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CLL Support

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All posts for December 2014

My latest blog about how some postings/photos can be scary

My Latest blog. Let me know what you think and Happy New Year! http://www.patientpower.info/blog/patient-power/2014/12/30/how-facebook-scares-me/

My Latest blog. Let me know what you think and Happy New Year! http://www.patie...

andrewschorr

•9 years ago

1 Reply

Question - which came first the chicken or the egg ?

Disease progression - a recent post showed this topic. My question to the very valued, educated members - is it a sign of disease progression due to a person...

Disease progression - a recent post showed this topic. My question to the very v...

aussiejo

•9 years ago

17 Replies

Great expectations: our naive optimism about medical care

After reading this article by Tammy Hoffmann, A/Prof Clinical Epidemiology, Bond University; NHMRC Research Fellow at The University of Queensland and Chris...

After reading this article by Tammy Hoffmann, A/Prof Clinical Epidemiology, Bond...

AussieNeil

Administrator•9 years ago

2 Replies

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Updated clinical data may significantly impact treatment of CLL - Jeff Sharman

Here is yet another video interview with Dr Jeff Sharman about how information presented at ASH2014 is anticipated to impact CLL treatment. Here he discusses...

Here is yet another video interview with Dr Jeff Sharman about how information p...

AussieNeil

Administrator•9 years ago

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Holding Court: Clive James Writes about the end of life and CLL

Friends, A dark poem just posted on my blog- http://bkoffman.blogspot.com for the end of the year and the end of life from a fellow CLL patient. If you know...

Friends, A dark poem just posted on my blog- http://bkoffman.blogspot.com for ...

bkoffman

CLL CURE Hero•9 years ago

13 Replies

Eyenaemia: the selfie that could save lives

Some of us may be aware of a quick way to assess whether you are low on blood iron - check the level of pinkness inside your bottom eyelid. Some enterprising...

Some of us may be aware of a quick way to assess whether you are low on blood ir...

AussieNeil

Administrator•9 years ago

2 Replies

Night time Leg Cramps

Hope you are all enjoying a really great Christmas. Been meaning to write about night time leg cramps, an issue that I think affects many of us as SLL/CLL...

Hope you are all enjoying a really great Christmas. Been meaning to write about...

Ernest2

•9 years ago

20 Replies

FCR, FC, or F

Hi everyone: From Japan. I am stage A of CLL, p13 deleted. CD20 positive (not so strong expression). My situation is watch and wait. In Japan, we have...

Hi everyone: From Japan. I am stage A of CLL, p13 deleted. CD20 positive (not...

Miee

•9 years ago

20 Replies

CT scan series part 14 – So, you are about to be CT scanned

Learning about CT scanning has been a work in progress. Doctors are not particularly knowledgeable about CT technology and large institutions employ many...

Learning about CT scanning has been a work in progress. Doctors are not particul...

ThreeWs

•9 years ago

1 Reply

Life in a state of remission

Just been for my 6 month check-up post Chemo. I have completely normal blood counts other than low CD4 which is to be expected and its slowly coming up. Scan...

Just been for my 6 month check-up post Chemo. I have completely normal blood cou...

grizzlebear

•9 years ago

4 Replies

IBUTRINIB/Bleeding

just a quit not to ask if other people have become bleeders on ibutrinib? Every time I get a cut I bleed a lot! I also have got staph infection the two times I...

just a quit not to ask if other people have become bleeders on ibutrinib? Every ...

nancyjo

•9 years ago

11 Replies

CT scan series part 15 – generic CT scan assessment (for copy)

What can you, the patient, do to find out if your medical facility is complying to the highest standards for radiation dose reduction and safety from CT...

What can you, the patient, do to find out if your medical facility is complying ...

ThreeWs

•9 years ago

10 Replies

XMAS WISHES FROM DOWN UNDER.

MY FIRST POST. I AM A VERY YOUNG 67 YEAR OLD NUTTY NANNIE FROM NEW ZEALAND. I HAVE BEEN FOLLOWING THIS SITE FOR THE PAST FEW MONTHS. I HAVE FOUND THE...

MY FIRST POST. I AM A VERY YOUNG 67 YEAR OLD NUTTY NANNIE FROM NEW ZEALAND. I...

nuttynannie1947

•9 years ago

7 Replies

Blood counts very poor, soon to start BR, and unsure whether to have jabs? (my first attempt to post this message only half worked)

Hi everyone, Thanks for all your responses to my post 3 weeks ago. The blood test results on 10th December were confusing to say the least - WBC had increased...

Hi everyone, Thanks for all your responses to my post 3 weeks ago. The blood te...

Ruhi9

•9 years ago

8 Replies

Blood counts very poor, soon to start BR, and unsure whether to have jabs? (See later post)

Hi everyone, Thanks for all your responses to my post 3 weeks ago. The blood test results on 10th December were confusing to say the least - WBC had increased...

Hi everyone, Thanks for all your responses to my post 3 weeks ago. The blood te...

Ruhi9

•9 years ago

4 Replies

Staying well this Festive Season

Martyn Kirk, Convener, Master of Philosophy in Applied Epidemiology and other authors from the Australian National University have provided some helpful tips...

Martyn Kirk, Convener, Master of Philosophy in Applied Epidemiology and other au...

AussieNeil

Administrator•9 years ago

1 Reply

Treatment in California

I am in Northern California (an hour south of Sacramento) and based on my blood work & cat scan (lymp nodes; count doubling, extreme fatigue etc.) my...

I am in Northern California (an hour south of Sacramento) and based on my blood...

rlyndecker

•9 years ago

6 Replies

New HU Feature - Notification about recommendations. Do you like it?

HealthUnlocked have just released an enhancement of the 'Recommend' feature. If you've recently submitted a post or replied and someone has 'clicked/pressed'...

