Posts - CLL Support | HealthUnlocked

Not CLL specific, but we can hope that it might one day happen! I know many of us that have been caught up in the hospital silo system would greatly welcome...

What can happen when you change 100 year old hospital systems

Not CLL specific, but we can hope that it might one day happen! I know many o...

Administrator•10 years ago

Tina Cockburn, Associate Professor, Australian Centre for Health Law Research at Queensland University of Technology, Australia and Bill Madden Adjunct...

Want to take advantage of all our features? Just log in!

Do we need a law to help people try experimental drugs?

Tina Cockburn, Associate Professor, Australian Centre for Health Law Research a...

Administrator•10 years ago

I have just read and enjoyed Stunned's latest reply to a post. However, with this new layout for "Newsfeed", I didn't notice it earlier today, when I...

How can we notice replies to posts (if they are not the most recent reply)?

I have just read and enjoyed Stunned's latest reply to a post. However, with t...

PaulaS

Volunteer•10 years ago

9 Replies

Ibrutinib and flu jab

My husband is about to commence Ibrutinib, reading the leaflet enclosed in the tablet box is a warning about flu jab/vaccines whilst taking it, anybody got any...

My husband is about to commence Ibrutinib, reading the leaflet enclosed in the t...

lartington

•10 years ago

My father has had CLL for 17 years and has been through a couple of rounds of treatment with good results. He was recently also diagnosed with Merkel Cell...

CLL and Merkel Cell

My father has had CLL for 17 years and has been through a couple of rounds of tr...

notgivingup_2

•10 years ago

Hi Friends, The recent approval of ibrutinib for 17p deletion frontline hopefully is the opening wedge of more indications for treatment naive patients for it...

Approval of Imbruvica Frontline for 17p deleted CLL and Important Trials

Hi Friends, The recent approval of ibrutinib for 17p deletion frontline hopeful...

bkoffman

CLL CURE Hero•10 years ago

5 Replies

How to Stop Worrying and Start Living

I love this book by Dale Carnegie. I am sure there are lessons in this book for all of us to learn....

I love this book by Dale Carnegie. I am sure there are lessons in this book for...

shazie

•10 years ago

I have been on Imbruvica for two weeks and really not feeling much better. My spleen is so enlarged that I look 6-7 months pregnant, at 68! My last week labs...

CLL

I have been on Imbruvica for two weeks and really not feeling much better. My sp...

Healthyasahorse

•10 years ago

11 Replies

Fundraising UK

Hi all, I am fundraising for Leukaemia & Lymphoma research by zip lining across the River Clyde in Glasgow :) This is around my 7 year anniversary of...

Hi all, I am fundraising for Leukaemia & Lymphoma research by zip lining across ...

TinyTattooedToes

•10 years ago

6 Replies

CLL and Richter's Syndrome

I'm curious about the stats surrounding CLL 'morhping' into Richter's in 'younger' CLL patients. Would someone please point me in the right direction?...

I'm curious about the stats surrounding CLL 'morhping' into Richter's in 'younge...

peas50

•10 years ago

MOOCs are Massively Open Online Courses. They don't usually offer real college credit, but are taught at a college level, though entirely online. Often,...

Immunology MOOC started this week

MOOCs are Massively Open Online Courses. They don't usually offer real college c...

SeymourB

•10 years ago

Has anyone NOT noticed the new Newsfeed? HU explain how it works here: http://blog.healthunlocked.com/post/95283000398/test-drive-your-new-newsfeed-now-live...

New Newsfeed

Has anyone NOT noticed the new Newsfeed? HU explain how it works here: http://...

The new HealthUnlocked site interface makes it much easier to explore and if you wish, become a member of other HealthUnlocked communities. So much so, that...

Administrator•10 years ago

5 Replies

How to Join and Leave other HealthUnlocked Communities (updated)

The new HealthUnlocked site interface makes it much easier to explore and if you...

Administrator•10 years ago

As prognostic testing of CLL patient's is currently in the news. This brief CLLSA video of explanations from Dr George Follow's of Cambridge University...

Dr George Follows discusses testing and prognostics for CLL patients.

