Posts - CLL Support | HealthUnlocked

CLL Support

22,865 members • 39,226 posts

All posts for July 2024

When We Have CLL, Why We Need Particularly need an Immunome. (Why neutrophil and immunoglobulin counts don't measure immunity all that well)

Given CLL compromises our immune system in many ways, https://healthunlocked.com/cllsupport/posts/685147/cll-a-cancer-of-the-immune-system this Ground Truths...

Given CLL compromises our immune system in many ways, https://healthunlocked.com...

AussieNeil

Administrator•7 hours ago

2 Replies

Blood work

I go for my 6 month blood work on Tuesday. Fingers crossed my counts are the same.

I go for my 6 month blood work on Tuesday. Fingers crossed my counts are the sam...

Letarosella1966

•12 hours ago

2 Replies

Sweats

I am 77 and was diagnosed in 2015. I am currently I'm remission, as far as I know however I have been having severe sweating again and not just at night but...

I am 77 and was diagnosed in 2015. I am currently I'm remission, as far as I kno...

BohemianFreddie

•13 hours ago

2 Replies

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when treatment ends

I would appreciate opinions folks. I finished V and O after one year in March of this year for CLL. I expected to feel well and less fatigued and painless....

I would appreciate opinions folks. I finished V and O after one year in March of...

Cottager1989

•19 hours ago

8 Replies

travel insurance - treatmeny

I have had watch and wait CLL for eight years but now move to treatment. I guess this is going to hugely affect my travel insurance. Can anyone give me a...

I have had watch and wait CLL for eight years but now move to treatment. I guess...

Ukuleleboy1

•21 hours ago

8 Replies

Low blood platelets count..

I just been diagnosed with CLL, very curious about natural treatment options. My WBC count is about 13000 and I have low blood platelets count, my main...

I just been diagnosed with CLL, very curious about natural treatment options. M...

Comantin

•1 day ago

16 Replies

Calquence & Paxlovid?

Well it was bound to happen - couldn't avoid covid forever! I am on acalabrutinib and being told I should get Paxlovid intravenously to avoid interupting...

Well it was bound to happen - couldn't avoid covid forever! I am on acalabrutini...

Amberesque

•2 days ago

10 Replies

pics that stir my mush

the moon coming out at the end of a hike

skipro

•2 days ago

5 Replies

more pics

Beautifully delicate wildflowers in a mountain meadow

skipro

•2 days ago

5 Replies

Pics of The Beautiful things that restore me

a sunset after a hike

skipro

•2 days ago

7 Replies

Finding joy and peace in God and His beautiful creations

I know I'm preaching to the choir yet it's nice to have a listening understanding ear. Just had my 16th and 17th malignant skin cancer removed since receiving...

I know I'm preaching to the choir yet it's nice to have a listening understandin...

skipro

•2 days ago

26 Replies

Continued Journey

I am home. I was released on Tuesday day+19. Yes, this is a significant earlier leave of hospital care than expected. The last day was busier than expected. I...

I am home. I was released on Tuesday day+19. Yes, this is a significant earlier ...

FiArt12X

•3 days ago

9 Replies

mouth ulcer

Any pointers please as I have one on the inside of my gum that my tongue keeps catching. Tried salt water no luck any suggestions as it's getting to me now....

Any pointers please as I have one on the inside of my gum that my tongue keeps c...

TheFlyer

•3 days ago

22 Replies

Just got COVID Vaccination #10.

With the rapid rise of FLiRT making it's way across the Country (U. S.), It seemed a good time to get another. I'm trying to keep it a tri-annual occurrence....

With the rapid rise of FLiRT making it's way across the Country (U. S.), It seem...

Spark_Plug

•3 days ago

6 Replies

Covid

I have Covid, and wondered if I should still take my Venetoclax

flippingnora1

•3 days ago

8 Replies

Update.

Apologies for the silence. I have had quite an eventful few months. My former partner served me with a court order to sell the house which threw me somewhat....

Apologies for the silence. I have had quite an eventful few months. My former pa...

Jacksc06

•3 days ago

60 Replies

Allograft

Just wanted to know if anyone knew anything about Allograft. My husband has just finished 2 yrs on ventaclax, all blood's good, and we expected to just go away...

Just wanted to know if anyone knew anything about Allograft. My husband has just...

sue6741

•3 days ago

9 Replies

1 week ZANU done!

Hey! Just completed my first week of ZANU. Doing well. Some side effects but very manageable. Nauseous, diarrhea, dizziness, tingling lips. Zofran is helps...

Hey! Just completed my first week of ZANU. Doing well. Some side effects but ve...

