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CLL Support

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Path towards diagnosis

Hi all, I'm a 37 year old male in the USA. I'm married with a nearly 1.5 year old son. And.... I think I will likely officially be part of this club soon... I...

Hi all, I'm a 37 year old male in the USA. I'm married with a nearly 1.5 year ol...

travisgf87

•11 hours ago

14 Replies

Muscle and joint pain.

A few days ago I read on here about people who are on Acalabrutinib are suffering with muscle and joint pain. My question is - did you stop taking the tablets...

A few days ago I read on here about people who are on Acalabrutinib are sufferin...

Westie11-

•12 hours ago

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High B12, high neutrophils

Hi, I am blessed to be almost 10 years without treatment but due to low Hgb of 11.3 and low RBCs of 3.78, my oncologist wants another blood draw in 2 months...

Hi, I am blessed to be almost 10 years without treatment but due to low Hgb of...

Thankful495

•13 hours ago

1 Reply

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Daily Newsletter Stopped

When I originally joined this site, I became a regular contributor for a number of years. Then without my realizing it, the daily emails stopped. I must have...

When I originally joined this site, I became a regular contributor for a number ...

wizzard166

•16 hours ago

9 Replies

Beta 2-microglobulin

My mother, 75 years old, was sent for a beta 2-microglobulin test due to anxiety and palpitations.All her blood work results are excellent, except for the...

My mother, 75 years old, was sent for a beta 2-microglobulin test due to anxiety...

rozzal

•1 day ago

1 Reply

AI and Cancer

Could AI, artificial intelligence, create curative treatments for cancer? What do you think?

Could AI, artificial intelligence, create curative treatments for cancer? What d...

Priss69

•1 day ago

25 Replies

Zanubrutinib

anyone taken zanubrutinib mixed in yoghurt -( too long a tale to go into) - any issues? Thank you in advance 😊

anyone taken zanubrutinib mixed in yoghurt -( too long a tale to go into) - any ...

Sepsur

•2 days ago

4 Replies

IVIG Question

had first dose of IVIG yesterday, think it was 3 grams. Pre med with Zyrtec and Tylenol. Half way through infusion had allergic reaction, shaking chills...

had first dose of IVIG yesterday, think it was 3 grams. Pre med with Zyrtec and ...

Davidcara

•2 days ago

19 Replies

First world problems, I know, just curious

This is one for UK people.I've been using work trips and Amex to build up avios to try and help fund a big holiday. Now I'm getting close my mind turns to the...

This is one for UK people.I've been using work trips and Amex to build up avios ...

TobyBelch

•2 days ago

5 Replies

Skin Cancer Anyone?

Hello Friends, So, I'm 5 years in. Haven't had any interventions yet because I feel as good and fit as ever. Thing is, a 2cm x 1 cm, very unusual, scabby,...

Hello Friends, So, I'm 5 years in. Haven't had any interventions yet because I ...

Mariah33

•2 days ago

17 Replies

cycle 1 day1 V & O

sadly did not according to plan and hope, 2 hours in suddenly freezing cold, dizzy, ended it for day, had an adrenaline shot to help, back tomorrow for...

sadly did not according to plan and hope, 2 hours in suddenly freezing cold, diz...

Jim-Boy

•3 days ago

34 Replies

Living with cll

Hello everybody!Today our doctor suggested a second line therapy for cll Venetoclax combined with immunotherapy.My husband took for 6 years Ibrutinib but now...

Hello everybody!Today our doctor suggested a second line therapy for cll Venetoc...

Skyfallmoon

•3 days ago

10 Replies

Anyone develop orbital lymphoma? 👀

Over one year ago, out of the blue my eyes got all red with big veins and a creepy look inside lids, blurred vision and severe headaches. My previous...

Over one year ago, out of the blue my eyes got all red with big veins and a cree...

Beeupfull

•3 days ago

16 Replies

UTI problem

Been having UTI ,on Imbruvica,anybody else has this problem?

Reeseru

•3 days ago

4 Replies

quick question

hello everyone Folks here are so much more knowledgeable than I am that I know if I went to try and find the answer to this question myself it wouldn’t be...

hello everyone Folks here are so much more knowledgeable than I am that I know...

GettinThruIt

•4 days ago

4 Replies

Fall last week out of car 😵‍💫

sooo I think I did serious damage to my knee and down to ankle. I am in so much pain I want to knock myself out!!! I thought it was just a sprain so instead of...

sooo I think I did serious damage to my knee and down to ankle. I am in so much ...

JerrysGirl3

•4 days ago

11 Replies

Living with cll

Hello everybody.My husband has been living with cll for 12 years.Five years ago has started the treatmant with Ibrutinib.It went well until now.We don t know...

Hello everybody.My husband has been living with cll for 12 years.Five years ago ...

