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CLL Support

23,138 members • 39,744 posts

All posts for March 2021

Starting V & O combination therapy

It’s my turn and today (Monday 9/3/21) I start my treatment. I will be kept in overnight. Fingers crossed and I will update on my progress. I have been told to...

It’s my turn and today (Monday 9/3/21) I start my treatment. I will be kept in o...

RitaBa

•4 years ago

26 Replies

Interpretation of blood test

I found CLL club is very helpful and people are very cooperative so I decided to put my query today. This is one of the blood tests of my wife in November...

I found CLL club is very helpful and people are very cooperative so I decided to...

Sagarcanada

•4 years ago

10 Replies

Confused about antibody resting

I know there have been post. Confused about post vaccine testing. I cannot find spike testing in my area. Will qualitative serology igg antibody test, give any...

I know there have been post. Confused about post vaccine testing. I cannot find ...

Davidcara

•4 years ago

25 Replies

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CLL FISH tests results

I have been diagnosed and joined the CLL club recently. I have been doing my research here and also with Dr. Google etc. I just got my FLOW and FISH test...

I have been diagnosed and joined the CLL club recently. I have been doing my res...

controlsct

•4 years ago

20 Replies

validation of articles critical of COVID-19 vaccine

If you read any article or hear anyone speak as though something is true without facts to back up the article/speaker is not trustworthy. Sometimes people...

If you read any article or hear anyone speak as though something is true without...

Hidden

•4 years ago

1 Reply

spinach kake

hi all is it OK for us cllrs to make spinach kale soups or does it make are lymphocytes go up also does pumpkin seeds ,sunflower seeds and chia seeds help just...

hi all is it OK for us cllrs to make spinach kale soups or does it make are lymp...

kel555

•4 years ago

3 Replies

Update! CLL Society's Official Statement concerning the COVID-19 vaccines, includes the Feb. 27th FDA authorization of the J&J vaccine

Update! CLL Society has once again pressed the refresh button on its Official Statement concerning the COVID-19 vaccines, including the Feb. 27th FDA...

Update! CLL Society has once again pressed the refresh button on its Official St...

bkoffman

CLL CURE Hero•4 years ago

1 Reply

First Time Post: CLL in full relapse mode + vaccines and Calquence next line of defense.

Hi all - my name is Tim and Im from Seattle. This is my first post here though I’ve been following HealthUnlocked for my CLL diagnosis back in 2018....

Hi all - my name is Tim and Im from Seattle. This is my first post here though I...

TimDeeSeattle

•4 years ago

9 Replies

Dealing with a cold

I have had a cold for about a week and before this have not been sick since 1/21/19...so good run....my question is I am pretty early in my CLL my wc is around...

I have had a cold for about a week and before this have not been sick since 1/21...

Nick2121

•4 years ago

8 Replies

Ricther Transformation - Derek May has left us.

Hello everyone. It is always my turn to deliver the bad news. Tonight Derek May left us. Two weeks ago Derek made the difficult decision to continue treatment...

Hello everyone. It is always my turn to deliver the bad news. Tonight Derek May ...

Priss69

•4 years ago

25 Replies

Possible Richter’s Transformation?

My husband had tonsilitis In late December early January and seems to have recover from that. Then, unfortunately, he was in contact with someone positive for...

My husband had tonsilitis In late December early January and seems to have reco...

hsouter

•4 years ago

15 Replies

Phase 2 study of MRD driven time limited therapy with Zanubrutinib, Obintuzumab and Venetoclax (BOV) in untreated patients.

These are initial results, published as an abstract in May 2020 Zanubrutinib (B) is a highly specific BTK inhibitor that demonstrated 100% occupancy in...

These are initial results, published as an abstract in May 2020 Zanubrutinib (B)...

Jm954

Administrator•4 years ago

29 Replies

What do all these Vaccine Efficacy Numbers that they quote actually mean?

Efficacy is a crucial concept in vaccine trials, but it’s also a tricky one. If a vaccine has an efficacy of, say, 95 percent, that doesn’t mean that 5 percent...

Efficacy is a crucial concept in vaccine trials, but it’s also a tricky one. If ...

Jm954

Administrator•4 years ago

10 Replies

CLL , infected with COVID-19

Hello I just want to share if any one with CLL and get infected with COVID-19 any suggestion to post immune system , support , a special vitamins to take ??...

Hello I just want to share if any one with CLL and get infected with COVID-19 ...

htam

•4 years ago

40 Replies

CLL and red wine?

My wife diagnosed with CLL and she is in W & W condition. My wife is a social drinker, she used to drink red wine once a month or twice but when she got CLL...

My wife diagnosed with CLL and she is in W & W condition. My wife is a social dr...

Sagarcanada

•4 years ago

49 Replies

How to request test for chromosome 17p deletion, TP 53 mutation; unmutated immunoglobulin heavy chain variable region (IgHV) in Canada?

We live in Brampton, Ontario in Canada. My wife diagnosed with CLL in Dec 2020. We did not have the opportunity to talk to a hematologist in person and...

We live in Brampton, Ontario in Canada. My wife diagnosed with CLL in Dec 2020...

Sagarcanada

•4 years ago

20 Replies

Britain is launching a study to examine whether patients with immunosuppressed conditions have a less effective immune response to Covid-19

Just read this and felt it might be of interest, especially to those in the UK (you could take part). "Study launched into Covid-19 vaccine response among...

Just read this and felt it might be of interest, especially to those in the UK (...

Iupiter

•4 years ago

30 Replies

This Pain...

