nhl b cell
mbh4563 hours ago
i am a 59 yr old woman married living with b cell nhl. on watch and wait. i'm new to group. not sure what to share. i am always wondering wh...
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Starting Allopurinol with Ibrutinib?
CLLdaughters15 hours ago
My Father was just diagnosed with stage 2 unmutated CLL. He has enlarged nodes on his neck, his spleen is enlarged, and his WBC has g...
4 Replies2 Likes
Janmae17 hours ago
How to pay for ibrutinib my doctor said big drug companies help, Just wondering if anyone had exsperience with this also, how do they determ...
Flu jab and ibrutinib
cartwheelsa day ago
Off to get my flu jab this morning anyone else on ibrutinib had the jab. Usually get one every year but this is the 1st...
6 Replies1 Like
Completed 12 months on w&w
vinneta day ago
Dear fellow CLLers
I am 66 M,CLL stage0 ,completed 12months of wnw.I asked onco if he can guess if I can remain on wnw indefinitely. He said...
Hope for others
Pat1954a day ago
Having just joined CLLSA, my husband has CLL. I notice that most people have only been diagnosed in the last 4 to 5 years. My husband was d...
9 Replies48 Likes
Diagnosed at 33
wantingtolearn0869a day ago
My brother was diagnosed this past week with CLL. He is 33 years old. He doesn't know what stage it is yet, but initial tests sh...
6 Replies2 Likes
Clinical Trial Navigator to Navigate the Clinical Trial Site? .... Sounds Helpful.
gemit20002 days ago
On today's Patient Power mailing comes information that seems to be quite helpful for anyone, who like me, has ventured online to search out...
2 Replies4 Likes
Very nervous and anxious.
Zheny2 days agoPOPULAR
Hi everyone which is reading my post.
I just a week ago was diagnosed with CLL but didn't see my hematologist yet after the initial blood tes...
22 Replies1 Like
In the news today article linking sugar and cancer cell growth
Glees2 days ago
Just noticed this article in the news today linking sugar to cancer cell growth. The link to the original stud...
Port installed-Chemo Round1 starts Monday
Marie-542 days ago
Opted for the Portacath to receive my chemo (in Canada done via infusion) of FCR. The Port installation was done yesterday morning, so the ...
3 Replies2 Likes
CLL story in the Northern Echo UK
Myrddin3 days ago
9 Replies9 Likes
Results back from the FISH
yoniboi3 days ago
Hello there everyone,
Got the results back from the test today and I'm chromosome 12 deleted (good prognosis she told me) and while my spleen...
7 Replies9 Likes
Chloe20573 days ago
This may seem an unusual question but does anyone else suffer from a tongue that is coated in what appears to be “putty”. Despite stringent ...
9 Replies1 Like
FR Treatment 6 of 6
Lorna473 days ago
Last week of treatment! I made it through all 6 rounds after Friday. I sometimes feel like I struggle to stay focused with my thoughts. ...
6 Replies7 Likes
AIHA and ITP
J-girl3 days ago
I just started treatment with Rituxan and Bendeka for my CLL. After the first treatment I had to have 4 blood transfusions and started on hi...
greygirl3 days ago
has anyone ever been treated with just Bendamustine alone without a monoclonal antibody?
The Vaccine is Dead. Long Live the Vaccine!
gemit20003 days ago
Chris likely mentioned GSK's new Shingrix vaccine that's been approved in Canada
Also the FDA seems close:...
2 Replies6 Likes
Considering obstructive sleep apnoea and enlarged tonsils as a cause of fatigue
AdrianW3 days ago
So, today I saw a respiratory doctor at the request of my CLL team. Due to my terrible snoring (sorry wifey!) and what he states are very en...
5 Replies1 Like
First day on Clinical Trial Ibrutinib / Venetoclax
BCTexas3 days agoPOPULAR
I started my first round today on IB. It's been 2 years since I was diagnosed with CLL. I have been on W&W up until now. At first I refused ...
29 Replies18 Likes
Inbrutinib in Canada
max644 days agoPOPULAR
Is this drug covered for seniors as a first line treatment in the province of Ontario?
Thank you all
zaax4 days ago
Thank you for this help here, I was getting very stressed with all sorts of things whilst waiting for my next Consultant appointment, which ...
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Suffering on -going Depression
Chloe20574 days ago
I have been suffering on-going serious Depression for many years now. Sadly in the UK the UK Mental Health Support Services are in many area...
3 Replies4 Likes
Mandy564 days ago
I was diagnosed in 2010 with CLL. no symptoms, WBC around 30, platelets fine, as are red blood cells etc. I had a kidney infection in summer...
7 Replies1 Like
CLL Society and Cleveland Clinic Free Patient and Caregiver Educational Forum on Nov. 11
bkoffman4 days ago
The CLL Society, LLS and the Cleveland Clinic are hosting a Patient and Caregiver Forum on Nov. 11. It is going to be a super educational ex...
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CLL and Vitamin C
Elle_V4 days agoPOPULAR
I was thinking of getting some Vitamin C IV and read some posts from a few years ago that said vitamin C might overstimulate lymphocyte prod...
39 Replies3 Likes
hjewest4 days ago
Hi, have been on tramadol for Osteroarthiritis for 9 months and on 8 x 50 gr aswell as paracetamol 6x 500 mg and to be honest took 12 x ,50 ...
Too much stress
Largsvegas4 days ago
Hi I was diagnosed 18 months ago,and on w and w but lately have developed very high levels of stress.I have read an article that cll can inv...
13 Replies3 Likes
BlueGillfisherman5 days ago
Good Afternoon All;
Was diagnosed with CLL about two years ago and in the W/W stage. My doc says no treatment until late next year or ear...
Kidneys,Ciprofloxacin and Cankers (Mouth Ulcers)
Juliette025 days ago
I started with a dull ache like pain on my RHS above my waist, below my shoulder blades early hours of Friday morning - Didn't look too good...
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