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CLL Support

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17 years in! Vclax vs platelets

Long time no post! 17 years with CLL my general health remains excellent. Now 2.5 years on Vclax (mono and on it indefinitely), after a very shaky start (wiped...

Long time no post! 17 years with CLL my general health remains excellent. Now 2....

Lawand1

•8 hours ago

2 Replies

Car-T begins tomorrow!

Just wanted to update you all about where I am with my CLL/MZL which transformed into DLBCL (still not sure if it’s Richters but definitely close) in January,...

Just wanted to update you all about where I am with my CLL/MZL which transformed...

Bajabarb

•8 hours ago

4 Replies

Is it time for treatment?

After a long absence, I am posting again about my wife's CLL progress. I am a caregiver; I am not a medical professional. My wife's genetic markers—trisomy 12,...

After a long absence, I am posting again about my wife's CLL progress. I am a ca...

Sagarcanada

•1 day ago

14 Replies

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starting gazyva and venclexta

starting gazyva and venclexta therapy with first infusion on April 3 at City of Hope. What should I expect?

starting gazyva and venclexta therapy with first infusion on April 3 at City of ...

Vski

•2 days ago

3 Replies

Starting V+O immunotherapy

I'm a U.S. citizen living in Peru, where the only treatment option for my CLL through the government health system would have been chemotherapy. My hemoglobin...

I'm a U.S. citizen living in Peru, where the only treatment option for my CLL th...

jimwilmes

•2 days ago

9 Replies

Travel Insurance with CLL - any recommendations?

We are going to Australia for approx 3 months (staying with friends) leaving in just over a week. We've booked flights and I've just started trawling through...

We are going to Australia for approx 3 months (staying with friends) leaving in ...

Patternista

•2 days ago

21 Replies

Potent new antibiotic Mandimycin overpowers drug-resistant fungal infections

In immunocompromised individuals the risk of a fungal infection, though statistically minor, needs to be taken seriously. If the pathogen is not recognised in...

In immunocompromised individuals the risk of a fungal infection, though statisti...

bennevisplace

•2 days ago

3 Replies

Flugel1 departs at 85years - departure of a jazz legend

Here to report that Stephen Goldberg, playwright and jazz musician ('a Burlington area jazz giant'), flugel1, passed away July 2024 at age 85.His last post:...

Here to report that Stephen Goldberg, playwright and jazz musician ('a Burlingto...

Shedman

•3 days ago

4 Replies

Cll diagnosis

I have recently been told i have cll. I am at the watch and wait stage right now. I was diagnosed 5 weeks ago. 2 weeks ago i came down with a chest infection...

I have recently been told i have cll. I am at the watch and wait stage right now...

R0llerblades

•3 days ago

4 Replies

Any thoughts on these

Hi All Just about to finish Cycle 9 of O & V, any thoughts on these Jules

Hi All Just about to finish Cycle 9 of O & V, any thoughts on these Jules...

TheFlyer

•5 days ago

3 Replies

WBCs and common colds. What to expect?

Hello, first time posting. I’m a mid 50’s female diagnosed in 2022. I’m on W&W for now and feeling physically good. I’m wondering if anyone else has...

Hello, first time posting. I’m a mid 50’s female diagnosed in 2022. I’m on W&W f...

Insanity4578

•5 days ago

14 Replies

The History of Chronic Lymphocytic Leukemia with Dr. Jeff Sharman: Webinar- HealthTree

The HealthTree Foundation will be hosting a webinar centered on the History of Chronic Lymphocytic Leukemia with Dr. Jeff Sharman on Tuesday, March 25th at 5...

The HealthTree Foundation will be hosting a webinar centered on the History of C...

HungryB

•5 days ago

2 Replies

Anemia?

Hi beautiful people! Me again, with another question about this mysterious and confoundedly unpredictable disease. Last time I posted, the hematologist had me...

Hi beautiful people! Me again, with another question about this mysterious and c...

Guffy

•6 days ago

8 Replies

Skin cells make antibodies, too

I was stunned to learn that cells other than B-cells make antibodies. But Mother Nature did not specialize. IgG and IgA with Potential Microbial-Binding...

I was stunned to learn that cells other than B-cells make antibodies. But Mother...

SeymourB

•6 days ago

7 Replies

Living a normal life expectancy with a CLL compromised immune system - the importance of Post-Exposure Prophylaxis (PEP)

With the success of targeted therapies for treating CLL, repairing our compromised immune systems is now considered one of the major remaining challenges in...

With the success of targeted therapies for treating CLL, repairing our compromis...

AussieNeil

Administrator•7 days ago

6 Replies

New Greek consensus statement for the treatment of chronic lymphocytic leukemia

There is now a new consensus statement for the treatment of CLL in Greece. The statement was published on 1 March 2025 and provides treatment recommendations...

There is now a new consensus statement for the treatment of CLL in Greece. The ...

CLLerinOz

Administrator•7 days ago

1 Reply

New diagnosis, a bit of a surprise but makes sense with how I’ve been feeling. Getting my head around the watch and wait

New diagnosis

ThaiGreen

•7 days ago

7 Replies

Venclexta or CLL

I'm 69 diagnosed 8 months ago. 400mg venclexta. Gratefully, the many swollen lymph nodes disappeared weeks after starting infusions. I did seven infusions...

I'm 69 diagnosed 8 months ago. 400mg venclexta. Gratefully, the many swollen ly...

dhamra

•7 days ago

8 Replies

Continued Journey

A long time between posts. I’m going to brief when it should be long. After reporting on good bone marrow and blood results from 100-180 days out, GI issues...

