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CLL Support

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All posts for August 2021

A differentiator between lethal and non-lethal cases of COVID

Interesting. It is suggested that this discovery could lead to a therapeutic and perhaps also an prognostic....

Interesting. It is suggested that this discovery could lead to a therapeutic and...

Luap001

•3 years ago

9 Replies

Velcade

Hi, this is Rosa. I'm getting ready to start a regiment of Velcade, one shot on a Tuesday, then again on Friday; repeated for another week, off a week, then...

Hi, this is Rosa. I'm getting ready to start a regiment of Velcade, one shot on...

brooklyn7672

•3 years ago

3 Replies

Red painful Feet

I have been on WOW for 6 years now with blood results relatively OK. However for last 2 years I have painful feet, soles and side and base of toe. Feet do not...

I have been on WOW for 6 years now with blood results relatively OK. However for...

Marchmouse

•3 years ago

12 Replies

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3rd shot Ontario Canada

3rd shot Ontario was approved by the province about 2 weeks ago yet Halton region where I live has not given the OK yet. Has anyone else experienced this...

3rd shot Ontario was approved by the province about 2 weeks ago yet Halton regio...

laldoroty

•3 years ago

7 Replies

IGHV unmutated & normal FISH average W&W time

Hello! Is there any statistics about IGHV unmutated and normal fish W&W period? What is the longest time people with this combination have been on W&W or...

Hello! Is there any statistics about IGHV unmutated and normal fish W&W period?...

nuji

•3 years ago

15 Replies

Is there withdrawal from stopping ibrutinib?

Dr wanted me off ibrutinib for a couple months before possibly starting alacabrutinib. Having terrible headaches, nausea and achy legs etc. since stopping....

Dr wanted me off ibrutinib for a couple months before possibly starting alacabru...

Imbub

•3 years ago

13 Replies

Frontline treatment of Chronic Lymphocytic Leukemia (CLL/SLL) in 2021

JCO Oncology Practice has recently published two important papers: a clinical review article by Elizabeth A Brem MD and Susan O'Brien MD and a commentary by...

JCO Oncology Practice has recently published two important papers: a clinical r...

CLLerinOz

Administrator•3 years ago

NCCN Statement on Booster ( if interested)

https://www.nccn.org/home/news/newsdetails

Davidcara

•3 years ago

7 Replies

A little confused........

Last week I had my first 6 monthly follow up telephone consultation following my diagnosis. My most recent bloodwork was excellent I was told and showed...

Last week I had my first 6 monthly follow up telephone consultation following my...

Hamish_McTavish_III

•3 years ago

16 Replies

Monoclonals

FDA in US has approved monoclonal antibodies for prevention of Covid infections in CLL patients

FDA in US has approved monoclonal antibodies for prevention of Covid infections ...

Friverapt

•3 years ago

8 Replies

Just when you thought CLL was enough to deal with! advice on BTK inhibitors and Heart Attack Meds interactions?

Since my last post, informing that I had come out of a 4 year remission, after FCR, I have been monitored for my ALC and lymph node enlargement. After 6...

Since my last post, informing that I had come out of a 4 year remission, after F...

Rich316

•3 years ago

8 Replies

Sinus Issues

Does anybody have chronic sinus issues? For most of my adult life including the present I have large amounts of mucus going down my throat and it gets hung up...

Does anybody have chronic sinus issues? For most of my adult life including the...

Imalpn

•3 years ago

10 Replies

Annual Travel insurance ( UK )

Have just completed my annual exercise for our annual travel insurance and actually hoping to travel outside the UK in next year! Hope the information might be...

Have just completed my annual exercise for our annual travel insurance and actua...

richardp

•3 years ago

10 Replies

Leukemia and Lymphoma Society 3 D models help improve our understanding of Chronic Lymphocytic Leukemia (CLL/SLL)

The Leukemia and Lymphoma Society of the USA https://www.lls.org (well worth joining - it's free) has recently released 3D/animated models to help us better...

The Leukemia and Lymphoma Society of the USA https://www.lls.org (well worth joi...

AussieNeil

Administrator•3 years ago

5 Replies

Where does CLL apoptosis take place?

After watching the video (Living With Chronic Lymphocytic Leukemia) I’m curious as to where the CLL cells death (apoptosis) takes place? In the blood? In the...

After watching the video (Living With Chronic Lymphocytic Leukemia) I’m curious ...

Lavinia-Blue

•3 years ago

2 Replies

Antibodies

Does anyone know how long one should wait to have antibodies checked after 3rd shot

Does anyone know how long one should wait to have antibodies checked after 3rd s...

Imalpn

•3 years ago

7 Replies

How manh good B-cells do I have ?

Below is a 2019 Flow Cytometry Report, which I really do not understand. "Based on 7-AAD, CD45/SSC and FSC histograms, viable cell distribution in the sample...

Below is a 2019 Flow Cytometry Report, which I really do not understand. "Based ...

markjeep51

•3 years ago

9 Replies

Is FCR a treatment of the past?

