Posts - CLL Support | HealthUnlocked

CLL Support

23,337 members•40,045 posts

All posts for September 2022

New to site

I am a 73 year old male diagnosed in 2020 with CLL. Oncologist at the time stated that I would die with the CLL rather than from it. Early this year I...

I am a 73 year old male diagnosed in 2020 with CLL. Oncologist at the time stat...

73wcll

•2 years ago

21 Replies

platelet counts

Hi everyone, after 4 years on W and W my platelet count is now 122 having hovered around normal up til now. Just wondered if it can go up again( without...

Hi everyone, after 4 years on W and W my platelet count is now 122 having hov...

puppy43

•2 years ago

13 Replies

Gazyva/Obinutuzumab treatment

Hi everyone , has anyone reached uMRD by using only Gazyva/Obinutuzumab as a mono treatment ? thanks james

Hi everyone , has anyone reached uMRD by using only Gazyva/Obinutuzumab as a mo...

craterlake

•2 years ago

22 Replies

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Calquence Bleeding?

Has anyone had bleeding on Calquence? My platelets recently (a week ago) were 275 — up from before (~200), but I take papaya leaf extract. I have petechiae on...

Has anyone had bleeding on Calquence? My platelets recently (a week ago) were 27...

schmooth97

•2 years ago

16 Replies

CLL and Problems with Teeth and Gums

It has been a while since I posted anything as I have been going through some major dental issues, but I wanted to post this so that others might have a chance...

It has been a while since I posted anything as I have been going through some ma...

Dodger47

•2 years ago

7 Replies

How long rapid test positive after covid?

Wonder if this could help others, I know it can help me. Still testing positive on rapid test, 55 days after getting covid. Got bebtelovimab day one, off...

Wonder if this could help others, I know it can help me. Still testing posit...

Davidcara

•2 years ago

18 Replies

Temperature sensitive medication research

Hello, We are Nicky and Felina, two Industrial Design Engineering students from the Netherlands. We are currently working with Meds2go to research home...

Hello, We are Nicky and Felina, two Industrial Design Engineering students fr...

Meds2Go

•2 years ago

1 Reply

Jaw Pain

When nodes build on the jaw, is it painful and sometimes warm after touching?

Wishing1202

•2 years ago

4 Replies

Is anyone with cll on daily total 140mg ibrutinib & what are your concerns?

I presently take 240mg total ibrutinib daily for past 3 years & my doctor is considering lowering it to 140mg daily? Is anyone here with cll on just a daily...

I presently take 240mg total ibrutinib daily for past 3 years & my doctor is c...

Bobsterguy

•2 years ago

21 Replies

Imbruvica

I would like to know more about treating CLL patients with Imbruvica. Someone out there currently taking it, for how long, and what side effects are you...

I would like to know more about treating CLL patients with Imbruvica. Someone ou...

DesertRat6

•2 years ago

18 Replies

Monocytosis?

Hey folks, I searched but saw no other posts on this. Yesterday had my 6 month check up, new doc, didn't review tests with me but summarized. This morning I...

Hey folks, I searched but saw no other posts on this. Yesterday had my 6 month ...

Vlaminck

•2 years ago

15 Replies

When to have and preparations for your blood test

I am sure this has been discussed before. I have my six month blood test next week for my CLL. It has never been suggested that it should be a fasting one,...

I am sure this has been discussed before. I have my six month blood test next w...

Adlucy

•2 years ago

11 Replies

Enlarged Spleen

Has anyone who has an enlarged spleen been told to change their diet? I have been researching and what i have read says to avoid red meat, dairy, ice cream...

Has anyone who has an enlarged spleen been told to change their diet? I have be...

Westie11-

•2 years ago

36 Replies

Had a blood test at GP's, not for CLL

I was called to my GP's for a blood test related to my new heart medication. I also had an Echocardigram and a 24 hour monitoring tape. Surprise, surprise no...

I was called to my GP's for a blood test related to my new heart medication. I a...

kitchengardener2

•2 years ago

2 Replies

dog Kennel Cough vaccine UK

friends have just had their dog vaccinated for kennel cough and told to keep their dog away from people with their immunity compromised for six weeks. I...

friends have just had their dog vaccinated for kennel cough and told to keep the...

sailing1973

•2 years ago

24 Replies

Canada ends vaccine requirement for travellers.

As of Oct. 1, Canada no longer requires masks or or proof of vaccines on planes or trains. Unvaccinated persons entering Canada no longer need to be...

As of Oct. 1, Canada no longer requires masks or or proof of vaccines on planes ...

onu1tadi2

•2 years ago

19 Replies

massive fatigue with ventoclax

My husband’s specialist told him that fatigue is a side effect of his venetoclax medication, he is still ramping up, will get to 200 mg next week. Two hour...

