Posts - CLL Support | HealthUnlocked

CLL Support

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All posts for November 2018

Ibrutinib and liver enzymes

I’ve been on Ibrutinib, 840 mg a day, for a couple months. I’ve had a complete going away of lesion in my brain from non Hodgkin lymphoma. Now after blood...

I’ve been on Ibrutinib, 840 mg a day, for a couple months. I’ve had a complete g...

Carmelofan

•6 years ago

15 Replies

Question about lymph nodes

Hi all! I have these lymph nodes on each side of my neck that wax and wane daily. They don’t ever hurt but they do ache. About the size of a skittle. I’ve had...

Hi all! I have these lymph nodes on each side of my neck that wax and wane daily...

Proudmom1983

•6 years ago

34 Replies

New Member

I have been on watch and wait since 2012. CLL due to Agent Orange in Vietnam. Being seen by the VA every year, I keep telling my Oncologist that at times I...

I have been on watch and wait since 2012. CLL due to Agent Orange in Vietnam. B...

Desertrat8

•6 years ago

12 Replies

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CLL and low WBC

I am a CLL care support spouse for my wife who has CLL since 2013. My wife’s WBC has always been low since diagnosed: 4 to currently 2.7 Every support group...

I am a CLL care support spouse for my wife who has CLL since 2013. My wife’s WBC...

GL64

•6 years ago

8 Replies

Chemo cycles

I would just like to let everyone know my experience regarding completion of chemo cycles. I am on the Flair trial having FCR and have now had three cycles...

I would just like to let everyone know my experience regarding completion of che...

dandelup

•6 years ago

9 Replies

Why do people get cancer?

How and why we get cancer as explained to 8 year old Sascha by Darren Saunders, Associate professor, UNSW and secretary of Science and Technology Australia....

How and why we get cancer as explained to 8 year old Sascha by Darren Saunders, ...

AussieNeil

Administrator•6 years ago

8 Replies

Chronic Sinus Infection cause or contributor to CLL?

Hello All! Thanks to this wonderful community, my conventional and holistic medical worlds are working together! (I'm CLL W&W but now longer "waiting" since...

Hello All! Thanks to this wonderful community, my conventional and holistic medi...

jawdfs

•6 years ago

41 Replies

Igvh test

Hi all, it's been a while since I've posted any news regarding my husband as everything has been going well until recently. He just got his results back from...

Hi all, it's been a while since I've posted any news regarding my husband as eve...

school45

•6 years ago

6 Replies

FYI/Trial data to be discussed this weekend

In CLL, there are multiple trials of interest being presented with the potential to have an impact on practice, including the phase III Alliance North American...

In CLL, there are multiple trials of interest being presented with the potential...

Newchallnge

•6 years ago

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HA (hyaluronic acid) injection - anyone?

Not exactly CLL related but have been offered an HA injection to treat severe ankle pain associated with adjacent joint to my ankle fusion. I am on Ibrutinib...

Not exactly CLL related but have been offered an HA injection to treat severe an...

Redlion

•6 years ago

4 Replies

Difficulty Breathing

I had to stop Imbruvica about 3 months ago because of the side effect. My blood levels are still good (just slightly elevated) but developed serious difficulty...

I had to stop Imbruvica about 3 months ago because of the side effect. My blood ...

pragnar

•6 years ago

11 Replies

ASH 2018 and More

Hi, This is the most exciting, hectic and rewarding time of the year for the CLL Society, as we are soon headed to ASH 2018 in San Diego to bring back the...

Hi, This is the most exciting, hectic and rewarding time of the year for the CLL...

bkoffman

CLL CURE Hero•6 years ago

18 Replies

ASH 2018: A Guide to the Latest for Blood-Borne Cancers and More

The American Society of Hematology (ASH) annual meeting is being held December 1-4, 2018 in San Diego, CA. There is a guide at:...

The American Society of Hematology (ASH) annual meeting is being held December 1...

wmay13241

•6 years ago

8 Replies

Has anyone else experienced their WBC going up after starting the new capsules?

I was doing great on the old capsules then was switched to the new capsules of Imbruvica, and my count went north after 2 months. Something is wrong they...

I was doing great on the old capsules then was switched to the new capsules of I...

156MA019

•6 years ago

14 Replies

Ibrutinib

What is the best time to take pill. Morning night or?

Porter01

•6 years ago

18 Replies

Waldenstrom MaCROGLOBULINEMIA

Hi, Dear Folks...I have WM....rare blood cancer...Waldenstrom Macroglobulinemia...It's been difficult to find folks with this type of cancer...I am also on...

Hi, Dear Folks...I have WM....rare blood cancer...Waldenstrom Macroglobulinemia....

music1717

•6 years ago

8 Replies

Parathyroidism

Has anyone been diagnosed with parathyroidism? I finished treatment for cll in June but by Sept had this problem Canadian doctors do nothing. US doctors...

