Posts - CLL Support | HealthUnlocked

CLL Support

23,337 members•40,046 posts

All posts for February 2019

Starting CLL Treatment in 3 weeks.

Doc feels good about the level of my CLal and wants to start Imbruitinib in 3 wooks. Also going to be taking an antibotic and another class of drug to help my...

Doc feels good about the level of my CLal and wants to start Imbruitinib in 3 wo...

2016miniman

•6 years ago

8 Replies

Statins and Ibrutinib

My GP has advised that I should be taking statins, however the Ibrutinib patient info states: The effects of IMBRUVICA or other medicines may be influenced if...

My GP has advised that I should be taking statins, however the Ibrutinib patient...

RobertCLL

•6 years ago

10 Replies

What testing will they be doimg which ones what types ECT

Arizona Smith Cielo today and I have a ton of different tests scheduled for tomorrow my PCP really didn't go into details of what they'd be doing to anyone...

Arizona Smith Cielo today and I have a ton of different tests scheduled for tomo...

Zacharylive1

•6 years ago

1 Reply

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Just receive diagnosis searching for CLL specialist

Is there any online database to look up CLL specialist and their credentials. I don't necessarily believe that my PCP in knowse the best place to send me and I...

Is there any online database to look up CLL specialist and their credentials. I ...

Zacharylive1

•6 years ago

6 Replies

New blood work

WBC has dropped by 11000 from first bloodwork. Platelets have dropped too but I think he needs more green leafy ... not extremely low but enough to be...

WBC has dropped by 11000 from first bloodwork. Platelets have dropped too but I ...

Floridagirl49

•6 years ago

7 Replies

Looking for CLL specialist in Denver, CO

Hi, so my hematologist has said I need to start chemo , undergoing lymph node biopsy tomorrow to make sure its CLL and not lymphoma since I was dx only on...

Hi, so my hematologist has said I need to start chemo , undergoing lymph node bi...

jgamberg

•6 years ago

7 Replies

How to search for content on HealthUnlocked

Dear Community Members, HealthUnlocked has recently improved site search functionality and the layout of the post and search pages. There are two major...

Dear Community Members, HealthUnlocked has recently improved site search functi...

AussieNeil

Administrator•6 years ago

2 Replies

Ct scan?

We saw the oncologist. She is doing a detailed blood test work up but she also ordered a Ct scan. The radiation makes me nervous and I’ve read that it...

We saw the oncologist. She is doing a detailed blood test work up but she also o...

Floridagirl49

•6 years ago

28 Replies

For Patients in USA - Drug Prices Are Outrageous, but There Is a Way to Reduce Them - from MedPage Today

A very thoughtful article that explains the regulatory mechanisms and marketing gimmicks that lead to the high drug prices in the US. As with most posts at...

A very thoughtful article that explains the regulatory mechanisms and marketing ...

cujoe

•6 years ago

12 Replies

Bone Density Scan (DXA)

Hi All! I am on W&W and my GP wants me to get a bone density scan as a general precaution for osteoporosis. Is there any reason why I shouldn’t get it based on...

Hi All! I am on W&W and my GP wants me to get a bone density scan as a general p...

Anastasia1

•6 years ago

12 Replies

iPhone app: search, PMs and design improvements

HealthUnlocked Latest update from KatyHU. Sorry, no word on when an Android app will be available. Feedback can be provided to HealthUnlocked via their...

HealthUnlocked Latest update from KatyHU. Sorry, no word on when an Android app...

AussieNeil

Administrator•6 years ago

2 Replies

Stomach Discomfort / Feeling Cruddy ??

Does anyone get Stomach Discomfort from CLL , or just feeling malaise and cruddy ? I am not on any treatments as of yet, and I was diagnosed recently, May...

Does anyone get Stomach Discomfort from CLL , or just feeling malaise and crudd...

CouldBworse

•6 years ago

22 Replies

CG-806... starts the long trek..

Aptose Biosciences announced that it has submitted an Investigational New Drug (IND) application for CG-806 to the U.S. Food and Drug Administration (FDA)...

Aptose Biosciences announced that it has submitted an Investigational New Drug (...

Cllcanada

Even the Emergency Room Doctors deal with CLL/fatigue

This article is promising in that CLL is being discussed for Emergency Room differentiation for investigation and referral,...

This article is promising in that CLL is being discussed for Emergency Room diff...

cllady01

Former Volunteer•6 years ago

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Ibrutinib & atrial fibrillation

After 5 months of trouble free ibrutinib (great relief from troublesome symptoms and reduction of nasty looking lumps, one of 8cm in my neck) I suddenly came...

After 5 months of trouble free ibrutinib (great relief from troublesome symptoms...

shostakovich

•6 years ago

5 Replies

venetoclax now listed on Australian PBS

New anti-cancer drug, venetoclax which has the power to ‘melt away’ advanced forms of chronic lymphocytic leukaemia (CLL) was granted approval by the...

New anti-cancer drug, venetoclax which has the power to ‘melt away’ advanced for...

