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CLL Support

22,475 members • 38,614 posts

All posts for January 2014

CLL News - Video Players

CLLSA are pleased to provide video players of a selection of the latest Patient Power news interviews with patient advocates and CLL global experts.Patient...

CLLSA are pleased to provide video players of a selection of the latest Patient...

HAIRBEAR_UK

Founder Admin•10 years ago

1 Reply

cll and C.N.T

my husband was taken into hospital at the weekend with a temp of 39.4, he has responded well to intravenous antibiotics, but we are a little concerned to hear...

my husband was taken into hospital at the weekend with a temp of 39.4, he has re...

lartington

•10 years ago

2 Replies

The challenges of treating C-diff prior to treating CLL

In response to other messages I've read for those of us with CLL/SLL; My CLL (previously 'dormant') flared up along with the discovery of C-diff and...

In response to other messages I've read for those of us with CLL/SLL; My CLL (pr...

katier

•10 years ago

1 Reply

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The myth of age-related cognitive decline

Many of us find we have difficulties with concentration and are unsure if this is due to our CLL, is age related or caused by some other factor. Recent...

Many of us find we have difficulties with concentration and are unsure if this i...

AussieNeil

Administrator•10 years ago

3 Replies

Road from Research to Clinic: Could New CLL Treatments Be Available Soon? (Patient Power Interviews Dr Jeff Sharman at ASH2013)

Andrew Schorr interviews Dr. Jeff Sharman, medical director of hematology research at The US Oncology Network, exploring the multitude of new and developing...

Andrew Schorr interviews Dr. Jeff Sharman, medical director of hematology resear...

AussieNeil

Administrator•10 years ago

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HU Site Updates - Your profile now supports links and new Invite Friends feature

I note that HealthUnlocked are testing a new feature by which you can invite others to join the HU Community. You can check it out either by clicking on your...

I note that HealthUnlocked are testing a new feature by which you can invite oth...

AussieNeil

Administrator•10 years ago

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I have CLL and am travelling to Kenya in Oct to work in a school. What precautions/immunisations should I take?

hammyj

•10 years ago

3 Replies

What do people do who cannot swallow tablets/capsules or have difficulty? I can just about get the smallest tablets down, but nothing larger

I've tried the 'throw your head back' trick, but my throat just constricts! I do have a tablet cutter/crusher which I use most of the time, but most leaflets...

I've tried the 'throw your head back' trick, but my throat just constricts! I d...

trevtherev

•10 years ago

6 Replies

GP consultations are often more complicated than you think

The following article provides an interesting insight into the tangle of potential paths a consultation with your GP may take:...

The following article provides an interesting insight into the tangle of potenti...

AussieNeil

Administrator•10 years ago

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Kidney Cancer removed with CLL in check

I just had surgery to remove a tumour in my kidney. The medical staff at the Manor Hospital in Oxford, repeatedly alerted by me to my CLL (see my other post...

I just had surgery to remove a tumour in my kidney. The medical staff at the M...

Lapo

•10 years ago

5 Replies

Ibrutinib Dosing

Friends, There has been recent discussion of the proper dosing dosing of ibrutinib in CLL. I have posted an important discussion of this topic on my blog:...

Friends, There has been recent discussion of the proper dosing dosing of ibruti...

bkoffman

CLL CURE Hero•10 years ago

1 Reply

Any one seen this new article on CLL and VIt. D

Hi I am new here, my husband was diagnosed with CLL 3 years ago (although only given the dx two years ago - but that is a different and longer story). He has...

Hi I am new here, my husband was diagnosed with CLL 3 years ago (although only g...

debvpn

•10 years ago

6 Replies

Will this DNA checking technology enable us to kill cancerous cells while leaving healthy cells untouched?

We've heard of FISH (Fluorescence In Situ Hybridization) testing, where fluorescent probes are used to identify whether we have previously identified faulty...

