Posts - CLL Support | HealthUnlocked

The use of Triclosan in hundreds of household products including antibacterial liquid soaps and other personal-care products, such as toothpastes has come...

Triclosan (antibacterial in liquid soaps) in the spotlight

The use of Triclosan in hundreds of household products including antibacterial l...

Hi, I've just joined this forum and have read most of your posts and found them very useful. I have CLL/SLL and after 6 cycles of FCR (which gave me just over...

Administrator•10 years ago

4 Replies

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Ibrutinib as a monotherapy

Hi, I've just joined this forum and have read most of your posts and found them...

SycamoreN

•10 years ago

34 Replies

Call patient apt 199trial

Hi I have been trialling a new anti cancer drug apt199 for cll at CHRISTIE hospital in Manchester I'm now in remission after three weeks it amazing

Hi I have been trialling a new anti cancer drug apt199 for cll at CHRISTIE hospi...

dou123

•10 years ago

15 Replies

If you are suffering from gangrene ...

and find that medication/amputation has not helped, then please contact me at [email address removed by admin, 28/07/2014 ] for further information

and find that medication/amputation has not helped, then please contact me at [...

Oxygen1

•10 years ago

Anyone taking traditional Indian (Ayurvedic) medicine will be interested to learn that "Heavy metals are added to Ayurvedic medicines as they are thought by...

Traditional Ayurvedic medicines may have toxic levels of heavy metals - but not in Australia?

Anyone taking traditional Indian (Ayurvedic) medicine will be interested to lear...

Administrator•10 years ago

Both Ibrutinib and Idelalisib have been recommended for approval by European regulators, paving the way for formal approval in a couple of months. Source:...

European recommendation for Ibrutinib and Idelalisib

Both Ibrutinib and Idelalisib have been recommended for approval by European reg...

MaudMarie

•10 years ago

I called the maker of the drug and they had no ideas. I called the hematologist office and they had no ideas. Due to GI complications, I been off Ibru for a...

What are the withdrawals symptoms of Ibrutinib?

I called the maker of the drug and they had no ideas. I called the hematologi...

shazie

•10 years ago

38 Replies

Evidence based medicine: a movement in crisis?

An essay by Trisha Greenhalgh of Barts and the London School of Medicine and Dentistry, London and her colleagues and members of the Evidence Based Medicine...

An essay by Trisha Greenhalgh of Barts and the London School of Medicine and Den...

Administrator•10 years ago

In "Still no good evidence that most complementary medicine works" Ian Musgrave, Senior lecturer in Pharmacology at University of Adelaide, Australia,...

A Non-complimentary article about Complementary Medicine

In "Still no good evidence that most complementary medicine works" Ian Musgrave,...

Administrator•10 years ago

The lengthy, complex, and costly process required to produce target specific T-Cells to fight cancers and viruses is a huge barrier that needs to be overcome...

Rapid Generation of Virus-Specific T Cells Helps Fight Off Infection in Immunocompromised Patients

The lengthy, complex, and costly process required to produce target specific T-C...

Administrator•10 years ago

One of the triggers for starting treatment is falling platelet levels. With levels generally falling during treatment, you need some leeway, so it is...

Artificially produced platelets hopefully coming soon

One of the triggers for starting treatment is falling platelet levels. With lev...

Administrator•10 years ago

now I'm even more confused & I don't see the Hemayolgist until mid-Aug. I went online & found out some test results from the new Hematologist who redid...

Flow symmetry

now I'm even more confused & I don't see the Hemayolgist until mid-Aug. I went o...

rlyndecker

•10 years ago

Further to previous posts about the influence of exercise on immunity, here's an article by Kim Murphy, Immunology researcher at Monash University and Fabien...

How training can lower immunity

Further to previous posts about the influence of exercise on immunity, here's an...

Hello everyone. I have been reading posts daily since joining and find the community a good resource. Thank you. I have been on W/W since September 2012 and...

Administrator•10 years ago

4 Replies

Low neutrophils

Hello everyone. I have been reading posts daily since joining and find the commu...

Hidden

•10 years ago

5 Replies

Ibrutinib: Europe Approval

EMA CHMP July Meeting Agenda http://www.ema.europa.eu/docs/en_GB/document_library/Agenda/2014/07/WC500170003.pdf They're going to make final opinion on...

