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CLL Support

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CLL & Beer

Newly Diagnosed, currently in watch & wait. Anyone have an opinion on beer &...

POST 3 - CAR-T cell therapy

Since my last post things have been ticking over with regular blood tests, Clini...

Good news!

Just reached MRD and can stop the V pills in a few weeks. Woo hoo!!!! Since a ...

POST 4 - CAR-T cell therapy

This is a very quick update for anyone who may be following my journey and possi...

How is "remission" defined for CLL?

After being on Ibrutinib for 8 months, my numbers are all back in the normal ran...

Alcohol

I have a basic question for our group. Is is alright to have a drink or two eac...

CLL and probiotics

Hi all, I am currently on Amox/Clav aka Augmentin for a diverticulitis attack. U...

Any experiences with Venetoclax?

I'm 58 YOA female and I have high risk CLL. I have been on Imbrutinib for over ...

ER visit after 13 days on Zanubrutinib (Diagnosed 13yrs 8mos b4 needing treatment)

I started Zanubrutinib April 24th, by 5th day noticed painful finger spasms, 7th...

Colon cancer as secondary cancer

Hi I just got diagnosed with colon cancer last week and I am lucky I will have ...

MRD Test

After 14 months on Acalabrutinib and Venetoclax, C91.10 Chronic lymphocytic leu...

COVID Jab Reaction

Hi I have CLL, diagnosed some 3 years ago. I've just had my COVID Summer booste...

Update.

Just returned from a face to face consultation with my haematologist. (The first...

Dave Barry: A journey into my colon - and yours

A plagiarised version of an article by Dave Barry, published in the Miami Herald...

Travel insurance when in remission

Does anyone have experience of taking out travel insurance when their CLL has be...

when start venclexta

I just did first Obinutuzumab infusion. First day of 100cc hit me hard but seco...

UK herbal remedy ingredient check by UCL School of Pharmacy: Many poor quality products, though those with the THR label fare better

Do herbal supplements contain what they say on the label?...
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W&W, Sepsis, Pneumonia,Cellulitis, FEVERS ! - ???

Had my first visit to the Hematologist . He was patient, he was kind , he was v...

Melatonin

Just wondering if anyone knows anything about melatonin and CLL. I’m reading Th...

Hard Mass on my Spleen

My first post here .... can hardly believe I'm doing this. Firstly, a big tha...

Thoughts on Chickenpox

I was with my daughter and grandson this morning and she mentioned Chickenpox wa...

Gardening hazards

A couple of weekends ago something in the garden penetrated the skin of my finge...

Ibrutinib - Excessive Itching

My husband was diagnosed with CLL in Jan 2019. He began on daily Ibrutinib abou...

more serious side effect of Zanubrutinib

Its Day 13 & I needed to get moving with my exercise since I seen a 5lb weight g...

Severe reaction to Phiser 6th jab.

Hi All I don't know who I was posting to on this subject, so I will put it out t...

weirdness with exercise

rejoined my gym to try to get strength exercise into my life. It’s a gym with ha...

When is it time?

This is more about my experience with W&W and hopefully it might help others who...

Diet options

OH has CLL, diagnosed 2014, treated RFC 2017. Nearly didn't make it after dread...

While on Watch and Wait

When you are newly diagnosed with CLL , is it normal to be placed on W&W and not...

a success story ❤️

https://www.walesonline.co.uk/news/real-life/cancer-spread-over-stephens-body-26...
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