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CLL Support
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Horrific CLL specialist visit !

I am trying out a second CLL doctor right now so I guess you can say I have two ...

umrd

I had the same experience many doctors different opinions I looked at bloodwork ...

Low Platelets

Hi again. Just back from clinic and platelets down again despite high dose stero...

Imbruvica and Afib, is there an alternative?

There has been a suggestion that my Afib is directly related to ny Imbruvica. T...

Talking care of business

Lots of plans- had my annual checkup and labs including lipids and PSA and they ...

Symptoms of CLL/SLL

What are some symptoms people have? I have thyroid cancer and sometimes can’t di...

Deleting ‘Notifications’

Sorry to be a pain but can someone please tell me how to get rid of the long lis...

Night sweats

How can I help my husband cope with his terrible night sweats? He’s getting very...

Was anyone else here diagnosed around the age of 40?

Diagnosed at 40, stage 4, not on treatment yet.

Medicare Part D explained how works

to make things easier anyone who wants part D information should read this...

I would like to hear from people needing regular blood transfusions

Following from my recent post - \"Fludarabine: rare side effect of destroying ...

Fludarabine: rare side effect of destroying ability for red blood cell production in myself. But also unwell with fevers.

I've had a really difficult result from my bone marrow biopsy today. Four months...

The November Long Island CLL Society Support Group Meeting

Hi Everyone, Just wanted to remind everyone of our November meeting of the Long...

Acute ankle pain

Hi, I wonder if anyone else has experienced sudden onset of acute joint pain. I ...

Ibrutinib and Medicare

In researching part D options it seems like the out of pocket cost per year will...

Knee pain

Hello my fightmates. My blood tests are getting better after almost 2 years on I...

Those of you who have had Obinituzumab, What's the procedure getting started? (Also RBC transfusions related to Anemia)

Waiting for insurance approval for V+O, have been reading a ton, but I have not ...

ibrutinib and palpitations

Hi. I have been treated with Ibrutinib, 2 years and 5 months ago, it has been g...

CLL Specialist

After 4 years treatments. Going from Ofatumumba to imbruvica overnight. With no...

Dizziness and vision problems

My mum is 6 weeks on Intrunib and is having a worrying spell of partial blindnes...

My wbc is above 80000 so what is my majer problem plz say something about high WBC count

Please help mi ...

CLL Support Meeting

Hi there, I live in Southampton. United Kingdom, our next CLL Support Meeting is...

Ibrutinib Update

Hi everyone. I thought I would post my update of my experience so far of Ibruti...

severe Leg Muscle pain and weakness Using Ibrutinib daily.... want to try every other day, thoughts ?

81 years old , in decent shape, (try to play pickle ball 3 times a week,) in 201...

New review article about Obinituzimab

This article just came out recently and is in a similar vein to the one on Venet...

Leukaemia Care Updated Patient Information - Richter's Syndrome in Chronic Lymphocytic Leukaemia

Leukaemia Care is a UK charity so the support information is UK based. However ...

Had anyone enter into a remission with Gazyva alone?

Hello Dear Friends, I read few stories with Gazyva here, but wanted to expand t...

CLL remission

My spouse is in remission after doing 6 rounds of FCR for his CLL. His last rou...

CLL Transformation - Richter's?

I'm not really new, but think this is my first post. I've been one of those luc...

Severe Cold Symptoms

I am close to starting CLL treatment. This cold has just completely rendered me ...
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