Posts - CLL Support | HealthUnlocked

CLL Support

22,532 members • 38,709 posts

All posts for March 2021

IBRUTINIB AND HIP PAIN Continued-as I left out a few points (see first part IBRUTINIB AND HIP PAIN

IBRUTINIB AND HIP PAIN Continued-as I left out a few points (see first part IBRUTINIB AND HIP PAIN: As for stretching - besides stretching for as many times as...

IBRUTINIB AND HIP PAIN Continued-as I left out a few points (see first part IBRU...

reducebloodpressure

•3 years ago

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Durolane Injection

Durolane Injection I am currently on watch and wait, active and largely without any symptoms. I am contemplating having an injection in my knee to ease pain...

Durolane Injection I am currently on watch and wait, active and largely without ...

•3 years ago

COVID vaccines and the immune system

Short notice I know, but there is a webinar at 4pm GMT / 11am ET today run by the ZOE COVID Symptom Study if anyone is interested....

Short notice I know, but there is a webinar at 4pm GMT / 11am ET today run by th...

•3 years ago

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Possible Side-Effect of Ibrutinib

Hello Everybody, Some of you may remember me from a few years ago - I have composite CLL/MCL and have just started on Ibrutinib after an auto SCT five years...

Hello Everybody, Some of you may remember me from a few years ago - I have compo...

•3 years ago

reaction to Covid vaccination and cll

I had the Oxford jab 3 weeks ago, I have been suffering with the recognised side effects . Nausea,headache and tiredness. I take ibrutinib. Has anyone else...

I had the Oxford jab 3 weeks ago, I have been suffering with the recognised side...

•3 years ago

Platelets

What do you eat to get your platelets up?

What do you eat to get your platelets up?

•3 years ago

Help and advice from people in similar position

I have CLL and taking Ibrutinib which is a targeted chemo drug and now I have just had a lumpectomy for breast cancer and I was given Letrozole tablets which I...

I have CLL and taking Ibrutinib which is a targeted chemo drug and now I have ju...

•3 years ago

Gazyva reaction

Had my first 2 gazyva infusions last Thursday and Friday. Had a brief infusion reaction both days which resolved. Now 4 days later have muscle aches like the...

Had my first 2 gazyva infusions last Thursday and Friday. Had a brief infusion ...

•3 years ago

AIHA - what to expect ?

I have CLL but not under going treatment. After a week of feeling tired and breathless at the slightest action, I went downhill and sent to hospital. After my...

I have CLL but not under going treatment. After a week of feeling tired and brea...

•3 years ago

Beta glucan and cll

Is beta glucan considered to be contraindicated in patients with cll? Is there any info/ opinions on this?

Is beta glucan considered to be contraindicated in patients with cll? Is there ...

•3 years ago

LATEST AND GREATEST LOXO-305 UPDATE

About a month or so ago I read a good post about a patients LOXO-305 treatment experiences, which led to some interesting insider discussions. Well today I...

About a month or so ago I read a good post about a patients LOXO-305 treatment ...

•3 years ago

Strange thing - COVID-19 vaccination booking

Just been booking wife’s jab online. When I booked and had mine I picked one date for first jab and that was it. Only choice, from memory was local centre,...

Just been booking wife’s jab online. When I booked and had mine I picked one da...

•3 years ago

So sick of COVID conspiracy theorists!!

I work in a supermarket, I’m in the w&w phase, never had treatment, so still at work. I have 3 regulars who come in without masks saying COVID isn’t real! I’ve...

I work in a supermarket, I’m in the w&w phase, never had treatment, so still at ...

•3 years ago

CNS involvement with CLL

I have been diagnosed with CNS involvement with CLL. This is a condition diagnosed in only 5% of patients with CLL. Are there others reading this with this...

I have been diagnosed with CNS involvement with CLL. This is a condition diagnos...

•3 years ago

BNT162b2 mRNA Covid-19 Vaccine in a Nationwide Mass Vaccination Setting

From my reading of this study, if you have 2 doses of Pfizer vaccine you don't died of covid-19 after 32 days....

From my reading of this study, if you have 2 doses of Pfizer vaccine you don't d...

•3 years ago

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