HealthUnlocked have just released an enhancement of the 'Recommend' feature. If...

AussieNeil

Administrator•9 years ago

8 Replies

Hypertension & CLL

I have read the various posts about any connection between hypertension and CLL. I honestly don't know and the doctors do not seem to think there is. But can...

I have read the various posts about any connection between hypertension and CLL....

jaypax

•9 years ago

10 Replies

Anyone attend Mayo clinic phase II trial of EGCG on CLL?

We know the good results from Mayo clinic phase II trial of EGCG on CLL patients. However, the trial finished in 6 months, so we do not know the results...

We know the good results from Mayo clinic phase II trial of EGCG on CLL patients...

Miee

•9 years ago

8 Replies

In Remission

I went to the doctor on Tuesday to get the results. A couple of vials of blood, a ten minute wait for the doctor afterward and he gave me the news I wanted to...

I went to the doctor on Tuesday to get the results. A couple of vials of blood, ...

RemingtonSteele

•9 years ago

17 Replies

Severe leg pain

Good news! I went to see my physio yesterday as the pain was stopping from me walking. She has discovered I have a back problem ! Probably either an inflamed...

Good news! I went to see my physio yesterday as the pain was stopping from me wa...

speckly

•9 years ago

5 Replies

Common painkillers could decrease skin cancer risk

Not CLL specific, but some research to keep an eye on. In this 'The Conversation' interview, Catherine Olsen, Senior Research Officer at QIMR Berghofer...

Not CLL specific, but some research to keep an eye on. In this 'The Conversatio...

AussieNeil

Administrator•9 years ago

Be the first to reply

Someone with CLL tell me experience of green tea and polyphenols

I am Japanese CLL patient, so I am sorry that my English is poor. I was diagnosed this year and stage A. My WBC is increasing at the rate of 1000~1500/month,...

I am Japanese CLL patient, so I am sorry that my English is poor. I was diagnose...

Miee

•9 years ago

32 Replies

ASH 2014: Interview with Dr. Susan O'Brien and Dr. Bruce Cheson on CLL

Hi friends Chris and others have already pointed you to this pithy interview on Medscape but I found it compelling and tried to fill in some commentary and...

Hi friends Chris and others have already pointed you to this pithy interview on...

bkoffman

CLL CURE Hero•9 years ago

Be the first to reply

A World Expert Looks Back on His CLL Career

Here's my favorite CLL interview EVER, with my doctor, Michael Keating, and his retrospective view of how far we have come during his long career. Please watch...

Here's my favorite CLL interview EVER, with my doctor, Michael Keating, and his ...

andrewschorr

•9 years ago

8 Replies

Notifications broken - Here's a work around to the '404 page not found' or Oops. Looks like that page no longer exists! errors

Notifications about replies from the bell icon in the green menu and email notifications of replies are currently broken, so you'll see '404 page not found'...

Notifications about replies from the bell icon in the green menu and email notif...

AussieNeil

Administrator•9 years ago

4 Replies

ESH 2014: Prof. Stephan Stilgenbauer Reviews Predictive and Prognostic Markers in CLL

Friends, The novel therapies offers the possibility of changing everything, but the reality of the CLL world is slow in catching up. On my blog,...

Friends, The novel therapies offers the possibility of changing everything, but...

bkoffman

CLL CURE Hero•9 years ago

1 Reply

Venetoclax(ABT-199)/rituximab achieved an Overall Rate of Response of 88%

ASH2014 - Clinical Care Options (free to join) capsule update on... Venetoclax (ABT-199)Plus Rituximab Well Tolerated With Promising Activity in Patients...

ASH2014 - Clinical Care Options (free to join) capsule update on... Venetoclax (...

AussieNeil

Administrator•9 years ago

6 Replies

The dangers of drinking raw cow's milk

The recent tragic death of a toddler in Victoria, Australia from drinking cow milk, has prompted Edward Fox, Food Safety and Microbiology Research Scientist...

The recent tragic death of a toddler in Victoria, Australia from drinking cow mi...

AussieNeil

Administrator•9 years ago

1 Reply

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for December 2014

My latest blog about how some postings/photos can be scary

Question - which came first the chicken or the egg ?

Great expectations: our naive optimism about medical care

Updated clinical data may significantly impact treatment of CLL - Jeff Sharman

Holding Court: Clive James Writes about the end of life and CLL

Eyenaemia: the selfie that could save lives

Night time Leg Cramps

FCR, FC, or F

CT scan series part 14 – So, you are about to be CT scanned

Life in a state of remission

IBUTRINIB/Bleeding

CT scan series part 15 – generic CT scan assessment (for copy)

XMAS WISHES FROM DOWN UNDER.

Blood counts very poor, soon to start BR, and unsure whether to have jabs? (my first attempt to post this message only half worked)

Blood counts very poor, soon to start BR, and unsure whether to have jabs? (See later post)

Staying well this Festive Season

Treatment in California

New HU Feature - Notification about recommendations. Do you like it?

Hypertension & CLL

Anyone attend Mayo clinic phase II trial of EGCG on CLL?

In Remission

Severe leg pain

Common painkillers could decrease skin cancer risk

Someone with CLL tell me experience of green tea and polyphenols

ASH 2014: Interview with Dr. Susan O'Brien and Dr. Bruce Cheson on CLL

A World Expert Looks Back on His CLL Career

Notifications broken - Here's a work around to the '404 page not found' or Oops. Looks like that page no longer exists! errors

ESH 2014: Prof. Stephan Stilgenbauer Reviews Predictive and Prognostic Markers in CLL

Venetoclax(ABT-199)/rituximab achieved an Overall Rate of Response of 88%

The dangers of drinking raw cow's milk

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