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CLL Support

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All posts for May 2016

Dr. Mato on what really happens when we must stop our ibrutinib or idelalisib

Friends, I hope my US-based readers had a happy healthy holiday weekend. This past weekend, in addition to recovering from my Paris jetlag, I have been reading...

Friends, I hope my US-based readers had a happy healthy holiday weekend. This pa...

bkoffman

CLL CURE Hero•8 years ago

7 Replies

Bruising

I am a 52 year old male with CLL. I have not started treatment as of yet, but was told I probably will within the next year. I was just wondering if anyone...

I am a 52 year old male with CLL. I have not started treatment as of yet, but wa...

mejiae

•8 years ago

10 Replies

CLL and sinus

I am ww stage 0. I have been surrounded be sick people for the last few weeks. My husband, daughter, and sis, all have sinus and respiratory infections and...

I am ww stage 0. I have been surrounded be sick people for the last few weeks. M...

meemsdream

•8 years ago

13 Replies

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Appointment today.....

Hi, just had my consultant appointment and IT WENT WELL!!! I can breathe again for another four months. My lymphocyte count hadnt changed since my last...

Hi, just had my consultant appointment and IT WENT WELL!!! I can breathe again ...

janloveslife

•8 years ago

12 Replies

Hope this is okay to ask here

I have been told I have splenic marginal zone lymphoma. Platelet count 82. Also something called c reactive protein. Falling the dexamethasone regiment for...

I have been told I have splenic marginal zone lymphoma. Platelet count 82. Also ...

Clsmith

•8 years ago

8 Replies

‘No Vax, No Visit’ not necessary

This article is not about immune compromised adults such as us, but babies younger than 6 weeks old - before they have their vaccination to protect them from a...

This article is not about immune compromised adults such as us, but babies young...

AussieNeil

Administrator•8 years ago

14 Replies

New to this world of CLL

Hi everyone! I am 60 years old and was diagnosed with CLL on April 25th after many blood tests and a biopsy of the right axillary node. I am very active and...

Hi everyone! I am 60 years old and was diagnosed with CLL on April 25th after m...

Jonidleo

•8 years ago

17 Replies

What does ‘natural’ mean? Time to ditch a dangerous concept; Going ‘natural’ is doing the world no favours

'Many forms of alternative medicine, such as those on the worryingly popular Natural News website, are promoted on the basis that they are more natural than...

'Many forms of alternative medicine, such as those on the worryingly popular Nat...

AussieNeil

Administrator•8 years ago

Be the first to reply

No signs of disease

Hi all just wanted to share some good news with you. I'm 8 cycles in to my phase one trial of Obinutuzimab plus Venetoclax at Barts Hospital in London and am...

Hi all just wanted to share some good news with you. I'm 8 cycles in to my phas...

Debinoz

•8 years ago

21 Replies

What do you have to say about Cancer Drug Costs?

I have been invited to participate in the US President's Cancer Panel as it discusses cancer drug costs next month. To help inform my participation, I have...

I have been invited to participate in the US President's Cancer Panel as it disc...

andrewschorr

•8 years ago

10 Replies

CLL and Genetics....

The last time I wrote on this site, I had just been diagnosed with CLL, lost my job and insurance coverage. Well, some things have changed...I still have CLL...

The last time I wrote on this site, I had just been diagnosed with CLL, lost my ...

hayleym1004

•8 years ago

13 Replies

Healthy Eating Sites

I keep reading various sites about the benefit of healthy eating for people with cancer and there are many who say changing their diet has even beaten cancer....

I keep reading various sites about the benefit of healthy eating for people with...

Salohcin

•8 years ago

7 Replies

Should I have a baseline CT scan after a CLL diagnosis?

Diagnosed with CLL 7 months ago. Oncologists told me I have a very good prognosis. Could live my life needing treatment. I have read on this site that a cat...

Diagnosed with CLL 7 months ago. Oncologists told me I have a very good prognos...

mamajama

•8 years ago

27 Replies

I think I read it here..

Memory jog please. I have non specific interstitial pneumonitis and C.L.L.. Last haematology visit resulted in my being told treatment likely soon. I think I...

Memory jog please. I have non specific interstitial pneumonitis and C.L.L.. Last...

luckyackerl

•8 years ago

4 Replies

Heart Failure/Atrial Fibrillation medicine from Foxgloves. Once a mainstay heart drug, but superseded by safer drugs that extend life.

'In the modern era, digoxin was considered, for many years, the mainstay of treatment for people with heart failure. However, this has changed over the last...

'In the modern era, digoxin was considered, for many years, the mainstay of trea...

AussieNeil

Administrator•8 years ago

1 Reply

Anemia & CLL

49 year old Female 5 years into W&W trying hard to manage my fatigue. Just back from check up WBC stable however RBC dropped, more blood taken (still waiting...

49 year old Female 5 years into W&W trying hard to manage my fatigue. Just back ...

Shelley67

•8 years ago

15 Replies

We mightn’t like it, but there are ethical reasons to use animals in medical research

'Nearly 100,000 monkeys were used in the 1950s to develop the polio vaccine. Before that, millions of people worldwide, mostly children, were infected with...

'Nearly 100,000 monkeys were used in the 1950s to develop the polio vaccine. Bef...

