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CLL Support

22,512 members • 38,664 posts

All posts for June 2014

?Candida

I seem to have succumbed to a Candida infection down the front of my legs and the upper facia of my arms (areas weakened by exposure to the sun!). Seeing my GP...

I seem to have succumbed to a Candida infection down the front of my legs and th...

djgolding

•10 years ago

5 Replies

Six foods that increase or decrease your risk of cancer

Tim Crowe, Associate Professor in Nutrition at Deakin University, Melbourne, Victoria, Australia, reviews what we know about the influence of diet on cancer...

Tim Crowe, Associate Professor in Nutrition at Deakin University, Melbourne, Vi...

AussieNeil

Administrator•10 years ago

2 Replies

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where are the pinned topics I find them much more useful than the news feeds which are too random and difficult to trace. Please can we have the pinned...

where are the pinned topics I find them much more useful than the news feeds wh...

LdnClll56

•10 years ago

23 Replies

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3 years on Ibrutinib/Imbruvica and a study involving fasting

Hi all, I am celebrating an anniversary of sorts. On this day, exactly three years ago at the time of my sending this post, I swallowed my first capsules of...

Hi all, I am celebrating an anniversary of sorts. On this day, exactly three yea...

ThreeWs

•10 years ago

6 Replies

Afib and ibrutinib

Waiting to see oncologist on Monday. Have talked to pharmacist at Diplomat Specialty drugs as well as been seen by my cardiologist. My cardiologist increased...

Waiting to see oncologist on Monday. Have talked to pharmacist at Diplomat Speci...

Ragsgolf

•10 years ago

5 Replies

CLL specialists in the US

I was diagnosed with CLL 13q14.3 deletion December 2012 at age 59. ALC stable since that time at 10-18 so on W&W and followed by a local community oncologist...

I was diagnosed with CLL 13q14.3 deletion December 2012 at age 59. ALC stable s...

MelioraDay

•10 years ago

9 Replies

CLL patients living in France?

Hello My husband was diagnosed with CLL last year and is in the Watch & Wait period. We are British, but live in France. Given the different healthcare...

Hello My husband was diagnosed with CLL last year and is in the Watch & Wait per...

JenniferHart

•10 years ago

5 Replies

Safe Eating for Poor Immune Function - Beyond the Neutropenic Diet

I've had to re-evaluate my diet recently due to a worsening neutrophil count and it's not much fun! :( What I did find both interesting and encouraging, is...

I've had to re-evaluate my diet recently due to a worsening neutrophil count and...

AussieNeil

Administrator•10 years ago

24 Replies

Possible herpes

Our grandson has a very swollen upper lip which could be herpes. He has been staying with us some this summer. Should he stay home until it is cleared up? I...

Our grandson has a very swollen upper lip which could be herpes. He has been st...

Ragsgolf

•10 years ago

3 Replies

Video - Panel discussion from the CLL Support Association UK Patient Meeting in Cambridge, 21st June, 2014

In this video from the CLLSA UK Patient Meeting in Cambridge, 21st June, 2014, Patient Advocate Andrew Schorr chairs a panel of UK patient advocates in a...

In this video from the CLLSA UK Patient Meeting in Cambridge, 21st June, 2014, P...

HAIRBEAR_UK

Founder Admin•10 years ago

5 Replies

Video - Positive News & Developments When Treating Chronic Lymphocytic Leukaemia From The EHA

Professors Simon Rule, Peter Hillmen and John Gribben are leading UK clinical researchers with a special interest in CLL. In this brief news report from this...

Professors Simon Rule, Peter Hillmen and John Gribben are leading UK clinical re...

HAIRBEAR_UK

Founder Admin•10 years ago

1 Reply

Having a six to seven hour infusion of Rituxan and something else tomorrow.

I'm looking for suggestions as I'll be at the clinic that long and this is my first time getting treatment. I don't know if I can take a laptop, books, if I'll...

I'm looking for suggestions as I'll be at the clinic that long and this is my fi...

RemingtonSteele

•10 years ago

13 Replies

Shingles and Eyes

I have an attack of shingles and have been given anclovir which are doing a good job. I have one blister on my eyelid right next to the lashes and have been...

I have an attack of shingles and have been given anclovir which are doing a good...

exDancer

•10 years ago

2 Replies

EHA 2014: Encouraging News on the Pneumonia Vaccine in CLL ( chronic lymphocytic leukemia)

Hi Friends I just posted on my blog http://bkoffman.blogspot.com an important abstract and some background on the no longer so new adult pneumonia vaccine...

Hi Friends I just posted on my blog http://bkoffman.blogspot.com an important a...

bkoffman

CLL CURE Hero•10 years ago

4 Replies

Move Over Ibrutinib? Here Comes ABT-199?

Following the recent interview of Dr. Furman (by the way, my CLL expert) with Brian on PatientPower in which he speculated on using ABT-199 after an initial...

Following the recent interview of Dr. Furman (by the way, my CLL expert) with Br...

zevkalman

•10 years ago

4 Replies

When you started imbruvica....when did the leukocytes start going up and how high did they go????? When did they start receding.....thanks

eldiablo

•10 years ago

5 Replies

I'm on my 6th week of imbruvica.....my red blood count is anemic.....how long does it take before the body starts making red blood cells?

Anybody have or had the same problem.....tired as hell all the time....thanks my friends !

Anybody have or had the same problem.....tired as hell all the time....thanks my...

eldiablo

•10 years ago

2 Replies

CLLSA in Cambridge, June 20-21st, 2014

The solstice weekend marks the end of the academic year in Cambridge, and the city buzzes with end-of-term hope and excitement as students celebrate their...

The solstice weekend marks the end of the academic year in Cambridge, and the ci...

