Posts - CLL Support | HealthUnlocked

CLL Support

23,952 members•40,798 posts

All posts for October 2024

COVID Jab for Carer (Wife)

Attended our local pharmacy for our COVID vaccine today. I was of the understanding that NHS England has stated that close contacts of immunocompromised...

Attended our local pharmacy for our COVID vaccine today. I was of the understan...

RobertCLL

•5 months ago

17 Replies

Dr visit

Had a routine Doctor's visit (not my cll dr) and he discussed something about blood thickness. My general health Doctor is from India and interesting...

Had a routine Doctor's visit (not my cll dr) and he discussed something about bl...

FloridaGal2

•5 months ago

5 Replies

calquence & alopecia? Doctor says unrelated

A month ago, I went to get a haircut and noticed a bald spot. I didn’t think much of it and assumed it was just a bad haircut. But weeks later, I realized the...

A month ago, I went to get a haircut and noticed a bald spot. I didn’t think muc...

maresba14

•5 months ago

10 Replies

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No real issues except for Iron deficiency, anemia, lymphocytosis.

4 days ago I woke up at 2 AM drenched in sweat and severe pain at both hip joints. Any weight put on my feet is excruciatingly painful in my hip. Difficulty...

4 days ago I woke up at 2 AM drenched in sweat and severe pain at both hip joint...

DEJAMO

•5 months ago

4 Replies

Treatment,it's my decision

Hi as some of you may know I have been failing ibrutinb for a while now . Although my CT scan is perfect and I have no enlarged nodes or bulky desiese. But my...

Hi as some of you may know I have been failing ibrutinb for a while now . Althou...

cartwheels

•5 months ago

21 Replies

Thin skin and leg wound

I'm not wanting responses here but just passing on information that may help. I bashed my calf (lower leg, not young cow) accidentally and it didn't bleed but...

I'm not wanting responses here but just passing on information that may help. I...

dougstalbans

•5 months ago

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Clonal Lymphocytosis

Had my initial appointment with a Haematologist today who said I have Clonal Lymphocytosis. Can I ask how many of you started with Clonal Lymphocytosis and it...

Had my initial appointment with a Haematologist today who said I have Clonal Lym...

Ambrose04

•5 months ago

36 Replies

Platelets

Wbc 81 lymphocyte 77 slowly going up my consern is platelets 102 does this mean getting close to treatment, would be grateful for your opinion

Wbc 81 lymphocyte 77 slowly going up my consern is platelets 102 does this mean ...

Feavers

•5 months ago

16 Replies

creatinine levels

My husband's latest renal function test shows his creatine levels are now below the normal range. Is this significant? Is there anything he could or should...

My husband's latest renal function test shows his creatine levels are now below ...

Leo71

•5 months ago

8 Replies

Newly diagnosed with CLL after living with ET for 21 years

Following 12 months of rising lymphocytes I’ve just had confirmation that I’ve got CLL. Not great news but genetic tests are encouraging, so I’m low risk watch...

Following 12 months of rising lymphocytes I’ve just had confirmation that I’ve g...

AndyT

•5 months ago

8 Replies

Bloods are OK although lymph nodes swollen

Can anyone explain to me or direct me to where I can find this information. My husband was in remission with CLL for 4 years, after having treatment. Although...

Can anyone explain to me or direct me to where I can find this information. My h...

ProvenceSunshine

•5 months ago

30 Replies

Cordyceps

Hi all. I wanted to share this site I found of a guy who got his counts fully down by drinking cordyceps tea every day. I’m about to start it....

Hi all. I wanted to share this site I found of a guy who got his counts fully do...

RedPandaLS

•5 months ago

22 Replies

I have cll and COVID

I had COVID 8 weeks ago. Is it still advisable to get the vaccine so soon after having COVID

I had COVID 8 weeks ago. Is it still advisable to get the vaccine so soon after...

davjb15121

•5 months ago

7 Replies

Immunoglobulin replacement therapy

last week I started Immunoglobulin replacement therapy and it has really helped me. I no longer need a nap just to be able to function, feel clear headed and...

last week I started Immunoglobulin replacement therapy and it has really helped ...

Michael199

•5 months ago

19 Replies

Lymphatic drainage; rebounding.

Did a 'deep dive' on Lymphatic Drainage. What kept cross-referencing was rebounding. So, I got in the market for a mini-trampoline, then decided to 'go full...

Did a 'deep dive' on Lymphatic Drainage. What kept cross-referencing was reboun...

DHass22

•5 months ago

6 Replies

Re: Epcoritimab Trial

I just learned about the Epcoritimab trial. The results are extraordinary. We are moving closer to a functional cure. The author said that if we combine...

I just learned about the Epcoritimab trial. The results are extraordinary. ...

bagelstreet225

•5 months ago

15 Replies

Is CH(Clona Hemopoesis)complication common for stage IV blood cancer?

I found some interests on my former post about CH/Clona Hemopoesis, and if I'm not wrong the terminalogy for a lay person means "a faulty bone marrow" along...

