Posts - CLL Support | HealthUnlocked

CLL Support

23,337 members•40,045 posts

All posts for June 2021

Anti Body Test Result

I wonder if anyone can gave me an answer as to this diagnosis report. I got this report from an anti body test but couldn't get anyone yet to explain it to......

I wonder if anyone can gave me an answer as to this diagnosis report. I got this...

Kmegood

•3 years ago

16 Replies

Anti Bodies For Covid 19

Anti Bodies For Covid

Kmegood

•3 years ago

5 Replies

Tick

I have just found a tick on me, tried removal with a pair of tweezers but was unsuccessful in removing the barbs. I have spoken to the GP surgery and they do...

I have just found a tick on me, tried removal with a pair of tweezers but was un...

RobertCLL

•3 years ago

79 Replies

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Feeling down after received IgHV un-mutated and FISH negative for CLL

Just got the reports. Currently in stage 0 wait and watch. Hoping that CLL does not go into overdrive soon since IgHV is not mutated. Hoping for better...

Just got the reports. Currently in stage 0 wait and watch. Hoping that CLL does ...

nuji

•3 years ago

24 Replies

Symbicort and easily bruising

ANYONE ON Symbicort that gets easily bruising ?????

Katmeg

•3 years ago

3 Replies

New to treatment

Does anyone take Acalbrutinib and Co-Trimoxazole?

Notreall

•3 years ago

10 Replies

Intermittent Fasting while on ibrutinib or other treatment

Trying to lose a little weight. Wondering if anyone has done intermittent fasting, and what your thoughts on this may be.

Trying to lose a little weight. Wondering if anyone has done intermittent fastin...

Davidcara

•3 years ago

7 Replies

Does anyone have an experience with MingSight's trial of MS-533?

Would very much appreciate anyone's input related to MingSight's trial of MS-533. I know there aren't many out there, but hopefully someone might be reached...

Would very much appreciate anyone's input related to MingSight's trial of MS-533...

SusanBot

•3 years ago

3 Replies

Flair trial ends MRD negative

After 3 1/2 years my flair trial on venetaclax and ibrutinib finally reached an end with MRD reached . Really pleased though a little apprehensive being back...

After 3 1/2 years my flair trial on venetaclax and ibrutinib finally reached an ...

buzzybab

•3 years ago

34 Replies

CLL and Night Sweats

I have been on W&W for 1-1/2 years. Lymph % is 69.7, Lymph # 10.26 and WBC at 14.73. Just started having night sweats. What does one do? I am waiting on...

I have been on W&W for 1-1/2 years. Lymph % is 69.7, Lymph # 10.26 and WBC at...

CBME

•3 years ago

11 Replies

Mixed Oxford/Pfizer vaccine schedules generate robust immune response against COVID-19, finds Oxford-led study

Sorry this is another covid post but this might be important when we all have our booster jabs in the autumn. The issue of our vulnerability despite...

Sorry this is another covid post but this might be important when we all have ou...

Jm954

Administrator•3 years ago

29 Replies

What are they waiting for ?

Dr Brian Koffman made available to us a very powerful article written by Dr Adrian Warnock about prophylactic mAbs given to those that did not respond to the...

Dr Brian Koffman made available to us a very powerful article written by Dr Adri...

ikahan

•3 years ago

25 Replies

Want protection? Get a FFP3 Mask!

This seems to me to be really important news for CLLers ... an option to get out of our self-enforced jails? Are these substantially different to NP95 masks......

This seems to me to be really important news for CLLers ... an option to get ou...

Me2AsWell

•3 years ago

16 Replies

Protecting The Immuno-Compromised Against COVID Could Be Key To Ending The Pandemic

Protecting the ImmunoCompromised - that is us....

whmk

•3 years ago

12 Replies

Red spots all over my body.

I am on watch & wait and have been experiencing fatigue & I started getting spots on different parts of my body about 3 years ago. It started with a couple &...

I am on watch & wait and have been experiencing fatigue & I started getting spo...

Angie4now

•3 years ago

20 Replies

CLL Society Webinar tomorrow June 29th! Learning to Decode Your Blood Test Results. Find out what they mean!

CLL Society Webinar tomorrow June 29th! Learning to Decode Your Blood Test Results. Ever look at your blood test results and have no idea whether they are...

CLL Society Webinar tomorrow June 29th! Learning to Decode Your Blood Test Resul...

bkoffman

CLL CURE Hero•3 years ago

9 Replies

Restrictions & mixed messages

Morning all, Been quiet for quite a long time. I’m still MRD /according to last bloods & due BMB mid August. I’ve felt slightly broken in the head for about...

Morning all, Been quiet for quite a long time. I’m still MRD /according to last...

Sepsur

•3 years ago

54 Replies

Stopping Ibrutinib

Is there anyone in the forum who has got to Negative MRD on Ibrutinib and stopped treatment? I mean negative in blood and marrow. I want to exclude people who...

Is there anyone in the forum who has got to Negative MRD on Ibrutinib and stoppe...

