Scientific journal articles regarding dental issues and dental care
hsouteran hour ago
Does anyone know of articles I could give to our dentist regarding CLL (or similar) so he can better inform himself? He is a conscientious b...
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Being able to work taking abruvica
showdog3 hours ago
I live alone and wondering about side effects and if I will be able to manage my 2 jobs. I know everyone is different just would like some i...
Soon to begin 6 months of Obinutuzumab
Swimmizz3 hours ago
Hello fellow club members (someone told me recently,"a club no one wants to join"). Diagnosed 6 months ago at stage 4. Did two days of a ...
Mother of a 16 year old son with extreme OCD
OCDbreaksmyheart11 hours ago
I am new here. I have a 16 year old son with extreme OCD. Our entire lives center around his Obsessions, Compulsions, Intrusive thoughts, ...
Molars rotting at root, 2 extracted, now a third?
hsouter12 hours ago
Hello, everyone. My husband has just had 2 molars extracted within a month. He had serious pain and wicked headaches. Now he is having si...
MEDS FOR LEG SWELLING
tlcladygiraffe12 hours ago
ANYONE WITH SWELLING PROBLEMS WHAT DOES THE DOCTOR PERSCRIBE FOR THE CONDITION..FOR LEG AND ANKLE..IT IS SO UNCOMFORTABLE REPLIES PLEASE.
Cowgirl4917 hours ago
Are you Drs??
Estate1a day ago
Saw my Hemo/Onco today and she postponed my first BR for a week and prescribed antibiotic to deal with ear infection. Good plan...
3 Replies8 Likes
I’m starting first round of BR tommorro. I’m curious if others that have had BR lost any hair? Thanks.
Imbrutinib side effects
Matt7386a day ago
Diagnosed in 2010. Started Imbrutinib Dec.19 after WBC reached 100,000. Got bronchitis on Jan. 2, pneumonia on Jan. 9. Oncologist said durin...
tlcladygiraffea day ago
My dr checked out my swollen leg and urgently sent me an ultrasound...no clots...thank you Lord...again the cause of swelling imbruvica...ha...
4 Replies4 Likes
White Blood Cells lowered
kitchengardenera day ago
I saw my consultant yesterday and she was very pleased with me. She told me that my white blood cell count was down from 43 to 36 from Decem...
4 Replies2 Likes
AHA--autoimmune hemolytic anemia
kulachicka day ago
My husband is on Venclexta and has developed autoimmune hemolytic anemia for the second time (first time was when he was on Ibrutinib). Fir...
Start BR this Week
Estate12 days ago
I’ve developed a bad ear infection last 24 hours. I’m starting my first treatment in 48 hours. I’m wondering if they would start When I’ve g...
sophia602 days ago
How do I set my profile so that my posts are locked?
Inflammation, CLL and gluten
I have been diagnosed with CLL in the last month. I had high inflammatory markers in my blood prior to my CLL diagnosis for several years a...
Lumps on top of each hand which look like ganglion cysts
elm12 days ago
I’m newly diagnosed with cll stage zero ,no symotoms, watch and wait. I’ve noticed a bump on the top of each of my hands which resemble gan...
4 Replies1 Like
TIME OF DAY
HEALING553 days ago
I just want to know if its better to take Imbrutinib in the morning or evening?
Downriver5553 days ago
Just came from the drs office. My iGg levels dropped again to
IGM 21, IGA 27, IGG 213
Dr wants to start replacement therapy:(. He also started...
swelling in leg and ankles..numbness in my feet and hands
tlcladygiraffe3 days ago
I am on imbruvica for 15 months..hate all the side effects..but it is keeping me alive...now I have swelling in my leg and numbness,tingling...
14 Replies2 Likes
REGARDING MY EXPERIENCE
giuliano3 days ago
MY EXPERIENCE WAS WITH OBINUTUZUMAB AND CLORAMBUCIL
LEUKERAN + GAZYBA
how to find my posts...? Please
romarin3 days ago
Always struggle to find my previous posts....where are they?
Hello from TN
Balseria4 days agoPOPULAR
Hello. I have just joined this blog in hopes to learn more from other people who are going through similar treatments. Although, I have gon...
26 Replies3 Likes
Being able to afford the copays???
Panz5 days agoPOPULAR
Things are now under control. I am now on Imbruvica. It was prescribed on December 18 and got my first prescription and was very lucky to ...
24 Replies14 Likes
CLL and IV Vitamin C
Maazi5 days agoPOPULAR
Is there anyone suffering for cll taking IV vitamin C ?
26 Replies1 Like
Shingles vaccination advice please
annmcgowan5 days ago
Can anyone tell me if it is safe for me to be around friends and family who have had the live shingles vaccination?Ann
15 Replies1 Like
ASH 2018: ECOG trial shows superiority of Ibrutinib and rituximab over FCR
bkoffman6 days agoPOPULAR
The early buzz at ASH 2018 was rightly about the ECOG trial that was presented on the last day as a late breaking abstract.
In my ...
20 Replies17 Likes
13q, now 11q too!
Kokobean6 days ago
A recent FISH REVEALED MY HUSBAND ALSO HAS 11q now. Any thoughts on treatments?
krikri1989ho6 days ago
My husband was diagnosed at 29 with sll, recently he has been feeling pain/soreness on his waist hip joints , is it possible becau...
HEALING557 days ago
I have been on Imbrutinib for about 2 weeks now and have had a sore throat for about 5 days now.
Has anyone else experienced this s...
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