My husband’s specialist told him that fatigue is a side effect of his venetoclax...

lisakc1

•2 years ago

17 Replies

Omicron vs Evusheld

has anyone got both the Omicron vaccine and Evusheld and which came first and how long in between

has anyone got both the Omicron vaccine and Evusheld and which came first and...

Imalpn

•2 years ago

6 Replies

cold virus and CLL

I have just finished my first month taking Imbruvica. It has been a bit bumpy, but I am okay. My husband has been away for a week and is coming home today....

I have just finished my first month taking Imbruvica. It has been a bit bumpy, b...

DogmomLM

•2 years ago

14 Replies

Omicron

Evusheld vax vs Omicron vax? Which is better in terms of how long antibodies last?

Evusheld vax vs Omicron vax? Which is better in terms of how long antibodies la...

Imalpn

•2 years ago

6 Replies

Omicron Vaccine

has anybody received the Omicron vaccine and if so what was your experience?

Imalpn

•2 years ago

17 Replies

Bad numbness n tingling with feet - cll - imbruvica cause ?

I have numbness n tingling all the time on my toes n feet. I feels like I have socks on all the time and walking on marbles - this has been going on for at...

I have numbness n tingling all the time on my toes n feet. I feels like I have s...

Dmdtennis

•2 years ago

44 Replies

Different ALC numbers

So today I went for a pre admission appointment for my knee replacement. Had to have a CBC for that and my Gp had also ordered one . So they were both done on...

So today I went for a pre admission appointment for my knee replacement. Had to ...

Kiwidi

•2 years ago

16 Replies

4 years on Ibrutinib and now seeing elevated BP

Hi all, As per title I've been on Ibrutinib for a little over 4 years (reduced dose of 140mg/day last 37 months), no major side effects and bloods all...

Hi all, As per title I've been on Ibrutinib for a little over 4 years (reduced...

Redlion

•2 years ago

12 Replies

Trying to recover from Covid

Hello All, Have not posted for a while. I'm on Calquence 1 a day 100 mg Bloodwork is acceptable. Recovering from Covid after not being able to have...

Hello All, Have not posted for a while. I'm on Calquence 1 a day 100 mg Blood...

Traudel

•2 years ago

9 Replies

What are the Symptoms of High Lymphocytes

What are the Symptoms of High Lymphocytes https://patientpower.info/symptoms-of-high-lymphocytes/ - What Is Lymphocytosis in Chronic Lymphocytic Leukemia...

What are the Symptoms of High Lymphocytes https://patientpower.info/symptoms-o...

lankisterguy

Volunteer•2 years ago

3 Replies

UK Webinar 6.30pm BST Monday 26th September - COVID -19 update, where we are today and what is in place to help protect me this winter?

This webinar is hosted by Leukaemia Care to inform leukaemia patients and their families on COVID-19 recommendations and available strategies to aid navigating...

This webinar is hosted by Leukaemia Care to inform leukaemia patients and their ...

HAIRBEAR_UK

Founder Admin•2 years ago

2 Replies

flu spray for children

Hi all, My 2 year old granddaughter is having the nasal flu spray. I was wondering if it’s safe to be around her?

Hi all, My 2 year old granddaughter is having the nasal flu spray. I was wonderi...

Pekingese

•2 years ago

8 Replies

PAUSING VENETOCLAX

Hi Everyone, I have not been active on Healthunlocked for the silliest of reasons; at one point I got a new cell phone and was unable to remember my password...

Hi Everyone, I have not been active on Healthunlocked for the silliest of reaso...

Que-sera-sera

•2 years ago

22 Replies

NCCN Provides Major Update to COVID-19 Vaccination Recommendations

The National Comprehensive Cancer Network (NCCN) is a not-for-profit alliance of 32 leading cancer centers devoted to patient care, research, and education in...

The National Comprehensive Cancer Network (NCCN) is a not-for-profit alliance of...

bennevisplace

•2 years ago

10 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for September 2022

New to site

platelet counts

Gazyva/Obinutuzumab treatment

Calquence Bleeding?

CLL and Problems with Teeth and Gums

How long rapid test positive after covid?

Temperature sensitive medication research

Jaw Pain

Is anyone with cll on daily total 140mg ibrutinib & what are your concerns?

Imbruvica

Monocytosis?

When to have and preparations for your blood test

Enlarged Spleen

Had a blood test at GP's, not for CLL

dog Kennel Cough vaccine UK

Canada ends vaccine requirement for travellers.

massive fatigue with ventoclax

Omicron vs Evusheld

cold virus and CLL

Omicron

Omicron Vaccine

Bad numbness n tingling with feet - cll - imbruvica cause ?

Different ALC numbers

4 years on Ibrutinib and now seeing elevated BP

Trying to recover from Covid

What are the Symptoms of High Lymphocytes

UK Webinar 6.30pm BST Monday 26th September - COVID -19 update, where we are today and what is in place to help protect me this winter?

flu spray for children

PAUSING VENETOCLAX

NCCN Provides Major Update to COVID-19 Vaccination Recommendations

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