Posts - CLL Support | HealthUnlocked

CLL Support

23,337 members•40,046 posts

All posts for June 2015

Seize the day

Hidden

•9 years ago

3 Replies

Shocked and a little confused!

I am one of those many people who have been diagnosed by chance. I had an NHS health check and as I am slightly overweight the nurse suggested a fasting blood...

I am one of those many people who have been diagnosed by chance. I had an NHS he...

andygm

•9 years ago

13 Replies

Blood readings

Hi all I've been given. A lot of blood results numbers and I have cll B markers Cd5/Cd19 Cd23 BCLL 5/5 also low antibodies and have been given the first of two...

Hi all I've been given. A lot of blood results numbers and I have cll B markers ...

Raymonds67

•9 years ago

2 Replies

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Germany Harweg

My regular Dr. said this was someplace that was supposed to be REALLY good for all Cancers but when I searched I couldn't find anything- does anyone have any...

My regular Dr. said this was someplace that was supposed to be REALLY good for a...

rlyndecker

•9 years ago

4 Replies

Dr Jeff Sharman - How I Treat My Patients With CLL Who Are Fit or Otherwise Healthy

In this one page overview from Clinical Care Options Oncology March 2015 (free membership), Dr Sharman explains how he categorises fit and otherwise healthy...

In this one page overview from Clinical Care Options Oncology March 2015 (free m...

AussieNeil

Administrator•9 years ago

5 Replies

CT Scan for CLL Patients

For last 3-4 weeks I feel inflammation and some pain in my back bone and around shoulder bones. My doctor dismissed any chance of another cancer like bone...

For last 3-4 weeks I feel inflammation and some pain in my back bone and around ...

AAli

•9 years ago

9 Replies

Chest infections

Following six rounds of fcr ending in february this year i have been plagued with one chest infection after another and a constant bad cough. I now have...

Following six rounds of fcr ending in february this year i have been plagued wit...

d011y

•9 years ago

18 Replies

A bit of a "nerdy" question...

Hi all I was looking through my blood test results recently and was dabbling in a little online research on all the various "CD" numbers shown on the flow...

Hi all I was looking through my blood test results recently and was dabbling in...

debs24

•9 years ago

6 Replies

good news from London

Greetings from London where I have been representing us patients to the leaders within pharma who want to be more "patient centric." The good news is they "get...

Greetings from London where I have been representing us patients to the leaders ...

andrewschorr

•9 years ago

2 Replies

Have you noticed Australia’s flu seasons seem to be getting worse? Here’s why

There was an item on last night's TV news claiming that this year's flu season in Australia is shaping up to be the worst for some time. Heath Kelly,...

There was an item on last night's TV news claiming that this year's flu season i...

AussieNeil

Administrator•9 years ago

2 Replies

Kathryn's 8.6 mile Fun Run for CLL Support Association

Well done Kathryn for successfully completing the Great Midland Fun Run on the 31st May, in a time of 1hr 46mins over a distance of 8.6miles. Kathryn has...

Well done Kathryn for successfully completing the Great Midland Fun Run on the 3...

HAIRBEAR_UK

Founder Admin•9 years ago

3 Replies

Professor Hallek on what Trial Design might give us Limited Duration Low Toxicity Therapies that offer Long term Disease Control

Friends This week’s CLL update on the http://cllsociety.org is the first part of my interview with Professor Hallek on possible drug combinations using new...

Friends This week’s CLL update on the http://cllsociety.org is the first part o...

bkoffman

CLL CURE Hero•9 years ago

1 Reply

My Friend Brian's Take on ASCO News for CLL

Be sure to see the Patient Power interview with Brian Koffman. It also features colleague Carol Preston, also a CLLer. Note, since it's brand new content, you...

Be sure to see the Patient Power interview with Brian Koffman. It also features ...

andrewschorr

•9 years ago

3 Replies

Holiday insurance

Hi everyone, im off to italy in a few weeks time and need to sort out travel insurance. Does anyone have any recommendations for insurance compznies that cover...

Hi everyone, im off to italy in a few weeks time and need to sort out travel ins...

norahmaria

•9 years ago

12 Replies

Homeopathy has an unrivalled safety profile when compared to mainstream medicine - But wait!

An article defending the sale of homeopathic remedies in Australia's online pharmacy trade publication I2P prompted Michael Vagg, Clinical Senior Lecturer at...

An article defending the sale of homeopathic remedies in Australia's online phar...

AussieNeil

Administrator•9 years ago

1 Reply

Happiness and the art of care and conversation on the cancer ward

Ranjana Srivastava, Oncologist, Author & Guardian Columnist at Monash Health, Australia, writes 'On Happiness' from both doctor and patient...

Ranjana Srivastava, Oncologist, Author & Guardian Columnist at Monash Health, A...

AussieNeil

Administrator•9 years ago

1 Reply

tiredness

Hi does anyone have trouble with fatigue? I seem to need to have a lie down every day recently and sleep for an hour. Its worrying me a lot because it makes me...

Hi does anyone have trouble with fatigue? I seem to need to have a lie down ever...

welshlady52

•9 years ago

13 Replies

For Refractory CLL, Venetoclax's (ABT-199's) Complete Response Rate Is Tops

"The combination therapy of the novel anti-BCL-2 drug venetoclax (formerly ABT-199/GDC-0199, AbbVie, Genentech) and rituximab shows encouraging results in...

