CLL Support

19,435 members • 32,805 posts

Has my guardian angel gone off Evusheld?

Rabbie Burns framed it better, but sometimes fate just steps right in to deal a mortal blow to your best laid plans. It happened on Sunday evening 6:15 pm....

Rabbie Burns framed it better, but sometimes fate just steps right in to deal a ...

bennevisplace

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38 Replies

The battles we fight

The incurable disease CLL, silently creeps into our bodies, and gently starts launching an attack on the bone marrow. Wait and watch says the doctor, we can...

The incurable disease CLL, silently creeps into our bodies, and gently starts la...

AmCLL

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51 Replies

Possible causes that could have triggered my CLL

I'm trying to figure out what was the cause for my CLL. It's not a sort of why me? Or what I did wrong?...

I'm trying to figure out what was the cause for my CLL. It's not a sort of why ...

Nikotati

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22 Replies

Safe to have kittens?

We are contemplating enriching our lives with two yellow kittens. I have high-risk cll, successfully treated with daily ibrutrinib and an ivig every 4 weeks....

We are contemplating enriching our lives with two yellow kittens. I have high-ri...

Splashes

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33 Replies

I wonder if anybody got Evusheld in the UK.

I am immunocompromised. I am on ibrutinib for 9 years and although I am progression free, my immunoglobulins have declined to a point that I needed IV IG....

I am immunocompromised. I am on ibrutinib for 9 years and although I am progress...

vepiskop

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27 Replies

Zanubrutinib My doc wants to start me on this when my numbers are good

I have nodes particularly in my neck area and one in my chest that are growing slowly. Only the chest node is about 2-3". My wbc has been mainly in the high...

I have nodes particularly in my neck area and one in my chest that are growing s...

JerrysGirl3

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42 Replies

Whole food Plant based diet reversed cll.

Has anyone heard about this article/study done on a cll patient's dramatic results and reversal of cll after changing to a whole food plant based diet? It...

Has anyone heard about this article/study done on a cll patient's dramatic resul...

mleo123

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61 Replies

MY JOURNEY: COVID, EVUSHELD, PAXLOVID and CLL

I am sorry this is so long. I really wanted to document and share my journey and remind everyone to be very careful, thoughtful and educated. COVID is no......

I am sorry this is so long. I really wanted to document and share my journey and...

SandiC

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9 Replies

Evusheld and booster timing

I still cannot get a straight answer (even called Evusheld) about how long after my evusheld shot do I need to wait to get my next booster. I have heard...

I still cannot get a straight answer (even called Evusheld) about how long after...

ElMaga

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25 Replies

How long before Acalabrutinib kicks in?

Greetings CLL friends I've been on Acalabrutinib (Calquence) for 10 days now. I did allopurinol for a week prior and told to continue with allopurinol for...

Greetings CLL friends I've been on Acalabrutinib (Calquence) for 10 days now. I...

lpac

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26 Replies

EvuSheld in the Uk

Dear All, After six emails I got a response from my MP ... nothing spectacular but nonetheless helpful. However, the apparent preference to depend on treatment...

Dear All, After six emails I got a response from my MP ... nothing spectacular b...

Me2AsWell

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15 Replies

Antibiotics with Venetoclax

Hi all! I’m on Venetoclax and Rituxan for NHL. I need to go to the dentist. I think it’s a cavity but my luck, a root canal. What is a good antibiotic to take...

Hi all! I’m on Venetoclax and Rituxan for NHL. I need to go to the dentist. I th...

difor29

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14 Replies

What is a high white blood cell count? I'm baffled.

I'm lucky enough to be on Watch and Wait even after ten years of CLL. I haven't really paid too much attention to the numbers in the past, but at my last blood...

I'm lucky enough to be on Watch and Wait even after ten years of CLL. I haven't ...

DMF_online

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27 Replies

Diagnosed with CLL

Hi everyone. I was diagnosed a year ago with stage 0 CLL with 13 q deletion. I am worried because of a five-year survival rate that I read about.

Hi everyone. I was diagnosed a year ago with stage 0 CLL with 13 q deletion. I ...

Rosebud16

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46 Replies

Every other day

Hi: Does anyone know if there are tests, trials or essays that take ibrutinib one day yes and another no with the same effect? Thx.

Hi: Does anyone know if there are tests, trials or essays that take ibrutinib on...

Denisguay

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34 Replies

New diagnosis, yet to see specialist

Hi all Posting on behalf of my partner 41yo female who has just been diagnosed by GP via a random blood test with CLL. Doctor doesn't know a lot about it and...

Hi all Posting on behalf of my partner 41yo female who has just been diagnosed b...

NewCll

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25 Replies

Good News

Diagnosed with CLL in 2019. Began treatment in 2021. Finished 12 months of Venetoclax and Obinutuzumab 2022. Had a CT scan last week. All my lymph nodes are...

