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CLL Support

22,499 members • 38,646 posts

All posts for April 2022

pleural effusions

TKI s can cause pleural effusion. At what point would the CLL Dr attempt to address pleural effusion, or, how bad does it have to get to trigger the Dr to try...

TKI s can cause pleural effusion. At what point would the CLL Dr attempt to add...

tedrog

•2 years ago

20 Replies

Anyone is using CBD for CLL?

I am considering using CBD without the THC (psychoactive ingredient). I wonder what is your experience? What type of CBD oil should I take? According to this...

I am considering using CBD without the THC (psychoactive ingredient). I wonder w...

RamOren

•2 years ago

12 Replies

Every other day

Hi: Does anyone know if there are tests, trials or essays that take ibrutinib one day yes and another no with the same effect? Thx.

Hi: Does anyone know if there are tests, trials or essays that take ibrutinib on...

Denisguay

•2 years ago

34 Replies

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Experience with Evusheld

Just wondering. Has anyone had a breakthrough infection after receiving Evusheld?

Just wondering. Has anyone had a breakthrough infection after receiving Evushel...

Atds

•2 years ago

10 Replies

Combined vitamin D, omega-3 fatty acids and a simple exercise program may reduce cancer risk among active adults aged 70 plus

In the "DO-HEALTH" randomized clinical trial with 2,157 relatively healthy participants aged 70 plus, supplementation with daily high-dose vitamin D3 plus...

In the "DO-HEALTH" randomized clinical trial with 2,157 relatively healthy parti...

bennevisplace

•2 years ago

12 Replies

Chronic sinusitis age 51, Diagnosed CLL March 20.

Hi, Having read helpful posts re the above, I've struggled to address the sinusitis since 2020. Saw a consultants who kept prescribing stronger doses on...

Hi, Having read helpful posts re the above, I've struggled to address the sinus...

Nell2009

•2 years ago

18 Replies

Younger CLLers

Please share if you relate . You’re young(er) than average diagnosis age, single, full time working in a job you enjoy with (usually) many years of working...

Please share if you relate . You’re young(er) than average diagnosis age, sing...

wellbeingwarrior

•2 years ago

4 Replies

Do btk inhibitors kill neurophils?

I am reluctant to start taking btk inhibitors, despite being told I have astronomically high wbc, and no neurophils. I feel well and I'm very active,...

I am reluctant to start taking btk inhibitors, despite being told I have astron...

PACWOMAN

•2 years ago

10 Replies

Good result in my latest antibody test via "Monitor My Health" Should I put off my 5th vaccination until later?

In the last 12 months I have paid for antibody tests 3 times. Each one said I had antibodies but never more than 200 (can't explain the numbers but other posts...

In the last 12 months I have paid for antibody tests 3 times. Each one said I ha...

Harvist

•2 years ago

7 Replies

Low platelets

My platelets range from 20,000 to 50,000 the kasg 7 years. My spleen is 2x the size if my liver. I also have advanced cirrhosis which has been stable....

My platelets range from 20,000 to 50,000 the kasg 7 years. My spleen is 2x the s...

AlleyBoy

•2 years ago

7 Replies

CLL and Radiation

I have CLL for 4 years and stable on Ibrutinib. I want to know if I can work in cardiac cath lab as a professional medical doctor. To mention here, there is...

I have CLL for 4 years and stable on Ibrutinib. I want to know if I can work in ...

drvksethi

•2 years ago

4 Replies

Too many antibodies?

I finally got my oncologist to order Evusheld for me. I have been tested for antibodies and I do have some. I am still on watch and wait as well. Is it...

I finally got my oncologist to order Evusheld for me. I have been tested for an...

Ozziebee

•2 years ago

8 Replies

Ultrasound Therapy for Inflammation

Wondering if anyone has had ultrasound therapy for tendinitis or muscle strain. Was at physical therapy for achilles tendinitis. Was told could try...

Wondering if anyone has had ultrasound therapy for tendinitis or muscle strain. ...

Davidcara

•2 years ago

15 Replies

Time of Life

Hello! Does anyone know the longest a person has lived on ibrutinib? How many years? Not counting the years without treatment?. Cheers, Danny.

Hello! Does anyone know the longest a person has lived on ibrutinib? How many y...

Denisguay

•2 years ago

32 Replies

Possible infection

Hi All, regarding my recent painful neck lump, I am waiting on an Ultra Sound and possible biopsy. I have been feeling exhausted, listless, and nauseous...

Hi All, regarding my recent painful neck lump, I am waiting on an Ultra Sound an...

Vindicatrix

•2 years ago

3 Replies

4th Vaccine Shot

We've all seen a lot written on our site about Covid Vaccines, so some might feel it is not important for me to make this post; however, I feel that all input...

We've all seen a lot written on our site about Covid Vaccines, so some might fee...

wizzard166

•2 years ago

20 Replies

Extended treatment

Hi I'm expecting to end treatment in October after ibunitzimab and Venetoclax However I've had my dosage altered and I'm concerned that if I don't maintain...

