Posts - CLL Support | HealthUnlocked

CLL Support

23,337 members•40,046 posts

All posts for November 2017

Road to a BMT... oops just got there (Day+14)

Hello all, GREAT NEWS! The Dr. just confirmed that engraftment began - Mark's neutrophils jumped from .06 to 1.12 overnight.....this BIG jump confirms...

Hello all, GREAT NEWS! The Dr. just confirmed that engraftment began - Mark's n...

NMMP

•7 years ago

18 Replies

CLL bone marrow

how many folks here with CLL have had a bone marrow biopsie?

Hidden

•7 years ago

69 Replies

Apparently time for treatment

Two years ago I was so angry and confused. I had no ideal there were so many others experiencing CLL. I started to read all the post and would wake during the...

Two years ago I was so angry and confused. I had no ideal there were so many oth...

Sallyurnotal

•7 years ago

3 Replies

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FCR Cycle one

Had cycle 1 FCR - was a little rough but come time for 2nd cycle my BW is normal why continue

Had cycle 1 FCR - was a little rough but come time for 2nd cycle my BW is normal...

Mathild

•7 years ago

2 Replies

CLL Specialist

Can someone give me the name of a CLL specialist in San Diego, CA? I will visiting January through March. I thought it might be an opportunity for a second...

Can someone give me the name of a CLL specialist in San Diego, CA? I will visiti...

migirlusa

•7 years ago

14 Replies

CLL

Will be 44 next month and was recently diagnosed with CLL. I went to the doctor for something completely different, and then I received the shocking news. I...

Will be 44 next month and was recently diagnosed with CLL. I went to the doctor ...

Becky-43

•7 years ago

16 Replies

My IgG value is at 1440...is there any reason to believe that these antibodies may not be perfectly functioning antibodies due to CLL?

Today I reviewed a recent video interview with Dr. Keating. I may have mistakenly interpreted the discussion as it pertained to IgG antibodies,but i thought...

Today I reviewed a recent video interview with Dr. Keating. I may have mistaken...

jettyguy1

•7 years ago

3 Replies

New diagnosis

My Dr originally called me last week and said test showed cll. Had appointment today and he said it was pre cll. B cell monoclonal lymphocytoses. He said my...

My Dr originally called me last week and said test showed cll. Had appointment t...

Jbuckner-75

•7 years ago

3 Replies

cll recently diagnosed

Saw an ENT today for enlarged 4+ tonsils. was on watch, but after ENT talked with Hematologist he wants me to start treatment to reduce the tonsils. Has...

Saw an ENT today for enlarged 4+ tonsils. was on watch, but after ENT talked wi...

lindalou5

•7 years ago

5 Replies

Imbruvica

Hi everyone...I've had CLL since 2008. Had my first treatments 2012. Just started on this oral treatment today. I'm curious if you've been on it how many mg...

Hi everyone...I've had CLL since 2008. Had my first treatments 2012. Just starte...

Susanjustice62

•7 years ago

23 Replies

Support

Partner has CLL. just starting to progress but unlikely to tolerate treatment as multiple other health issues. Very scared of what is going to happen. 2 weeks...

Partner has CLL. just starting to progress but unlikely to tolerate treatment as...

Rosie_k

•7 years ago

2 Replies

Does CLL run in families

My mother was 66 when she was diagnosed with Lupus. She was 87 when she died. About a year before she died she was diagnosed with CLL. Approximately 5 years...

My mother was 66 when she was diagnosed with Lupus. She was 87 when she died. ...

Ladydi49

•7 years ago

18 Replies

Cramps be gone

I have the same problem of debilitating spasms. I found the cure by accident . I figured spasms can be connected to electrlytes so I took some Potassium pills...

I have the same problem of debilitating spasms. I found the cure by accident . ...

Radiolab

•7 years ago

9 Replies

FCR + Ibrutinib trial

This is a wonderful community and I thank everyone who responded to my previos post with an opinion or just a message of support. I have the opportunity to...

This is a wonderful community and I thank everyone who responded to my previos p...

Haesl

•7 years ago

16 Replies

Reaction to Prevnar 13 and Nurse Practioners

I received the Prevnar 13 vaccination last Tuesday in my right deltoid muscle. The area was very sore for several days, which was unlike the other pneumonia...

I received the Prevnar 13 vaccination last Tuesday in my right deltoid muscle. ...

DaleFL

•7 years ago

20 Replies

Husband with CLL in Rituximab Therapy

Hello my name is Aylin. I'm new in the group. We live in Turkey so please forgive me when I make errors in my English :) My husband was diagnosed in 2012 with...