AussieNeil

Administrator•9 years ago

3 Replies

The show must go on

Hi all Despite my stomach issue we pressed on with the fund raising stall on Saturday had another member form the site come along and help and we raised...

Hi all Despite my stomach issue we pressed on with the fund raising stall on Sa...

TheFlyer

•9 years ago

5 Replies

Campylobacter

Hi All I posted that I had a stomach bug lasted 7 days then came back 2 d ays later but everything has settled down no training just taking it easy anyway Dr...

Hi All I posted that I had a stomach bug lasted 7 days then came back 2 d ays l...

TheFlyer

•9 years ago

6 Replies

Meet Andrew and Esther Schorr

Most people in the "CLL world" are familiar with Andrew Schorr, a CLL patient for over 20 years and his wife, Esther. They are also co-founders of Patient...

Most people in the "CLL world" are familiar with Andrew Schorr, a CLL patient fo...

tclementi

•9 years ago

1 Reply

So it looks like the roller coaster is about to begin...

Only 9 months into diagnosis and W&W, it looks like chemo is about to begin. Symptoms have recently become more problematic with huge nodes in neck...

Only 9 months into diagnosis and W&W, it looks like chemo is about to begin. S...

Bethan49

•9 years ago

15 Replies

Imbruvica and Advil?

I've only been on Imbruvica for 2 months, and so far no problems. My question is, can I take Advil with this drug? I know I can't take any aspirin. Thanks...

I've only been on Imbruvica for 2 months, and so far no problems. My question i...

Hidden

•9 years ago

25 Replies

CLL and general exposure to X-rays

In June I'm due to have a CT scan (pneumonia recovery) which involves the mildly radioactive injection to highlight the blood system, which I also had for a...

In June I'm due to have a CT scan (pneumonia recovery) which involves the mildly...

deveritt

•9 years ago

4 Replies

Patient Advocacy

Friends, This past weekend I was in Paris representing the US (and Canada) for the planning meeting for the CLL Advocacy Network (CLLAN) that is being...

Friends, This past weekend I was in Paris representing the US (and Canada) for t...

bkoffman

CLL CURE Hero•9 years ago

4 Replies

Learning How to Deal with Cancer and Cancer Patients by Being a Caregiver to Loving Family Members

In 1996, my dear sweet Mother was diagnosed with CLL. The first person in our family to have Leukemia and only a few to have other cancers. When I say "Family"...

In 1996, my dear sweet Mother was diagnosed with CLL. The first person in our fa...

fayeander

•9 years ago

7 Replies

CLL Scared!

Hi my partner is to start treatment for his CLL and has been given three options, chlorambucil+obinutuzumab, ACP196 alone or ACP196+obinutuzumab, any info on...

Hi my partner is to start treatment for his CLL and has been given three options...

Commercial1

•9 years ago

6 Replies

Microbiomania: The truth behind the hype about our bodily bugs

'Are they for us, against us or just cohabiting? It’s hard to know what to think about the microbes that live in and on us. In the same week that...

'Are they for us, against us or just cohabiting? It’s hard to know what to think...

AussieNeil

Administrator•9 years ago

4 Replies

Vaccinations

Ive had Cll for 2.5 yrs and its progressing. I may need my first treatment in one year. From peoples experience is it important to get vaccinations that will...

Ive had Cll for 2.5 yrs and its progressing. I may need my first treatment in on...

RockyKNX

•9 years ago

7 Replies

Different views on eating fatty foods

I'd been sensing a pendulum swing away from the recommendations for eating low-fat food whenever possible, and towards a more positive attitude to things like...

I'd been sensing a pendulum swing away from the recommendations for eating low-f...

PaulaS

Volunteer•9 years ago

8 Replies

Health Check: how much sugar is it OK to eat?

Kacie Dickinson. Associate Lecturer in Nutrition and Dietetics and Louisa Matwiejczyk, Lecturer, Advanced Accredited Practising Dietitian, both from the...

Kacie Dickinson. Associate Lecturer in Nutrition and Dietetics and Louisa Matwie...

AussieNeil

Administrator•9 years ago

1 Reply

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for May 2016

Dr. Mato on what really happens when we must stop our ibrutinib or idelalisib

Bruising

CLL and sinus

Appointment today.....

Hope this is okay to ask here

‘No Vax, No Visit’ not necessary

New to this world of CLL

What does ‘natural’ mean? Time to ditch a dangerous concept; Going ‘natural’ is doing the world no favours

No signs of disease

What do you have to say about Cancer Drug Costs?

CLL and Genetics....

Healthy Eating Sites

Should I have a baseline CT scan after a CLL diagnosis?

I think I read it here..

Heart Failure/Atrial Fibrillation medicine from Foxgloves. Once a mainstay heart drug, but superseded by safer drugs that extend life.

Anemia & CLL

We mightn’t like it, but there are ethical reasons to use animals in medical research

The show must go on

Campylobacter

Meet Andrew and Esther Schorr

So it looks like the roller coaster is about to begin...

Imbruvica and Advil?

CLL and general exposure to X-rays

Patient Advocacy

Learning How to Deal with Cancer and Cancer Patients by Being a Caregiver to Loving Family Members

CLL Scared!

Microbiomania: The truth behind the hype about our bodily bugs

Vaccinations

Different views on eating fatty foods

Health Check: how much sugar is it OK to eat?

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