We've heard of FISH (Fluorescence In Situ Hybridization) testing, where fluoresc...

AussieNeil

Administrator•10 years ago

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side effects following ivig treatment

My husband is into his 4th year of ivig treatment every 28 days, at first he tollerated it very well but over the last year he has developed flu-like...

My husband is into his 4th year of ivig treatment every 28 days, at first he t...

lartington

•10 years ago

3 Replies

Health Check: should I use antibacterial hand sanitisers?

Which of the following should we use at home; alcohol-based hand sanitisers, antibacterial soaps or other antibacterial products? Trent Yarwood, Infectious...

Which of the following should we use at home; alcohol-based hand sanitisers, ant...

AussieNeil

Administrator•10 years ago

3 Replies

iwCLL 2013: Dr. Byrd Discusses If and When to Stop and the Long Term Use of Ibrutinib

Friends In the third part of my interview from Koln Germany, Dr. Byrd discusses stopping therapy and long term therapy with ibrutinib. There are important...

Friends In the third part of my interview from Koln Germany, Dr. Byrd discusse...

bkoffman

CLL CURE Hero•10 years ago

2 Replies

Rotten start to 2014

My husband and I came back from seeing our son and family ( they live abroad) at the beginning of December 2013 with some sort of virus. I had a sore throat...

My husband and I came back from seeing our son and family ( they live abroad) at...

jangreen

•10 years ago

5 Replies

quinine to treat cramps and cll patients.

has anybody any comment to make regarding the above. My husband has been given two different opinions, one the cll consultant saying quinine should be...

has anybody any comment to make regarding the above. My husband has been given t...

lartington

•10 years ago

16 Replies

Update on PCYC-1115-CA Randomised, Phase 3 study of Ibrutinib/Imbruvica versus Chlorambucil in Patients 65 yrs and untreated with CLL/SLL.

This is the first significant change to report, other than the reduction of lymph nodes after the first few weeks on the study which I began in September. (My...

This is the first significant change to report, other than the reduction of lymp...

Mikey47

•10 years ago

11 Replies

Dr Sharman on using Blogs to keep friends and loved ones informed

In Dr Sharman's latest blog, he discusses the challenges patients have with keeping everyone up to date and how some find blogging a useful and less tiring...

In Dr Sharman's latest blog, he discusses the challenges patients have with keep...

AussieNeil

Administrator•10 years ago

1 Reply

my haematologist has suggested that they may split my treatment, anyone got thoughts/knowledge?

i.e. by giving me Fludarabine and Cyclophosphamide to reduce my leucocyte count before putting me on the Rituximab to reduce the possibility of a reaction to...

i.e. by giving me Fludarabine and Cyclophosphamide to reduce my leucocyte count ...

djgolding

•10 years ago

4 Replies

Lukemia treatment given shot in the arm by artificial bone marrow development

Work like this, on bone marrow, may take a few years to be applicable to patients but another direction of research that may have a place in treatments for...

Work like this, on bone marrow, may take a few years to be applicable to patie...

Myrddin

•10 years ago

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The News about Ibrutinib from My Infusion Chair, The Resonate Trial, and Lancet Oncology

Friends My blog has a link to the press release on the Resonate trial and the Lancet article on ibrutinib , plus my own personal good new s and commentaries....

Friends My blog has a link to the press release on the Resonate trial and the L...

bkoffman

CLL CURE Hero•10 years ago

1 Reply

What does ' Molecular Genetics ' mean on the blood request form ?

I am wondering if my haematologist added this because of all the questions I keep asking.

I am wondering if my haematologist added this because of all the questions I kee...

keepfit123

•10 years ago

7 Replies

Dr Sharman on Relapsed Diffuse Large B Cell Lymphoma (DBLC)

Dr Sharman's latest blog looks at how R-CHOP became established as the most commonly used standard of care for DBLC (i.e. how patients fared better when...

Dr Sharman's latest blog looks at how R-CHOP became established as the most comm...

