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CLL Support

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All posts for March 2021

cll and the moderna vaccine

Today I was supposed to be vaccinated with astrazeneca, but the doctor who conducted the pre-vaccination examination changed my vaccine to moderna, because he...

Today I was supposed to be vaccinated with astrazeneca, but the doctor who condu...

BART4

•4 years ago

56 Replies

Ibrutinib and Anti-Inflammatory Medications

Wondering what is recommended for muscle type pain inflammation. Used to use ibuprofen, but no longer due to ibrutinib. Any recommendations will be checked...

Wondering what is recommended for muscle type pain inflammation. Used to use ibu...

Davidcara

•4 years ago

16 Replies

Financial support for drugs.

Financial support for drugs. I read a very good response on this topic as part of a response to a post. I thought I tagged it but for the life of me can no...

Financial support for drugs. I read a very good response on this topic as part o...

Hidden

•4 years ago

1 Reply

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Medicinal mushrooms

Medicinal mushrooms, eg eg reishi, shitaki, turkey tail, maitaki and others have been used for hundreds of years in Japan and Asia for lung disease and cancer....

Medicinal mushrooms, eg eg reishi, shitaki, turkey tail, maitaki and others have...

CLLrochdale66

•4 years ago

11 Replies

13Q Deletion and ATM Mutation

Hi All, While I wait for my appointment to see a specialist at Dana Farber (June 1) and have only been seen by a local to me Hematologist ( Diagnosed in...

Hi All, While I wait for my appointment to see a specialist at Dana Farber (June...

controlsct

•4 years ago

15 Replies

Vaccines and CLL/SLL plus

Can people with CLL and an active SLL but also with other chronic conditions like Mast Cell activation syndrome,CFS and Hashimoto take the Pfizer vaccine,...

Can people with CLL and an active SLL but also with other chronic conditions lik...

CarmenLuisa

•4 years ago

4 Replies

Beta Glucan interactions with cancer drugs

Can the Beta Glucans and AHCC be taken along with Calquence or Acalabrutinib?

CarmenLuisa

•4 years ago

1 Reply

BENDECA AND RITUXIN COUGH

After one B&R treatment I developed a tinkling cough, especially when attempting to speak. Question: has anyone found themselves in a similar situation and...

After one B&R treatment I developed a tinkling cough, especially when attempting...

Whalexx

•4 years ago

4 Replies

Vaccination, immune response, shielding: important webinar for CLL patients

There's a lot packed into this webinar, including expert opinion on the recently published interim results from the SOAP study. Recommended....

There's a lot packed into this webinar, including expert opinion on the recently...

bennevisplace

•4 years ago

1 Reply

COVID ANTIBODY TEST UPDATE

Here is a follow up from my post from last evening. DiaSorin Liaison SARS CoV-2 S1/S2 IgG assay. There are no numerical values with this test, just a positive...

Here is a follow up from my post from last evening. DiaSorin Liaison SARS CoV-2 ...

steve5441

•4 years ago

12 Replies

Watch & Wait versus the risk of Richter’s

I am newly diagnosed. No “B symptoms”. I have probably had this for a few years already given that my lymphocytes have been sufficiently high to “qualify”. So...

I am newly diagnosed. No “B symptoms”. I have probably had this for a few years ...

Luap001

•4 years ago

15 Replies

White count increasing

Have been taking Calquence for 2 weeks. Bloodwork yesterday showed White cell count has doubled. My Dr who I trust explicitly told me this is not uncommon...

Have been taking Calquence for 2 weeks. Bloodwork yesterday showed White cell c...

Hidden

•4 years ago

12 Replies

First month on Acalabrutinib and numbers are underwhelming.

I just had my first month on Acalabrutinib and my first visit/blood work with oncologist. While the side effects so far have been minimal (headaches easily...

I just had my first month on Acalabrutinib and my first visit/blood work with on...

Vizilo

•4 years ago

8 Replies

VACCINE ANTIBOBY TEST STUDY

During my monthly office visit in early March, my Dr. asked if would get another blood test off site to determine whether I had developed sufficient...

During my monthly office visit in early March, my Dr. asked if would get anothe...

steve5441

•4 years ago

13 Replies

Does energy level improve with acalabrutnib?

Fatigue on acalabrutnib

Mackiec1108

•4 years ago

3 Replies

Rasburicase/Allopurinol

Hi, I am in the first week of ramp up of Venetoclax. I was hospitalized for 2 days for the first dose. I had Rasburicase IV, but I am not sure if I should...

Hi, I am in the first week of ramp up of Venetoclax. I was hospitalized for 2 d...

Hidden

•4 years ago

8 Replies

Blood work suddenly normal

Hello everyone, I was just diagnosed this Feb as stage 0 and on watch and wait. When I had my first follow up appointment with my Hematologist last week, the...

Hello everyone, I was just diagnosed this Feb as stage 0 and on watch and wait. ...

Can2021

•4 years ago

23 Replies

cll/ sepsis/check your prescriptions

well its been a while since I was on the site. I just had my first injection for c19 which sent my temp to 38.1. Only lasted a few hours. CLL, for myself...

well its been a while since I was on the site. I just had my first injection for...

