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CLL Support

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How about a party in the Caribbean tonight ?

How about a party in the Caribbean tonight ? We all deserve a night out to reall...

Has anybody else developed Auto Immune Haemolytic Anaemia with their CLL?

I was diagnosed with CLL just over 3 years ago and gave been on W&W since Decem...

Thank you

Thank you for all your lovely and reassuring comments. I will take on board all ...
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Low Blood Sodium When On BTK Inhibitors

Wondering if anyone has developed low sodium levels while on Acalabrutinib, Ibru...

Time to decide about leaving the initial NON TIME LIMITED Captivate trial because of potential toxicity

Hi all, My husband is in the initial 164 trial group of Non Time limited Captiv...

Newly diagnosed

Hello I have just been diagnosed with CLL - it scares me. It was found by a rout...

Ibrutinib to Acalabrutinib

My oncologist is switching me from IB to Calquence because I had some irregular ...

CLL & Covid

June 23, 2022 Good news; Husband finally tested Negative for Covid. Eleven days ...

Encouraging results from venetoclax retreatment of patients with chronic lymphocytic leukemia after a previous venetoclax-based regimen

We've heard that re-treatment with venetoclax is possible. Per the attached imag...
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Just another new CLL Victim

Hi, I am a newly diagnosed male aged 61 living in Lincolnshire UK. I was given t...

Sore lymph node with Covid

Hi All I am currently Covid positive and now a lymph node in my neck has poppe...

Osteoporosis

I am just completing 1 year on Venetoclax having also had 6 x Rituximab. My most...

Venetoclax and muscle/joint pain in just one area ?

I've seen a few posts from people experiencing joint/muscle pain while on Veneto...

What happens after treatment?

I am approaching the time when I will start treatment. I have read many encourag...

First post

Hi all, my first post. I found out 3 weeks ago that I have CLL. I’m 39 and it w...

International COVID-19 Blood Cancer Coalition campaign starts today. ICBCC

International COVID-19 Blood Cancer Coalition campaign starts today. We need yo...

Request a second opinion on the diagnosis of Richter's Transformation

For a second opinion on the diagnosis of Richter's Transformation, contact DR El...

Calamity strikes again

Well folks I had a fun day yesterday ... not! Whilst washing the kitchen floor ...

Contact consultant?

*update* have managed to contact nurse practitioner, they are arranging appoint...

Lymph glands

This is probably a really stupid question but, is there a way to get the lymph g...

Calquence anyone?

Interested to see who is on Calquence and if you have found a prescription plan ...

Richter's syndrome - Update- Lecture by pathologist Elias Campo

Hello everyone Yesterday I had the pleasure of attending a conference given by t...

Cost of CLL Treatment in Ontario

Hi all. I was diagnosed with CLL at age 48 and am now 52 and symptoms have prog...

Travel with CLL

I am 81 years old, diagnosed with CLL in April 2019. I have been on ibrutinib s...

Travelling out of the UK first time in 4 years - insurance and health care?

I'm going to visit Norway for a month with my wife, cat-sitting for her sister w...

Purified water ? Missing minerals ?

Here in Florida, the local water for "drinking" and cooking which is available i...

My friend tested positive for Covid

I had a visit from a friend on Sunday, we sat outside in the garden for coffee a...

umbralisib

I know I have posted before about being in the Phase II trial with the drugs ubl...

Creatinine elevated on CLL

I have CLL already 10 years, taken Imbruvica 5 years. Have constant UTI - 5 time...

Low WBC on Venetoclax but feeling ok

Hey folks! I feel like I'm reading more these days trying to find answers to que...
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