Posts - CLL Support | HealthUnlocked

CLL Support

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Linda

Any advice on mouth blood blisters so sore having a bone marrow biopsy followed by chemo soon .

Any advice on mouth blood blisters so sore having a bone marrow biopsy followed ...

Oscarchapman

•7 hours ago

1 Reply

please share experience on Rituximab combined with Venetoclax oral tablets and side effects

Hello everyone, I was diagnosed with CLL in 2013 and was under W&W. After two cycles of BR (discontinued the rest of the BR cycles due to severe side...

Hello everyone, I was diagnosed with CLL in 2013 and was under W&W. After two c...

attarintiki

•8 hours ago

1 Reply

Additional insights from the 2023 Global Leukemia Experience Survey - CLL specific findings, unmet needs and recommendations for action

The Chronic Lymphocytic Leukemia Advocates Network (CLLAN) commissioned Picker to examine diagnostic pathways, immunity status, and treatment decision...

The Chronic Lymphocytic Leukemia Advocates Network (CLLAN) commissioned Picker t...

Jm954

Administrator•1 day ago

5 Replies

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COVID shots 24-25 winter

My wife just received a notification from our pharmacy that a booster COVID shot is recommended 6 months after the last 24-25 winter COVID shot. This second...

My wife just received a notification from our pharmacy that a booster COVID shot...

Claybuster

•2 days ago

12 Replies

cin51

I am a 73 yr old female diagnosed with CLL 2 years ago in watch and wait. My question is, what vitamins or supplements are best to take to help with...

I am a 73 yr old female diagnosed with CLL 2 years ago in watch and wait. My qu...

12whitedoves

•2 days ago

6 Replies

A cautionary tale about using AI

I like Microsopft Copilot, because it's built into my PC running Windows 10, and provides an attempt at references. But this sequence shows how...

I like Microsopft Copilot, because it's built into my PC running Windows 10, and...

SeymourB

•2 days ago

34 Replies

Venetoclax Ramp Up Programme.

I am 76 years old and my CLL is being treated with I and V. I am just coming to the end of 3 months of 15 months Ibrutinib and start 12 months of Venetoclax in...

I am 76 years old and my CLL is being treated with I and V. I am just coming to ...

Coldplaybest

•2 days ago

19 Replies

Thanks for all the Deep Dental Cleaning Responses.

Thanks to everyone who has responded to my question about the safety of having a deep dental cleaning now that I've been diagnosed with CLL. I have read pretty...

Thanks to everyone who has responded to my question about the safety of having a...

NancyJ4

•2 days ago

1 Reply

Starting treatment

Hi all, I have been told the time has come, they are saying V and O my question is, is it a good combination, anyone had this, looking for feedback thanks

Hi all, I have been told the time has come, they are saying V and O my question...

Feavers

•3 days ago

27 Replies

UPDATE to https://healthunlocked.com/cllsupport/posts/151558926/start-treatment-just-based-on-fatigue

Hi everyone. Back in December I posted looking for feedback on whether or not to start treatment based on persistent fatigue that was out of sync with the...

Hi everyone. Back in December I posted looking for feedback on whether or not to...

TLSAtlanta

•4 days ago

9 Replies

Patchy parenchymal

Help with Bruniska

Family2017

•4 days ago

3 Replies

Ibrutinib + Allopurinol

Hav been reading this great forum for years, now I have an opportunity to 'give back'. For my CLL I recently started using Ibrutinib + Allopurinol (Zyloric)...

Hav been reading this great forum for years, now I have an opportunity to 'give ...

sohale

•5 days ago

4 Replies

Patches of dry skin & vaccinations

My husband was diagnosed with CLL Nov 24….. all very new to me. This was as a result of a cancerous patch of skin/tissue adjacent to his nose and one on his...

My husband was diagnosed with CLL Nov 24….. all very new to me. This was as a r...

sunshine-happy

•6 days ago

9 Replies

Deep Dental Cleaning w/ CLL.

Hi all, So I have been confirmed with CLL a week ago. I already had my first ever "deep" dental cleaning scheduled for mid April. I told my...

Hi all, So I have been confirmed with CLL a week ago. I already had my first ev...

NancyJ4

•6 days ago

45 Replies

CLL and Calquence

I have CLL with enlarged spleen 19cm and WBC 106,000. My Dr wants me to start Calquence. I’m concerned about the side effects. Is anyone on Calquence and how...

I have CLL with enlarged spleen 19cm and WBC 106,000. My Dr wants me to start Ca...

Vski

•6 days ago

16 Replies

L Reuteri Yoghurt - good or bad?

I recently started taking this after seeing various online videos with Dr William Davis -apparently we should have this bacteria, but most of us have lost it...

I recently started taking this after seeing various online videos with Dr Willia...

Research123

•6 days ago

5 Replies

CLL transferred to Richter's Syndrome

Morning, we found out yesterday that my husband's CLL has transferred to Richter's Syndrome. He is having a lymph node biopsy and blood transfusion next week...

Morning, we found out yesterday that my husband's CLL has transferred to Richter...

Ooshi

•7 days ago

12 Replies

Moles or Petechiae or WHAT?

