Posts - CLL Support | HealthUnlocked

CLL Support

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Good Morning

I am at this point in my disease that I have to look into CarT treatment. I know that CLL's response to CarT was only about 40%, but the research is moving...

I am at this point in my disease that I have to look into CarT treatment. I know...

Doremefasol

•18 days ago

8 Replies

Help with frequent chest infection

Hi there, I’m new to this group and wonder if there’s anyone out there who can offer me some help and advice? I was diagnosed with CLL three years ago I am...

Hi there, I’m new to this group and wonder if there’s anyone out there who can ...

Graya1

•1 year ago

31 Replies

Adding Venetoclax to BTKi

What about patients having been stable on BTK inhibitorsi for years? Would they be eligible to add Venetoclax, now that the combination is approved by FDA?...

What about patients having been stable on BTK inhibitorsi for years? Would they...

antonb

•1 year ago

4 Replies

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What High and Low Immunoglobulin G Levels Mean for People With Cancer - A Review from the Patient Power Information Resource

An interesting review focused on IgG that is clear, concise and simple. Click on the link -...

An interesting review focused on IgG that is clear, concise and simple. Click ...

Smakwater

•1 year ago

16 Replies

Gyny problems

I have recently had a pessary inserted for prolapse. I have incontinence due to a car accident several years ago when I was on my back for 2 months with a...

I have recently had a pessary inserted for prolapse. I have incontinence due to...

Magenta51

•1 year ago

6 Replies

Intermittent bug attaching image to replies

If you try to attach an image to a reply, it appears to have worked, but appears within a separate box. The imsge disappears when you do a refresh. HU Support...

If you try to attach an image to a reply, it appears to have worked, but appears...

AussieNeil

Administrator•1 year ago

1 Reply

Imbruvica

i was diagnosed with CLL in Dec. 2008 at age 69 ….i did w&w till i hit 400,000 WBC and went on Rituxan in June 2020 for 4 mo. and in remission. for approx. 1...

i was diagnosed with CLL in Dec. 2008 at age 69 ….i did w&w till i hit 400,000 W...

Candy1015

•2 years ago

19 Replies

Travel Insurance for Kiwis ( New Zealander) with CLL

Hi I have CLL (diagnosed 2007 male age 53) and have been on Ibrutinib since September 2018 which is still working fine. Associated high blood pressure and...

Hi I have CLL (diagnosed 2007 male age 53) and have been on Ibrutinib since Se...

Moorsa

•2 years ago

4 Replies

Travel With CLL

TRAVEL WITH CLL Travel with CLL has come up on this site. Here are some travel tips my wife & I follow. My CLL: Diagnosed April 2019 with CLL type B...

TRAVEL WITH CLL Travel with CLL has come up on this site. Here are some travel ...

CCgroup

•2 years ago

19 Replies

Toxic poppy seeds are sending people to hospital in Australia. A reminder that dietary supplements are considered as foods, not drugs

If you are using supplements to hopefully manage your CLL, here is an example of why what's natural can make you very ill and why you need to ensure that you...

If you are using supplements to hopefully manage your CLL, here is an example of...

AussieNeil

Administrator•2 years ago

11 Replies

Venetoclax and back ache

Since starting Venetoclax in April 2022, back ache and sciatica has got progressively worse. X-rays reveal spondylolisthesis and cauda equina syndrome. I...

Since starting Venetoclax in April 2022, back ache and sciatica has got progress...

nigeldodd

•2 years ago

8 Replies

CLL and coughing

What are Cll patients doing to control the coughing

Lindaan

•2 years ago

6 Replies

Omicron vs Evusheld

has anyone got both the Omicron vaccine and Evusheld and which came first and how long in between

has anyone got both the Omicron vaccine and Evusheld and which came first and...

Imalpn

•2 years ago

6 Replies

10 years but still feeli cant move on

I had Stemcell BMT for CLL in 2013 next year is 10 years but i dont seem to be able to move on with my life, I have several conditions that are not helping...

I had Stemcell BMT for CLL in 2013 next year is 10 years but i dont seem to be a...

pendragon

•2 years ago

7 Replies

Travel Insurance - Insurancewith.com

Hi All Any of you guys in the UK used a travel insurance company called Insurancewith.com? I have ran a quote through but was uncertain how to answer some...

Hi All Any of you guys in the UK used a travel insurance company called Insuran...

Summer5

•2 years ago

9 Replies

Has anybody else developed Auto Immune Haemolytic Anaemia with their CLL?

I was diagnosed with CLL just over 3 years ago and gave been on W&W since December last year when I was admitted to hospital with severe anaemia, after many...

I was diagnosed with CLL just over 3 years ago and gave been on W&W since Decem...

Wen_dy

•2 years ago

25 Replies

Travel with CLL

I am 81 years old, diagnosed with CLL in April 2019. I have been on ibrutinib since February 2020. I was getting a number of side effects, so cut my intake...

I am 81 years old, diagnosed with CLL in April 2019. I have been on ibrutinib s...

