Posts - CLL Support | HealthUnlocked

CLL Support

23,337 members•40,045 posts

All posts for October 2022

test interpretation

I have a rather long summary page from my flow cytrometry test and I understand none of it. Can someone here please help? translate to common language I can...

I have a rather long summary page from my flow cytrometry test and I understand ...

DianeSH

•2 years ago

11 Replies

Blood Clots

Hi all, First post and apologies if topic has been covered before. My name is Tony and I am 50 year's old and from Australia and diagnosed with CLL in April...

Hi all, First post and apologies if topic has been covered before. My name is T...

Ronreebok

•2 years ago

4 Replies

crazy headaches

I started calquence and have had severe headaches that don’t get much better with NSAIDS. What is everyone doing for those?

I started calquence and have had severe headaches that don’t get much better wit...

Startnewlife

•2 years ago

8 Replies

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Are all oranges bad for CLL?

We are all aware that Seville Oranges and grapefruit are taboo for those with CLL. Are all oranges, for example mandarin oranges, also a bad idea for CLL...

We are all aware that Seville Oranges and grapefruit are taboo for those with CL...

CCgroup

•2 years ago

20 Replies

Reactive oxygen species (ROS)

Curious about these types of molecules. There are many nutritional supplements touted for their ability to reduce ROS (which I believe = to lowering...

Curious about these types of molecules. There are many nutritional supplements...

Vlaminck

•2 years ago

8 Replies

Research on melanoma treatment

Came across melanoma research, figured I’d share knowing we are all at higher risk. “Giving the combination of immune checkpoint inhibitorsrelatlimab and...

Came across melanoma research, figured I’d share knowing we are all at higher ri...

Rando21

•2 years ago

3 Replies

Covid vaccines , boosters and shingles

I am feeling better after 4 weekly infusions of Gazyva and 2 blood transfusions 1 week apart .... it was a sunny day here in southern oregon .. and my wife...

I am feeling better after 4 weekly infusions of Gazyva and 2 blood transfusions...

craterlake

•2 years ago

6 Replies

All good things must come to an end

I just had my 3 month checkup and it looks like my Ibrutinib is starting to stop keeping my counts in check. They have not gone crazy but have been slowing...

I just had my 3 month checkup and it looks like my Ibrutinib is starting to stop...

rcusher

•2 years ago

16 Replies

A diet for CLL

Dear friends, I hope you are staying well. Last week I ate fruit with vitamine C, I exagerated with quantity and felt really bad. My lymph nodes were...

Dear friends, I hope you are staying well. Last week I ate fruit with vit...

Lela1212

•2 years ago

45 Replies

Evusheld for the UK

Hi everyone I suspect most people are now aware that Evusheld is being offered privately in the U.K, I was just wondering what people’s thoughts were about...

Hi everyone I suspect most people are now aware that Evusheld is being offered p...

annmcgowan

•2 years ago

72 Replies

Finishing 2 years of Rituxan and Venetoclax

Hello everyone, My 46 yo husband was dx with CLL in 2009. He was treated with the following: - FCR (4 year remission) - Imbruvica (worked for 5 years but...

Hello everyone, My 46 yo husband was dx with CLL in 2009. He was treated with ...

Carolinaj

•2 years ago

4 Replies

starting Ibrutinib today

Hi folks, I hope you're doing well. I'm about to start Ibrutinib today (3 tablets x 140mg) I'm hoping my haematologist will reduce that after a while?...

Hi folks, I hope you're doing well. I'm about to start Ibrutinib today (3 t...

fugazi

•2 years ago

15 Replies

Acalabrutinib: tablets vs capsules

We were notified today that our Acalabrutinib capsules have been discontinued, and we will be getting tablets (pills) instead. Have any of you had experience...

We were notified today that our Acalabrutinib capsules have been discontinued, a...

