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CLL Support

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Has my guardian angel gone off Evusheld?

Rabbie Burns framed it better, but sometimes fate just steps right in to deal a ...

The battles we fight

The incurable disease CLL, silently creeps into our bodies, and gently starts la...

Possible causes that could have triggered my CLL

I'm trying to figure out what was the cause for my CLL. It's not a sort of why ...

Safe to have kittens?

We are contemplating enriching our lives with two yellow kittens. I have high-ri...

I wonder if anybody got Evusheld in the UK.

I am immunocompromised. I am on ibrutinib for 9 years and although I am progress...

Zanubrutinib My doc wants to start me on this when my numbers are good

I have nodes particularly in my neck area and one in my chest that are growing s...

Whole food Plant based diet reversed cll.

Has anyone heard about this article/study done on a cll patient's dramatic resul...

MY JOURNEY: COVID, EVUSHELD, PAXLOVID and CLL

I am sorry this is so long. I really wanted to document and share my journey and...

Evusheld and booster timing

I still cannot get a straight answer (even called Evusheld) about how long after...

How long before Acalabrutinib kicks in?

Greetings CLL friends I've been on Acalabrutinib (Calquence) for 10 days now. I...

EvuSheld in the Uk

Dear All, After six emails I got a response from my MP ... nothing spectacular b...

Antibiotics with Venetoclax

Hi all! I’m on Venetoclax and Rituxan for NHL. I need to go to the dentist. I th...

What is a high white blood cell count? I'm baffled.

I'm lucky enough to be on Watch and Wait even after ten years of CLL. I haven't ...

Diagnosed with CLL

Hi everyone. I was diagnosed a year ago with stage 0 CLL with 13 q deletion. I ...

Every other day

Hi: Does anyone know if there are tests, trials or essays that take ibrutinib on...

New diagnosis, yet to see specialist

Hi all Posting on behalf of my partner 41yo female who has just been diagnosed b...

Good News

Diagnosed with CLL in 2019. Began treatment in 2021. Finished 12 months of Venet...

Tooth extraction Ibrutinib

Hi all! Has anyone had a tooth extraction whilst taking Ibrutinib? Did you have...

New clinical info from biopsy

I guess this was also found. Don't know why I didn't see it. Anyone see anything...

Hernia surgery and CLL.

I am scheduled for laproscopic inguinal hernia repair next week. Has anybody had...

Natural way that may help to keep Absolute Lymphocytes Count low

Hello all, I want to share with you my method to keep Lymphocytes count at bay....

Any experience with norovirus?

Hello All! I am one year off trial drugs and my MRD remains undetectable. In th...

Fatigue

Hi Everyone , i’m new to this Forum . Well i’ve been following it since my diagn...

Time of Life

Hello! Does anyone know the longest a person has lived on ibrutinib? How many y...

Test results online. Any suggestions how I get these.

I used to be able to get results from my GPs surgery on my account on my phone ...

Actual date

Why do we not see the actual dates of posts? Sometimes I am reading old ones an...

Reaction to 5th covid jab

Hi not sure if I am worrying about nothing. I had my 5th covid jab this morning...

Extremely scared and anxious

Is CLL genetic? My 24 year old son has been having borderline high Uric Acid. So...

Going away whilst on treatment or getting close..

Hi everyone one hope your all well and those who are struggling , sorry . I don...

5th jab

Good morning all, having my 5th covid jab this morning.
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