HAIRBEAR_UK

Founder Admin•10 years ago

6 Replies

My husband, 62, was diag. with chronic lymphocytic leukemia w/13q deletion and significant adenopathy/severe autoimmune hemolytic anemia.

Diag'd on 3/26/14. He was two young for the Allibutrim(sp/) trial. Had three chemo treatments since with "Retuximab/Bendamustine (Trenda)" combination....

Diag'd on 3/26/14. He was two young for the Allibutrim(sp/) trial. Had three c...

deb1610

•10 years ago

3 Replies

Hypochondriac and CLL - not a good combination

In addition to living with the uncertainty of a chronic, yet incurable condition that suppresses our immunity, thereby increasing our susceptibility to...

In addition to living with the uncertainty of a chronic, yet incurable condition...

AussieNeil

Administrator•10 years ago

5 Replies

Confused about a Trial with Ibrutinib- Well after seeing the oncologist for my checkup he decided I am ready for treatment due to mostly

extreme fatigues, consistent Upper Respiratory infections/lack of healing (I think this may have played a part, example, I cut my foot in November, it still...

extreme fatigues, consistent Upper Respiratory infections/lack of healing (I thi...

rlyndecker

•10 years ago

8 Replies

Great meeting EU Cllers in Cambridge

I was honored to be a part of the CLL Support Association's event in Cambridge today. Thanks to so many people who said hello and all the best to them!

I was honored to be a part of the CLL Support Association's event in Cambridge t...

andrewschorr

•10 years ago

12 Replies

A blog of sadness and reality

My colleague Carol Preston writes a tribute to a CLLer we met, who gave us hope and inspiration, and then, sadly, passed away too soon:...

My colleague Carol Preston writes a tribute to a CLLer we met, who gave us hope ...

andrewschorr

•10 years ago

3 Replies

Is there anyone been on imbruvica for more than 3 years and how are you doing?????

eldiablo

•10 years ago

3 Replies

What an interesting and informative day I've had at the Cambridge meeting, accompanied my Mum we both found it very helpful - thank you

An amazing support group

VikkiM1

•10 years ago

Be the first to reply

Achilles' heel to lower defenses of antibiotic-resistant bacteria found

'Researchers at the University of East Anglia (UAE) in England have now uncovered an Achille's heel in the bacterial cell defenses that could mean that...

'Researchers at the University of East Anglia (UAE) in England have now uncovere...

AussieNeil

Administrator•10 years ago

3 Replies

Profits, death and disease: big tobacco’s business model

Fifty years ago, the U.S. Surgeon General, Dr Luther Terry, released the 1964 report on Smoking and Health. "The Advisory Committee’s conclusion “hit the...

Fifty years ago, the U.S. Surgeon General, Dr Luther Terry, released the 1964 r...

AussieNeil

Administrator•10 years ago

2 Replies

Husband's anemia (PRCA) interrupted FCR last fall; cyclosporin worked until it was discontinued. We're looking into next treatment steps...

any suggestions or guidance would be much appreciated!

LAinNYC

•10 years ago

7 Replies

How do I go about getting a second expert opinion without upsetting my haematologist consultant?

I have previously posted on being concerned about still having lumps in my neck during FCR treatment. I have now had 5 of the 6 cycles of treatment and the...

I have previously posted on being concerned about still having lumps in my neck ...

yorkie19

•10 years ago

4 Replies

How does the Peer Review process work on scientific papers?

Posts to our community reference many scientific and medical papers that have been through a process of peer review. But what is a peer review and how does...

Posts to our community reference many scientific and medical papers that have be...

AussieNeil

Administrator•10 years ago

Be the first to reply

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for June 2014

?Candida

Six foods that increase or decrease your risk of cancer

Just upgraded to new version? Give your feedback here

3 years on Ibrutinib/Imbruvica and a study involving fasting

Afib and ibrutinib

CLL specialists in the US

CLL patients living in France?

Safe Eating for Poor Immune Function - Beyond the Neutropenic Diet

Possible herpes

Video - Panel discussion from the CLL Support Association UK Patient Meeting in Cambridge, 21st June, 2014

Video - Positive News & Developments When Treating Chronic Lymphocytic Leukaemia From The EHA

Having a six to seven hour infusion of Rituxan and something else tomorrow.

Shingles and Eyes

EHA 2014: Encouraging News on the Pneumonia Vaccine in CLL ( chronic lymphocytic leukemia)

Move Over Ibrutinib? Here Comes ABT-199?

When you started imbruvica....when did the leukocytes start going up and how high did they go????? When did they start receding.....thanks

I'm on my 6th week of imbruvica.....my red blood count is anemic.....how long does it take before the body starts making red blood cells?

CLLSA in Cambridge, June 20-21st, 2014

My husband, 62, was diag. with chronic lymphocytic leukemia w/13q deletion and significant adenopathy/severe autoimmune hemolytic anemia.

Hypochondriac and CLL - not a good combination

Confused about a Trial with Ibrutinib- Well after seeing the oncologist for my checkup he decided I am ready for treatment due to mostly

Great meeting EU Cllers in Cambridge

A blog of sadness and reality

Is there anyone been on imbruvica for more than 3 years and how are you doing?????

What an interesting and informative day I've had at the Cambridge meeting, accompanied my Mum we both found it very helpful - thank you

Achilles' heel to lower defenses of antibiotic-resistant bacteria found

Profits, death and disease: big tobacco’s business model

Husband's anemia (PRCA) interrupted FCR last fall; cyclosporin worked until it was discontinued. We're looking into next treatment steps...

How do I go about getting a second expert opinion without upsetting my haematologist consultant?

How does the Peer Review process work on scientific papers?

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