A long time between posts. I’m going to brief when it should be long. After repo...

FiArt12X

•7 days ago

35 Replies

Brukinsa side effects

Hey y’all! Happy Tuesday! I’ve been on Brukinsa since July 24. Was having upper abdomen pain and feeling full after eating small amounts. Had a CT scan….. no...

Hey y’all! Happy Tuesday! I’ve been on Brukinsa since July 24. Was having uppe...

Nana1961

•7 days ago

2 Replies

Ibrutinib-Venetoclax is the recommended first-line therapy for fit Arab patients with CLL in the Gulf region

A group of CLL experts from across the Gulf region and an international expert from Germany have collaborated to agree upon a statement for the optimal...

A group of CLL experts from across the Gulf region and an international expert f...

CLLerinOz

Administrator•8 days ago

10 Replies

rollercoaster results

I’m being treated with Ibrutinib and ventoclax. Since ramping up I’ve had two episodes of neutropenia which I am responding with pausing treatment and...

I’m being treated with Ibrutinib and ventoclax. Since ramping up I’ve had two ep...

Ukuleleboy1

•8 days ago

5 Replies

Muscle and Joint Pain

Hi, While on Venetoclax I developed frozen shoulder and other muscle and joint pain. Additionally I have plaque build up in my coronary and carotid...

Hi, While on Venetoclax I developed frozen shoulder and other muscle and join...

Golflover1954

•8 days ago

1 Reply

CLL plus Diabetes

I have both CLL (contained by Acalabrutinib with it's side effects) and Diabetes (controlled with slow release insulin, metformin and sitaglyptin plus a...

I have both CLL (contained by Acalabrutinib with it's side effects) and Diabetes...

AVGH

•9 days ago

3 Replies

Can eating beets every day boost red blood cells?

A friend who has a blood disorder which causes him to have too high an amount of red blood cells was told by his doctor to stop eating beets. He loves beets...

A friend who has a blood disorder which causes him to have too high an amount of...

montieth

•9 days ago

12 Replies

NCCN adds AV and AVO as Preferred Regimens

In February of this year (2025), the NCCN added AV (Acalabrutinib/Calquence plus Venetoclax) and AVO (AV plus Obinutuzumab/Gazva) for first line treatment to...

In February of this year (2025), the NCCN added AV (Acalabrutinib/Calquence plus...

SeymourB

•9 days ago

31 Replies

Financial Assistance for Patients with Chronic Lymphocytic Leukemia (CLL) & Small Lymphocytic Lymphoma (SLL)

Financial Assistance for Patients with Chronic Lymphocytic Leukemia (CLL) & Small Lymphocytic Lymphoma (SLL)...

Financial Assistance for Patients with Chronic Lymphocytic Leukemia (CLL) & Sma...

lankisterguy

Volunteer•9 days ago

4 Replies

Some CT Scans Deliver Too Much Radiation, Researchers Say

Some CT Scans Deliver Too Much Radiation, Researchers Say March 14, 2025 by Joanne Kenan...

Some CT Scans Deliver Too Much Radiation, Researchers Say March 14, 2025 by Joa...

lankisterguy

Volunteer•10 days ago

19 Replies

B cell lymphoma lumps

I was just reviewing a post about a P cell lymphoma that someone had in there neck or upper lower jaw. I've had about six or seven lumps under the skin on my...

I was just reviewing a post about a P cell lymphoma that someone had in there n...

skipro

•10 days ago

11 Replies

Pulsed Therapy (Modified Watch and Wait) a Clinical Update

Hello HealthUnlocked Community, I've written about the idea of pulsed therapy -- aka, adaptive therapy, although I find more acceptance (though not by much)...

Hello HealthUnlocked Community, I've written about the idea of pulsed therapy -...

PulsedTherapy

•10 days ago

58 Replies

Write a post or ask a question

Posts - CLL Support | HealthUnlocked

CLL Support

17 years in! Vclax vs platelets

Car-T begins tomorrow!

Is it time for treatment?

starting gazyva and venclexta

Starting V+O immunotherapy

Travel Insurance with CLL - any recommendations?

Potent new antibiotic Mandimycin overpowers drug-resistant fungal infections

Flugel1 departs at 85years - departure of a jazz legend

Cll diagnosis

Any thoughts on these

WBCs and common colds. What to expect?

The History of Chronic Lymphocytic Leukemia with Dr. Jeff Sharman: Webinar- HealthTree

Anemia?

Skin cells make antibodies, too

Living a normal life expectancy with a CLL compromised immune system - the importance of Post-Exposure Prophylaxis (PEP)

New Greek consensus statement for the treatment of chronic lymphocytic leukemia

New diagnosis, a bit of a surprise but makes sense with how I’ve been feeling. Getting my head around the watch and wait

Venclexta or CLL

Continued Journey

Brukinsa side effects

Ibrutinib-Venetoclax is the recommended first-line therapy for fit Arab patients with CLL in the Gulf region

rollercoaster results

Muscle and Joint Pain

CLL plus Diabetes

Can eating beets every day boost red blood cells?

NCCN adds AV and AVO as Preferred Regimens

Financial Assistance for Patients with Chronic Lymphocytic Leukemia (CLL) & Small Lymphocytic Lymphoma (SLL)

Some CT Scans Deliver Too Much Radiation, Researchers Say

B cell lymphoma lumps

Pulsed Therapy (Modified Watch and Wait) a Clinical Update

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