Tonnross

•4 years ago

7 Replies

Imbruvica and arterial flutter

Has anyone experienced arterial flutter shortly after starting Imbruvica. If so how was it treated. I am 6 weeks on Imbruvica and experiencing arterial...

Has anyone experienced arterial flutter shortly after starting Imbruvica. If so...

Stoga

•4 years ago

2 Replies

Vaccination for covid-19 and Ibruvica use with a 90% tumor load

Is there anyone here with a 90% CLL tumor load and on Ibruvica that has had any of the vaccines for covid-19? What were your results?

Is there anyone here with a 90% CLL tumor load and on Ibruvica that has had any ...

Robgump

•4 years ago

7 Replies

Vaccine antibodies

Hi - is anyone in the UK aware of anywhere we can check (privately or otherwise) whether we have Covid vaccine resultant antibodies please?

Hi - is anyone in the UK aware of anywhere we can check (privately or otherwise)...

Ptcad

•4 years ago

9 Replies

HU Search posts facility.. How to find it..

When you are in the CLL Support community, you may want to search posts, but the search box is hiding!! There are useful pinned posts to the right.. however,...

When you are in the CLL Support community, you may want to search posts, but the...

Shedman

•4 years ago

1 Reply

Second chemo round

For my first chemo I did Rituxan and Bendeka and was in remission for 2 1/2 years. My last appointment my doc told me it is time to go back on chemo and...

For my first chemo I did Rituxan and Bendeka and was in remission for 2 1/2 year...

J-girl

•4 years ago

9 Replies

Compare your anti-SARS-CoV-2 Spike antibody results to those plotted in Figures 1 & 2.

Just for fun, I’ve extracted two figures from a paper reporting on levels of anti-SARS-CoV-2 antibodies to the Spike protein, to give you something to compare...

Just for fun, I’ve extracted two figures from a paper reporting on levels of ant...

gardening-girl

•4 years ago

24 Replies

Mr

Hi can anyone advise how and where to get pfizer jab , i was not really keen about vaccination when NHS first contacted me to have it , tkx in advance

Hi can anyone advise how and where to get pfizer jab , i was not really keen abo...

al444

•4 years ago

13 Replies

Teeth issues

Hi All. Its been a while since my last post but I do still check in to see what's occurring. I have a question that I hope someone will know something about so...

Hi All. Its been a while since my last post but I do still check in to see what'...

saintjohn

•4 years ago

8 Replies

UK booster vaccination planned for September

The over 70s and clinically extremely vulnerable are expected to be eligible for a booster vaccination against Covid19 including new variants...

The over 70s and clinically extremely vulnerable are expected to be eligible for...

bennevisplace

•4 years ago

1 Reply

Pfizer Vaccine Induces Immune Structures Key to Lasting Immunity

https://www.the-scientist.com/news-opinion/pfizer-vaccine-induces-immune-structures-key-to-lasting-immunity--68594? Sorry that went miles above my head -...

https://www.the-scientist.com/news-opinion/pfizer-vaccine-induces-immune-structu...

zaax

•4 years ago

2 Replies

Cost of CLL Drugs in the USA

Why is the cost of drugs such as Imbruvica and Calquence so high in the USA under Medicare? With most Part D insurance, the copay is still 25%. Has anyone...

Why is the cost of drugs such as Imbruvica and Calquence so high in the USA unde...

whmk

•4 years ago

46 Replies

Hi all, have any of my CLL friends had their second AstraVeneca vaccine 7 weeks after the first one?

I have heard on the news that we Cll people should have the vaccine close together to get more protection, I have been in touch today with my hematologist’s...

I have heard on the news that we Cll people should have the vaccine close togeth...

Pekingese

•4 years ago

20 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for March 2021

cll and the moderna vaccine

Ibrutinib and Anti-Inflammatory Medications

Financial support for drugs.

Medicinal mushrooms

13Q Deletion and ATM Mutation

Vaccines and CLL/SLL plus

Beta Glucan interactions with cancer drugs

BENDECA AND RITUXIN COUGH

Vaccination, immune response, shielding: important webinar for CLL patients

COVID ANTIBODY TEST UPDATE

Watch & Wait versus the risk of Richter’s

White count increasing

First month on Acalabrutinib and numbers are underwhelming.

VACCINE ANTIBOBY TEST STUDY

Does energy level improve with acalabrutnib?

Rasburicase/Allopurinol

Blood work suddenly normal

cll/ sepsis/check your prescriptions

Imbruvica and arterial flutter

Vaccination for covid-19 and Ibruvica use with a 90% tumor load

Vaccine antibodies

HU Search posts facility.. How to find it..

Second chemo round

Compare your anti-SARS-CoV-2 Spike antibody results to those plotted in Figures 1 & 2.

Mr

Teeth issues

UK booster vaccination planned for September

Pfizer Vaccine Induces Immune Structures Key to Lasting Immunity

Cost of CLL Drugs in the USA

Hi all, have any of my CLL friends had their second AstraVeneca vaccine 7 weeks after the first one?

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