Newbie to CLL
kitchengardener6 hours ago
Hello I was only diagnosed with CLL this week after a frightening three weeks of blood tests and scans. I have been told that unless things ...
9 Replies2 Likes
Follow ups when on Ibrutinib
VLAD11a day ago
What is the follow up regiment when starting Ibrutinib? How to see if any changes in abdominal lymphoma mass?
Newbie; experience with Humble's Mineral Solution?
NaturalWazea day ago
I am new here and have been finding the posts soooo helpful in (finally) starting to read about the CLL I was diagnosed with in ...
12 Replies1 Like
Wife just diagnosed with CLL too!
Walt424a day ago
I was diagnosed in 2006 and have been in clinical trial since 2016. My wife was just diagnosed. All sorts of questions: could it be an env...
5 Replies1 Like
Ibrutinib and dental work
Mayor442 days ago
Can anyone tell me how long before I have a tooth filled I need to stop with Ibrutinib?
CAR-T eduction this week
bkoffman3 days ago
Wednesday, November 14, 2018, 12:15 – 1:15 pm, Eastern Time
The CLL Society, Florida Society of Clinical Oncology, and Gilda’s Club South Flo...
2 Replies6 Likes
Health Check: should you take probiotics when you’re on antibiotics?
AussieNeil3 days ago
Following on from the Israeli research that Probiotics are mostly useless and can actually hurt you: healthunlocked.com/cllsuppo... , a rece...
6 Replies6 Likes
Anyone have experience with Kombucha?
barbkerm3 days ago
Anyone have experience with Kombucha?
An Essential Oils friend is touting the benefits of it (fermented tea).
Is it okay to get a PPD?
mjcll413 days ago
My new CLL specialist said to be careful of shots; I know a TB test isn't exactly a shot, but he also said that my immune system isn't what ...
ASH Conference will hopefully have some good news on CLL progress
17Pisme3 days ago
I am a patient of Dr. Jain at MDA (prior with Dr. O'Brien before she left for Irvine) and was in the early Ibrutinib/Rituxin study at MDA. ...
4 Replies11 Likes
USA Health Insurance Open Enrollment Ends Dec 15 for Non-Medicare and Dec 7 for Medicare
lankisterguy3 days ago
Open Enrollment for those not on Medicare ends on December 15th. 2019 options have increased in many markets this year and price increases h...
1 Reply1 Like
CAR-T Cell expert Dr. Utkarsh Acharya online; CAR-T Patient Dr. Brian Koffman at CLL Society Support Meetings- Philadelphia & New York City
This week there are several opportunities to learn more about CAR-T
Online we hear again from Dr. Utkarsh Acha...
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Inbrutnib side effects
Turntwo4 days ago
Hello all, I'm Bill from Canada and I just wanted to vent and to ask what everyone thought about what's going on with my cll. To share a bit...
6 Replies5 Likes
MRD with Next Generation Sequencing (NGS)
lamboman4 days ago
People on various combination trials are tested for MRD after a few months of treatment. I wonder if anyone of you has been tested with NGS ...
jigsaw74 days ago
Can I have B12 deficiency without having pernicious anemia? My red blodd cell count is within the 'normal' limits. I have chest pains quite ...
Flu shot with lung congestion
debralynn5 days ago
I'm 10 years WW with unmutated, treatment looming with 192 WBC, enlarged spleen and 9.8 hemoglobin, also IVgs in the toilet. My question is ...
cll and flebodia600
Ricotta5 days ago
I have cll (diagnosed September 17), w & w
I complain of lower abdominal pain due to varicose veins. When I took Flebodia 600 ...
Is anyone on Essential Oils for W&W?
barbkerm5 days agoPOPULAR
Folks around here are getting into essential oils... I've rolled on immune therapy for my swollen neck gland, and it seemed to help some... ...
24 Replies2 Likes
I haven't seen my doctor for a year... I just get a Physician's Assistant.
barbkerm5 days ago
I'm going to request the doctor the next time... I assumed that I would be seeing him.. but I just got a PA. She asked the questions, asked ...
Is Green Tea and Matcha powder same, similar?
jawdfs6 days agoPOPULAR
I've always experienced a benefit from simply drinking green. Over the course of my life, when I was a green tea drinker I had far...
34 Replies2 Likes
Shampam6 days ago
My wife had some Multiple Subcentimeteric Sized normally enhancing lymphnodes along mesentery of average size apx. 12x9 mm.
2.She was lately ...
Need info on raising red cell count
Lorray7 days ago
Hello I have been here on and off for about a year. I know you are all going through your individual health issues and I hope and pray you f...
2 Replies1 Like
CLL is gone!!!!
lamboman7 days agoPOPULAR
After living with CLL for 5 years. We have decided to divorce after she MRDed negative on my blood and bone marrow. Yes, I just got the be...
48 Replies81 Likes
Neutropenia with Ibrutinib
marlapoi7 days ago
Husband becoming neutropenic after 2 years on Ibrutinib. Maybe he will be forced to quit treatment if he can’t take it anymore because of th...
Lymph Nodes behind the knee
poppykraus7 days ago
I did not know there were Lymph Nodes behind the knee
My Orthopedic Dr said I have Arthritic Knee but I feel Lumps behind it and the Cortison...
4 Replies2 Likes
Help for a newbie please...
Normsky7 days ago
Hi I keep hearing (at the conference) and seeing discussion (on here) about the ''type of CLL'' whether I have mutated or unmutated, can any...
11 Replies1 Like
Cough post FCR
Eebie12347 days ago
I completed FCR in January and now enjoying what I hope will be a long remission. Bone marrow test had no detectable CLL and ...
9 Replies1 Like
tlcladygiraffe7 days ago
Found two lumps..one in my breast..the other below...have an appointment with my oncologist on Nov 14th..have been on imbruvica for 13 month...
10 Replies1 Like
Mental health + CLL
macchiato7 days ago
Anyone else out there have mental health issue as well as CLL? I have GAD with panic, PTSD, depression, and am Aspergers (not that Aspergers...
5 Replies3 Likes
Weight gain 😩
I was diagnosed in January 2017, went on imbruvica later that year, and put on 5kg. Went into remission and this year it came back, and on i...
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