As prognostic testing of CLL patient's is currently in the news. This brief CLLS...

Founder Admin•10 years ago

Another informative article from Gerson Institute in San Diego, California. More and more people are beginning to realize that our health as individuals and...

The nutritional value of potatoes

Another informative article from Gerson Institute in San Diego, California. Mor...

shazie

•10 years ago

Just been sent this, and according to the BBC is just 8 hours old. Apologies if already posted elsewhere on the site:...

Cardiff University's cancer test 'breakthrough'

Just been sent this, and according to the BBC is just 8 hours old. Apologies if...

Spike27

•10 years ago

Following our visit to Cardiff University and Cardiff CLL research CLLSA are pleased to provide you the resulting discussions in Video. An introduction to...

New videos: An introduction to The Cardiff CLL Research Group and their breakthrough in CLL prognostic testing

Following our visit to Cardiff University and Cardiff CLL research CLLSA are ple...

Thank you to the 98 voters who have shared the reasons behind their passive level of engagement in this community. If you haven't yet responded and would like...

Founder Admin•10 years ago

2 Replies

Reminder - our poll on barriers to posting is still open

Thank you to the 98 voters who have shared the reasons behind their passive leve...

"The evidence is mounting to show that spending too much sitting at work, during your commute and for leisure increases your risk of diabetes, certain cancers,...

Administrator•10 years ago

6 Replies

Are you sitting comfortably?

"The evidence is mounting to show that spending too much sitting at work, during...

Has anyone had severe itching and it gets worse with warm or hot water when washing your hands?? It itches soooo bad I can't stand it!! If so what did you do...

Administrator•10 years ago

4 Replies

Severe Itching!!!!!

Has anyone had severe itching and it gets worse with warm or hot water when wash...

deanna2289

•10 years ago

17 Replies

Developments from Cardiff CLL Research and the latest on improving prognostic testing of CLL patients.

Last month Cardiff CLL published results from their study of telomeres that may significantly improve prognostic testing of CLL patients. This is the easy...

Last month Cardiff CLL published results from their study of telomeres that may ...

Friends Others have already beautifully commented on the untimely death of Robin Williams. Please see my extended reflections on how this tragedy might...

Founder Admin•10 years ago

4 Replies

The Death of Robin Williams: A Failure of Imagination and what it means to those of us with CLL and other Cancers

Friends Others have already beautifully commented on the untimely death of Robi...

bkoffman

CLL CURE Hero•10 years ago

I thought that this might have relevance to those of us in the future who may be discontinuing ibrutinib. This article was about another TKI imatinib, but it...

Musculosceletal pain even after TKI treatment

I thought that this might have relevance to those of us in the future who may be...

zevkalman

•10 years ago

Q&A 2 - Cambridge CLLSA meeting 2014. Latest treatments and clinical trials Following on from their talks on clinical trials and the new treatment landscape;...

Video of the afternoon patient/carer question and answer session at Cambridge CLLSA meeting 2014

Q&A 2 - Cambridge CLLSA meeting 2014. Latest treatments and clinical trials Fo...

Founder Admin•10 years ago

Q&A 1 - Cambridge CLLSA meeting 2014: CLL an overview Following on from their talks on chronic lymphocytic leukaemia (CLL) and clinical care; CLL consultant...

Video of the morning patient/carer question and answer session at Cambridge CLLSA meeting 2014

Q&A 1 - Cambridge CLLSA meeting 2014: CLL an overview Following on from their ...

Founder Admin•10 years ago

Because joint pain has been experienced by patients on Imbru/Ibru and others have not had this side effect, it is wise to explore all possible causes. I just...

Imbruvica/Ibrutinib joint pain side effects

Because joint pain has been experienced by patients on Imbru/Ibru and others hav...

ThreeWs

•10 years ago

12 Replies

Adverse drug effects; clinical trials and real life - What we can learn from Pradaxa

From the University of Sydney, Australia, Wendy Lipworth, Senior Research Fellow, Bioethics and Ian Kerridge, Associate Professor in Bioethics & Director,...

From the University of Sydney, Australia, Wendy Lipworth, Senior Research Fellow...

Administrator•10 years ago