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CLL Support

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CLL

Don’t take it that serious , CLL like any other illnesses, eat green vegetables ...

Imbruvica CLL

I've been on Imbruvica 420mg for 14 days and switched to 280mg because of the s...

Flare ups

Does anyone have flare ups from CLL tiredness pain from top to bottom and if so ...
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Medication after trial ends

My son has CLL and has been on a Flare trial for five years. This has kept him r...

When do you start feeling better with A-brutinib?

My husband started Acalabrutinib in mid-April, and his numbers have definitely i...

Progression Free Survival

Sorry if this is a stupid question. We are told CLL is incurable. Just saw somet...

Thank you all

Thank you all... I'm feeling a lot better today ...much more emotionally stable ...

A new $3.2 billion program will support the development of antiviral pills, which could start arriving by the end of this year.

A Pill to Treat Covid-19? The U.S. Is Betting on It. https://www.nytimes.com/202...

My GP just said something about CLL and Covid

Just been to see my GP who I have known professionally and personally for over 3...

Venetoclax Low Blood

Is it possible to have G6PD deficiency while using Venetoclax ? My Dads haemogl...

Coping with risk and uncertainty as lockdown eases

There was some heartfelt discussion recently on the thread Covid - Live With It?...

Venetoclax Side Effects

My Dad is on V ( 400mg). When he started his first 400 dose he got rash ( red t...

STORM CHASER MISSES THE TARGET

Following hard on the heels of Regeneron, who just posted lukewarm results from ...

Need a summary of treatment options

Can someone refer me to an article or report that summarizes in plain language t...

3rd dose vaccine

Just came across an interesting article stating the benefits of a 3rd vaccine sh...

New drug cuts deaths among patients with no Covid antibodies

New drug cuts deaths among patients with no Covid antibodies...

Kappa/Lambda Question

Met with a new haematologist yesterday to discuss my SLL diagnosis and I was hit...

Low Hemoglobin

Wondering if anyone runs a low hemoglobin level ( without bleeding or low iron )...

Dental Graph for dental implant

I have CLL since 2010 currently on imbrutinib. I have to have a tooth pulled an...

I have had both doses of the Pfizer vaccine, while they applauded me after I got my 2nd dose, 90 days later I found that I have no immunity!

I took Ibrutinib prior to January 20 when it gave me AFib and a few other proble...

Latest consultation

Good morning, Dr Munro called yesterday after my blood tests. White cells 208 ...

Burning skin sensation

I’m on W and W and tonight I am feeling a burning sensation on right hip and low...

Calquence swelling and blood in urine

After 18 days on imbruvica my wife was hospitalized due to side effects. 30 days...

Acalabrutinib

Thanks to everyone for your advice. My husband has started the drugs and is doi...

New drug zanubrutinib

Hi there. Wondering if anyone on this site takes a drug called Zanubrutinib for ...

Best browser for this site?

I've been using the Chrome browser for this site, but the formatting is confusin...

Venetoclax and tiredness

Hi, I'm on week four of the ramp up. My bloods are good but since I've upped the...

Predicting effectiveness of CAR-T therapy

“…our data may help identify patients at risk of early loss of CAR T cells…” ht...

Overcoming resistance to BCR inhibitors

This is an interesting paper particularly because of the counterintuitive approa...

Superior vena cava syndrome.

Hi all, My bf was diagnosed CLL in 2017. He’s been taking imbruvica for the las...
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