Posts - CLL Support | HealthUnlocked

CLL Support

22,500 members • 38,645 posts

All posts for June 2016

Importance of Clinical Trials & knowledge

Greeting to All, Today 5 years ago I received my first 420mg dose of PCI-32765 at the James Cancer Hospital at OSU under the care of Dr. John Byrd. The Trial...

Greeting to All, Today 5 years ago I received my first 420mg dose of PCI-32765 ...

ThreeWs

•8 years ago

4 Replies

Ibrutinib/Imbruvica brings hope to stem cell transplant patients with chronic graft-versus-host-disease

'FDA granted a fourth Breakthrough Therapy Designation (BTD) for ibrutinib (IMBRUVICA®) as a potential treatment of chronic graft-versus-host-disease...

'FDA granted a fourth Breakthrough Therapy Designation (BTD) for ibrutinib (IMBR...

AussieNeil

Administrator•8 years ago

3 Replies

Newsletter with Dr. Jones on Venetoclax, Dr. Jacobs on the TAPUR trial, patient & caregivers articles, & a survey on what makes a CLL expert

Hi, I am happy to share that the Q2 2016 issue of The CLL Tribune has launched! You can read it here: http://www.cllsociety.org/newsletter/ It is much hard...

Hi, I am happy to share that the Q2 2016 issue of The CLL Tribune has launched! ...

bkoffman

CLL CURE Hero•8 years ago

2 Replies

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Travel Insurance

Hi anybody have any advice on travel insurance and which companies they have found sympathetic?

Hi anybody have any advice on travel insurance and which companies they have fou...

rich88

•8 years ago

9 Replies

Further testing needed?

I was diagnosed with CLL in August 2015, wait and watch. I was on mini vacation with my 21 year old son a few weeks ago and he turned his headed and I see a...

I was diagnosed with CLL in August 2015, wait and watch. I was on mini vacation ...

Jerseywish2011

•8 years ago

6 Replies

del17p CLL? Overall Survival and Progression-Free Survival Are Improved With Ibrutinib

Ibrutinib treatment for chronic lymphocytic leukemia with the deletion of chromosome 17p (del17p CLL) increases the percentage of patients alive at 30...

Ibrutinib treatment for chronic lymphocytic leukemia with the deletion of chromo...

AussieNeil

Administrator•8 years ago

7 Replies

The Flyer LEJOG Update

Monmouth to Clun - Wales to Shropshire - 55 miles - Flying solo as other cyclists have gone home - 312 miles completed an around 670 to go. Shorter route today...

Monmouth to Clun - Wales to Shropshire - 55 miles - Flying solo as other cyclist...

TheFlyer

•8 years ago

11 Replies

A little frustrated but happy too

Hi all Latest on my treatment of GAZYVA and Chlorambucil.After the turmoil of the first two rounds (Anaphylaxis and then sepsis) I thought things had settled...

Hi all Latest on my treatment of GAZYVA and Chlorambucil.After the turmoil of th...

saintjohn

•8 years ago

15 Replies

Changes I made since diagnosis

I switched to a plant-based, sugarless, vegan diet and my numbers did improve after a year. I also added green tea extract supplements. I am now on many...

I switched to a plant-based, sugarless, vegan diet and my numbers did improve af...

Carrot_Top

•8 years ago

25 Replies

Day 3 of OSU Trial

Hi, Just completing week 3. Last week, I was in really good shape. I had no loss of energy and felt like myself. The only negative is my rash got completely...

Hi, Just completing week 3. Last week, I was in really good shape. I had no los...

thompsonellen

•8 years ago

5 Replies

zydelig

I`m looking to hear from any one who is taking or has taken zydelig with or without rituxan and how`s it going 1st line treatment or more let me know those who...

I`m looking to hear from any one who is taking or has taken zydelig with or with...

greygirl

•8 years ago

33 Replies

Open communication is best when sharing news of your cancer with your teenage or young adult children

'Every year around 21,000 teenagers and young adults in Australia are told their parent has cancer. The need to care for their parents often disrupts these...

'Every year around 21,000 teenagers and young adults in Australia are told their...

AussieNeil

Administrator•8 years ago

5 Replies

Advise urgently needed to interpret "bloods"

Greetings friends, I am hoping someone can help me with some advise as I am very concerned about my recent bloods (collected today). I picked them up today and...

Greetings friends, I am hoping someone can help me with some advise as I am very...

OzzieNick

•8 years ago

10 Replies

RITCHERS TRANSFORMATION

if ritchers transformation confirmed how early the treatment should be given

lucky98

•8 years ago

34 Replies

LEJOG 2016 - Day 3

Morethighligenhampstead to Glastonbury - 71 miles Today is The Flyers birthday and he rewarded himself with climbing more tough hills with a total climb of...

Morethighligenhampstead to Glastonbury - 71 miles Today is The Flyers birthday a...

TheFlyer

•8 years ago

13 Replies

world on watch and wait

So now we are all on watch and wait. Maybe experienced CLL folk should form a government.

So now we are all on watch and wait. Maybe experienced CLL folk should form a go...

romarin

•8 years ago

7 Replies

Chemo done..scans tonight

I finished BR in May and the doctors at both OSU and Cleveland Clinic say I did "spectacular". My numbers are perfect. I'm having a full body scan today at...

