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CLL Support

23,337 members•40,046 posts

All posts for March 2020

Any info on newer drug acalabrutinib/calquence

hi all. thanks for all your help.has anyone tried the acalabrutinib(calquence)? suppose to be a new drug with less side effects.

hi all. thanks for all your help.has anyone tried the acalabrutinib(calquence)? ...

naturallady

•5 years ago

5 Replies

Perseverance

Hi, I've recently joined the group after coming across it during one of my many online searches. Amazed that I haven't seen the group before, but so glad that...

Hi, I've recently joined the group after coming across it during one of my many ...

NavyDavy

•5 years ago

13 Replies

No Letter?

Hi Just wondering how many of you on watch and wait have received a letter? My partner has today been told he has to return to work or take unpaid leave...

Hi Just wondering how many of you on watch and wait have received a letter? My...

Starburst1

•5 years ago

11 Replies

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Letter

Just to add to a previous post . I contacted my GP his advice was ... whether you have a letter or not I should self isolate for 12 weeks and follow the...

Just to add to a previous post . I contacted my GP his advice was ... whether yo...

Hilo13

•5 years ago

1 Reply

Medical update ibrutinib

Hi all it's been a while since I have written here. Its tough for us all at present. I have been on ibrutinib for 18 months on and off. From the bone marrow...

Hi all it's been a while since I have written here. Its tough for us all at pres...

Mick491

•5 years ago

6 Replies

High Risk Shielding Letter

Hi not sure if anyone in the same situation but I haven’t had a letter (apparently should have by 30th) I emailed my GP surgery and they said it comes from...

Hi not sure if anyone in the same situation but I haven’t had a letter (apparent...

robertsw

•5 years ago

2 Replies

CLL Society COVID-19 Virtual Community Meeting Part II is this Friday! Our expert panelists answer your COVID-19 questions!

CLL Society COVID-19 Virtual Community Meeting Part II is this Friday! Our experts are back for Round Two! Answers to your questions! CLL Society COVID-19...

CLL Society COVID-19 Virtual Community Meeting Part II is this Friday! Our exper...

bkoffman

CLL CURE Hero•5 years ago

5 Replies

Disinfectants for Covid-19

Dr. Leclair answers your question on disinfectants for COVID-19 in this Ask the Expert post 2...

Dr. Leclair answers your question on disinfectants for COVID-19 in this Ask the ...

bkoffman

CLL CURE Hero•5 years ago

Be the first to reply

How sick will the coronavirus make you? The answer may be in your genes and researchers are on the hunt.

COVID-19 is strangely—and tragically—selective. Only some infected people get sick and although most of the critically ill are elderly or have complicating...

COVID-19 is strangely—and tragically—selective. Only some infected people get si...

Jm954

Administrator•5 years ago

16 Replies

Wearing a mask could help prevent the spread of the corona virus and protect vulnerable people

“The reasons the WHO cites for its anti-mask advice are based not on science but on three spurious policy arguments. First, there are not enough masks for...

“The reasons the WHO cites for its anti-mask advice are based not on science but...

hsouter

•5 years ago

2 Replies

Wearing a mask could help prevent the spread of the corona virus and protect vulnerable people

https://www.washingtonpost.com/outlook/2020/03/28/masks-all-coronavirus/#click=https://t.co/b2CdwqPC5z

https://www.washingtonpost.com/outlook/2020/03/28/masks-all-coronavirus/#click=h...

hsouter

•5 years ago

2 Replies

Another NHS letter query ?

After reading posts on here I have just spoken to my GP receptionist about not receiving the NHS letter; she has stated it is nothing to do with the GP who has...

After reading posts on here I have just spoken to my GP receptionist about not r...

9876

•5 years ago

14 Replies

Feeling more hopeful

I have had CLL for 11 years on watch and wait. I gave up all meat and most processed food in June 2019 when my wbc 89, and lymphocites 87. I had my next blood...

I have had CLL for 11 years on watch and wait. I gave up all meat and most proce...

Notmuchenergy

•5 years ago

3 Replies

If you have CLL and are on watch and wait and not heard from NHS contact GP

Today I contacted my GP, as I had heard nothing from NHS.. She told me I was in high risk group and has emailed me the letter I need for my employer to say...

Today I contacted my GP, as I had heard nothing from NHS.. She told me I was in ...

Fiona1122

•5 years ago

14 Replies

Letter nhs

Live in wales no letter yet . Have family support for shopping etc . Have self isolation for two weeks but wondered if I am in the High risk category . I am...

Live in wales no letter yet . Have family support for shopping etc . Have self ...

Hilo13

•5 years ago

5 Replies

Re government letter

Has any one in scotland recieved a letter about shielding.i am currently w and w and have not recieved ine

Has any one in scotland recieved a letter about shielding.i am currently w and w...

thistlefan

•5 years ago

6 Replies

How Medicare Is Limiting Cancer Care for Seniors

Hi, I wrote this op-ed piece on getting coverage for CAR-T therapy so others could see the same benefits that I saw. Seems that I am always arguing with...