EMA CHMP July Meeting Agenda http://www.ema.europa.eu/docs/en_GB/document_librar...

raman911

•10 years ago

Started Ibrutinib 12 days ago. Receiving 3rd of 4 weekly Rituximab infusions this week. Developed painful tongue ulcer about a week ago. Any ideas to reduce...

Help! Tongue and lip ulcer

Started Ibrutinib 12 days ago. Receiving 3rd of 4 weekly Rituximab infusions thi...

Tovtovtov

•10 years ago

9 Replies

Has anyone developed a horrible rash while taking ibrutinib

On my third week of ibrutinib and have developed a terrible rash that has covered my body. Is this normal for others as well?

On my third week of ibrutinib and have developed a terrible rash that has covere...

Center

•10 years ago

16 Replies

Fluid in my lungs and heart slightly enlarged

I have completed two courses of FCR but have been becoming quite breathless and with tightness in the lower neck/upper chest area. My consultant arranged for...

I have completed two courses of FCR but have been becoming quite breathless and ...

Haileybury

•10 years ago

8 Replies

3rd opinion

I went to Davis for my 3rd opinion and he wants more data. Then wants to see me in about a month again. For some reason, my glands are NOT nearly as big as...

I went to Davis for my 3rd opinion and he wants more data. Then wants to see me...

rlyndecker

•10 years ago

11 Replies

FISH Results; Co-existance of Trisomy 12 & 13q deletion

Hello, I have been recently diagnosed with CLL and have received the results of my bone marrow biopsy and FISH test. "These FISH studies detected Trisomy 12...

Hello, I have been recently diagnosed with CLL and have received the results of ...

kpminn

•10 years ago

5 Replies

ASCO 2014: Dr. Kipps Discusses Targeted Therapy and Obinutuzumab

ASCO 2014: Dr. Kipps Discusses Targeted Therapy and Obinutuzumab in the Treatment of CLL (chronic lymphocytic leukemia) in my latest blog post at...

ASCO 2014: Dr. Kipps Discusses Targeted Therapy and Obinutuzumab in the Treatmen...

bkoffman

CLL CURE Hero•10 years ago

Kath Parson: on panel at Chronic Lymphocytic Leukaemia Support Association Patient Meeting July 16 Last month Kath Parson from OPAAL (Older Peoples Advocacy...

Every Step Of The Way, Advocacy & Older People Living With Cancer. OPAAL and CLLSA

Kath Parson: on panel at Chronic Lymphocytic Leukaemia Support Association Patie...

HAIRBEAR_UK

Founder Admin•10 years ago

A cancer diagnosis makes many of wonder whether we should be eating organic food - assuming we can afford it of course. A UK meta-analysis of 343 studies just...

Organic Food - worth it?

A cancer diagnosis makes many of wonder whether we should be eating organic food...

Administrator•10 years ago

I just posted an update on the good news on my lab, CT scans, and general CLL (chronic lymphocytic leukemia) status on my blog http://bkoffman.blogspot.com but...

Riffing On My Latest Lab and CT Results

I just posted an update on the good news on my lab, CT scans, and general CLL (c...

bkoffman

CLL CURE Hero•10 years ago

Worth bearing in mind the next time you have a radiology exam. 'Physicist Giovanni Bibbo and radiographer Lino Piotto took radiography images of a range of...

The (Natural) Radioactivity in Food

Worth bearing in mind the next time you have a radiology exam. 'Physicist Giovan...

Administrator•10 years ago

Since I had 2 completely opposite opinions from Stanford and UCSD. I decided to take the overall advice which is NOT to rush into treatment. I am quite...

3rd opinion

Since I had 2 completely opposite opinions from Stanford and UCSD. I decided to...

rlyndecker

•10 years ago

7 Replies

Got a question about test results for Susan Le Clair?

Regular readers won't need an introduction to either Andrew Schorr of Patient Power or Dr Susan Le Clair, who has provided much to the CLL community on...

Regular readers won't need an introduction to either Andrew Schorr of Patient Po...

Administrator•10 years ago

While we are well aware of the ionising radiation risk associated with medical X-rays and CT Scans, how many of us give any thought to the ionising radiation...

Are you a frequent flyer? Solar storm radiation can be harmful

While we are well aware of the ionising radiation risk associated with medical X...