CLL Support | HealthUnlocked

CLL Support

23,632 members•40,358 posts

Path towards diagnosis

Hi all, I'm a 37 year old male in the USA. I'm married with a nearly 1.5 year old son. And.... I think I will likely officially be part of this club soon... I...

Hi all, I'm a 37 year old male in the USA. I'm married with a nearly 1.5 year ol...

travisgf87

•1 day ago

28 Replies

Major breakthrough in cancer research.

This just made my day. We are on the cusp of serious changes in how cancer is treated and managed. Lots of trials will be coming once funding is made...

This just made my day. We are on the cusp of serious changes in how cancer is t...

LeoPa

•10 days ago

64 Replies

cycle 1 day1 V & O

sadly did not according to plan and hope, 2 hours in suddenly freezing cold, dizzy, ended it for day, had an adrenaline shot to help, back tomorrow for...

sadly did not according to plan and hope, 2 hours in suddenly freezing cold, diz...

Jim-Boy

•3 days ago

35 Replies

AI and Cancer

Could AI, artificial intelligence, create curative treatments for cancer? What do you think?

Could AI, artificial intelligence, create curative treatments for cancer? What d...

Priss69

•2 days ago

25 Replies

IVIG Question

had first dose of IVIG yesterday, think it was 3 grams. Pre med with Zyrtec and Tylenol. Half way through infusion had allergic reaction, shaking chills...

had first dose of IVIG yesterday, think it was 3 grams. Pre med with Zyrtec and ...

Davidcara

•2 days ago

21 Replies

Gratitude

as those of you who know me on this format, I've had my share of challenges that have been devastating in someways. Today I want to express gratitude to...

as those of you who know me on this format, I've had my share of challenges tha...

skipro

•9 days ago

38 Replies

How did it happen?

This is a bit of an investigative piece on how did I get CLL. I’m sure many of us have tried to pinpoint how we got CLL and really none of my doctors have...

This is a bit of an investigative piece on how did I get CLL. I’m sure many of ...

steve_canada

•26 days ago

59 Replies

CLL and driving ?

I got my driving license before I was diagnosed with CLL. I'm currently in watch & wait period and usually do not have any significant symptoms other than some...

I got my driving license before I was diagnosed with CLL. I'm currently in watch...

TrenchcoatPenguin

•6 days ago

26 Replies

High wbc

I’m 66 years old and was diagnosed with CLL 5 years ago. In my most recent blood test my white blood cell count was 82.8 with lymphocytes at 80. My...

I’m 66 years old and was diagnosed with CLL 5 years ago. In my most recent blood...

Pickleballfan

•3 hours ago

4 Replies

Skin Cancer Anyone?

Hello Friends, So, I'm 5 years in. Haven't had any interventions yet because I feel as good and fit as ever. Thing is, a 2cm x 1 cm, very unusual, scabby,...

Hello Friends, So, I'm 5 years in. Haven't had any interventions yet because I ...

Mariah33

•3 days ago

17 Replies

IV v oral venetoclax and ibrutinib

Hello all At his appt yesterday husband was told that chemo will begin in six weeks. He has the option of IV or oral treatment with venetoclax and ibrutinib...

Hello all At his appt yesterday husband was told that chemo will begin in six...

Noelnoel

•1 month ago

54 Replies

Appetite and covid with CLL

If I am posting what has already been posted I do apologise I tried to search the forum but couldn't come up with anything I hope the new year is good to all...

If I am posting what has already been posted I do apologise I tried to search th...

Supersurfer1

•14 days ago

35 Replies

Acalabrutinib

Hi there.Has anyone been on Acalabrutinib iam starting treatment today,1 tablet per day 100mg,then go for blood test end of month and see doctor to see if they...

Hi there.Has anyone been on Acalabrutinib iam starting treatment today,1 tablet ...

Jsceltic67

•9 days ago

27 Replies

Ibrutinib side effects

As mentioned in an earlier post, my mother will start Ibrutinib next week. I read about side effects such as bleeding, high blood pressure and heart problems....

As mentioned in an earlier post, my mother will start Ibrutinib next week. I rea...

Mvh0406

•7 days ago

23 Replies

Zanubrutinib

anyone taken zanubrutinib mixed in yoghurt -( too long a tale to go into) - any issues? Thank you in advance 😊

anyone taken zanubrutinib mixed in yoghurt -( too long a tale to go into) - any ...