I finished BR in May and the doctors at both OSU and Cleveland Clinic say I did ...

momof12

•8 years ago

5 Replies

How to find previously posted answers to your questions

With around 4,500 of our community membership of ~18,000 actively participating each month, there's a very high likelihood that members have already provided...

With around 4,500 of our community membership of ~18,000 actively participating ...

AussieNeil

Administrator•8 years ago

17 Replies

Good luck

Just wishing the Flyer good luck for his Lands End to John O'Groats ride. If you haven't already sponsored him there is still time. Hope the weather is kind to...

Just wishing the Flyer good luck for his Lands End to John O'Groats ride. If you...

tubbing

•8 years ago

1 Reply

1 Year Anniversary - Results!

Hi Family, Last Wednesday I had my next appointment which was my 1 year anniversary, sorry for the late post but from having my check up late Wednesday I was...

Hi Family, Last Wednesday I had my next appointment which was my 1 year annive...

Unknown-Unwanted

•8 years ago

8 Replies

A Cautionary Tale of ‘Stem Cell Tourism’

“Scientists and clinicians say, ‘Don’t do this,’ ” said Dr. Jaime Imitola, a neurologist and stem cell researcher at Ohio State University Wexner Medical...

“Scientists and clinicians say, ‘Don’t do this,’ ” said Dr. Jaime Imitola, a neu...

Cllcanada

Sex, maggots, castration and politicians lead to this year's Golden Goose Award - for a technique that could prevent Zika's spread

"Sometimes offbeat, quirky-sounding science is the best science, paving the way for discoveries years down the road which can revolutionize medicine,...

"Sometimes offbeat, quirky-sounding science is the best science, paving the way ...

AussieNeil

Administrator•8 years ago

4 Replies

Cyclophosphamide for the elderly

My elderly mother was recently diagnosed with CLL. At that time (beginning April 2016) the associated acute condition was haemolysis which had already reduced...

My elderly mother was recently diagnosed with CLL. At that time (beginning April...

nigeldodd

•8 years ago

1 Reply

Something New

Well this is new to me. I know my lymphoma is active, but I just started having chills and jerking my shoulders, and now my calf muscles are aching. My voice...

Well this is new to me. I know my lymphoma is active, but I just started having...

Shortcake2

•8 years ago

4 Replies

Week 2 at OSU Trial

Hi everyone, Today, I was back in Columbus for week 2, and the first full 1000 mg infusions of obinutuzumab. They only gave me 2 of the 5 "pre-medications"...

Hi everyone, Today, I was back in Columbus for week 2, and the first full 1000 m...

thompsonellen

•8 years ago

17 Replies

Will changes to Doctor Google reduce unnecessary anxiety and stress?

'Google wants to make it easier for users to find answers to their symptom-related questions. : In Google's official blog, the company said...

'Google wants to make it easier for users to find answers to their symptom-relat...

AussieNeil

Administrator•8 years ago

3 Replies

Why we regain weight after drastic dieting

Following our diagnosis of CLL, it's common for us to reassess our health and decide to improve our diet, lose weight, etc. Losing and keeping lost weight off...

Following our diagnosis of CLL, it's common for us to reassess our health and de...

AussieNeil

Administrator•8 years ago

Be the first to reply

Advice on vaccinations

Hi! I am newly diagnosed with CLL, on 6 monthly blood tests, on Watch and Wait and apart from occasional fatigue am doing OK. Before having any idea of my CLL...

Hi! I am newly diagnosed with CLL, on 6 monthly blood tests, on Watch and Wait a...

Saska-Jul31

•8 years ago

16 Replies

red cells low

Hi bit worried as i saw consultant yesterday and he said my red cell count is a bit low...i am taking an iron tablet every day and have been for a long time as...

Hi bit worried as i saw consultant yesterday and he said my red cell count is a ...

welshlady52

•8 years ago

21 Replies

Health Check: what is the common cold and how do we get it?

'The “common cold” is common. Most of us will have at least one or two per year. Children get sick more often and very young children often get more than...

'The “common cold” is common. Most of us will have at least one or two per year....

AussieNeil

Administrator•8 years ago

10 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for June 2016

Importance of Clinical Trials & knowledge

Ibrutinib/Imbruvica brings hope to stem cell transplant patients with chronic graft-versus-host-disease

Newsletter with Dr. Jones on Venetoclax, Dr. Jacobs on the TAPUR trial, patient & caregivers articles, & a survey on what makes a CLL expert

Travel Insurance

Further testing needed?

del17p CLL? Overall Survival and Progression-Free Survival Are Improved With Ibrutinib

The Flyer LEJOG Update

A little frustrated but happy too

Changes I made since diagnosis

Day 3 of OSU Trial

zydelig

Open communication is best when sharing news of your cancer with your teenage or young adult children

Advise urgently needed to interpret "bloods"

RITCHERS TRANSFORMATION

LEJOG 2016 - Day 3

world on watch and wait

Chemo done..scans tonight

How to find previously posted answers to your questions

Good luck

1 Year Anniversary - Results!

A Cautionary Tale of ‘Stem Cell Tourism’

Sex, maggots, castration and politicians lead to this year's Golden Goose Award - for a technique that could prevent Zika's spread

Cyclophosphamide for the elderly

Something New

Week 2 at OSU Trial

Will changes to Doctor Google reduce unnecessary anxiety and stress?

Why we regain weight after drastic dieting

Advice on vaccinations

red cells low

Health Check: what is the common cold and how do we get it?

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