Posts - CLL Support | HealthUnlocked

Friends, I just posted my first interview from ASH 2013 where Dr. Wiestner discusses in some depth the heterogeneity of our disease and the treatment...

•11 years ago

2 Replies

ASH 2013: Dr. Wiestner Discusses Why Therapy in CLL Needs to be Individualized

Friends, I just posted my first interview from ASH 2013 where Dr. Wiestner disc...

bkoffman

CLL CURE Hero•11 years ago

4 Replies

Musicguy's finished 6 month's treatment with FCR

Thought I would give an update on my status, Chemo is done!!!! Completed 6 month's of FCR, went well no real problems. Thanks for everyone's advice on going...

Thought I would give an update on my status, Chemo is done!!!! Completed 6 month...

Musicguy

•11 years ago

16 Replies

Christmas, The Silent Killer: Ho-Ho-Ho!

This may be the most wonderful time of the year, but it can also be quite dangerous. Take this 2010 study, which concluded: "For all settings combined, there...

This may be the most wonderful time of the year, but it can also be quite dange...

A new method of killing just the clonal leukaemia cells has been developed. Thus in future a machine like a dialysis machine could reduce the white blood cell...

•11 years ago

5 Replies

Removing leukaemia cells by dialysis.?

A new method of killing just the clonal leukaemia cells has been developed. Thu...

•11 years ago

I have had a very frustrating/depressing 3 months, battling with a surgical team to get a date for an operation to take my spleen out (decided last Sep to...

Stimulating communications across medical teams - are there tips for others?!

I have had a very frustrating/depressing 3 months, battling with a surgical team...

Quarry

•11 years ago

9 Replies

Could this be the answer for those of us with night sweat disturbed sleep?

Gizmag today has an article (including a video) on a bedjet that heats or cools your bed with a blast of air:...

Gizmag today has an article (including a video) on a bedjet that heats or cools ...

Administrator•11 years ago

Those of us that would prefer avoiding Bone Marrow Biopsies (BMBs) and the pain associated with having the trephine (the surgical instrument used to cut out a...

Bone Marrow Biopsy for the Initial Staging of Patients With Lymphoma: Too Soon to Toss the Trephine

Those of us that would prefer avoiding Bone Marrow Biopsies (BMBs) and the pain ...

"CLL expert Dr. John Pagel, from Seattle Cancer Care Alliance, highlights exciting data from the 2013 American Society of Hematology (ASH) annual meeting....

Administrator•11 years ago

4 Replies

Treating CLL: More Options Than Ever Before -?- Dr Pagel - Patient Power video

"CLL expert Dr. John Pagel, from Seattle Cancer Care Alliance, highlights exciti...

HAIRBEAR_UK

Founder Admin•11 years ago

1 Reply

Handle Potting Mix without adequate precautions and risk Pneumonia

Locally there's been a surge in legionella cases, which has resulted in a warning on the dangers of handling potting mix, compost, etc in the local press. It...

Locally there's been a surge in legionella cases, which has resulted in a warnin...

interestingly, I have to thank the Flu vacc for my CLL diagnosis as my Haematologist reckons that the immunological assault of the vaccine may have caused the...

Administrator•11 years ago

2 Replies

Influenza Vaccine

interestingly, I have to thank the Flu vacc for my CLL diagnosis as my Haematolo...

djgolding

•11 years ago

Ever been stuck for what to say when someone finds out you have CLL and asks what they can do? Why not ask them to consider becoming a blood donor? The...

Blood donations save our lives

Ever been stuck for what to say when someone finds out you have CLL and asks wha...

If you have actually found this post, CONGRATULATIONS!! The 'News Feed' and 'Latest Activity' pages stopped working late Friday evening and that means...

Administrator•11 years ago

6 Replies

Where's all the activity? What's happened to the 'News Feed' and 'Latest Activity' pages? Why aren't I getting email notifications?

If you have actually found this post, CONGRATULATIONS!! The 'News Feed' and 'La...

