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CLL Support

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All posts for March 2017

What are some of the holistic things we can do to increase our neutrophil count?

What are some of the holistic things you can do to get your neutrophil count to go up? I just got back five different tests and my white blood cells and ALC...

What are some of the holistic things you can do to get your neutrophil count to ...

jettyguy

•8 years ago

8 Replies

Patient Power's Webinar Replay

Hi all, Andrew Schorr, a CLL patient and founder of Patient Power hosted a live webinar on Tuesday about blood test results. If you weren't able to watch it...

Hi all, Andrew Schorr, a CLL patient and founder of Patient Power hosted a live...

tclementi

•8 years ago

2 Replies

Newbie

Hi, new to the community. Was diagnosed with CLL, Oct. 2016, w&w. Wanting to learn from others.

Hi, new to the community. Was diagnosed with CLL, Oct. 2016, w&w. Wanting to lea...

Aruss

•8 years ago

14 Replies

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CLL patient in CT

74 y.o. w/f patient who In 2013 officially dx'd , wbc's elevated, oncologist said w/w for a while as asymptomatic, then in 2014 count .100,000 he said I had to...

74 y.o. w/f patient who In 2013 officially dx'd , wbc's elevated, oncologist sai...

MsChief

•8 years ago

15 Replies

Celebrating two years online with our 7th CLL Tribune Newsletter

I need to start by saying thank you. This issue of The CLL Tribune (http://www.cllsociety.org/newsletter/) is our 7th quarterly newsletter. I am proud to say...

I need to start by saying thank you. This issue of The CLL Tribune (http://www.c...

bkoffman

CLL CURE Hero•8 years ago

7 Replies

Anyone young? --30 and under??

I'm 23, anyone remotely close to my age?

louise1994

•8 years ago

9 Replies

Surprising role of lungs in platelet production recently discovered

Platelets are not all produced in the marrow - at least in mice: http://newatlas.com/lungs-found-make-blood/48553/...

Platelets are not all produced in the marrow - at least in mice: http://newatlas...

SeymourB

•8 years ago

2 Replies

Google current information

When researching with Google it's best to steer away from all the old "scary" information and research current topics. To do this; (1) type your search word...

When researching with Google it's best to steer away from all the old "scary" in...

Richard_TX

•8 years ago

6 Replies

What are the side effects of Imbruvica?

My oncologist wants me on Imbruvica along with BR infusion. What side effects have you experienced with Imbruvica? Thanks for the replies.

My oncologist wants me on Imbruvica along with BR infusion. What side effects ha...

Rhetler

•8 years ago

8 Replies

Health Check: are microgreens better for you than regular greens?

'Microgreens, tiny versions of leafy vegetables and herbs, have been described as healthier than full sized greens. They’re also more expensive. So, do...

'Microgreens, tiny versions of leafy vegetables and herbs, have been described a...

AussieNeil

Administrator•8 years ago

1 Reply

Advocating for Oral Parity in the US

I've just posted a blog on the PatientPower web site about advocating for the passage of a bill that would require that cancer treatment administered orally...

I've just posted a blog on the PatientPower web site about advocating for the pa...

gardening-girl

•8 years ago

7 Replies

Tips on finding relevant information. (Remember to help others find your post in the future by selecting the relevant topic when posting)

Hi everyone, Time and time again there are queries, especially from new forum members, about a specific subject. Very often there are already excellent posts...

Hi everyone, Time and time again there are queries, especially from new forum m...

AussieNeil

Administrator•8 years ago

1 Reply

Dr. Matt Davids on the combination of TGR-102 and ibrutinib

Hi, This week, we are sharing a video interview with Dr. Matthew Davids from ASH 2016 where we discuss a clinical trial that combines two targeted therapies...

Hi, This week, we are sharing a video interview with Dr. Matthew Davids from ASH...

bkoffman

CLL CURE Hero•8 years ago

1 Reply

Positive news

Feeling very lucky and happy had my consultants appointment today and all my blood counts were down 😃 This has been the case for the last two years so feeling...

Feeling very lucky and happy had my consultants appointment today and all my blo...

Palace

•8 years ago

11 Replies

Does hives affect thyroid

hello I have been diagnosed with CLL 2 years ago,6 months ago I developed Urticaria can any one tell me if there is a connection between hives and thyroid...

hello I have been diagnosed with CLL 2 years ago,6 months ago I developed Urtic...

Treet

•8 years ago

5 Replies

Now Hodgkins...

4 long weeks, 2 hospitals, and about a dozen specialists it took to diagnose my very sick husband. They were all over the board with CLL, infection, no CLL, no...

4 long weeks, 2 hospitals, and about a dozen specialists it took to diagnose my ...

jules_c

•8 years ago

17 Replies

Imbruvica and Voriconazole

In early February, it was discovered that due to my husband's low immune system from his leukemia, he had contracted a fungal infection called aspergillus....

In early February, it was discovered that due to my husband's low immune system ...

Margobleu

•8 years ago

3 Replies

Does age have any effect?

Since my wife was Dx at a young age (42) dies it have any effect (good or bad) in her outlook? At stage 0 with no symptoms but p17?