MikeOr

•2 years ago

30 Replies

Results from Phase 2 study of nivolumab plus ibrutinib in patients with diffuse large b-cell Richter Transformation of CLL

A research article that reports on "A Phase 2 Study of Nivolumab Combined with Ibrutinib in Patients with Diffuse Large B-cell Richter Transformation of...

A research article that reports on "A Phase 2 Study of Nivolumab Combined with I...

CLLerinOz

Administrator•2 years ago

1 Reply

AFib Concerns

Been on Ibrutinib for 4 years and now diagnosed with Afib Anyone else have this happen. I’m quite concerned

Been on Ibrutinib for 4 years and now diagnosed with Afib Anyone else have this...

P444ete

•2 years ago

6 Replies

Prebiotics, probiotics and now postbiotics. What they are and how can they improve our gut health?

Postbiotics are essentially the by-products of our gut microbiota. In other words, your body produces postbiotics after digesting prebiotic and probiotic...

Postbiotics are essentially the by-products of our gut microbiota. In other word...

AussieNeil

Administrator•2 years ago

10 Replies

Loxo305 trial

Is anyone currently enrolled in this trial? My doctor mentioned this as maybe an option besides V&O. I looked at it but apparently there are several phases,...

Is anyone currently enrolled in this trial? My doctor mentioned this as maybe an...

Alex830

•2 years ago

2 Replies

Skin Bruising: Itching

my forearms have had ugly bruises for several years. Purple color. Now they itch terribly. Skin is thin. Doctor said Ibrutinib was causing the bruising....

my forearms have had ugly bruises for several years. Purple color. Now they itch...

Tapps

•2 years ago

11 Replies

Shingrix vaccine

I received my first vaccine back in February this year and was so pleased to finally get some protection against Shingles. However,it was only through...

I received my first vaccine back in February this year and was so pleased to f...

Westie11-

•2 years ago

4 Replies

LDH Increase after first Obinutuzumab infusion

Greetings, all - My husband had his first Obinutuzumab Monday October 24 (100 mg) and Tuesday (900 mg). I noticed that his LDH went from 239 (before) to 568...

Greetings, all - My husband had his first Obinutuzumab Monday October 24 (100 m...

Jujy

•2 years ago

4 Replies

Live vaccines post-treatment?

Hello! I'm going to confirm with my specialist of course, but there's a time crunch to this question so I thought I'd check in first. I'm post-treatment and...

Hello! I'm going to confirm with my specialist of course, but there's a time cr...

jijic

•2 years ago

6 Replies

Another 6 month checkup done

Hi all. I just thought I would share my good news. After the last 6 months of having a tooth removal, a root canal, 7 crowns and a bridge all under a general...

Hi all. I just thought I would share my good news. After the last 6 months of ...

Dragonspen

•2 years ago

1 Reply

Another COVID Monoclonal to watch - especially in the UK and EU

https://www.prnewswire.co.uk/news-releases/exevir-bio-forges-ahead-with-unique-next-generation-covid-19-therapy-and-appoints-dr-jeanne-bolger-as-chair-of-the-bo

https://www.prnewswire.co.uk/news-releases/exevir-bio-forges-ahead-with-unique-n...

SeymourB

•2 years ago

5 Replies

Growth on nose

My husband is being treated with acalabrutinib for CLL , taking it for about 7 months. His white blood cell count was raised significantly at first but after 5...

My husband is being treated with acalabrutinib for CLL , taking it for about 7 m...

Leo71

•2 years ago

10 Replies

Update.

The abdominal abscess I have had been quiet for a week until yesterday. I was changing my dressing and had quite a large leak of discharge. I have spoken with...

The abdominal abscess I have had been quiet for a week until yesterday. I was c...

Jacksc06

•2 years ago

37 Replies

I have a question about Calquence ALC counts going up again

I have been on Calquence for 16 days, I was happy because my ALC was coming down. It went to 335 when I first started Calquence, then went to 309, 179, 176. I...

