Posts - CLL Support | HealthUnlocked

CLL Support

22,369 members38,477 posts

All posts for February 2019

Starting CLL Treatment in 3 weeks.

Doc feels good about the level of my CLal and wants to start Imbruitinib in 3 wo...
2016miniman profile image

Statins and Ibrutinib

My GP has advised that I should be taking statins, however the Ibrutinib patient...
RobertCLL profile image

What testing will they be doimg which ones what types ECT

Arizona Smith Cielo today and I have a ton of different tests scheduled for tomo...
Zacharylive1 profile image
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Just receive diagnosis searching for CLL specialist

Is there any online database to look up CLL specialist and their credentials. I ...
Zacharylive1 profile image

New blood work

WBC has dropped by 11000 from first bloodwork. Platelets have dropped too but I ...

Looking for CLL specialist in Denver, CO

Hi, so my hematologist has said I need to start chemo , undergoing lymph node bi...
jgamberg profile image

How to search for content on HealthUnlocked

Dear Community Members, HealthUnlocked has recently improved site search functi...
AussieNeil profile image
Administrator

Ct scan?

We saw the oncologist. She is doing a detailed blood test work up but she also o...

For Patients in USA - Drug Prices Are Outrageous, but There Is a Way to Reduce Them - from MedPage Today

A very thoughtful article that explains the regulatory mechanisms and marketing ...
cujoe profile image

Bone Density Scan (DXA)

Hi All! I am on W&W and my GP wants me to get a bone density scan as a general p...
Anastasia1 profile image

iPhone app: search, PMs and design improvements

HealthUnlocked Latest update from KatyHU. Sorry, no word on when an Android app...
AussieNeil profile image
Administrator

Stomach Discomfort / Feeling Cruddy ??

Does anyone get Stomach Discomfort from CLL , or just feeling malaise and crudd...
CouldBworse profile image

CG-806... starts the long trek..

Aptose Biosciences announced that it has submitted an Investigational New Drug (...
Cllcanada profile image
Top Poster CURE Hero

Even the Emergency Room Doctors deal with CLL/fatigue

This article is promising in that CLL is being discussed for Emergency Room diff...
cllady01 profile image
Former Volunteer

Ibrutinib & atrial fibrillation

After 5 months of trouble free ibrutinib (great relief from troublesome symptoms...
shostakovich profile image

venetoclax now listed on Australian PBS

New anti-cancer drug, venetoclax which has the power to ‘melt away’ advanced for...
HannahHugo profile image

Supporting my grandmother

Hello! My grandmother is 82 and was just diagnosed with marginal zone B cell ly...
Hidden profile image

Severe upper back pain

My wife has CLL & is in severe upper back pain & was wondering what it could be....
Momdds profile image

Impact of CT and pet scan on chemo drugs

I am under chemo immunotherapy of Bendsmustin and Rituximab. Finished 4 cycles ...
venk_46 profile image

Where Imbruvica (ibrutinib) is made

Wonder where Imbruvica (ibrutinib) is made in China? Take a 360deg virtual tou...
Cllcanada profile image
Top Poster CURE Hero

Standstill

I just don't feel good and pain here and there. And doctors make me feel it's in...
Tracylevi12 profile image

Standstill

Hello 48 and new to cll. Just found out 2 months. Feeling alot of pressure in n...
Tracylevi12 profile image

SLL treatment in Canada

I was diagnosed via node biopsy with SLL Aug 2018 and have been on W&W. My blood...
Jemorgen profile image

Lola

Has anyone heard from Lola? Concerned we haven’t seen a post from her.
Ginajetta profile image

CLL Tracker - Patient Data

In 2011 CLL Tracker www.clltracker.co.uk was introduced to share patient specifi...
RobertCLL profile image

New to Site Imbruvica & Rituxan how are they tolerated together.

I’m new to the site but not new to CLL. I was diagnosed in 2003 and was watch an...
Bobbietf profile image

Sleep disorder and CLL

Wondering if untreated sleep apnea is causing equal parts of fatigue with CLL. O...
Porter01 profile image

Co-trimoxazole dosage

I am on Ibrutinib and privagen and have been prescribed co-trimoxazole . What do...
Broadbent profile image

CLL specialist in Costa Rica?

We are contemplating a move to Costa Rica from the “great white north”. Because...
Kat2e profile image

Coming of Ibrutinib

Hi There, I have been on Ibrutinib for CLL for five years now, I have never felt...
john133 profile image