Has anyone been diagnosed with parathyroidism? I finished treatment for cll in J...

onu1tadi2

•6 years ago

13 Replies

HTLV1

In 1998 I was diagnosed with MS however it turned out to.be HTLV1. There seems to finally be an awakening to this virus that causes all kinds of nasty things....

In 1998 I was diagnosed with MS however it turned out to.be HTLV1. There seems t...

Lindy-loo1949

•6 years ago

7 Replies

Watch & Wait -- Online Webinar Nov 28, 2018 - Patient Power - Dr. Philip Thompson & Dr. Jackie Broadway-Duren

Register now- https://www.patientpower.info/nov28#register Many CLL patients wonder: “What is watch and wait? Why am I not being treated immediately after my...

lankisterguy

Volunteer•6 years ago

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Muscle Twitching (not spasms) on Imbruvica

I've been on Imbruvica for 22 days. All was going well until I developed muscle twitches (fasciculations not cramps). They have kept me up the past two nights....

I've been on Imbruvica for 22 days. All was going well until I developed muscle ...

profrich

•6 years ago

18 Replies

CLL and Teeth Extractions

Hi I am Deedee, new here. I have had CLL since 2013. I am a 59 year old woman. My WBC has always risen and about 8 months ago when it reached 80,000 my Dr,...

Hi I am Deedee, new here. I have had CLL since 2013. I am a 59 year old woman. ...

deedeegilbdog

•6 years ago

31 Replies

CLL and CFS

I was diagnosed with CLL just over a year ago about a month after another episode of CFS (Chronic Fatigue Syndrome) started. I went on holiday to France and...

I was diagnosed with CLL just over a year ago about a month after another episod...

shornoff

•6 years ago

15 Replies

Yogurt and CLL

When purchasing yogurt, what do you look for on the label to promote a healthy gut? Sorry to sound so naive.

When purchasing yogurt, what do you look for on the label to promote a healthy g...

bayside64

•6 years ago

9 Replies

Untreated CLL with 17 p deletion

Hi, l need some advise. I was diagnosed 6 years ago with CLL. I have been in W&W until recently my hemoglobin decreased to 10.2. I also have some enlarged...

Hi, l need some advise. I was diagnosed 6 years ago with CLL. I have been in W&W...

Anita1

•6 years ago

35 Replies

what is the main dental management for Neutropenia patient ?

dental management Neutropenia patient

jumanah

•6 years ago

7 Replies

upset stomach

I have found a good treatment for CLL upset and general fullness. That is papaya enzyme take 4 tabs 4 x day.

I have found a good treatment for CLL upset and general fullness. That is papa...

hotrock

•6 years ago

1 Reply

Data interpretion question?

Can anyone help me interpret this dahe from my 2015 diagnosis? My oncologist won't talk to me about it. I have to attach the bottom of the page in a separate...

Can anyone help me interpret this dahe from my 2015 diagnosis? My oncologist won...

CLL23

•6 years ago

6 Replies

Platelets and bruises

I woke up on Friday with multiple bruises on my body. One on my breast, my right thigh, my left arm and on my abdomen on both sides. I have a history of iron...

I woke up on Friday with multiple bruises on my body. One on my breast, my right...

Bay3

•6 years ago

10 Replies

White blood cell count surge and prednisone

Hi everyone, I had my wbc go from 45 to 85 and my doctor was going to have me do another blood count in 4 weeks to see if the head cold I’m suffering from was...

Hi everyone, I had my wbc go from 45 to 85 and my doctor was going to have me d...

aquafinn

•6 years ago

17 Replies

CLLSA London Conference Nov 2018

The Fourth of this years CLLSA conferences was held in the ETC venue in Pimlico for the second time in 3 years. 85 members enjoyed presentations by two expert...

The Fourth of this years CLLSA conferences was held in the ETC venue in Pimlico ...

Myrddin

•6 years ago

4 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for November 2018

Ibrutinib and liver enzymes

Question about lymph nodes

New Member

CLL and low WBC

Chemo cycles

Why do people get cancer?

Chronic Sinus Infection cause or contributor to CLL?

Igvh test

FYI/Trial data to be discussed this weekend

HA (hyaluronic acid) injection - anyone?

Difficulty Breathing

ASH 2018 and More

ASH 2018: A Guide to the Latest for Blood-Borne Cancers and More

Has anyone else experienced their WBC going up after starting the new capsules?

Ibrutinib

Waldenstrom MaCROGLOBULINEMIA

Parathyroidism

HTLV1

Watch & Wait -- Online Webinar Nov 28, 2018 - Patient Power - Dr. Philip Thompson & Dr. Jackie Broadway-Duren

Muscle Twitching (not spasms) on Imbruvica

CLL and Teeth Extractions

CLL and CFS

Yogurt and CLL

Untreated CLL with 17 p deletion

what is the main dental management for Neutropenia patient ?

upset stomach

Data interpretion question?

Platelets and bruises

White blood cell count surge and prednisone

CLLSA London Conference Nov 2018

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