I found some interests on my former post about CH/Clona Hemopoesis, and if I'm n...

sunsetssr

•5 months ago

26 Replies

WCC rising

Hi everyone. I was diagnosed with CLL 7 months ago, regular blood tests have seen my WCC rising. Not quite doubled in 6 months, which I believe is an...

Hi everyone. I was diagnosed with CLL 7 months ago, regular blood tests have see...

Plum4

•5 months ago

10 Replies

nitanut

My husband was diagnosed with CLL in 2021, told to get all the vaccinations offered to him. He always re acts badly to the Covid one. So every 6 months we go...

My husband was diagnosed with CLL in 2021, told to get all the vaccinations offe...

nitanut

•5 months ago

44 Replies

17p patients—what has your journey been like?

Hi everyone! I posted on here over the summer. My dad was unexpectedly diagnosed from a routine blood test (like many on here) in July. Unfortunately, he has...

Hi everyone! I posted on here over the summer. My dad was unexpectedly diagnosed...

anongirll1927

•5 months ago

10 Replies

Issue with toenail fungus

I have been fighting a losing battle with toenail fungus on my big toe and have now lost half of the nail and it is painful at night I am not able to use the...

I have been fighting a losing battle with toenail fungus on my big toe and have...

Bell53

•5 months ago

32 Replies

ibrutinib and pembrolizumab

hi All, first post and looking for some advice please. I have been taking Ibrutinib for almost 5 weeks Pembrolizumab for 2 via IV. My doctor said if I end...

hi All, first post and looking for some advice please. I have been taking Ibruti...

Otis_245

•5 months ago

1 Reply

Today’s the Day!

Good morning! My husband, who has Richter’s, is finally getting his hip replacement done today. I have watched him be in pain for almost a year- and I’m so...

Good morning! My husband, who has Richter’s, is finally getting his hip replacem...

laurieq

•5 months ago

32 Replies

TP53 gives competitive advantage in low dose BCL2 inhibitor treatment

https://ashpublications.org/blood/article/137/20/2721/475685/Intact-TP-53-function-is-essential-for-sustaining Anyone else see this paper on TP53. Looks like...

https://ashpublications.org/blood/article/137/20/2721/475685/Intact-TP-53-functi...

PulsedTherapy

•5 months ago

5 Replies

Random discomfort

I occasionally get mild pain in my armpit and one side of my groin . Of course I automatically look for a lump or swelling but don't feel any . Just wondering...

I occasionally get mild pain in my armpit and one side of my groin . Of course I...

CountryHarbour

•5 months ago

8 Replies

Seeking advice for treatment of CLL

Hi all A close family member has been diagnosed with CLL (chronic lymphocytic leukemia). She is a 68 year old female and is experiencing fatigue and weight...

Hi all A close family member has been diagnosed with CLL (chronic lymphocytic le...

strong-and-healthy

•5 months ago

17 Replies

cataract surgery for Fuchs dystrophy patient

I am having cataract surgery on my right eye on 10-28, then on my left 11-25. My cornea thickness is normal at this point so I don’t need the mini cornea...

I am having cataract surgery on my right eye on 10-28, then on my left 11-25. My...

Bethsaida

•5 months ago

11 Replies

Does cognitive decline accelerate in older adults after diagnosis with CLL compared with the cognitive trajectory seen in normal aging?

Some welcome reassuring news! In this cohort study, 668 older adults with hematologic malignant neoplasms and 1994 matched participants without...

Some welcome reassuring news! In this cohort study, 668 older adults with hema...

AussieNeil

Administrator•5 months ago

12 Replies

Low Immunoglobin levels

Tests have come back that my immunoglobin levels are very very low - much lower that you'd expect from my very early stage CLL ( white blood cells just 7.2)....

Tests have come back that my immunoglobin levels are very very low - much lower ...

Mokoia

•5 months ago

15 Replies

Good news today!

My oncology visit today showed my WBC continuing to go down, this time from 113 to 101! The Brukinsa is definitely working as planned. On the subject of...

My oncology visit today showed my WBC continuing to go down, this time from 113 ...

Tajie

•5 months ago

2 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for October 2024

COVID Jab for Carer (Wife)

Dr visit

calquence & alopecia? Doctor says unrelated

No real issues except for Iron deficiency, anemia, lymphocytosis.

Treatment,it's my decision

Thin skin and leg wound

Clonal Lymphocytosis

Platelets

creatinine levels

Newly diagnosed with CLL after living with ET for 21 years

Bloods are OK although lymph nodes swollen

Cordyceps

I have cll and COVID

Immunoglobulin replacement therapy

Lymphatic drainage; rebounding.

Re: Epcoritimab Trial

Is CH(Clona Hemopoesis)complication common for stage IV blood cancer?

WCC rising

nitanut

17p patients—what has your journey been like?

Issue with toenail fungus

ibrutinib and pembrolizumab

Today’s the Day!

TP53 gives competitive advantage in low dose BCL2 inhibitor treatment

Random discomfort

Seeking advice for treatment of CLL

cataract surgery for Fuchs dystrophy patient

Does cognitive decline accelerate in older adults after diagnosis with CLL compared with the cognitive trajectory seen in normal aging?

Low Immunoglobin levels

Good news today!

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