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CLL Support

23,969 members•40,808 posts

CT shock

I’m on watch and wait. My haematology appointment was yesterday. Tuesday I had very bad pain in my rib cage and the ambulance crew took me to A&E. Doctor sent...

I’m on watch and wait. My haematology appointment was yesterday. Tuesday I had v...

21Bedlam21

•5 days ago

83 Replies

covid

Just tested positive for Covid. Is it treated like anyone else who has covid? I called the weekend on call nurse at MD Anderson. She told me to go to urgent...

Just tested positive for Covid. Is it treated like anyone else who has covid? I ...

Reetywell71

•3 days ago

51 Replies

Pulsed Therapy (Modified Watch and Wait) a Clinical Update

Hello HealthUnlocked Community, I've written about the idea of pulsed therapy -- aka, adaptive therapy, although I find more acceptance (though not by much)...

Hello HealthUnlocked Community, I've written about the idea of pulsed therapy -...

PulsedTherapy

•18 days ago

58 Replies

Car-T begins tomorrow!

Just wanted to update you all about where I am with my CLL/MZL which transformed into DLBCL (still not sure if it’s Richters but definitely close) in January,...

Just wanted to update you all about where I am with my CLL/MZL which transformed...

Bajabarb

•8 days ago

27 Replies

Starting gazyva tomorrow

Hello to all you wonderful supporting CLLers here......I had posted a week or two ago about my platelets dropping to 7 .........and was prescribed prednisone...

Hello to all you wonderful supporting CLLers here......I had posted a week or tw...

aptucxet

•17 hours ago

8 Replies

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Chronic Lymphocytic Leukaemia Support cllsupport.org.uk is a patient-led charity founded in the UK...