Hi all. Been on brukinsa for 7 months since dx of SLL/CLL in June 2024. No side effects so far that has altered my energy and lifestyle. Don’t want to jinx...

Hi all. Been on brukinsa for 7 months since dx of SLL/CLL in June 2024. No side ...

Reetywell71

•7 days ago

3 Replies

What would you do

Just spoke to my new Consultant about returning to work. I have my own Gardening business Initially this was going to be March, I am on currently V&O Cycle...

Just spoke to my new Consultant about returning to work. I have my own Gardening...

TheFlyer

•7 days ago

14 Replies

Return to Office

Hello: I was diagnosed with B cell CLL in January 2021 during a six-week hospitalization after passing out at the Post Office. I have been in treatment &...

Hello: I was diagnosed with B cell CLL in January 2021 during a six-week hospit...

Mango357

•7 days ago

28 Replies

CLL - 5 years post FCR

just wanted to share our news that today we have now celebrated 5 years post FCR . My husband was diagnosed in 2016 with CLL. We then had nearly 5 years of...

just wanted to share our news that today we have now celebrated 5 years post FC...

Cheshire2016

•8 days ago

22 Replies

zelenirstat

Has anybody heard of this drug? I just read about it today, and I'm wondering if it might be effective for Richters at some point....

Has anybody heard of this drug? I just read about it today, and I'm wondering if...

rgs1204

•8 days ago

3 Replies

upcoming Mayo (Minnesota) visit: second opinion: any advice? kind of nervous

Someone on here (sorry, can't remember, recently praised the efficiency of Mayo at Rochester..... I am CLL/SLL with CNS optic nerve/vision loss on...

Someone on here (sorry, can't remember, recently praised the efficiency of Mayo ...

msnik

•8 days ago

15 Replies

Moving closer to more affordable CAR-T therapy for cancers

CAR-T therapy has been used most successfully to treat some of the more acute blood cancers, less so in treating CLL and with limited success in solid tumours....

CAR-T therapy has been used most successfully to treat some of the more acute bl...

bennevisplace

•8 days ago

2 Replies

Filgastim Bone pain

Nuetrophils are 4.76 after the injection from 0.68. I guess it was worth the pain after all. Jules

Nuetrophils are 4.76 after the injection from 0.68. I guess it was worth the p...

TheFlyer

•8 days ago

7 Replies

Curious question

Sorry all, I am making up for the lost time that I haven't been on here. LOL I am curious, for those who are, or were, in the watch and wait stage, how much...

Sorry all, I am making up for the lost time that I haven't been on here. LOL I ...

Presto51

•9 days ago

30 Replies

How CLL Weakens the Immune System Webinar- HealthTree Webinar

I wanted to share this webinar from the HealthTree Foundation about how CLL impacts the immune system. The webinar includes the impact of CLL on the immune...

I wanted to share this webinar from the HealthTree Foundation about how CLL impa...

HungryB

•9 days ago

8 Replies

Hello,

These blood tests were taken at the hospital 3 weeks ago .can anyone please interpret them for me,Haemoglobin 125 platelets 245 white cell count 86 lymphocytes...

These blood tests were taken at the hospital 3 weeks ago .can anyone please inte...

pet-lamb

•9 days ago

6 Replies

Free webinar presented by Triage Cancer

I got this (webinar below) from the Leukemia & Lymphoma Society (LLS) news updates email. With possible changes coming down the pike, this could enlighten to...

I got this (webinar below) from the Leukemia & Lymphoma Society (LLS) news updat...

Lavinia-Blue

•9 days ago

Be the first to reply

Could eat a boot

hi all! I’m new to this site and am hoping somebody could help me. I am starving but when I try to eat i get about 6 bites in and feel nauseous so I just...

hi all! I’m new to this site and am hoping somebody could help me. I am starving...

Hopeful074

•10 days ago

7 Replies

Write a post or ask a question

Posts - CLL Support | HealthUnlocked

CLL Support

Linda

please share experience on Rituximab combined with Venetoclax oral tablets and side effects

Additional insights from the 2023 Global Leukemia Experience Survey - CLL specific findings, unmet needs and recommendations for action

COVID shots 24-25 winter

cin51

A cautionary tale about using AI

Venetoclax Ramp Up Programme.

Thanks for all the Deep Dental Cleaning Responses.

Starting treatment

UPDATE to https://healthunlocked.com/cllsupport/posts/151558926/start-treatment-just-based-on-fatigue

Patchy parenchymal

Ibrutinib + Allopurinol

Patches of dry skin & vaccinations

Deep Dental Cleaning w/ CLL.

CLL and Calquence

L Reuteri Yoghurt - good or bad?

CLL transferred to Richter's Syndrome

Moles or Petechiae or WHAT?

What would you do

Return to Office

CLL - 5 years post FCR

zelenirstat

upcoming Mayo (Minnesota) visit: second opinion: any advice? kind of nervous

Moving closer to more affordable CAR-T therapy for cancers

Filgastim Bone pain

Curious question

How CLL Weakens the Immune System Webinar- HealthTree Webinar

Hello,

Free webinar presented by Triage Cancer

Could eat a boot

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