CLL Support Association
The CLL Support Association (CLLSA) is a patient led support charity founded in the UK In 2005. The remit of the CLLSA is to provide support to CLL...Read more
Top posts this monthAll posts
Is my iPad watching me? my TV... my smoke alarm?
Just food for thought
Blood Results
Hi all! I have just had my 3 monthly blood test results back. Can anyone tell me what they mean regarding how well or badly I am doing...
Armpit Rash
Hello, all, I was diagnosed with CLL (Stage 0) a year ago and am on W&W. The past month, I have had itchy rashes at the bottom of both...
Zydelig (idelalisib) ...what?
Zydelig (idelalisib) combined with rituxan was FDA approved in July 2014, but I rarely hear much conversation about it... BCR target oral...
By Hidden10 RepliesThe value of a responsive 'watch & wait' consult POPULAR
Since being diagnosed nearly 3 years ago, I've enjoyed the security and value of good haematological consults whilst on watch and wait...
Huge nodules in back of head POPULAR
I have no clue if this is related to the CLL or not- I had lymp nodes behind the ear really bothering me and acting 'strange' about 10 days...
An Update from UK CLL "Superstar" Dr. George Follows
Dear CLL friends...
BiTE, antibody constructs
A video from Amgen...explains about harnessing this new complex technology...
By Hidden2 Replies
Hello folks,
I went for my four month check up today and found my white blood count was worse- has doubled in less than a year. Treatment therefore is...
stunning results 1st and 2nd day of treatment POPULAR
Wednesday Feb. 4 was day 1on the clinical trial with GA101 + ABT199. Day 1 pre infusion blood work ALC 151, infused 100mg GA101, post...
Father in law with CLL
Hi, my father in law was diagnosed with cll, we found out on Friday, January 23rd, but it feels like a very, very long time ago. He is 5...
By Hidden8 Replies
Doc is recommending treatment POPULAR
I've reached a point where I need FCR. I am SCARED, especially about side effects and the 50/50 chance of losing my hair. PLEASE share your...
Painful lymph nodes
I am having painful lymph nodes on the right side of my neck it started all about three weeks ago. My lymph nodes are about 2 cm It is...
Taking the correct supplements - easier when the label is correct.
As someone who's been taking supplements. I had limited my concern to whether my self-prescribed regimen of 1890 mg. of ECGC in the morning...
By Hidden8 Replies
Latest pollAll polls
Aid The CLLSA
CLL Support Association is run by unpaid volunteers. we are reliant on the generosity of members and others to maintain the high level of service and support which many find really valuable.
Donate now