Nana1961

•5 days ago

7 Replies

Obinutuzumab early update blow me down

Hi All Started this on the 9th. 100ml then remainder on the 10th July. No reactions at all bloods taken on the 9th after trial infusion showed slight...

Hi All Started this on the 9th. 100ml then remainder on the 10th July. No rea...

TheFlyer

•6 days ago

9 Replies

Blood test results are stable

Hello CLL Fellows, Caretakers, and Specialists, Before seeing Dr. Chen for a follow-up session at Princess Margaret Cancer Hospital in Toronto, my wife...

Hello CLL Fellows, Caretakers, and Specialists, Before seeing Dr. Chen for a f...

Sagarcanada

•7 days ago

7 Replies

raised lymphocytes

suddenly my lymphocytes have jumped. the doctors are searching for infection.

FranceMary

•8 days ago

10 Replies

Lions Mane, seamoss and shilajin

I've recently been taking lions mane (helps me be more alert) and have read about the health benefits of the other 2, shilajin and seamoss. The last 2 talk of...

I've recently been taking lions mane (helps me be more alert) and have read abou...

Research123

•8 days ago

10 Replies

Living with CLL

I was diagnosed in Dec of 2023 with CLL. It shocked me to the core. So many things ran through my head after hearing this news. Thankfully I have a great...

I was diagnosed in Dec of 2023 with CLL. It shocked me to the core. So many thin...

Letarosella1966

•9 days ago

13 Replies

Vitamin D & Calcium Supplements - current advice from Canadian Doctors.

Hello All, I thought this was worth passing on. I recently received the same advice from my family Doctor and CLL Specialist. "Make sure you take a vitamin...

Hello All, I thought this was worth passing on. I recently received the same ...

PoisonDwarf

•10 days ago

24 Replies

Pneumonia vaccines

hello all My question is about the Pneumovax-23 and Prevnar 13. I got the Prevnar 13 in 2015 The Pneumovax-23 in 2015 as well. Is it time to get these...

hello all My question is about the Pneumovax-23 and Prevnar 13. I got the Prev...

Mother1943

•10 days ago

11 Replies

Dizziness and Acalabrutinib

Dizziness is listed as a very common side effect of Acal. I have had dizziness since day 1 of Acal treatment more than 5 weeks ago. I find it debilitating. Has...

Dizziness is listed as a very common side effect of Acal. I have had dizziness s...

Fogey

•10 days ago

31 Replies

Median PFS for FCR treated CLL patients with IGHV-M was 14.6 years vs 4.2 years for patients with IGHV-UM. V+O and I+R look to be superior

An update of the long-term follow-up results from the original 300-patient FCR (fludarabine, cyclophosphamide, and rituximab) study initiated at MD Anderson in...

An update of the long-term follow-up results from the original 300-patient FCR (...

AussieNeil

Administrator•11 days ago

24 Replies

Mrs Diana

I live in the UK I don’t have CLL but have a family member with this condition. We are all different but my therapist once said to me we all need lifeboats in...

I live in the UK I don’t have CLL but have a family member with this condition. ...

Oxygenlover

•11 days ago

13 Replies

Ibruvica: Is There A Charity or Support Group That Collect

I was diagnosed with CLL 4 years ago and prescribed Ibruvica (Ibrutinib). It’s a great drug with few side effects. But it is very expensive, like around...

I was diagnosed with CLL 4 years ago and prescribed Ibruvica (Ibrutinib). It’s a...

DylanPxxx

•11 days ago

10 Replies

UK winter flu vaccines, booking available

Boots are now taking bookings for the UK winter flu vaccines.

fapumpkin

•11 days ago

7 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for July 2024

When We Have CLL, Why We Need Particularly need an Immunome. (Why neutrophil and immunoglobulin counts don't measure immunity all that well)

Blood work

Sweats

when treatment ends

travel insurance - treatmeny

Low blood platelets count..

Calquence & Paxlovid?

pics that stir my mush

more pics

Pics of The Beautiful things that restore me

Finding joy and peace in God and His beautiful creations

Continued Journey

mouth ulcer

Just got COVID Vaccination #10.

Covid

Update.

Allograft

1 week ZANU done!

Obinutuzumab early update blow me down

Blood test results are stable

raised lymphocytes

Lions Mane, seamoss and shilajin

Living with CLL

Vitamin D & Calcium Supplements - current advice from Canadian Doctors.

Pneumonia vaccines

Dizziness and Acalabrutinib

Median PFS for FCR treated CLL patients with IGHV-M was 14.6 years vs 4.2 years for patients with IGHV-UM. V+O and I+R look to be superior

Mrs Diana

Ibruvica: Is There A Charity or Support Group That Collect

UK winter flu vaccines, booking available

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