Sepsur

•2 days ago

13 Replies

Anyone develop orbital lymphoma? 👀

Over one year ago, out of the blue my eyes got all red with big veins and a creepy look inside lids, blurred vision and severe headaches. My previous...

Over one year ago, out of the blue my eyes got all red with big veins and a cree...

Beeupfull

•4 days ago

16 Replies

Looking for CLL specialist

I was just diagnosed with Stage 0 CLL. I'm in the "Watch & Worry" stage - my dad died of complications from CLL in 1999; if I didnt know what he went through,...

I was just diagnosed with Stage 0 CLL. I'm in the "Watch & Worry" stage - my dad...

VanGoghLvr0401

•19 days ago

36 Replies

Relapsed CLL treatment

i am a relapsed CLL patient , just diagnosed , live in India, had chemo therapy in 2018 with Bendamustine and ritixamab of 6 cycles. . what are the criteria...

i am a relapsed CLL patient , just diagnosed , live in India, had chemo therapy...

venk_46

•8 days ago

22 Replies

Daily Newsletter Stopped

When I originally joined this site, I became a regular contributor for a number of years. Then without my realizing it, the daily emails stopped. I must have...

When I originally joined this site, I became a regular contributor for a number ...

wizzard166

•1 day ago

9 Replies

HDL dropped (good cholesterol)

I have been trying to decrease my Statin dose and my lipid panel was good except my HDL dropped to 31. I do not have any of the risk factors ( not...

I have been trying to decrease my Statin dose and my lipid panel was good excep...

Walkinginnature

•11 days ago

25 Replies

Muscle and joint pain.

A few days ago I read on here about people who are on Acalabrutinib are suffering with muscle and joint pain. My question is - did you stop taking the tablets...

A few days ago I read on here about people who are on Acalabrutinib are sufferin...

Westie11-

•1 day ago

8 Replies

Diet and my CLL

Hello all, I'd like your guidance in my diet concerns. I'm almost months after losing my husband to AML. My concern is that I just have zero motivation to...

Hello all, I'd like your guidance in my diet concerns. I'm almost months after ...

Hilomom

•7 hours ago

4 Replies

vaccination for people around you…

long story short, my dad has high risk CLL. He is still on W&W but will likely start treatment in February. my dad really wants my fiancé to get vaccinated...

long story short, my dad has high risk CLL. He is still on W&W but will likely s...

anongirll1927

•1 month ago

42 Replies

UK Holiday Insurance

Any recommendations for UK holiday insurance policy (1 week)? Currently on treatment (Ibrutinib). Best quote so far £140 via Post Office.

Any recommendations for UK holiday insurance policy (1 week)? Currently on trea...

RobertCLL

•9 days ago

20 Replies

Start treatment just based on fatigue?

I have SLL version, Mutated, Trisomy12 & 13Q and a couple other less well researched markers. Enlarged (1cm+) nodes all over, the ones I can feel wax and wane...

I have SLL version, Mutated, Trisomy12 & 13Q and a couple other less well resear...

TLSAtlanta

•28 days ago

33 Replies

CLL & accelerated Squamous Cell Carcinoma

My husband has untreated CLL and is now being treated for a second squamous cell carinmona (SCC) ie. skin cancer. I've just read a study published in the...

My husband has untreated CLL and is now being treated for a second squamous cell...

JenniferHart

•5 days ago

13 Replies

Question about untreated CLL

hi all a bit of a random question here I suppose My mother in law has chronic leukaemia (diagnosed 5 years ago) and wanting to go the all natural route, what...

hi all a bit of a random question here I suppose My mother in law has chronic ...

Medi_c

•13 days ago

21 Replies

Living with cll

Hello everybody!Today our doctor suggested a second line therapy for cll Venetoclax combined with immunotherapy.My husband took for 6 years Ibrutinib but now...

Hello everybody!Today our doctor suggested a second line therapy for cll Venetoc...

Skyfallmoon

•4 days ago

11 Replies

I'm tired

I want to keep going. My children at home are 13 and 14. My adult kids are 20 & 22. My wife has no empathy. I never mention my CLL because of this. I am...

I want to keep going. My children at home are 13 and 14. My adult kids are 20 ...

latebraker

•21 days ago

25 Replies

Haemophilus influenzae - Since June

I have had a mild chest infection since the 20th June. Producing mucus mainly in the morning for the first few hours. Then clears during the rest of the day...

I have had a mild chest infection since the 20th June. Producing mucus mainly i...

RobertCLL

•16 days ago

22 Replies

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