Headaches while taking Ibrutinib
Mike-723 hours ago
I started treatment with Ibrutinib about Two months ago. I am taking the pills after lunch. I started having occasional mild headaches usual...
1 Reply1 Like
Navigating the Financial Maze for Cancer Survivorship Webinar by Leukemia & Lymphoma Society (LLS) USA
lankisterguy5 hours ago
On behalf of The Leukemia & Lymphoma Society (LLS), we would like to announce a virtual lecture, Navigating the Financial Maze for Cancer...
1 Reply3 Likes
CLL WITH NO TREATMENT
Akansha0910 hours ago
My mom has been diagnosed with slight CLL , she's also been a heart and diabetic patient from past many years now. When the reports came in ...
CLL and CAD
somarybura day ago
I need assistance on how to manage my CLL and my CAD. It seems like my CAD is aggravating my CLL and really don't have a lot of information ...
aremmicka day ago
My last visit to Mayo Clinic in Rochester MN my hemoglobin is now at 11.2. Small drop from previous visit, but doc thinks I should start Ib...
14 Replies1 Like
Feeling nasty after my third and final day of lymphs-depleting chemo (FC) before my CAR-T cells on March 22
bkoffman2 days agoPOPULAR
I wrote most of my last blog post cllsociety.org/car-t-blog/ on why I chose to come to Seattle for my CAR-T therapy before today which wa...
23 Replies19 Likes
Fant19242 days ago
“Logan says that a more targeted Bruton's tyrosine kinase (BTK) inhibitor than ibrutinib may have some advantages.”
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Intestinal colics and diarrhea
Deta19612 days ago
Hello.. Does anyone have intestinal colics and diarrhea taking ibrutinib? I'm on ibrutinib for 3 months, and now the colics are horrible! M...
7 Replies2 Likes
A global snapshot of leukemia incidence
AussieNeil3 days ago
FROM THE LANCET HAEMATOLOGY:
"Chronic lymphocytic leukemia incidence was highest for men in Canada (4.5 per 100,000), Ireland and Lithuania (...
7 Replies14 Likes
How juicing could be bad for your health
Many of us have shared how juicing has become an important part of our diet, with a few voicing concerns about whether this unnatural way of...
18 Replies13 Likes
Causes of CLL?
Nfeeney3 days ago
Does anyone know a site where they research the causes of CLL? I am looking into low dose radiation that would start it out and it shows up...
12 Replies3 Likes
Change from Imbruvica??
chuckh3 days ago
I have been dealing with CLL since 2003 and had various chemo treatments, last being Treanda/Rituxan combo that knocked it down for a bit Ro...
12 Replies2 Likes
CAR-T update and more
bkoffman3 days agoPOPULAR
Been busy and tired, trying to get ahead of what I need to do while spending many hours at the hospital at the Seattle Cancer Care Allian...
45 Replies43 Likes
Marlene93 days ago
Can CLL make my vision blurry?
16 Replies1 Like
Blood viscosity and wbc count
Geta3 days ago
Hi fellow CLLsuffurers.
Reading your posts daily but newer did anything my self .
Now after 3 days in hospital want to shere my story.
6 Replies4 Likes
need help on qol during w &w
vinnet4 days ago
I am male 66 dx 18months stage0, on w&w.
Yesterday was quarterly review and I am advised to come after 3 months. Doctor did not address my po...
Question about my CLL.
Mamawof254 days ago
I was recently diagnosed with CLL. Not even sure what stage because biopsies are not back yet iron is low so I have to have infusions this W...
4 Replies1 Like
Empathy vs sympathy
Judyanne4 days ago
6 Replies10 Likes
Cathbrg4 days agoPOPULAR
I’ve spent over a year worrying that I may have CLL because my GP mentioned it to me when I had blood tests done which revealed raised lymph...
47 Replies1 Like
Lower back pain with CLL.
Kimsaylor4 days ago
My mother is suffering with lower back pain. Is that common with
Are these numbers reason to see a hematologist
wizzard1664 days ago
I may be overreacting in joining this group, and for asking this question, but a little history may help in understanding my paranoia. My F...
migirlusa4 days ago
I need your opinions please. I was diagnosed with CLL in September 2016. I was told to take care of myself because this could be...
83 year old dad diagnosed with stage 4 CLL/SLL. Doc wants to start Rituxan (once a week for 4weeks) then Ibrutinub. Does this seem right????
Jenette014 days ago
I have searched over and over, and I can’t find anywhere that Rituxan is first line therapy for stage 4 CLL/SLL. So confused!
11 Replies1 Like
Dizzy / brain freeze
cartwheels4 days ago
Been on ibrutinib for 11 months and already in remission but from time to time i get like a brain freeze sort of dizzy spells few seconds on...
Aylinn5 days ago
Hi everyone my spleen is very painfull what can i do?
Food vs supplements
CLLmoxie5 days agoPOPULAR
My oncologist agrees with Green tea and turmeric being beneficial for CLL but she prefers using turmeric powder in food and drinking green t...
21 Replies3 Likes
Husband just officially diagnosed with CLL stage 1 ( CD23-, FISH test at three month follow up)
hsouter5 days ago
It is official. My husband has Stage 1 CLL. Since I was concerned it might be Mantle Cell Lymphoma, I am grateful for small mercies.
9 Replies11 Likes
Acalabrutinib and side effects
Ramses5 days ago
I have been on Acalabrutinib for over 2 1/2 years, and my blood numbers are stable within normal range. I now have to go for blood draw and...
7 Replies1 Like
Side Effects from Pneumonia Shot
SAMSON446 days ago
I had a streptococcus pneumonia shot a few days ago - location of shot painful & now I have swollen & painful lymph nodes on the underside o...
6 Replies1 Like
Thoughts and prayer needed
Sallyurnotal6 days agoPOPULAR
It has been sometime since I last posted. I started on imbruvica 140mg three daily. I started December 22,17. This was after two biopsy on ...
46 Replies12 Likes
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