809123

•3 years ago

2 Replies

O&V

My partner has just commence his venetoclax 10mg last week up to now all good side effect wise , his obinutuzumab will go to monthly infusion now , anyone had...

My partner has just commence his venetoclax 10mg last week up to now all good si...

Hd07

•3 years ago

2 Replies

Quest Covid Total Spike Antibody Test 39820

Hello, Can someone tell me how I could get more information about Quest total spike antibody test 39820 besides the Information contained in this...

Hello, Can someone tell me how I could get more information about Quest total sp...

CoopersHuman

•3 years ago

13 Replies

Learning to Decode Your Blood Test Results for CLL

Learning to Decode Your Blood Test Results for CLL - Presented by CLL Society Tuesday, June 29, 2021 - 10:00 AM PT, 11:00 AM MT, 12:00 PM CT, 1:00 PM ET......

Learning to Decode Your Blood Test Results for CLL - Presented by CLL Societ...

lankisterguy

Volunteer•3 years ago

5 Replies

The Delta variant in the UK continues to surge.

COVID-19 continues to surge in the UK. This does not bode well for all those immunocompromised in the UK and USA where vaccinations have slowed down.

COVID-19 continues to surge in the UK. This does not bode well for all those im...

whmk

•3 years ago

10 Replies

Stopped taking allopurinol

Had allopurinol for over twenty years for gout buy not had a attack for 19 years stopped taking seven months ago not had a attack had heal pain worried was...

Had allopurinol for over twenty years for gout buy not had a attack for 19 years...

Hidden

•3 years ago

2 Replies

Elevated D Dimer post COVID infection and CLL - does elevated D Dimer mean poor chance of successful treatment?

Had covid 2 months ago. Tests showed only D-Dimer was elevated and other blood parameters like CRP, Ferritin were normal. It’s still elevated at 2000 range....

Had covid 2 months ago. Tests showed only D-Dimer was elevated and other blood p...

nuji

•3 years ago

5 Replies

Introduction to Health Unlocked

I am a CLL patient stage zero diagnosed 2016. This morning I submitted a question to this site about proper recommended social behavior after having had a...

I am a CLL patient stage zero diagnosed 2016. This morning I submitted a questio...

learning2021

•3 years ago

10 Replies

For UK: East Midlands Chamber of Commerce webinar on keeping the workplace Covid-secure

As this is pretty much a hot topic for (some of) us Brits, I thought (some of) you might be interested…...

As this is pretty much a hot topic for (some of) us Brits, I thought (some of) y...

ChristyAnne_UK

•3 years ago

2 Replies

How do I safely live my life with CLL if my antibody test results are one of three scenarios?

I am a stage zero CLL patient of 5 years awaiting the results of my antibody test ordered by my oncologist due to the recent news that CLL patients are often...

I am a stage zero CLL patient of 5 years awaiting the results of my antibody tes...

learning2021

•3 years ago

29 Replies

David

did anyone with cll develop differant cancers

davidmg

•3 years ago

27 Replies

Just been told my husband has cLL can anyone give some information

Hi I just new to forum my husband white blood cells were high so was referred to hemaglobian clinic in Glasgow were shocked to b told he has cLL he is 56 years...

Hi I just new to forum my husband white blood cells were high so was referred to...

Mcginlay

•3 years ago

24 Replies

Covid-targeted monoclonal antibodies - it's all about the timing

Covid-targeted monoclonal antibodies are a ray of hope for CLL patients and other immune-compromised folk who have a weak or unknown response to vaccine. But...

Covid-targeted monoclonal antibodies are a ray of hope for CLL patients and othe...

bennevisplace

•3 years ago

6 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for June 2021

Anti Body Test Result

Anti Bodies For Covid 19

Tick

Feeling down after received IgHV un-mutated and FISH negative for CLL

Symbicort and easily bruising

New to treatment

Intermittent Fasting while on ibrutinib or other treatment

Does anyone have an experience with MingSight's trial of MS-533?

Flair trial ends MRD negative

CLL and Night Sweats

Mixed Oxford/Pfizer vaccine schedules generate robust immune response against COVID-19, finds Oxford-led study

What are they waiting for ?

Want protection? Get a FFP3 Mask!

Protecting The Immuno-Compromised Against COVID Could Be Key To Ending The Pandemic

Red spots all over my body.

CLL Society Webinar tomorrow June 29th! Learning to Decode Your Blood Test Results. Find out what they mean!

Restrictions & mixed messages

Stopping Ibrutinib

O&V

Quest Covid Total Spike Antibody Test 39820

Learning to Decode Your Blood Test Results for CLL

The Delta variant in the UK continues to surge.

Stopped taking allopurinol

Elevated D Dimer post COVID infection and CLL - does elevated D Dimer mean poor chance of successful treatment?

Introduction to Health Unlocked

For UK: East Midlands Chamber of Commerce webinar on keeping the workplace Covid-secure

How do I safely live my life with CLL if my antibody test results are one of three scenarios?

David

Just been told my husband has cLL can anyone give some information

Covid-targeted monoclonal antibodies - it's all about the timing

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