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CLL Support

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CLL_SLL information posts

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GailCat3

I’ve had CLL B cell for 16 years. I had a great Oncologist but she moved 11/2 years ago so she used to do bone marrow biopsies to check my CLL. My new...

I’ve had CLL B cell for 16 years. I had a great Oncologist but she moved 11/2 y...

GailCat3

•2 months ago

18 Replies

HUCT/Stem Cells for Joint Repair

I assist my brother with his 4 Regenerative Joint Repair Clinics. At the clinics, they inject joints (knees, hips, shoulders, ankles, etc) with Human...

I assist my brother with his 4 Regenerative Joint Repair Clinics. At the clinic...

Deach

•3 months ago

4 Replies

ALC question

i have what seems to me a dumb question. I see lots of references to ALC in CLL posts. In reviewing my lab results I don’t see any results for ALC. can someone...

i have what seems to me a dumb question. I see lots of references to ALC in CLL ...

Lind29

•3 months ago

5 Replies

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Path to precision: Targeted cancer drugs go from table to trials to bedside

https://arstechnica.com/science/2024/08/precision-cancer-treatments/

zaax

•4 months ago

2 Replies

More on MRD

To further the discussion on MRD, here is a commentary from a known and reliable source "Patient Power"-...

To further the discussion on MRD, here is a commentary from a known and reliable...

Smakwater

•1 year ago

5 Replies

MRD - What's the Buzz?

For those who are interested in understanding MRD, the link below connects to some insight on MRD and testing from the NIH Library of Medicine. The...

For those who are interested in understanding MRD, the link below connects to so...

Smakwater

•1 year ago

24 Replies

Switch ibrutinib to zanubrutinib

Is there any problem switching from ibrutinib to zanubrutinib? Why wouldn't that be a good idea?

Is there any problem switching from ibrutinib to zanubrutinib? Why wouldn't th...

groggygarbad

•1 year ago

18 Replies

Looking for a new CLL doctor

I live in the Chicago area. 12 years ago I was diagnosed 12 trisomy and was on W and W until 2020. I've been on ibrutinib for 3 yrs now My doctor from...

I live in the Chicago area. 12 years ago I was diagnosed 12 trisomy and was on ...

villaben

•2 years ago

6 Replies

Stopping Imbruvica before going to the dentist

Good day to all. Why shall I stop Imbruvica before going to the dentist to clean the gum? Is it for fear of bleeding?For how long before going? Why it is...

Good day to all. Why shall I stop Imbruvica before going to the dentist to clea...

AshGS

•2 years ago

10 Replies

List of Blood Test for CLL with explanations?

Hello, Is there a list of blood tests for CLL with values and explanations?

Mumu1

•2 years ago

4 Replies

Water intake

I'm taking my Imbruvica at 7 PM with my last cup of water for the day.I make certain that I drink 12 cups of water during the day....half of it during the...

I'm taking my Imbruvica at 7 PM with my last cup of water for the day.I make cer...

Hidden

•2 years ago

9 Replies

Starting Obinutuzumab infusions

I have been taking Imbruvica for @3years for CLL with good results. I'm going to start the Obinutuzumab infusions in January. I've had very little side effects...

I have been taking Imbruvica for @3years for CLL with good results. I'm going to...

BarneyFife

•2 years ago

24 Replies

A New Forum https://cllforum.org (migration of CLLForum.com)

If anyone here has been a member of cllforum.com you may be aware that the forum is closing down on New Year's Day, as the web host is shutting off and the...

If anyone here has been a member of cllforum.com you may be aware that the forum...

drmoss_ca

•2 years ago

4 Replies

Autoimmune hemolytic anemia (AIHA), Immune thrombocytopenia (ITP) and other autoimmune complications and extranodal involvement in CLL

"Autoimmune conditions are common in CLL and are often managed in a distinct manner from primary autoimmune disease. Leukemic involvement of other organs is...

"Autoimmune conditions are common in CLL and are often managed in a distinct man...

CLLerinOz

Administrator•2 years ago

7 Replies

Concise summary of the treatment history of CLL from the 1950s to the present, by Dr Bruce Cheson, contributor to the iwCLL and much more

I knew Chlorambucil use for CLL dated back to the 1950's but I hadn't appreciated that was also the case for cyclophosphamide, (the 'C' in FCR). It took until...

I knew Chlorambucil use for CLL dated back to the 1950's but I hadn't appreciate...

AussieNeil

Administrator•2 years ago

16 Replies

Chronic Lymphocytic Leukemia Information & Resources Around the World

This pinned post replaces our earlier reference post about sources of helpful information and support for those with CLL/SLL (hereafter referred to as CLL)....

This pinned post replaces our earlier reference post about sources of helpful in...

CLLerinOz

Administrator•2 years ago

7 Replies

Zanubrutnib

Has anyone experience of zanubrutnib? It appears to have virtually no hair loss, with positive results.

Has anyone experience of zanubrutnib? It appears to have virtually no hair loss,...

Fwanni

•2 years ago

14 Replies

CLL, Imbuviva and AFIB

I am 81. Two years ago I started on imbrubica and about a year in I had afib which is a known risk for this drug. I was advised to and did consult with my...

I am 81. Two years ago I started on imbrubica and about a year in I had afib wh...