AussieNeil

Administrator•10 years ago

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Early use of Ibrutinib or is W&W still a needed strategy?

I recently responded to this question posted on CLLSLLyahoogroups forum by C. M. ".... If these new drugs [kinase inhibitors] are so effective it makes sense...

I recently responded to this question posted on CLLSLLyahoogroups forum by C. M....

ThreeWs

•10 years ago

32 Replies

iwCLL 2013: Prof Hallek Discusses a Focused Role of Chemo-Immunotherapy

Friends On my blog in my interview from iwCLL 2013, Professor Hallek discusses who should consider CIT (chemo-imminotherapy) and who should not. This is very...

Friends On my blog in my interview from iwCLL 2013, Professor Hallek discusses ...

bkoffman

CLL CURE Hero•10 years ago

2 Replies

The convoluted history of Campath and when side effects can be useful

Here's a fascinating article about off-label use of Campath (from Cambridge Pathology), a monoclonal antibody developed for CLL which was repackaged as...

Here's a fascinating article about off-label use of Campath (from Cambridge Path...

AussieNeil

Administrator•10 years ago

5 Replies

UK Leukaemia & Lymphoma Research News looking back on 2013 and forward for 2014

A few items sampled from the January BEAT (LLR Newsletter) https://leukaemialymphomaresearch.org.uk/civicrm/mailing/view?reset=1&id=626 Towards the end of...

A few items sampled from the January BEAT (LLR Newsletter) https://leukaemialym...

HAIRBEAR_UK

Founder Admin•10 years ago

Be the first to reply

Visit the HealthUnlocked office

Hello HealthUnlockers!    We are continuously making strides to improve your experience and as part of this we looking to introduce a few new features to the...

Hello HealthUnlockers!    We are continuously making strides to improve your e...

HealthUnlocked

HealthUnlocked•10 years ago

4 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for January 2014

CLL News - Video Players

cll and C.N.T

The challenges of treating C-diff prior to treating CLL

The myth of age-related cognitive decline

Road from Research to Clinic: Could New CLL Treatments Be Available Soon? (Patient Power Interviews Dr Jeff Sharman at ASH2013)

HU Site Updates - Your profile now supports links and new Invite Friends feature

I have CLL and am travelling to Kenya in Oct to work in a school. What precautions/immunisations should I take?

What do people do who cannot swallow tablets/capsules or have difficulty? I can just about get the smallest tablets down, but nothing larger

GP consultations are often more complicated than you think

Kidney Cancer removed with CLL in check

Ibrutinib Dosing

Any one seen this new article on CLL and VIt. D

Will this DNA checking technology enable us to kill cancerous cells while leaving healthy cells untouched?

side effects following ivig treatment

Health Check: should I use antibacterial hand sanitisers?

iwCLL 2013: Dr. Byrd Discusses If and When to Stop and the Long Term Use of Ibrutinib

Rotten start to 2014

quinine to treat cramps and cll patients.

Update on PCYC-1115-CA Randomised, Phase 3 study of Ibrutinib/Imbruvica versus Chlorambucil in Patients 65 yrs and untreated with CLL/SLL.

Dr Sharman on using Blogs to keep friends and loved ones informed

my haematologist has suggested that they may split my treatment, anyone got thoughts/knowledge?

Lukemia treatment given shot in the arm by artificial bone marrow development

The News about Ibrutinib from My Infusion Chair, The Resonate Trial, and Lancet Oncology

What does ' Molecular Genetics ' mean on the blood request form ?

Dr Sharman on Relapsed Diffuse Large B Cell Lymphoma (DBLC)

Early use of Ibrutinib or is W&W still a needed strategy?

iwCLL 2013: Prof Hallek Discusses a Focused Role of Chemo-Immunotherapy

The convoluted history of Campath and when side effects can be useful

UK Leukaemia & Lymphoma Research News looking back on 2013 and forward for 2014

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