Best TIme to take imbruvica?
joycecanada13 hours ago
I start imbruvica to-day and was wondering what is the best time to take the 3 pills. With food or without food? In the morning or in the ev...
11 Replies1 Like
Urgent question: low platelets
Glees15 hours ago
My husband Murray is in a very precarious state right now and I would sure appreciate your input. Just to summarize - he is 58, diagnosed 3 ...
Ketogenic Diet and CLL
Larameea day ago
Just recently been told I have CLL. Has anyone followed a ketogenic diet to combat this disease?
13 Replies1 Like
CLL and Burning in Stomach
vinneta day ago
I am male66 cll dx one year, stage0 ,wnw.
For past few weeks I feel burning sensation in stomach. My GP is unable to give any clear advise.
Living with CLL and new complications
Spirta day ago
Hello, I am new here. I came across this site when I was looking for information about CLL. I was diagnosed this time 10 years ago and My ...
Need help dosing turmeric and green tea for CLL
Mwagnera day ago
Diagnosed with CLL in October 2017 and the doctor said I don’t need medication. He mentioned turmeric and green tea can have a benefit but ...
5 Replies1 Like
What is happening?
aylinozel2 days agoPOPULAR
I had terrible 2 days. Our doctor couldn't continue with RB theraphy because my husbands HGB counts only 5. They started to blood tra...
Venetoclax Plus Rituximab Is Superior to Bendamustine Plus Rituximab (Murano Study)
Korstiaan3 days ago
Today on the ASH 2017 Meeting, the results of the Murano Study were published:
I was one of the 389 participant...
2 Replies15 Likes
Road to a BMT... oops just got there (Day+26)
NMMP3 days ago
We were finally discharged today and very happy to be home.
Here are the details from our consultation with the Dr.:
1) BMT/blood work - very ...
15 Replies25 Likes
Ibrutinib 7 month's in
cartwheels3 days ago
Doing well and feeling better nodes soon went and bloods are good bear normal . Side effects all but gone still get tight muscles and occasi...
8 Replies1 Like
Beware of sudden raised temperature
KAS83 days ago
A few weeks ago I noticed I needed to use the toilet more frequently in the night. The previous day I had been out in the cold and had exper...
11 Replies13 Likes
burning sensation on my scalp
jroon085 days ago
I am Anja (61) from the Netherlands. I have had CLL since 2010. FCR in 2012.
I am participating in the ACP 196 study since March this year. T...
Merry Christmas..hope all doing well..
truff45075 days ago
Hoping everyone is doing well....last checkup was good..don't have to go back for 6 months. Having more issues with my crohn's than with my ...
4 Replies12 Likes
Winter Walk for CLL Support Association
surjeet445 days ago
Hi everyone, I was diagnosed with chronic lymphocyte leukemia on my 68th Birthday in 2012 and was on watch and wait for 3years before treatm...
7 Replies17 Likes
cathybohrer5 days ago
my daughter is 5 and has alport syndrome rare kidney disease and my grandson is positive and my daughter they say i gave it to my daughter ...
Marijuana Kills Cancer Cells?
TXteacher6 days ago
I've read some scientific and a lot of anecdotal info claiming marijuana kills tumor cells. Has anyone experimented with this or gained any ...
9 Replies2 Likes
BGB-3111 gets a name - zanubrutinib
avzuclav6 days ago
1 Reply1 Like
Gene sequencing for cll
I saw my doctor today and he said my CT scan was normal except for a tiny enlargement of the spleen and lymph nodes. So he's putting me on a...
14 Replies3 Likes
Farrpottery6 days ago
I know this has been discussed previously. I've been unable to search the site due to my cellphone and lack of laptop just now.
My husband h...
aylinozel7 days ago
Hello again, on Monday our 2nd session will begin (Rituximab, Bendamustine therapy) but my husband has white spots on his face. I asked the ...
robertsw7 days ago
Hi I am looking for annual travel insurance for cruise and flying holidays. I have CLL and was diagnosed October 2015 I am on watch and wait...
Trying to help an acquaintance who lives close to the Black Sea,in Georgia, who has just been told that her CLL has turned into B-PLL.
jettyguy17 days ago
Someone has reached out to me and is looking for a way to have her B-PLL treated. She lives in the Baltics and where she is located the...
19 Replies1 Like
My husband has cll
Nikkij818 days ago
Hiya I have recently joined as my husband has cll. He was diagnosed 6 years ago and is still w&w it is good to join a group that is specific...
16 Replies4 Likes
Notifications don't display any more
PlanetaryKim8 days ago
I used to see the number of comments/likes any of my posts had as soon as I logged on. There was a green (or red?) box with the numeral abov...
6 Replies3 Likes
Dr. Furman on the Diminishing Role of FCR
bkoffman8 days ago
As we're getting ready to head to ASH this week, we wanted to post in response to a query that was posted originally on the CLLSLL io gro...
10 Replies10 Likes
Swelling of neck by collar bone
Dorid8 days ago
My neck is very swollen above my collar bone. I’m a hair dresser, when this happens my arms hurt to lift, any idea?
Imbruvica Atrial Flutter
Pamporter408 days ago
My husband hass CLL 11q deletion and has been on this med for 10 months within the first month he became short of breath as the months pass...
Road to a BMT... oops just got there (Day+20)
NMMP9 days ago
What a whirlwind - things have been all over the place since my last update 10 days ago, where do I start.
Mark has been up and down, with fe...
9 Replies13 Likes
Naka9 days ago
I was wondering if anyone can help with a question. Under which does CLL fall leukemia or lymphoma? The same with SLL.
3 Replies1 Like
Decreasing platelet count
jigsaw79 days ago
Can anyone help? My platelet count is within the 'normal' range but over the past three years, it's been steadily dropping. I'm afraid that ...
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