Hi I'm expecting to end treatment in October after ibunitzimab and Venetoclax Ho...

Cazma

•2 years ago

6 Replies

Cross eyed - diplopia

Hello. I am on W&W for over 2 years with no symptoms except about 4 months ago I started going cross eyed (diplopia) late at night. If I strain I can get the...

Hello. I am on W&W for over 2 years with no symptoms except about 4 months ago I...

JDG45

•2 years ago

8 Replies

BTK+Venetoclax trial in the UK?

Hello, I was wondering if anyone is aware of any upcoming BTK+Venetoclax trials in the UK. The only one listed is the AVO vs AV vs FCR which is basically not...

Hello, I was wondering if anyone is aware of any upcoming BTK+Venetoclax trials ...

hope-73

•2 years ago

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Does HRT make any difference

Just out of curiosity is there anyone here on W&W and on HRT ? If so how are your energy levels ?

Just out of curiosity is there anyone here on W&W and on HRT ? If so how are you...

Notmuchenergy

•2 years ago

3 Replies

Are CLL patients more likely to be burned from food?

I seem to have been getting a lot of burns from coffee in my mouth or blood blisters there in recent times....I try to wait for it to cool but sometimes...

I seem to have been getting a lot of burns from coffee in my mouth or blood blis...

Research123

•2 years ago

1 Reply

Saint George's Day 🌹🌹🌹🌹🌹🌹🌹

Happy Saint George's Day!

MistyMountainHop

•2 years ago

19 Replies

Ukoniq withdrawal

Does anyone have information on Ukoniq being pulled from the market and what treatments are now being recommended in its place?

Does anyone have information on Ukoniq being pulled from the market and what tre...

Luverboy007

•2 years ago

11 Replies

Advanced cell separation could halve the cost of CAR-T

https://www.genengnews.com/topics/bioprocessing/separating-more-t-cells-for-immunotherapy/?oly_enc_id=5334I6713401F0J...

https://www.genengnews.com/topics/bioprocessing/separating-more-t-cells-for-immu...

bennevisplace

•2 years ago

3 Replies

Update: CLL husband got Bebtelovimab, Covid not ramping up, what next?

Update to my post on Monday asking people's thoughts on treatments once testing positive: first of all, thank you to all who replied and offered resources and...

Update to my post on Monday asking people's thoughts on treatments once testing ...

OaktownA

•2 years ago

13 Replies

Free "Metabolical" Based Cookbook

For those of you who haven't yet delved into Dr. Lustig's "Metabolical" or other books, his website (robertlustig.com) is offering a free cookbook, "The Fat...

For those of you who haven't yet delved into Dr. Lustig's "Metabolical" or other...

SofiaDeo

•2 years ago

7 Replies

Novel COVID-19 Vaccine Shows Promise for People with Leukemia and Lymphoma

Following on from...

bennevisplace

•2 years ago

5 Replies

ULTRA-V trial discontinuing

My second post in a day. I wanted to share how my doctor approached TG Therapeutics pulling the trial as well as not seeking umbralisib FDA approval. I was...

My second post in a day. I wanted to share how my doctor approached TG Therapeu...

beanlake14

•2 years ago

8 Replies

COVID after Evusheld

I just got a positive pcr COVID test. I received my Evusheld injections March 22nd. So far I’m not symptomatic. We have a free testing program in our city and...

I just got a positive pcr COVID test. I received my Evusheld injections March 22...

Walt424

•2 years ago

1 Reply

Obtaining Evusheld

Finally. I go to a major cancer center and have been struggling to obtain evusheld. I am on a list, in a lottery, etc. Yesterday, I aksed my oncologist if...

Finally. I go to a major cancer center and have been struggling to obtain evus...

beanlake14

•2 years ago

13 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for April 2022

pleural effusions

Anyone is using CBD for CLL?

Every other day

Experience with Evusheld

Combined vitamin D, omega-3 fatty acids and a simple exercise program may reduce cancer risk among active adults aged 70 plus

Chronic sinusitis age 51, Diagnosed CLL March 20.

Younger CLLers

Do btk inhibitors kill neurophils?

Good result in my latest antibody test via "Monitor My Health" Should I put off my 5th vaccination until later?

Low platelets

CLL and Radiation

Too many antibodies?

Ultrasound Therapy for Inflammation

Time of Life

Possible infection

4th Vaccine Shot

Extended treatment

Cross eyed - diplopia

BTK+Venetoclax trial in the UK?

Does HRT make any difference

Are CLL patients more likely to be burned from food?

Saint George's Day 🌹🌹🌹🌹🌹🌹🌹

Ukoniq withdrawal

Advanced cell separation could halve the cost of CAR-T

Update: CLL husband got Bebtelovimab, Covid not ramping up, what next?

Free "Metabolical" Based Cookbook

Novel COVID-19 Vaccine Shows Promise for People with Leukemia and Lymphoma

ULTRA-V trial discontinuing

COVID after Evusheld

Obtaining Evusheld

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