The petition to stop NHS England refusing to dispense Ibrutinib to CLL patients
hammyj2 hours ago
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The Bloodline with LLS ------------------------------------ A PODCAST FOR PATIENTS AND CAREGIVERS
lankisterguy3 hours ago
( a USA base organization but the links and audio programs etc. should work world wide- Len)
Being diagnosed with a blood cancer ca...
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Managing the Complications of Chronic Lymphocytic Leukemia (CLL) Online Program by The CancerCare Education Department (USA)
lankisterguy5 hours ago
We appreciate your participation in Managing the Complications of Chronic Lymphocytic Leukemia (CLL), which took place on May 17. We hope yo...
Was anyone else frightened to start Ivig treatments ?
Luckyliss6 hours ago
I like to consider myself a pretty tough chick but for some reason I’m scared to start then for fear of long term side effects like the FCR ...
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Ibrutinib my update
Mick4916 hours ago
To keep you up to speed. I've just been to see my consultant and in the last 3 weeks there has been a case review and all the consultants ag...
7 Replies1 Like
Havemercy7 hours ago
I wonder if there is any information from forum members on the UK FLAIR TRIAL. Diagnosis was nearly eight years ago bit yesterday was told b...
Second Opinion Dr needed
Lauriesue416 hours ago
Any one been to both Dr. Furman and Dr. Keating to give an honest opinion for second opinion route? Any guidance appreciated. TX or NY I kno...
Thankfully i have been in watchand wait since my august 2013 diagnosis aged 53but have thinning dry hair. Any ideas?
Dawnclark16 hours ago
Anybody with this problem?
Jjcrepeau19 hours ago
Hello! My CLL has finally progressed to the point where my doctor now wants to start BR for treatment. I've become extremely anemic and ha...
4 Replies1 Like
bkoffman20 hours agoPOPULAR
I have been too slow in sharing good news. Last week I learned that my bone marrow biopsy done 28 days after getting my CAR-T cells showed n...
21 Replies25 Likes
Not in the international press yet
yoniboia day ago
But the Spanish press is full of it....
Researchers in Barcelona have completed mapping the CLL genome and have...
8 Replies14 Likes
MattGGibsona day ago
Evening everyone - as usual this place gives me a lift - so much help and support from everyone.
I'm reminded that a year ago I was mid FCR ...
16 Replies30 Likes
Petition against NHS England and use of Ibrutinib
Mick491a day agoPOPULAR
Following the Times revelation about NHS England going against NICE recommendations I have begun a petition to get them to follow th...
41 Replies13 Likes
Jsk1950a day ago
White blood over 230
Red blood 3 .7
Lymph’s in range
Sailormoon11a day ago
Hi guys can anyone tell me if they had a few beers when on the FCR Treatment programme after their 5 day tablets were finished. Hubby wants ...
Survey of Monoclonal B-cell lymphocytosis Patients by Queen's University in Belfast.
Jm954a day ago
NOTE: This survey is not for confirmed CLL patients in watch and wait but for patients with the pre-CLL condition called monoclonal B cell ...
3 Replies3 Likes
CLL and alcoholism
Nia_Sa day ago
Hello everyone. I’m new here and was hoping to find an answer to my question but it seems like I’m the only one struggling with this problem...
19 Replies2 Likes
Ironja day ago
Has anyone heard of this new vaccine Vaxil that says it kill 90 % of all cancers ? It’s from Israel I was just watching a video on it. Sound...
My cancer is in remission – what does this mean?
AussieNeil2 days ago
"In the 1970s, only one cancer patient in three made it through the first five years after diagnosis. Today, this figure is around 70%, and ...
1 Reply14 Likes
Ironj2 days ago
What is a dangerous or very high # for total lymph #. Is it common to have a normal count of your white blood cell under 10,000 and a elevat...
Njsailorgirl2 days ago
Had Rituxan/Bendamustine #5 over two weeks ago and suffering with hip and leg stiffness and numbness Also involving the hands. Has anyone tr...
Venetoclax ramp up
Kat19692 days ago
My mother has advanced CLL and has just begun taking Venetoclax. The doctors have decided to accelerate the drug ramp up to take only ten da...
8 Replies1 Like
Mick4913 days ago
I know many are following the issue regarding NHS England's behind closed doors decision not fund treatment for CLL patients who have relaps...
16 Replies3 Likes
LAS VEGAS - CLL/Oncologist recommendation needed.
misterbee3 days ago
Can anyone recommend a good CLL doctor in the Las Vegas area?
Letter to my MP regarding funding of Ibrutinib
Ruhi93 days ago
Dear Mrs Hobhouse,
I am a cancer patient and under treatment from the RUH since 2006 when I was first diagnosed with CLL.
The disease is a sl...
9 Replies31 Likes
Muscle Spasms - Not dehydrated
Paul_Mangold3 days ago
Post round five FCR with Neulasta (this week). I am experiencing moderate spasms / muscular seizures. Has anyone had similar experiences? Su...
dandelup4 days ago
I am suffering with terrible throbbing pains in both my knees and muscle pains in my thighs, I am wondering if any other cll sufferers have ...
16 Replies1 Like
Does anyone get leg pain ?? Mostly upper thighs it feels like bone pain at times, not sure it’s CLL related
Mazendudar4 days ago
CLl and Leg pain
5 Replies1 Like
DreamLab App using your mobile phone to help cancer research update
YelvertonDevon4 days ago
Perhaps someone has already posted this but have just acquired an App DreamLab available in NZ. It’s Free! Available in Australia too. L...
4 Replies2 Likes
CLL, Trisomy12, unmutated, NOTCH1 - NOT SURE WHERE TO GO - WHAT TO DO
misterbee4 days agoPOPULAR
I was diagnosed with CLL 12 years ago. WBC' s have been rising year after year, I am finally to the point where doubling time is 6 mo - time...
39 Replies2 Likes
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