HannahHugo

•6 years ago

2 Replies

Supporting my grandmother

Hello! My grandmother is 82 and was just diagnosed with marginal zone B cell lymphoma. She did not tolerate Rituxan so she is now taking Arzerra which, from...

Hello! My grandmother is 82 and was just diagnosed with marginal zone B cell ly...

Hidden

•6 years ago

2 Replies

Severe upper back pain

My wife has CLL & is in severe upper back pain & was wondering what it could be. We are at the hospital & they are checking her for kidney stones. There is...

My wife has CLL & is in severe upper back pain & was wondering what it could be....

Momdds

•6 years ago

4 Replies

Impact of CT and pet scan on chemo drugs

I am under chemo immunotherapy of Bendsmustin and Rituximab. Finished 4 cycles and next one due on 6th March. My doctor wants me to have whole body CT and...

I am under chemo immunotherapy of Bendsmustin and Rituximab. Finished 4 cycles ...

venk_46

•6 years ago

13 Replies

Where Imbruvica (ibrutinib) is made

Wonder where Imbruvica (ibrutinib) is made in China? Take a 360deg virtual tour or watch their promo video......

Wonder where Imbruvica (ibrutinib) is made in China? Take a 360deg virtual tou...

Cllcanada

Standstill

I just don't feel good and pain here and there. And doctors make me feel it's in my head and I assure you I feel the hurt. I'm just so frustrated.

I just don't feel good and pain here and there. And doctors make me feel it's in...

Tracylevi12

•6 years ago

2 Replies

Standstill

Hello 48 and new to cll. Just found out 2 months. Feeling alot of pressure in neck. And yes its aggressive. Any remedy to relief

Hello 48 and new to cll. Just found out 2 months. Feeling alot of pressure in n...

Tracylevi12

•6 years ago

10 Replies

SLL treatment in Canada

I was diagnosed via node biopsy with SLL Aug 2018 and have been on W&W. My blood is all still in the normal range with too few points to show trends as yet. I...

I was diagnosed via node biopsy with SLL Aug 2018 and have been on W&W. My blood...

Jemorgen

•6 years ago

10 Replies

Lola

Has anyone heard from Lola? Concerned we haven’t seen a post from her.

Ginajetta

•6 years ago

14 Replies

CLL Tracker - Patient Data

In 2011 CLL Tracker www.clltracker.co.uk was introduced to share patient specific data on their CLL experiences. This international website provides detailed...

In 2011 CLL Tracker www.clltracker.co.uk was introduced to share patient specifi...

RobertCLL

•6 years ago

7 Replies

New to Site Imbruvica & Rituxan how are they tolerated together.

I’m new to the site but not new to CLL. I was diagnosed in 2003 and was watch and wait. Had treatment with fludarabine.. Was in remission for 10 years. Then...

I’m new to the site but not new to CLL. I was diagnosed in 2003 and was watch an...

Bobbietf

•6 years ago

14 Replies

Sleep disorder and CLL

Wondering if untreated sleep apnea is causing equal parts of fatigue with CLL. On Ibrutinib and had awful chest pain last night along with mouth sores and...

Wondering if untreated sleep apnea is causing equal parts of fatigue with CLL. O...

Porter01

•6 years ago

6 Replies

Co-trimoxazole dosage

I am on Ibrutinib and privagen and have been prescribed co-trimoxazole . What dosage are others on?

I am on Ibrutinib and privagen and have been prescribed co-trimoxazole . What do...

Broadbent

•6 years ago

8 Replies

CLL specialist in Costa Rica?

We are contemplating a move to Costa Rica from the “great white north”. Because I have CLL, and am being monitored every 3 months I need to find a specialist...

We are contemplating a move to Costa Rica from the “great white north”. Because...

Kat2e

•6 years ago

6 Replies

Coming of Ibrutinib

Hi There, I have been on Ibrutinib for CLL for five years now, I have never felt really well while taking it and still suffer from fatigue and I do not really...

Hi There, I have been on Ibrutinib for CLL for five years now, I have never felt...

john133

•6 years ago

3 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for February 2019

Starting CLL Treatment in 3 weeks.

Statins and Ibrutinib

What testing will they be doimg which ones what types ECT

Just receive diagnosis searching for CLL specialist

New blood work

Looking for CLL specialist in Denver, CO

How to search for content on HealthUnlocked

Ct scan?

For Patients in USA - Drug Prices Are Outrageous, but There Is a Way to Reduce Them - from MedPage Today

Bone Density Scan (DXA)

iPhone app: search, PMs and design improvements

Stomach Discomfort / Feeling Cruddy ??

CG-806... starts the long trek..

Even the Emergency Room Doctors deal with CLL/fatigue

Ibrutinib & atrial fibrillation

venetoclax now listed on Australian PBS

Supporting my grandmother

Severe upper back pain

Impact of CT and pet scan on chemo drugs

Where Imbruvica (ibrutinib) is made

Standstill

Standstill

SLL treatment in Canada

Lola

CLL Tracker - Patient Data

New to Site Imbruvica & Rituxan how are they tolerated together.

Sleep disorder and CLL

Co-trimoxazole dosage

CLL specialist in Costa Rica?

Coming of Ibrutinib

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