CLL Support | HealthUnlocked

CLL Support

23,770 members•40,560 posts

A cautionary tale about using AI

I like Microsopft Copilot, because it's built into my PC running Windows 10, and provides an attempt at references. But this sequence shows how...

I like Microsopft Copilot, because it's built into my PC running Windows 10, and...

SeymourB

•2 days ago

34 Replies

Deep Dental Cleaning w/ CLL.

Hi all, So I have been confirmed with CLL a week ago. I already had my first ever "deep" dental cleaning scheduled for mid April. I told my...

Hi all, So I have been confirmed with CLL a week ago. I already had my first ev...

NancyJ4

•6 days ago

45 Replies

Starting treatment

Hi all, I have been told the time has come, they are saying V and O my question is, is it a good combination, anyone had this, looking for feedback thanks

Hi all, I have been told the time has come, they are saying V and O my question...

Feavers

•3 days ago

27 Replies

seeing grand children

My Daughter lives 2 hours away so is a treat when she visits with our granddaughter!!! However its a theme now as before they visit its the dreaded news Isla...

My Daughter lives 2 hours away so is a treat when she visits with our granddaug...

CLLpa

•13 days ago

54 Replies

Teeth dentures implants

Has anyone had experience with dental implants either individual teeth or for dentures? ??? infection or failure v long term success? I've had CLL for 15...

Has anyone had experience with dental implants either individual teeth or for de...

skipro

•13 days ago

49 Replies

Venetoclax Ramp Up Programme.

I am 76 years old and my CLL is being treated with I and V. I am just coming to the end of 3 months of 15 months Ibrutinib and start 12 months of Venetoclax in...

I am 76 years old and my CLL is being treated with I and V. I am just coming to ...

Coldplaybest

•2 days ago

19 Replies

NHS doctors and staff are muppets - re vaccinations rant

I have found so many protocol errors during treatment with V+O. Currently having a ding dong about getting vaccination with PCV13 as they either just can't...

I have found so many protocol errors during treatment with V+O. Currently havin...

Skyshark

•11 days ago

42 Replies

Return to Office

Hello: I was diagnosed with B cell CLL in January 2021 during a six-week hospitalization after passing out at the Post Office. I have been in treatment &...

Hello: I was diagnosed with B cell CLL in January 2021 during a six-week hospit...

Mango357

•7 days ago

28 Replies

Curious question

Sorry all, I am making up for the lost time that I haven't been on here. LOL I am curious, for those who are, or were, in the watch and wait stage, how much...

Sorry all, I am making up for the lost time that I haven't been on here. LOL I ...

Presto51

•9 days ago

30 Replies

COVID shots 24-25 winter

My wife just received a notification from our pharmacy that a booster COVID shot is recommended 6 months after the last 24-25 winter COVID shot. This second...

My wife just received a notification from our pharmacy that a booster COVID shot...

Claybuster

•2 days ago

12 Replies

advice on interacting and vaccines with CLL

Hello all, we think that my husband may have just joined your community yesterday (a senior nurse told him he has CLL and put in an urgent referral to...

Hello all, we think that my husband may have just joined your community yesterda...

Nico6

•27 days ago

47 Replies

Diet and my CLL

Hello all, I'd like your guidance in my diet concerns. I'm almost months after losing my husband to AML. My concern is that I just have zero motivation to...

Hello all, I'd like your guidance in my diet concerns. I'm almost months after ...

Hilomom

•1 month ago

47 Replies

CLL - 5 years post FCR

just wanted to share our news that today we have now celebrated 5 years post FCR . My husband was diagnosed in 2016 with CLL. We then had nearly 5 years of...

just wanted to share our news that today we have now celebrated 5 years post FC...

Cheshire2016

•8 days ago

22 Replies

staying hydrated

hi all staying hydrated is important for overall health, has anyone got any advice on taking supplements for hydration? Electrolyte drinks or tables? This...

hi all staying hydrated is important for overall health, has anyone got any advi...

CLLpa

•25 days ago

38 Replies

CLL and weakness? Fatigue just a state of mind?

CLL sources say weakness can be a CLL symptom. Is this a direct effect of CLL on muscle tissue? Or indirect: fatigue-decreased activity= weakness?Is fatigue...

CLL sources say weakness can be a CLL symptom. Is this a direct effect of CLL o...

whitravis

•17 days ago

30 Replies

CLL and Calquence

I have CLL with enlarged spleen 19cm and WBC 106,000. My Dr wants me to start Calquence. I’m concerned about the side effects. Is anyone on Calquence and how...