I have been on Calquence for 16 days, I was happy because my ALC was coming down...

helenolton

•2 years ago

4 Replies

Feeling very depressed.

Good evening to you all. I was diagnosed with CLL in April this year and am currently on W&W. My last visit to my consultant in September I was told that if my...

Good evening to you all. I was diagnosed with CLL in April this year and am curr...

Typhoon770

•2 years ago

46 Replies

WBC levels...

I was diagnosed with CLL last November, but have probably had it for at least 3 years prior after looking at past blood tests with my MD. When I was diagnosed,...

I was diagnosed with CLL last November, but have probably had it for at least 3 ...

kls13

•2 years ago

8 Replies

CBC & Omicron Vaccine

Does anybody know if using topical CBD (I use on my sore muscles/joints/bones) prevent our bodies from making antibodies to the vaccines…..NOTE: I don’t...

Does anybody know if using topical CBD (I use on my sore muscles/joints/bones) p...

Ladydi49

•2 years ago

2 Replies

Evusheld and Paxlovid Issue

I asked my oncologist (in Canada) for a prescription for Evusheld, but was told that if I got infected with Covid or one of its variants, then Paxlovid would...

I asked my oncologist (in Canada) for a prescription for Evusheld, but was told ...

Drago1941

•2 years ago

34 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for October 2022

test interpretation

Blood Clots

crazy headaches

Are all oranges bad for CLL?

Reactive oxygen species (ROS)

Research on melanoma treatment

Covid vaccines , boosters and shingles

All good things must come to an end

A diet for CLL

Evusheld for the UK

Finishing 2 years of Rituxan and Venetoclax

starting Ibrutinib today

Acalabrutinib: tablets vs capsules

Results from Phase 2 study of nivolumab plus ibrutinib in patients with diffuse large b-cell Richter Transformation of CLL

AFib Concerns

Prebiotics, probiotics and now postbiotics. What they are and how can they improve our gut health?

Loxo305 trial

Skin Bruising: Itching

Shingrix vaccine

LDH Increase after first Obinutuzumab infusion

Live vaccines post-treatment?

Another 6 month checkup done

Another COVID Monoclonal to watch - especially in the UK and EU

Growth on nose

Update.

I have a question about Calquence ALC counts going up again

Feeling very depressed.

WBC levels...

CBC & Omicron Vaccine

Evusheld and Paxlovid Issue

Search posts

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Part 2 of How well do you know HealthUnlocked's features? Rate yourself on this multichoice poll. Answers later or you can check Help!

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Posts - CLL Support | HealthUnlocked

CLL Support

All posts for October 2022

test interpretation

Blood Clots

crazy headaches

Are all oranges bad for CLL?

Reactive oxygen species (ROS)

Research on melanoma treatment

Covid vaccines , boosters and shingles

All good things must come to an end

﻿A diet for CLL

Evusheld for the UK

Finishing 2 years of Rituxan and Venetoclax

﻿starting Ibrutinib today

Acalabrutinib: tablets vs capsules

Results from Phase 2 study of nivolumab plus ibrutinib in patients with diffuse large b-cell Richter Transformation of CLL

AFib Concerns

Prebiotics, probiotics and now postbiotics. What they are and how can they improve our gut health?

Loxo305 trial

Skin Bruising: Itching

﻿Shingrix vaccine

LDH Increase after first Obinutuzumab infusion

Live vaccines post-treatment?

Another 6 month checkup done

Another COVID Monoclonal to watch - especially in the UK and EU

Growth on nose

﻿Update.

I have a question about Calquence ALC counts going up again

Feeling very depressed.

WBC levels...

CBC & Omicron Vaccine

Evusheld and Paxlovid Issue

Search posts

Pinned Posts

Latest poll

Part 2 of How well do you know HealthUnlocked's features? Rate yourself on this multichoice poll. Answers later or you can check Help!

Topics

Archive

A diet for CLL

starting Ibrutinib today

Shingrix vaccine

Update.