CCgroup

•2 years ago

18 Replies

MY JOURNEY: COVID, EVUSHELD, PAXLOVID and CLL

I am sorry this is so long. I really wanted to document and share my journey and remind everyone to be very careful, thoughtful and educated. COVID is no......

I am sorry this is so long. I really wanted to document and share my journey and...

SandiC

•3 years ago

29 Replies

Safe to have kittens?

We are contemplating enriching our lives with two yellow kittens. I have high-risk cll, successfully treated with daily ibrutrinib and an ivig every 4 weeks....

We are contemplating enriching our lives with two yellow kittens. I have high-ri...

Splashes

•3 years ago

33 Replies

What is a high white blood cell count? I'm baffled.

I'm lucky enough to be on Watch and Wait even after ten years of CLL. I haven't really paid too much attention to the numbers in the past, but at my last blood...

I'm lucky enough to be on Watch and Wait even after ten years of CLL. I haven't ...

DMF_online

•3 years ago

31 Replies

W + W for 17 yrs - levels up recently

Since 12/2021 Lymphocytes - 77 to 81 Lymphocytes absolute - 44,000 to 58,000 Monocytes absolute - 3900 to 9000 White Blood Count - 57 to 71 I'm seeing my...

Since 12/2021 Lymphocytes - 77 to 81 Lymphocytes absolute - 44,000 to 58,000 Mon...

gardener58

•3 years ago

7 Replies

Fund Evusheld petition

A petition has been created to ask the UK government to fund Evusheld for blood cancer patients and other vulnerable groups. On the face of it, a worthwhile...

A petition has been created to ask the UK government to fund Evusheld for blood ...

scarletnoir

•3 years ago

21 Replies

Vaccine-induced T cells provide long-lasting immune response to COVID-19

https://www.doherty.edu.au/news-events/news/vaccine-induced-t-cells-provide-long-lasting-immune-response-to-covid-19

https://www.doherty.edu.au/news-events/news/vaccine-induced-t-cells-provide-long...

zaax

•3 years ago

1 Reply

Evusheld Shots:

Evusheld shots: are Oncology Doctors recommending this newer “two shot” to CLL patients, especially those on Ibrutinib?

Evusheld shots: are Oncology Doctors recommending this newer “two shot” to CLL p...

Tapps

•3 years ago

12 Replies

Evusheld

For those of you have been able to get the Evusheld shots? Have any of you had any side effects?

For those of you have been able to get the Evusheld shots? Have any of you had ...

BeckyLUSA

•3 years ago

26 Replies

Joint pain on Ibrutinib

Hi, Does anyone else get strange pains near joints, from this medicine?

WMwife

•3 years ago

31 Replies

Question about Covid symptoms and the vaccine response

I have a pretty basic question about what to expect with the vaccine, and whether symptoms show themselves at all, but I can't find any articles on the topic....

I have a pretty basic question about what to expect with the vaccine, and wheth...

lynnsb6754

•3 years ago

9 Replies

Priority PCR Test kit arrived

A Priority PCR test kit arrived today. I am one of the may CLL patients who did not receive the CEV letter by the 10th of January. I did lobby my GP and CNS...

A Priority PCR test kit arrived today. I am one of the may CLL patients who did ...

g684

•3 years ago

27 Replies

Does every treatment have a price?

About 6 months ago, I had to switch from Ibrutinib to Alcalabrutinib (Calquence) due to severe side effects (mainly loss of hearing, vision problems, some...

About 6 months ago, I had to switch from Ibrutinib to Alcalabrutinib (Calquence)...

Mumu1

•3 years ago

28 Replies

Telling my employer I have CLL and need time off for treatments.

Ive worked for my company as a temp for a year and was hired in November, about the same time my blood work went nuts. I had hoped to keep my diagnosis...

Ive worked for my company as a temp for a year and was hired in November, abou...

Nama-8

•3 years ago

13 Replies

Write a post or ask a question

Posts - CLL Support | HealthUnlocked

CLL Support

General discussion posts

Good Morning

Help with frequent chest infection

Adding Venetoclax to BTKi

What High and Low Immunoglobulin G Levels Mean for People With Cancer - A Review from the Patient Power Information Resource

Gyny problems

Intermittent bug attaching image to replies

Imbruvica

Travel Insurance for Kiwis ( New Zealander) with CLL

Travel With CLL

Toxic poppy seeds are sending people to hospital in Australia. A reminder that dietary supplements are considered as foods, not drugs

Venetoclax and back ache

CLL and coughing

Omicron vs Evusheld

10 years but still feeli cant move on

Travel Insurance - Insurancewith.com

Has anybody else developed Auto Immune Haemolytic Anaemia with their CLL?

Travel with CLL

MY JOURNEY: COVID, EVUSHELD, PAXLOVID and CLL

Safe to have kittens?

What is a high white blood cell count? I'm baffled.

W + W for 17 yrs - levels up recently

Fund Evusheld petition

Vaccine-induced T cells provide long-lasting immune response to COVID-19

Evusheld Shots:

Evusheld

Joint pain on Ibrutinib

Question about Covid symptoms and the vaccine response

Priority PCR Test kit arrived

Does every treatment have a price?

Telling my employer I have CLL and need time off for treatments.

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