Administrator•11 years ago

For brief overviews of this year's ASH papers on CLL, SLL and Other B-Cell Malignancies, check out:...

Capsule Summary of CLL papers from 2013 American Society of Hematology Annual Meeting now available from Clinical Care Options

For brief overviews of this year's ASH papers on CLL, SLL and Other B-Cell Malig...

A recent Gizmag article interested me on several levels. Many of us with CLL seem to overreact to mosquito bites and end up with large itchy weals, plus of...

Administrator•11 years ago

4 Replies

Great video showing how a living nerve cell is triggered or inhibited by different molecules in its environment

A recent Gizmag article interested me on several levels. Many of us with CLL see...

My wife came into contact with someone who had a cold yesterday and who didn't have the decency to warn the others in the group (5 including my wife) that she...

Administrator•11 years ago

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What do you do about 'The common cold'?

My wife came into contact with someone who had a cold yesterday and who didn't h...

Oleboyredw-uk

•11 years ago

13 Replies

Request for information about CLL and quality of life issues.

"Quality of Life Issues for CLL We have been asked to summarise the key ‘quality of life’ (QoL) issues for patients with CLL and it is proving to be very...

"Quality of Life Issues for CLL We have been asked to summarise the key ‘qual...

HAIRBEAR_UK

Founder Admin•11 years ago

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How can we give ourselves a joyful Christmas....

I’m sure we’re all caught up with preparations for Christmas, but I wonder how different it is, now we have CLL? So much to do – but have I got the energy...

I’m sure we’re all caught up with preparations for Christmas, but I wonder how ...

PaulaS

Volunteer•11 years ago

27 Replies

iwCLL 2013: Dr. Tom Kipps Discusses the Changing Role of Chemo-immunotherapy in CLL and the New Role of BCL-2 Blockers

Friends, I am back from an amazing time at ASH 2013. I posted this interview on my blog ( http://bkoffman.blogspot.com ) from last September with Dr. Kipps...

Friends, I am back from an amazing time at ASH 2013. I posted this interview o...

bkoffman

CLL CURE Hero•11 years ago

Dr Sharman summarises his experience of the outcome of an open label, phase 1b/2 trial on 31 previously untreated patients (29 with CLL and 2 with SLL) between...

Ibrutinib in front line elderly - Dr Sharman's latest blog on how CLL/SLL patients over 65 fared in a multicentre trial

Dr Sharman summarises his experience of the outcome of an open label, phase 1b/2...

With the information from the current American Society of Hematology (ASH) 2013 beginning to flood out, we'll be reading of findings in different trial......

Administrator•11 years ago

1 Reply

Don't get Fazed by Phases

With the information from the current American Society of Hematology (ASH) 2013 ...

My question is how often should I have my blood tests? I have to say my surgery is very flexible and seem willing to arrange a blood test when I request it. My...

Administrator•11 years ago

8 Replies

Hi All I have been on Watch and Wait since being diagnosed in 2006. For the past 18 months or so my counts have been fairly stable.

My question is how often should I have my blood tests? I have to say my surgery ...

pilch

•11 years ago

6 Replies

Non Science Monday......

OK, so a non-science Monday… The world is a busy and hectic place. So how about some soothing music from a new CD…? This CD is best described In the words...

OK, so a non-science Monday… The world is a busy and hectic place. So how abo...

This year's London Royal Institution 2013 Christmas Lecturer is Alison Woollard from Oxford, who will provide three lectures on: 1) Where Do I Come...

•11 years ago

15 Replies

About Life Fantastic - the Royal Institution 2013 Christmas Lectures

This year's London Royal Institution 2013 Christmas Lecturer is Alison Woollard ...

Recently, some members have asked for site content that better suits new members, etc. When you are suddenly diagnosed with CLL, you are exposed to a whole...

Administrator•11 years ago

2 Replies

What topics would you like to see covered and what medical terms would you like explained on this site?

Recently, some members have asked for site content that better suits new members...