Hello, I’m about to have my first line of treatment and there are so many options out there. (Very lucky) i have all the good mutation markers. I am leaning...

Hello, I’m about to have my first line of treatment and there are so many option...

Driverps1

•3 years ago

31 Replies

Is there a video regarding remission for CLL?

Hello, Is there a video regarding remission for CLL? I am interested in knowing what remission is (at the cellular level). What causes the CLL cells to go...

Hello, Is there a video regarding remission for CLL? I am interested in knowing...

Lavinia-Blue

•3 years ago

8 Replies

stomach ache

pain in stomach at the moment I'm taking trimethoprim for a bladder infection and it was 3-day course I'm almost at the end but I've got pain in my stomach and...

pain in stomach at the moment I'm taking trimethoprim for a bladder infection an...

paboje47

•3 years ago

8 Replies

Alcohol and CLL

Is there any prohibition or problem regarding having an evening drink for people with CLL?

Is there any prohibition or problem regarding having an evening drink for people...

Lindaan

•3 years ago

12 Replies

Third Booster Vaccine

Good evening I am a person with CLL. I just received the third booster, last Saturday and have been in bad pain since that evening. The pain has settled in...

Good evening I am a person with CLL. I just received the third booster, last S...

Bsv39

•3 years ago

14 Replies

HLH & CLL

Hi All, CLL diagnosed in 2014 and HLH on top of that in 2018. HLH makes CLL look like a cold it's nasty and I thank God for every day that I'm still here and...

Hi All, CLL diagnosed in 2014 and HLH on top of that in 2018. HLH makes CLL lo...

Shirty78

•3 years ago

16 Replies

Worse COVID Symptoms May Mean More Antibodies: Rutgers Study

Worse COVID Symptoms May Mean More Antibodies: Rutgers Study Those with severe or prolonged COVID symptoms were more likely to have antibodies than those with...

Worse COVID Symptoms May Mean More Antibodies: Rutgers Study Those with severe o...

lankisterguy

Volunteer•3 years ago

3 Replies

New Diagnosis - Everything Normal except cytology

Just diagnosed this month, age 49. My lymphocytes are elevated and my cytology shows “atypical” CLL. All my other labs were good and I am mutated with normal...

Just diagnosed this month, age 49. My lymphocytes are elevated and my cytology s...

Keggs2020

•3 years ago

9 Replies

Vaccine responses in patients with impaired immune systems

https://www.ukri.org/news/vaccine-responses-in-patients-with-impaired-immune-systems/

https://www.ukri.org/news/vaccine-responses-in-patients-with-impaired-immune-sys...

zaax

•3 years ago

1 Reply

blood work info and possible spleen removal

Good morning , this is my first post and have been following the site for a few months .appreciate all the info VERY much . i am 73 year old male . healthy for...

Good morning , this is my first post and have been following the site for a few ...

craterlake

•3 years ago

13 Replies

CLL and vaccination

If CLL is an over abundance of white blood cells and white blood cells are the cells that fight off diseases and viruses shouldn’t we have more protection from...

If CLL is an over abundance of white blood cells and white blood cells are the c...

Ebenezer68

•3 years ago

16 Replies

Thrown Under the Bus

For those who think my recent posts have been fodder for anti-vaxxers, here is more evidence to encourage everyone to get vaccinated and to get the booster....

For those who think my recent posts have been fodder for anti-vaxxers, here is m...

whmk

•3 years ago

19 Replies

Routine mammograms while in W&W?

Hey, there, fellow cll-ers. I am in W&W, tho numbers spiked after vaccines (so will see in couple weeks how I'm doing now). My gynecologist recommends yearly...

Hey, there, fellow cll-ers. I am in W&W, tho numbers spiked after vaccines (so ...

Vlaminck

•3 years ago

6 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for August 2021

A differentiator between lethal and non-lethal cases of COVID

Velcade

Red painful Feet

3rd shot Ontario Canada

IGHV unmutated & normal FISH average W&W time

Is there withdrawal from stopping ibrutinib?

Frontline treatment of Chronic Lymphocytic Leukemia (CLL/SLL) in 2021

NCCN Statement on Booster ( if interested)

A little confused........

Monoclonals

Just when you thought CLL was enough to deal with! advice on BTK inhibitors and Heart Attack Meds interactions?

Sinus Issues

Annual Travel insurance ( UK )

Leukemia and Lymphoma Society 3 D models help improve our understanding of Chronic Lymphocytic Leukemia (CLL/SLL)

Where does CLL apoptosis take place?

Antibodies

How manh good B-cells do I have ?

Is FCR a treatment of the past?

Is there a video regarding remission for CLL?

stomach ache

Alcohol and CLL

Third Booster Vaccine

HLH & CLL

Worse COVID Symptoms May Mean More Antibodies: Rutgers Study

New Diagnosis - Everything Normal except cytology

Vaccine responses in patients with impaired immune systems

blood work info and possible spleen removal

CLL and vaccination

Thrown Under the Bus

Routine mammograms while in W&W?

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