Skyfallmoon

•4 days ago

9 Replies

CLL & accelerated Squamous Cell Carcinoma

My husband has untreated CLL and is now being treated for a second squamous cell carinmona (SCC) ie. skin cancer. I've just read a study published in the...

My husband has untreated CLL and is now being treated for a second squamous cell...

JenniferHart

•4 days ago

13 Replies

Slow increase in lymphocyte count in the years after V&O

I was wondering if others had experienced a slow increase in lymphocyte count in the years following V&O therapy? I’m worried the CLL is slowly relapsing, but...

I was wondering if others had experienced a slow increase in lymphocyte count in...

MGirl-Aust

•4 days ago

9 Replies

Secondary cancer

I’ve had CLL for nine years. I was treated (O&V) a couple of years ago, and my numbers are great! Unfortunately, I developed a secondary cancer this past...

I’ve had CLL for nine years. I was treated (O&V) a couple of years ago, and my n...

Onmytime

•4 days ago

8 Replies

BGB16673

Good Morning! Is anyone on the clinical trial drug, BGB16673? I started a month ago. I have marginal zone NHL which shares many of the same meds as CLL....

Good Morning! Is anyone on the clinical trial drug, BGB16673? I started a mont...

Dml24689

•5 days ago

1 Reply

Change from Ibrutinib to Acalabrutinib

Long post alert! My husband, a UK NHS patient, was on ibrutinib for five years, managing side effects like high blood pressure and occasional atrial...

Long post alert! My husband, a UK NHS patient, was on ibrutinib for five years...

shellsb

•5 days ago

3 Replies

CLL and driving ?

I got my driving license before I was diagnosed with CLL. I'm currently in watch & wait period and usually do not have any significant symptoms other than some...

I got my driving license before I was diagnosed with CLL. I'm currently in watch...

TrenchcoatPenguin

•5 days ago

26 Replies

Ibrutinib side effects

As mentioned in an earlier post, my mother will start Ibrutinib next week. I read about side effects such as bleeding, high blood pressure and heart problems....

As mentioned in an earlier post, my mother will start Ibrutinib next week. I rea...

Mvh0406

•6 days ago

23 Replies

supplements

Hi all i currently take supplements D3 &k2 ,vitamin C and B12.am considering taking Echinacea for immune system and turkesterone to help beef meback up . I...

Hi all i currently take supplements D3 &k2 ,vitamin C and B12.am considering tak...

CLLpa

•7 days ago

5 Replies

immunoglobulin boost

Having completed my O and V treatment 12 months ago my immunoglobulins still haven’t recovered. This has led to me having repeatedly caught chest infections...

Having completed my O and V treatment 12 months ago my immunoglobulins still hav...

jillybird13

•7 days ago

3 Replies

Relapsed CLL treatment

i am a relapsed CLL patient , just diagnosed , live in India, had chemo therapy in 2018 with Bendamustine and ritixamab of 6 cycles. . what are the criteria...

i am a relapsed CLL patient , just diagnosed , live in India, had chemo therapy...

venk_46

•7 days ago

22 Replies

CT and Flow test

I have question- I just had CT scan and all my lymph nodes have decreased in size the scan reader said I was responding to treat well ( I’m not currently in...

I have question- I just had CT scan and all my lymph nodes have decreased in siz...

Tchapman

•7 days ago

9 Replies

AFLAC Cancer Insurance

Does any one have an AFLAC Cancer Insurance policy? It is supposed to leukemia but treatments have evolved since I got the initial policy. It says it covers...

Does any one have an AFLAC Cancer Insurance policy? It is supposed to leukemia b...

VanGoghLvr0401

•8 days ago

7 Replies

Green tea and Omega 3

Having read some posts yesterday I saw that Omega 3 is not good for CLL patients. I took green tea and Omega 3 thinking they would be good for me but after...

Having read some posts yesterday I saw that Omega 3 is not good for CLL patients...

21Bedlam21

•8 days ago

11 Replies

Write a post or ask a question

Posts - CLL Support | HealthUnlocked

CLL Support

Path towards diagnosis

Muscle and joint pain.

High B12, high neutrophils

Daily Newsletter Stopped

Beta 2-microglobulin

AI and Cancer

Zanubrutinib

IVIG Question

First world problems, I know, just curious

Skin Cancer Anyone?

cycle 1 day1 V & O

Living with cll

Anyone develop orbital lymphoma? 👀

UTI problem

quick question

Fall last week out of car 😵‍💫

Living with cll

CLL & accelerated Squamous Cell Carcinoma

Slow increase in lymphocyte count in the years after V&O

Secondary cancer

BGB16673

Change from Ibrutinib to Acalabrutinib

CLL and driving ?

Ibrutinib side effects

supplements

immunoglobulin boost

Relapsed CLL treatment

CT and Flow test

AFLAC Cancer Insurance

Green tea and Omega 3

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