Deciding on CLL Therapy and When to Treat- ONCLive Video discussion Drs. Wierda, Lamanna, Ma, Davids, Coutre
lankisterguy24 minutes ago
This has been discussed often- when to start treatment. There are many exceptions and special conditions, but the only agreement is not to ...
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Painful bruises on my hands
Flabal2 hours ago
Female, 45 living in the UK.
For a few years I’ve been having painful bruises on my hand specially on my fingers.
They come up when I clap ...
Sharp increase in my lymphocyte count.
JackieSA4 hours ago
Hello, I live in Port Elizabeth South Africa and was diagnosed with CLL in 2010, after a fish blood test I was found to have 13q and a good ...
Night sweats after FCR
Shirty7812 hours ago
Completed first round of FCR 4 days ago pulled up reasonably well went back to work on Monday so happy so far.
One thing I am soaked a...
SHOCKINGLY MIRACULOUS RESPONSE TO BENDAMUSTINE/RITUXAN WITH ONE ROUND-REMISSION!
kkmiausa14 hours ago
Hi all. I wrote last week that my husband had relapsed after 2 years of good response to Gazyva/Chlorambucil. Oncologist said it was at poi...
5 Replies9 Likes
SunandMoon15 hours ago
Hi. I was diagnosed two years ago. On watch and wait. Some platelet changes but WBC and RBC holding pretty steady. I feel solid with my onco...
1 Reply5 Likes
Blallen19 hours ago
Started imbruvica 11 day ago , had my first CBC today and my wbc was 330 hemoglobin was 9.5 and platelets 66. I know they say it gets worse ...
Bad acid indigestion/reflux - what treatments can tolerate it?
Jonquiljoa day ago
After reading a great bit about BTK kinase inhibitors, it seems that Ibrutinib can be only used with a minimal of GI acid supression and aca...
7 Replies1 Like
Lymph node pain
batnat122 days ago
First time posting, so not sure if I am posting in the correct spot.
I have one swollen (approx 2cm) lymph node under my jaw. I have had it...
CLL and Aspergillus
SheySheySwimmer2 days ago
Hello, This is my first post. Thank each of you for sharing an abundance of information, it has been quite helpful. I was diagnosed with Asp...
3 Replies2 Likes
CLL in the lungs?
willyoder2 days ago
Has anyone out there had their CLL progress into their lungs? I have this and am curious of what I can expect with Imbruvica. I will start o...
I fell yesterday....again!
Loweez2 days ago
This is the second fall in three days. I was not dizzy, just clumsier than usual. The first one was a bruise to my shin which killed, bruis...
17 Replies2 Likes
Ibrutinib and NHSE current position.
Mick4912 days ago
As you know I am fighting for the right to be prescribed the drug my consultant thinks is the best treatment for me which is Ibrutin...
10 Replies4 Likes
FCR Treatment, 4 cycles or 6, follow up
severdon2 days ago
About a month ago, I posted that I was considering stopping FCR treatment after 4 cycles pending a Bone Marrow Biopsy and PET scan. The res...
11 Replies10 Likes
Third FCR dose
Mandy562 days ago
After the third dose of the treatment, I think my body got over the treatment more quickly. I felt very nauseous for 5 days, but then much b...
17 Replies6 Likes
123_3 days ago
Hi everyone and thank you for your information and words of wisdom. My brother is now out of hospital and seems in good form. He has not bee...
3 Replies5 Likes
11 Q deletion? Mutated or unmutated?
kathymac523 days ago
I asked our CLL doctor if my husband with 11 q deletion was unmutated which is what I had assumed, but he said he was mutated. I am confused...
Concern about another cancer
Ninagram3 days ago
On trial of Ibrutinib and venetoclax for 3 months. Very concerned because I got called to have a diagnostic mammogram and ultrasound after ...
British 10k - what a blast
MattGGibson3 days agoPOPULAR
Great to meet others running for the CLLSA yesterday in the heat of London. Well done everyone!
21 Replies14 Likes
Spots along spine CLL
Efig4 days ago
Hi. I’m new here :). My sister was diagnosed with CLL a year and a half ago at age 34. She hasn’t had any noticeable symptoms except some f...
19 Replies1 Like
New 17P- w questions about EGCG and normal 2nd 17th chromosome
TJG_CLL17P-4 days agoPOPULAR
Thank you all for your insightful posts and support! I'm relatively new to this forum- diagnosed in April 2018 with 17P- CLL on abnorm...
26 Replies7 Likes
Sepsur4 days ago
Sorry if anyone was offended by my last post - certainly not my intention -
Peace & love from Crete
3 Replies3 Likes
Could this be autoimmune hemolytic anemia extreme drop in hemoglobin 3 weeks after bendamustine/Rituxan
kkmiausa4 days ago
After round of bendamustine/Rituxan after 2 year remission from Gazyva/clorambucil
hemoglobin dropped from 10.6 to 7.5 in one week. Blood tr...
Chemong5 days ago
I'm 74. Have cll for 4 years, just had tests yesterday and in last 3 months my wbc went from 80,000 to 120,000. Doc at stanford has been wai...
MonD6 days ago
Has anyone else had a marked improvement in hgb and platelets in a month period without treatment? My numbers trending downward for 3 years ...
8 Replies1 Like
Any risks to BPH meds?
DanNordholm6 days ago
I’ve heard that some BPH treatment drugs can bring on urinary infections (no infection is good while being treated for lymphoma) while other...
Can anyone explain what it means when "m spike not detected". Thank you!
CLLSA London meeting 8 November 2018
Myrddin6 days ago
A date for your diary in the uk - The next London meeting will be on the 8 th November 2018. More details will be made available when regist...
1 Reply4 Likes
First Hematology/Oncology Appointment
mphillif7 days ago
This is my second post since being diagnosed and joining this community on July 2nd. I am so glad to have found this community! I have my f...
11 Replies1 Like
Severe rash spread all over my back and shoulders
Heidiypi17 days ago
Has anyone else experienced this, two days ago my back started itching and then the rash grew and spread all over and creating over my shoul...
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