Hi everyone! Hope you doing well .. Since my diagnosis 2 months 1/2 I lost already 25 pounds I’m on W&W “stage 0” It’s been like 3 days that Im feeling pain...

Hi everyone! Hope you doing well .. Since my diagnosis 2 months 1/2 I lost alre...

Paulibiris

•4 years ago

13 Replies

HAPPY ST PIRAN'S DAY

Happy St Piran's day/Gool Peran Lowen, patron saint of Cornwall and tin miners, sadly the usual events are going to be virtual this year, but at least its not...

Happy St Piran's day/Gool Peran Lowen, patron saint of Cornwall and tin miners,...

fapumpkin

•4 years ago

2 Replies

Antibody testing post vaccine

I’d be interested to know if any CLL patients out there who have had both doses of the Covid vaccine have been tested for antibodies, and curious as to what...

I’d be interested to know if any CLL patients out there who have had both doses ...

Survivor1951

•4 years ago

4 Replies

Numbness, tingling in hands

I have a numbing/tingling sensation in thumb and fingers of both hands at times. Usually several times over a two or three day period, then a break for...

I have a numbing/tingling sensation in thumb and fingers of both hands at times....

Agatesup

•4 years ago

1 Reply

ibrutinib it is expensive?

When CLL people need treatment mostly are taking ibrutinib which is good medicine but I am wondering to check its price. We live in Canada and we are...

When CLL people need treatment mostly are taking ibrutinib which is good medicin...

Sagarcanada

•4 years ago

11 Replies

Does green tea extract (EGCG can) reduce WBC in CLL?

I have read some positive things about green tea extract to treat CLL so our Hematologist said just W & W but we could not stop and search about the CLL and...

I have read some positive things about green tea extract to treat CLL so our Hem...

Sagarcanada

•4 years ago

3 Replies

blood results after 9 week fcr finished

hi all,,, went for my blood review today 9 week after cycle 6 fcr finished ,,wbc.106....plts 34.....HB.108.....neuts.0.5........ not to happy with these...

hi all,,, went for my blood review today 9 week after cycle 6 fcr finished ,,wbc...

kel555

•4 years ago

14 Replies

Diagnosed with CLL and ET

I was diagnosed with both CLL and ET in 2017. Looking for info on implications of having both. Still in “watch & wait” for my CLL and on hydroxyurea for the...

I was diagnosed with both CLL and ET in 2017. Looking for info on implications o...

Lambo1

•4 years ago

6 Replies

Excessive urination

I’ve been on calquence 2 months. Is excessive urination a side effect? Thank you!

I’ve been on calquence 2 months. Is excessive urination a side effect? Thank you...

Mackiec1108

•4 years ago

4 Replies

Ibrutinib after 6 years update

Hello, just like to make an update for Ibrutinib ,after 6 years taking 280mg/2 pills In the beginning some little problems for 2 month,like burning red...

Hello, just like to make an update for Ibrutinib ,after 6 years taking 280mg/2 p...

guyhighlander

•4 years ago

7 Replies

I feel like the three-breasted woman in the original Total Recall-I watched it yesterday.

After receiving my second Pfizer vaccine my lymph nodes in my armpit are the size of a grapefruit or at least a half of one. I understand this is not uncommon,...

After receiving my second Pfizer vaccine my lymph nodes in my armpit are the siz...

StobiMan

•4 years ago

18 Replies

CLL and Peripheral Neuropathy

Has anyone with on this group been diagnosed with Peripheral Neuropathy? I’m in agony & my dr is going to refer me to a Neurologist . She was curious to know...

Has anyone with on this group been diagnosed with Peripheral Neuropathy? I’m in ...

Emerfly

•4 years ago

18 Replies

ZOE COVID Symptom Study - Webinar on COVID vaccines and the immune system

An hour-long webinar recently concluded, with a panel of three experts, now available on youtube https://www.youtube.com/watch?v=JoCDpIKBhCY Highlights from UK...

An hour-long webinar recently concluded, with a panel of three experts, now avai...

bennevisplace

•4 years ago

2 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for March 2021

Starting V & O combination therapy

Interpretation of blood test

Confused about antibody resting

CLL FISH tests results

validation of articles critical of COVID-19 vaccine

spinach kake

Update! CLL Society's Official Statement concerning the COVID-19 vaccines, includes the Feb. 27th FDA authorization of the J&J vaccine

First Time Post: CLL in full relapse mode + vaccines and Calquence next line of defense.

Dealing with a cold

Ricther Transformation - Derek May has left us.

Possible Richter’s Transformation?

Phase 2 study of MRD driven time limited therapy with Zanubrutinib, Obintuzumab and Venetoclax (BOV) in untreated patients.

What do all these Vaccine Efficacy Numbers that they quote actually mean?

CLL , infected with COVID-19

CLL and red wine?

How to request test for chromosome 17p deletion, TP 53 mutation; unmutated immunoglobulin heavy chain variable region (IgHV) in Canada?

Britain is launching a study to examine whether patients with immunosuppressed conditions have a less effective immune response to Covid-19

This Pain...

HAPPY ST PIRAN'S DAY

Antibody testing post vaccine

Numbness, tingling in hands

ibrutinib it is expensive?

Does green tea extract (EGCG can) reduce WBC in CLL?

blood results after 9 week fcr finished

Diagnosed with CLL and ET

Excessive urination

Ibrutinib after 6 years update

I feel like the three-breasted woman in the original Total Recall-I watched it yesterday.

CLL and Peripheral Neuropathy

ZOE COVID Symptom Study - Webinar on COVID vaccines and the immune system

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