Diagnosed with CLL in 2019. Began treatment in 2021. Finished 12 months of Venet...

GerryPL

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25 Replies

Tooth extraction Ibrutinib

Hi all! Has anyone had a tooth extraction whilst taking Ibrutinib? Did you have to pause medication for a few days?

Hi all! Has anyone had a tooth extraction whilst taking Ibrutinib? Did you have...

Suzanne1970

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12 Replies

New clinical info from biopsy

I guess this was also found. Don't know why I didn't see it. Anyone see anything interesting there ? Thanks Kerry

I guess this was also found. Don't know why I didn't see it. Anyone see anything...

JerrysGirl3

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21 Replies

Hernia surgery and CLL.

I am scheduled for laproscopic inguinal hernia repair next week. Has anybody had it? How was the recovery? Anything to be aware of with my CLL?

I am scheduled for laproscopic inguinal hernia repair next week. Has anybody had...

Claybuster

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12 Replies

Natural way that may help to keep Absolute Lymphocytes Count low

Hello all, I want to share with you my method to keep Lymphocytes count at bay. I am a sport man 57 years old living in Malaysia (Italian citizen)...

Hello all, I want to share with you my method to keep Lymphocytes count at bay....

Nikotati

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13 Replies

Any experience with norovirus?

Hello All! I am one year off trial drugs and my MRD remains undetectable. In the fall of 2020 I contracted a gut virus that most people recover from in 24...

Hello All! I am one year off trial drugs and my MRD remains undetectable. In th...

mouseandchair

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12 Replies

Fatigue

Hi Everyone , i’m new to this Forum . Well i’ve been following it since my diagnosis last november but this is my first post . i’m on watch and wait and don’t...

Hi Everyone , i’m new to this Forum . Well i’ve been following it since my diagn...

Theruff1

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24 Replies

Time of Life

Hello! Does anyone know the longest a person has lived on ibrutinib? How many years? Not counting the years without treatment?. Cheers, Danny.

Hello! Does anyone know the longest a person has lived on ibrutinib? How many y...

Denisguay

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32 Replies

Test results online. Any suggestions how I get these.

I used to be able to get results from my GPs surgery on my account on my phone but not the test results requested by my hospital consultant. I used to find...

I used to be able to get results from my GPs surgery on my account on my phone ...

keeptalking

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27 Replies

Actual date

Why do we not see the actual dates of posts? Sometimes I am reading old ones and the treatment has already improved.

Why do we not see the actual dates of posts? Sometimes I am reading old ones an...

seoul1949

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3 Replies

Reaction to 5th covid jab

Hi not sure if I am worrying about nothing. I had my 5th covid jab this morning. I was given Moderna, my four others have all been Pfizer. I commented on the...

Hi not sure if I am worrying about nothing. I had my 5th covid jab this morning...

kitchengardener2

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23 Replies

Extremely scared and anxious

Is CLL genetic? My 24 year old son has been having borderline high Uric Acid. So we were getting it tested periodically. His current uric acid level is in...

Is CLL genetic? My 24 year old son has been having borderline high Uric Acid. So...

nuji

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10 Replies

Going away whilst on treatment or getting close..

Hi everyone one hope your all well and those who are struggling , sorry . I don't post often as struggle still reading some post ,, I know there are many...

Hi everyone one hope your all well and those who are struggling , sorry . I don...

Stavrou1

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12 Replies

5th jab

Good morning all, having my 5th covid jab this morning.

kitchengardener2

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20 Replies

See all posts

Important SARS-CoV-2 and Covid-19 information for Chronic Ly...

BTK inhibitors for the treatment of CLL - the current state ...

Navigating HealthUnlocked

12 TIPS to get more out of this CLL Support forum - and help...

Newly diagnosed with Chronic Lymphocytic Leukemia or Small L...

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Posts

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Has my guardian angel gone off Evusheld?

The battles we fight

Possible causes that could have triggered my CLL

Safe to have kittens?

I wonder if anybody got Evusheld in the UK.

Zanubrutinib My doc wants to start me on this when my numbers are good

Whole food Plant based diet reversed cll.

MY JOURNEY: COVID, EVUSHELD, PAXLOVID and CLL

Evusheld and booster timing

How long before Acalabrutinib kicks in?

EvuSheld in the Uk

Antibiotics with Venetoclax

What is a high white blood cell count? I'm baffled.

Diagnosed with CLL

Every other day

New diagnosis, yet to see specialist

Good News

Tooth extraction Ibrutinib

New clinical info from biopsy

Hernia surgery and CLL.

Natural way that may help to keep Absolute Lymphocytes Count low

Any experience with norovirus?

Fatigue

Time of Life

Test results online. Any suggestions how I get these.

Actual date

Reaction to 5th covid jab

Extremely scared and anxious

Going away whilst on treatment or getting close..

5th jab

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