Bone Marrow Transplant telephone conference call TODAY September 19, 2018
lankisterguy8 hours ago
September Lunch & Learn With The Link: Blood Cancers and the Role of Bone Marrow Transplantation
This free tele...
Fcr and flu jab
dandelup11 hours ago
Should I have a flu jab while on fcr ?
bone marrow biopsy
wonderfull12 hours ago
I.m new here 73 men on the 9th year with cll . and started to see some limp nodes in my body doctor wants me to have bone marrow biopsy ...
My platlet count is 149000 doctor said may be u have symptoms of dangue I m suffering from high fever 101-102 and dry cough pls let me know
Rehantausif18 hours ago
NEW Central New Jersey CLL Support Group
MikeHoffa day ago
Be the first to reply2 Likes
UPDATE: Mom's CLL transformed to PLL
paula_UAEa day ago
So the "No worries", "She can go 10 years without treatment" are in the past just 10 months after the CLL diagnosis. We are doing the...
14 Replies1 Like
Stress Exacerbates CLL And Speeds Up Its Progression
DirkTengga day ago
"...Patients with chronic lymphocytic leukemia (CLL) who feel more stress also have more cancer cells in their...
14 Replies6 Likes
Any positive transplant stories 60+?
Eagle5327a day ago
I've got a CLL buddy who has just been diagnosed with myelodysplastic syndrome, which is basically bone marrow failure. I'm not clear if th...
4 Replies2 Likes
Running to support CLLSA
pkguk2a day ago
Tony Childs will be running the Brighton 10k to raise funds in support of CLLSA. His friend Paul Hatfield's wife has been diagnosed with CLL...
My hubbys update on cll
Nikkij812 days ago
Hello everyone have not been on for a bit my husband is w&w has been for 7 yrs still went to heamotology recently and his white cell count h...
Moffitt - Is anyone being treated at Moffitt in Tampa, FL?
czbm2 days ago
I was diagnosed with SLL in May. I recently moved to Florida. Is anyone being followed at Moffitt?
Zappymom122 days ago
My husband’s side effects are worse late afternoon early evening. I stay awake until I am sure he is more settled. He has horrible chills. H...
gesch83ag2 days ago
Howdy. Pretty cool site with a lot of info, suggestions.
I’m 63, finished FCR in November 2015, just started ibrutinib week ago last Saturd...
4 Replies8 Likes
Kansas City Area Support Group
BlueGillfisherman2 days ago
Good morning All:
I have been working with Patricia Koffman, Executive Director
CLL Society to try to start a CLL Support group in Kansas Ci...
3 Replies2 Likes
Post 4 cycles FCR side effects
Mathild2 days ago
FCR vasculitis & fungal pneumonia after 4 cycle
7 Replies1 Like
Lab Results after 3 mos.
honey19692 days ago
Good Morning. I am on every 3 mos of blood work. Just got the results back. I just need to know that blood work looks okay? After reading he...
Terrible pain in my joints
Jms193 days ago
I have been on Ibrutinub for 13 months and have terrible cramping in my hips and back. Anyone else experience this sort of thing on this dr...
Muting a member in Private Messages/Chat
AussieNeil3 days ago
HealthUnlocked have just released a new feature - the ability to mute a member from contacting you directly via private message, which they ...
11 Replies9 Likes
Bloodwise Birmingham Impact Day 15 Sep 2018 - not CLL specific
Myrddin3 days ago
Recording of Bloodwise Birmingham Impact Day - starts about 20min-1:41 resumes about 2:36
1 Reply1 Like
Hello, new to the forum, about to go to MD Anderson
LeeAnnLA3 days ago
Hello, I'm so glad I found this site! I was diagnosed last year with CLL with a 28,000 white blood count, watch and wait. This year it has...
17 Replies7 Likes
11qhope3 days ago
Anybody taking ibrutinib for over 3 years?
It seems that resistance if develop (still unclear how many people do develop resistance) may star...
dandelup3 days ago
It’s now two weeks since my first session of chemo. On day four I felt exhausted and really nauseous so slept on and off most of the day,day...
I think this should be my last post
saintjohn3 days agoPOPULAR
I have been looking back over my postings on here and have tried to compare what my journey has been like in comparison to othe...
paula_UAE4 days agoPOPULAR
I started doing research on treatments and how I can handle the cost, since our insurance does not cover anything.
We are doing t...
Victoria6664 days ago
Hi - I have completed 4 rounds of BR and the 5th one has been postponed due to low neutrophils. The neutrophils are still low, after 9 weeks...
Not to be morbid but....
gemit20004 days ago
just found out that I am comorbid. Few weeks ago I took a Coronary Artery Calcium Score test & got some morbid (and shocking) results. Now t...
Modified venetoclax ramp up
jaye05 days ago
Has anyone been put on a modified (rapid ramp up) venetoclax plan? Edit: My Dad has completed the first full week on 20mg but will now cut t...
Town Meeting | Understanding CLL: What You Should Know About Treatment, Genetic Testing and Research from Patient Power (USA)
lankisterguy5 days ago
Join Us for Our Latest CLL Event Next Saturday
Town Meeting | Understanding CLL: What You Should Kn...
1 Reply2 Likes
Ibrutinib linked to invasive fungal infections
In the past Idelalisib (Zydelig) was found to increase the risk of Pneumocystis in previously untreated patients. Now Ibrutinib has also be...
What are CBC/Dif Most Important Numbers?
Circlesaba5 days ago
I want to graph my weekly test results now that I'm in a trial. My knowledge has been growing over my five years of watch and wait, and I do...
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