arent showing a bacterial...

week 6 of covid and day 8 of hospital I have pnemonia and have been pumped ful...

Brucex100

•2 years ago

16 Replies

Need help in understanding immunoglobulins..

I have a question about IGG. I have noticed IGG is slipping gradually. Now at 6.25. I keep reading the term IVIG on this site and I am wondering will we all...

I have a question about IGG. I have noticed IGG is slipping gradually. Now at 6...

Curling123

•2 years ago

17 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for August 2022

Latest BC CDC no longer recommends Evusheld

Tomorrow is World CLL Day

Covid Booster

Imbruvica

Optical Genome Mapping: a promising new tool to assess genomic complexity - Part Two

Husband's 3rd week of "O" infusions, getting ready for the "V" ramp up!

17p deletion IGHV unmutated tp53absent

Notice of data breach

Crisis for the Evusheld cause!

paraneoplastic syndrome

fatigue extrem

Good news and Bad news?

Low dose Statin Therapy for Cholestrol - Is this bad for CLL patients ?

Updates on what is happening with STATIC. Since Prof. Hillmen left, it seems to have stalled somewhat.

"Undetectable Measurable Residual Disease"

T-pll an other type of leukemia?

Successful morning foraging

Study suggests Paxlovid is effective against the Omicron variant in over 65s

Body and face sores

Bone Health

Starting Venetoclax on Wednesday

paxlovid

Ibrutinib timing

Night of cramp

Huge drop in PLT(platelets) while under CLL treatment with RITUXAN

Additional drugs stopped. Is this other peoples experience.

Hair loss on Venetoclax

Evusheld/bivalent vaccines

Now a possible fungal infection

Need help in understanding immunoglobulins..

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Posts - CLL Support | HealthUnlocked

CLL Support

All posts for August 2022

Latest BC CDC no longer recommends Evusheld

Tomorrow is World CLL Day

Covid Booster

Imbruvica

Optical Genome Mapping: a promising new tool to assess genomic complexity - Part Two

Husband's 3rd week of "O" infusions, getting ready for the "V" ramp up!

﻿17p deletion IGHV unmutated tp53absent

Notice of data breach

Crisis for the Evusheld cause!

paraneoplastic syndrome

﻿fatigue extrem

Good news and Bad news?

Low dose Statin Therapy for Cholestrol - Is this bad for CLL patients ?

Updates on what is happening with STATIC. Since Prof. Hillmen left, it seems to have stalled somewhat.

"Undetectable Measurable Residual Disease"

﻿T-pll an other type of leukemia?

﻿Successful morning foraging

Study suggests Paxlovid is effective against the Omicron variant in over 65s

Body and face sores

Bone Health

Starting Venetoclax on Wednesday

paxlovid

Ibrutinib timing

﻿Night of cramp

Huge drop in PLT(platelets) while under CLL treatment with RITUXAN

Additional drugs stopped. Is this other peoples experience.

﻿Hair loss on Venetoclax

Evusheld/bivalent vaccines

Now a possible fungal infection

Need help in understanding immunoglobulins..

Search posts

Pinned Posts

Latest poll

Part 2 of How well do you know HealthUnlocked's features? Rate yourself on this multichoice poll. Answers later or you can check Help!

Topics

Archive

17p deletion IGHV unmutated tp53absent

fatigue extrem

T-pll an other type of leukemia?

Successful morning foraging

Night of cramp

Hair loss on Venetoclax