"The combination therapy of the novel anti-BCL-2 drug venetoclax (formerly ABT-1...

AussieNeil

Administrator•9 years ago

Be the first to reply

Rambling intro from French Alps

Hi, I find myself here I'm sure like everyone else rather incredulously. I'm a 50 year old male from UK but living in the French Alps, . I was diagnosed 3.5...

Hi, I find myself here I'm sure like everyone else rather incredulously. I'm a ...

Keepskiing

•9 years ago

17 Replies

The Best Laid Plan

With many anti-cancer drugs taken orally, it's up to patients to comply with prescribed regimens. But, what happens if they don't? One fourth of all cancer...

With many anti-cancer drugs taken orally, it's up to patients to comply with pre...

shazie

•9 years ago

2 Replies

Facebook Moments - the moments in which you may have no say...

Last week Facebook launched their new app 'Moments' on both Android and iOS, which is designed to help you share photos from particular events with people who...

Last week Facebook launched their new app 'Moments' on both Android and iOS, whi...

AussieNeil

Administrator•9 years ago

1 Reply

Suppressed bone marrow after FCR

Hello, I would appreciate Community opinions on the following case. Diagnosed with CLL in May 2010, I had 6 cycles of FCR between September 2012 and February...

Hello, I would appreciate Community opinions on the following case. Diagnosed wi...

Maldenite

•9 years ago

9 Replies

Sand Animation Art

An amazing Sand Animation Art performance by Kseniya Simonova that is mesmerizing to watch. I thought it would be a good idea to share this amazing video with...

An amazing Sand Animation Art performance by Kseniya Simonova that is mesmerizin...

shazie

•9 years ago

5 Replies

FLAIR Trial - ErnieUK Final Round 6 FCR Surprises

I write this Post four weeks now after completing my final Round 6 of the FCR treatment. That’s from taking the last chemotherapy pill. As always please...

I write this Post four weeks now after completing my final Round 6 of the FCR tr...

Ernest2

•9 years ago

14 Replies

Continuing FCR

Hello. I know everyone is different - that seems to be the key phrase in being treated for CLL ☺️ - but can anyone say what their experiences of 2nd, 3rd...

Hello. I know everyone is different - that seems to be the key phrase in being t...

Fran57

•9 years ago

8 Replies

Happy Father's Day from the U.S.

I don't know if the date is universal but even if it isn't celebrated on this day where you are, I say a toast to you. I read a quote yesterday that made me...

I don't know if the date is universal but even if it isn't celebrated on this da...

Justasheet1

•9 years ago

3 Replies

Treanda/ Bendamustine--First treatment for CLL ?

After 4-1/2 years, it looks like I'm ready for treatment. His concern was not with the counts, but the significant and continuing enlargement of lymph nodes in...

After 4-1/2 years, it looks like I'm ready for treatment. His concern was not wi...

Soflajoe

•9 years ago

8 Replies

Itching-help!

I've never done this before, so I hope I get it right 😀My husband is having FCR- first round this month, nearly ready for 2nd round. He had nausea and...

I've never done this before, so I hope I get it right 😀My husband is having FCR...

Fran57

•9 years ago

14 Replies

Ibrutinib forever??

Mikey 47 stopped taking Ibrutinib after going into remission.. I have been on Ibrutinib for 3 years, am in full remission and I am told to stay on it forever....

Mikey 47 stopped taking Ibrutinib after going into remission.. I have been on Ib...

fish61

•9 years ago

9 Replies

Swollen glands

Hi everyone! I am new to this forum and need some advice as I am currently experiencing swollen glands, sore throat and blocked ears whilst visiting my...

Hi everyone! I am new to this forum and need some advice as I am currently expe...

Hidden

•9 years ago

2 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for June 2015

Seize the day

Shocked and a little confused!

Blood readings

Germany Harweg

Dr Jeff Sharman - How I Treat My Patients With CLL Who Are Fit or Otherwise Healthy

CT Scan for CLL Patients

Chest infections

A bit of a "nerdy" question...

good news from London

Have you noticed Australia’s flu seasons seem to be getting worse? Here’s why

Kathryn's 8.6 mile Fun Run for CLL Support Association

Professor Hallek on what Trial Design might give us Limited Duration Low Toxicity Therapies that offer Long term Disease Control

My Friend Brian's Take on ASCO News for CLL

Holiday insurance

Homeopathy has an unrivalled safety profile when compared to mainstream medicine - But wait!

Happiness and the art of care and conversation on the cancer ward

tiredness

For Refractory CLL, Venetoclax's (ABT-199's) Complete Response Rate Is Tops

Rambling intro from French Alps

The Best Laid Plan

Facebook Moments - the moments in which you may have no say...

Suppressed bone marrow after FCR

Sand Animation Art

FLAIR Trial - ErnieUK Final Round 6 FCR Surprises

Continuing FCR

Happy Father's Day from the U.S.

Treanda/ Bendamustine--First treatment for CLL ?

Itching-help!

Ibrutinib forever??

Swollen glands

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