Hi, I wrote this op-ed piece on getting coverage for CAR-T therapy so others cou...

bkoffman

CLL CURE Hero•5 years ago

1 Reply

Quick and easy broth/soup in this world crisis

Hi everyone, I hope you’re all doing well. My recipe for a quick broth/soup when the supermarkets shelves are stripped bear is either 1/2 beef, chicken or...

Hi everyone, I hope you’re all doing well. My recipe for a quick broth/soup when...

josephinef

•5 years ago

3 Replies

Just not sure what we can and can't do

Can someone clarify just what we can do as 'vulnerable people'. I am watch and wait with my CLL and my husband is healthy apart from blood pressure. I am 67...

Can someone clarify just what we can do as 'vulnerable people'. I am watch and w...

kitchengardener2

•5 years ago

12 Replies

Shielding

Hi guys,still havent had a letter but been self isolating for over a week. There is so much conflicting advice regarding CLL and coronavirus. I have my...

Hi guys,still havent had a letter but been self isolating for over a week. Ther...

welshlady52

•5 years ago

15 Replies

Stem Cell Transplant

My doctor says that after a 2nd remission, meaning after ibrutinib and venetoclax have failed that a stem cell transplant is the next option. I have been on IB...

My doctor says that after a 2nd remission, meaning after ibrutinib and venetocla...

steve_canada

•5 years ago

8 Replies

Detection of Human Food-Borne and Zoonotic Viruses on Irrigated, Field-Grown Strawberries

Strawberries often carry molds and other infectious agents. Detection of Human Food-Borne and Zoonotic Viruses on Irrigated, Field-Grown Strawberries...

Strawberries often carry molds and other infectious agents. Detection of Human...

hsouter

•5 years ago

2 Replies

Confusion with letters

Hi everyone regarding letters/textes I think we all know that we have an increased risk with cll, we don't need any letters really to confirm this, any...

Hi everyone regarding letters/textes I think we all know that we have an increa...

stewie

•5 years ago

1 Reply

Shielding update

Sunday from government Saying food parcels going out to people who can’t go out and confirming 900,000 recieved letters so far meaning outstanding 600,000 to...

Sunday from government Saying food parcels going out to people who can’t go out ...

Jsk1950

•5 years ago

3 Replies

“I had no immune system for months after my bone marrow transplant. Here’s how I avoided viral illness, and how you can, too.

“I had no immune system for months after my bone marrow transplant. Here’s how I avoided viral illness, and how you can, too. It’s easier than you think.”...

“I had no immune system for months after my bone marrow transplant. Here’s how I...

hsouter

•5 years ago

30 Replies

Venetoclax

First blood test since the ramp up to 400mg Five weeks ago. followed by a phone call 2 days later from the consultant. Good news, bloods going in the right...

First blood test since the ramp up to 400mg Five weeks ago. followed by a phone ...

manzelka

•5 years ago

19 Replies

USA video - Rising up across America

Actually there are clips from a few countries in an emotional tribute to the fight against COVID19 by all sections of society. This video was aired on The...

Actually there are clips from a few countries in an emotional tribute to the fig...

Jm954

Administrator•5 years ago

5 Replies

CLL/SLL and bone pain was in both arms

Hello and hope everyone is doing well amongst this pandemic. I recently underwent a bone marrow biopsy. My doctor who is Dept Chair for LIVESTRONG with UT...

Hello and hope everyone is doing well amongst this pandemic. I recently underwen...

annetxfan

•5 years ago

26 Replies

Should I have a blood test

I am due to have my final round of infusions and chemo tablets mid April and I have had a letter changing this to a telephone consultation. The letter has...

I am due to have my final round of infusions and chemo tablets mid April and I h...

Cottondove

•5 years ago

18 Replies

UK Update - ramping up COVID 19 testing, capacity and capability.

The NHS has struck a deal with private hospitals to acquire thousands of extra beds, ventilators and medical staff to fight the coronavirus outbreak. An extra...

The NHS has struck a deal with private hospitals to acquire thousands of extra b...

Jm954

Administrator•5 years ago

8 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for March 2020

Any info on newer drug acalabrutinib/calquence

Perseverance

No Letter?

Letter

Medical update ibrutinib

High Risk Shielding Letter

CLL Society COVID-19 Virtual Community Meeting Part II is this Friday! Our expert panelists answer your COVID-19 questions!

Disinfectants for Covid-19

How sick will the coronavirus make you? The answer may be in your genes and researchers are on the hunt.

Wearing a mask could help prevent the spread of the corona virus and protect vulnerable people

Wearing a mask could help prevent the spread of the corona virus and protect vulnerable people

Another NHS letter query ?

Feeling more hopeful

If you have CLL and are on watch and wait and not heard from NHS contact GP

Letter nhs

Re government letter

How Medicare Is Limiting Cancer Care for Seniors

Quick and easy broth/soup in this world crisis

Just not sure what we can and can't do

Shielding

Stem Cell Transplant

Detection of Human Food-Borne and Zoonotic Viruses on Irrigated, Field-Grown Strawberries

Confusion with letters

Shielding update

“I had no immune system for months after my bone marrow transplant. Here’s how I avoided viral illness, and how you can, too.

Venetoclax

USA video - Rising up across America

CLL/SLL and bone pain was in both arms

Should I have a blood test

UK Update - ramping up COVID 19 testing, capacity and capability.

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