BobTerry62

•2 years ago

8 Replies

Updates on what is happening with STATIC. Since Prof. Hillmen left, it seems to have stalled somewhat.

With only 18 months left on the FLAIR trial and as per another post on here saying Prof. Peter Hillman has left the trial I am a bit worried about STATIC...

With only 18 months left on the FLAIR trial and as per another post on here sayi...

zaax

•2 years ago

6 Replies

CLL & Covid

Sunday 06/12/22 CLL Unmutated Had all shots and booster, plus Evusheld Husband just now tested positive for Covid. I’m in a panic, daughter lives with us...

Sunday 06/12/22 CLL Unmutated Had all shots and booster, plus Evusheld Husband...

Tapps

•2 years ago

9 Replies

Understanding Acalabrutinib

I have been on ibrutinib for 2 years with the only side effect being frequent rashes of varying types, but they are annoying and make sleeping difficult when...

I have been on ibrutinib for 2 years with the only side effect being frequent ra...

CCgroup

•3 years ago

8 Replies

CLL patient cured a decade after gene therapy

In 2010, doctors treated Doug Olson’s leukemia with an experimental gene therapy that transformed some of his blood cells into cancer killers. More than a...

In 2010, doctors treated Doug Olson’s leukemia with an experimental gene therapy...

WinJ3

•3 years ago

1 Reply

41yr old, new to this

Hi all. Cll patient here, lymph nodes in neck increase in size then go back a few weeks later. It pushes my throat and can make it difficult to swallow. Do we...

Hi all. Cll patient here, lymph nodes in neck increase in size then go back a fe...

FoxAngelus

•3 years ago

3 Replies

in between 17p and tp53

Is 17p no del equal tp53 negative ??

tms99532

•3 years ago

3 Replies

Keto diet and venetoclax

Really happy to be here.. To any one who has Cll. Is anyone on a keto diet and taking venetoclax ? Are you having good outcomes? Thanks so much..

Really happy to be here.. To any one who has Cll. Is anyone on a keto diet and ...

Kevin_m

•3 years ago

8 Replies

Access to Monoclonal Antibody Treatment in Mexico

I have CLL and in W&W. Age 65, otherwise healthy. No antibodies after first 2 Pfizers, positive for antibodies after third shot. Will be travelling to Mexico...

I have CLL and in W&W. Age 65, otherwise healthy. No antibodies after first 2 Pf...

Lambo1

•3 years ago

10 Replies

Revolution of Chronic Lymphocytic LeukemiaTherapy: the Chemo-Free Treatment Paradigm

[Here is some info that may be useful to read - or again go over again . . . ] Annika Scheffold1 & Stephan Stilgenbauer1,2 Published online: 5 February 2020 #...

[Here is some info that may be useful to read - or again go over again . . . ] A...

Tupelomojo

•3 years ago

12 Replies

Neutropenia with venetoclax. Give me information.

I am taking venetoclax, and after inoculating up to 400 mg, I reduced the dose of venetoclax to 200 mg due to neutropenia. Even so, neutropenia did not...

I am taking venetoclax, and after inoculating up to 400 mg, I reduced the dose o...

mogemoge

•3 years ago

19 Replies

Brukinsa for CLL

Anyone have experience with taking Brukinsa for Cll. I had and a fib reaction to imbruvica. My doctor got an off label exception for brukinsa. It has the...

Anyone have experience with taking Brukinsa for Cll. I had and a fib reaction t...

Gretsch6120

•3 years ago

13 Replies

Risk of covid-19 related death and hospital admission after covid-19 vaccination

An enormous prospective cohort study in vaccinated UK adults, producing hazard ratios for many different population groups. Blood cancer patients do...

An enormous prospective cohort study in vaccinated UK adults, producing hazard r...

bennevisplace

•3 years ago

11 Replies

Write a post or ask a question

Posts - CLL Support | HealthUnlocked

CLL Support

CLL_SLL information posts

GailCat3

HUCT/Stem Cells for Joint Repair

ALC question

Path to precision: Targeted cancer drugs go from table to trials to bedside

More on MRD

MRD - What's the Buzz?

Switch ibrutinib to zanubrutinib

Looking for a new CLL doctor

Stopping Imbruvica before going to the dentist

List of Blood Test for CLL with explanations?

Water intake

Starting Obinutuzumab infusions

A New Forum https://cllforum.org (migration of CLLForum.com)

Autoimmune hemolytic anemia (AIHA), Immune thrombocytopenia (ITP) and other autoimmune complications and extranodal involvement in CLL

Concise summary of the treatment history of CLL from the 1950s to the present, by Dr Bruce Cheson, contributor to the iwCLL and much more

Chronic Lymphocytic Leukemia Information & Resources Around the World

Zanubrutnib

CLL, Imbuviva and AFIB

Updates on what is happening with STATIC. Since Prof. Hillmen left, it seems to have stalled somewhat.

CLL & Covid

Understanding Acalabrutinib

CLL patient cured a decade after gene therapy

41yr old, new to this

in between 17p and tp53

Keto diet and venetoclax

Access to Monoclonal Antibody Treatment in Mexico

Revolution of Chronic Lymphocytic LeukemiaTherapy: the Chemo-Free Treatment Paradigm

Neutropenia with venetoclax. Give me information.

Brukinsa for CLL

Risk of covid-19 related death and hospital admission after covid-19 vaccination

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