I have CLL with enlarged spleen 19cm and WBC 106,000. My Dr wants me to start Ca...

Vski

•6 days ago

16 Replies

Radiotherapy for breast cancer

Hello members, I was diagnosed with cll 7 years ago, bloods are stable and no treatment needed so far. I was diagnosed with breast cancer in October 2024 and...

Hello members, I was diagnosed with cll 7 years ago, bloods are stable and no tr...

Raquel22

•21 days ago

30 Replies

Ivermectin

Keep seeing on social media about Ivermectin and cancer. Has anyone tried Ivermectin?

Keep seeing on social media about Ivermectin and cancer. Has anyone tried Iver...

MichelleM61

•12 days ago

21 Replies

cycle 1 day1 V & O

sadly did not according to plan and hope, 2 hours in suddenly freezing cold, dizzy, ended it for day, had an adrenaline shot to help, back tomorrow for...

sadly did not according to plan and hope, 2 hours in suddenly freezing cold, diz...

Jim-Boy

•1 month ago

35 Replies

Path towards diagnosis

Hi all, I'm a 37 year old male in the USA. I'm married with a nearly 1.5 year old son. And.... I think I will likely officially be part of this club soon... I...

Hi all, I'm a 37 year old male in the USA. I'm married with a nearly 1.5 year ol...

travisgf87

•1 month ago

33 Replies

sub cutaneous IgG

Curious about sub cutaneous as opposed to the IV IgG I receive How long of a process is the weekly sub cut version Does Medicare in the USA cover it?...

Curious about sub cutaneous as opposed to the IV IgG I receive How long of a ...

skipro

•10 days ago

17 Replies

Bilateral hip pain post v&o

I completed V&O 3/24 and am feeling much better except for severe hip pain. The discomfort is almost continuous with aching just resting/ sitting but...

I completed V&O 3/24 and am feeling much better except for severe hip pain. The ...

Shangonmom

•18 days ago

23 Replies

upcoming Mayo (Minnesota) visit: second opinion: any advice? kind of nervous

Someone on here (sorry, can't remember, recently praised the efficiency of Mayo at Rochester..... I am CLL/SLL with CNS optic nerve/vision loss on...

Someone on here (sorry, can't remember, recently praised the efficiency of Mayo ...

msnik

•8 days ago

15 Replies

What would you do

Just spoke to my new Consultant about returning to work. I have my own Gardening business Initially this was going to be March, I am on currently V&O Cycle...

Just spoke to my new Consultant about returning to work. I have my own Gardening...

TheFlyer

•7 days ago

14 Replies

six months post unrelated donor stem cell transplant

Hi everyone, It’s been months since I posted here. My husband had an allogenic stem cell transplant last August 22 to treat high risk “treatment related” MDS...

Hi everyone, It’s been months since I posted here. My husband had an allogenic...

dwolden

•10 days ago

16 Replies

update

hi it’s been a while since I posted. I left the site cause my CLL transformed into non Hodgkin’s lymphoma presenting as anaplastic stage four . It was a...

hi it’s been a while since I posted. I left the site cause my CLL transformed in...

Hilo13

•21 days ago

22 Replies

Life changes with CLL treatment?

I am 69 years old and will begin my first treatment for CLL in a couple of weeks. I have not yet discussed with my doctor which treatment I will receive, but...

I am 69 years old and will begin my first treatment for CLL in a couple of weeks...

CLLed

•25 days ago

24 Replies

CLL transferred to Richter's Syndrome

Morning, we found out yesterday that my husband's CLL has transferred to Richter's Syndrome. He is having a lymph node biopsy and blood transfusion next week...

Morning, we found out yesterday that my husband's CLL has transferred to Richter...

Ooshi

•7 days ago

12 Replies

cin51

I am a 73 yr old female diagnosed with CLL 2 years ago in watch and wait. My question is, what vitamins or supplements are best to take to help with...

I am a 73 yr old female diagnosed with CLL 2 years ago in watch and wait. My qu...

12whitedoves

•2 days ago

6 Replies

UPDATE to https://healthunlocked.com/cllsupport/posts/151558926/start-treatment-just-based-on-fatigue

Hi everyone. Back in December I posted looking for feedback on whether or not to start treatment based on persistent fatigue that was out of sync with the...

Hi everyone. Back in December I posted looking for feedback on whether or not to...

TLSAtlanta

•4 days ago

9 Replies

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