Since my wife was Dx at a young age (42) dies it have any effect (good or bad) i...

dfeld

•8 years ago

7 Replies

Antibiotic resistance info

Dear all Thought this might be of interest too... https://theconversation.com/its-the-age-of-the-antibiotic-revolution-not-apocalypse-73476 Sheila URL...

Dear all Thought this might be of interest too... https://theconversation.com/i...

Elliot43

•8 years ago

6 Replies

IV Vitamin C Effective for Sepsis?

Clinical report from a doctor treating cases of sepsis using IV Vitamin C, thiamine and steroids had only 1 event of death out of 150 cases. Standard treatment...

Clinical report from a doctor treating cases of sepsis using IV Vitamin C, thiam...

JosephVidmar

•8 years ago

3 Replies

CLL in 2017: State of the Art Management from a Patient’s Perspective in Philadelphia April 20th, 6-8:30 PM

Hi, Dr. Anthony Mato and a strong team from U Penn will be holding a patient educational forum in Philadelphia on April 20 and I am honored to be one of the...

Hi, Dr. Anthony Mato and a strong team from U Penn will be holding a patient edu...

bkoffman

CLL CURE Hero•8 years ago

3 Replies

Any significance with IgVH testing?

I am wondering what the significance of the IgVH testing means? Is this an important test to have before the beginning of treatment? Im assuming it's not and...

I am wondering what the significance of the IgVH testing means? Is this an impor...

jenxgen

•8 years ago

22 Replies

Cancer by chance

http://www.telegraph.co.uk/news/2017/03/23/two-thirds-cancers-unavoidable-even-live-healthy-life-study/ Two thirds of cancers are unavoidable even if you live...

http://www.telegraph.co.uk/news/2017/03/23/two-thirds-cancers-unavoidable-even-l...

Richard_TX

•8 years ago

8 Replies

Specialist in London/Hertfordshire?

Hi everyone, I'm posting regarding my mum who was diagnosed with CLL a couple of months ago. She's seeing a doctor on the NHS but is considering going...

Hi everyone, I'm posting regarding my mum who was diagnosed with CLL a couple o...

hannah11

•8 years ago

7 Replies

Westchester, NY meetings?

Hello CLLers. Does anyone know of any meetings every being held in Westchester, NY area? If so, I would be interested in attending.

Hello CLLers. Does anyone know of any meetings every being held in Westchester, ...

Teddy405

•8 years ago

3 Replies

Worried about the numbers about to start FCR

Hello, After optimistically signing up to the FLAIR trial last week, we got the call yesterday to say Mum had been randomised to receive FCR which was a little...

Hello, After optimistically signing up to the FLAIR trial last week, we got the ...

Pinkvixon

•8 years ago

6 Replies

What is CLL ?

Explain CLL .please

Vijayshet

•8 years ago

2 Replies

Combination therapy for our CLL

Hi, This week, I am sharing a video of Dr. Jennifer Brown from Dana Farber Cancer Institute where she discusses the possible next steps in combination...

Hi, This week, I am sharing a video of Dr. Jennifer Brown from Dana Farber Cance...

bkoffman

CLL CURE Hero•8 years ago

18 Replies

Interesting- Food increases the oral bioavailability of ibrutinib - Up to 2x compared to taking after overnight fasting.

If one wants to keep the dose to a minimum - how long would one have to wait until they could eat breakfast? 1 hour? 2 hours? I take it at night a couple...

If one wants to keep the dose to a minimum - how long would one have to wait un...

Hoffy

•8 years ago

38 Replies

Question about Ibrutinib/Imbruvica and Fatigue

I’ve been taking ibrutinib for 13 months; started just 3 months after my diagnosis due to 17(p) deletion. No idea how long I’d had it, no symptoms, enlarged...

I’ve been taking ibrutinib for 13 months; started just 3 months after my diagnos...

turkey2

•8 years ago

12 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for March 2017

What are some of the holistic things we can do to increase our neutrophil count?

Patient Power's Webinar Replay

Newbie

CLL patient in CT

Celebrating two years online with our 7th CLL Tribune Newsletter

Anyone young? --30 and under??

Surprising role of lungs in platelet production recently discovered

Google current information

What are the side effects of Imbruvica?

Health Check: are microgreens better for you than regular greens?

Advocating for Oral Parity in the US

Tips on finding relevant information. (Remember to help others find your post in the future by selecting the relevant topic when posting)

Dr. Matt Davids on the combination of TGR-102 and ibrutinib

Positive news

Does hives affect thyroid

Now Hodgkins...

Imbruvica and Voriconazole

Does age have any effect?

Antibiotic resistance info

IV Vitamin C Effective for Sepsis?

CLL in 2017: State of the Art Management from a Patient’s Perspective in Philadelphia April 20th, 6-8:30 PM

Any significance with IgVH testing?

Cancer by chance

Specialist in London/Hertfordshire?

Westchester, NY meetings?

Worried about the numbers about to start FCR

What is CLL ?

Combination therapy for our CLL

Interesting- Food increases the oral bioavailability of ibrutinib - Up to 2x compared to taking after overnight fasting.

Question about Ibrutinib/Imbruvica and Fatigue

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