Hello my name is Aylin. I'm new in the group. We live in Turkey so please forgiv...

aylinozel

•7 years ago

20 Replies

Platelets down

Stomach pain..is cause of platelets down...(1 37 )

Prasad24

•7 years ago

2 Replies

Feeling better and looking better

Has anybody on ibrutinib for cll had cosmetic enhancements like Botox, facial fillers , ultherapy etc.. as age, disease and treatment continue, looking better...

Has anybody on ibrutinib for cll had cosmetic enhancements like Botox, facial f...

Rogerinhorn2015

•7 years ago

2 Replies

My WBC is 20.1 and Platelets is 437, is it normal ?

Did my blood count 10 days ago and the result for my WBC is 20.1 and Platelets is 437. Is my result normal ? My GP diagnosed that I had chest bacteria...

Did my blood count 10 days ago and the result for my WBC is 20.1 and Platelets i...

Hidden

•7 years ago

10 Replies

Road to a BMT... oops just got there (Day+10)

They did warn us that day 7-14 post transplant would be the worst and like clock work it has arrived. Mark’s immune system (neutrophils) are at .1 (normal...

They did warn us that day 7-14 post transplant would be the worst and like clock...

NMMP

•7 years ago

20 Replies

Lab numbers

I am newly diagnosed and just received a phone call to tel me my diagnosis. I go next week for dr appointment to go more into detail. My confusion is after...

I am newly diagnosed and just received a phone call to tel me my diagnosis. I go...

Jbuckner-75

•7 years ago

2 Replies

Patient Survey, Free 2nd Opinion and ASH

Hi, Hope for my American friends it was a great Thanksgiving. Mine was vegan and I still managed to overeat. If you haven’t already completed our patient...

Hi, Hope for my American friends it was a great Thanksgiving. Mine was vegan an...

bkoffman

CLL CURE Hero•7 years ago

18 Replies

CD38 POSITIVE AND ZAP -70 POSITIVE

New to this forum but not new to CLL as I was diagnosed in Sept of '07 and so far no treatment but rather watch and wait. I was recently reviewing my flow...

New to this forum but not new to CLL as I was diagnosed in Sept of '07 and so fa...

Ladydi49

•7 years ago

17 Replies

Update of Marty’s Idelasilib “Holiday.

Friendnew!s old & Well looking back at my “question” eight months ago and all those kind replies from many of you - I’m going to try and summarise my break,...

Friendnew!s old & Well looking back at my “question” eight months ago and all t...

MartyR

•7 years ago

5 Replies

Happy Thanksgiving!!

Thankful for this wonderful group, volenteers and members.

Naka

•7 years ago

2 Replies

Just diagnosed

I don't what to think. The doctor said my FISH test is negative; no chromosomal damage. He is proposing FCR early treatment to the hospital tumor board based...

I don't what to think. The doctor said my FISH test is negative; no chromosomal ...

TXteacher

•7 years ago

7 Replies

New to this

Hi I’m 42 and just received a diagnosis of cll last week. My dr called me with results and I have appointment on dec 5 so I really am just trying to figure...

Hi I’m 42 and just received a diagnosis of cll last week. My dr called me with r...

Jbuckner-75

•7 years ago

17 Replies

Major Concerns

Hello All My name is Alisha. I am having an issue with the back of my head about an inch from my left ear I have a huge painful knot, that has reappeared in a...

Hello All My name is Alisha. I am having an issue with the back of my head about...

akillough30

•7 years ago

8 Replies

Ibrutinib

Radiation from the drug ibrutinib does it harm the people I live with?

unun

•7 years ago

17 Replies

Fatigue on Venetoclax

Hello all, For those of you that have experienced fatigue on venetoclax, I’d appreciate some of your stories. Currently on day 5 of 100mg and have primarily...

Hello all, For those of you that have experienced fatigue on venetoclax, I’d ap...

Stevediam

•7 years ago

15 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for November 2017

Road to a BMT... oops just got there (Day+14)

CLL bone marrow

Apparently time for treatment

FCR Cycle one

CLL Specialist

CLL

My IgG value is at 1440...is there any reason to believe that these antibodies may not be perfectly functioning antibodies due to CLL?

New diagnosis

cll recently diagnosed

Imbruvica

Support

Does CLL run in families

Cramps be gone

FCR + Ibrutinib trial

Reaction to Prevnar 13 and Nurse Practioners

Husband with CLL in Rituximab Therapy

Platelets down

Feeling better and looking better

My WBC is 20.1 and Platelets is 437, is it normal ?

Road to a BMT... oops just got there (Day+10)

Lab numbers

Patient Survey, Free 2nd Opinion and ASH

CD38 POSITIVE AND ZAP -70 POSITIVE

Update of Marty’s Idelasilib “Holiday.

Happy Thanksgiving!!

Just diagnosed

New to this

Major Concerns

Ibrutinib

Fatigue on Venetoclax

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