Posts - CLL Support | HealthUnlocked

Top Poster CURE Hero•11 years ago

Some readers might like to know that Dr. Claire Dearden of the Royal Marsden has recorded an interview with Andrew Schorr of Patient Power videos. I copy from...

Dr Claire Dearden.

Some readers might like to know that Dr. Claire Dearden of the Royal Marsden has...

Kwenda

•11 years ago

Last year the Australian Leukaemia Foundation produced some A4 information cards for presentation to GPs to raise the awareness of blood cancers. Given recent...

Awareness Cards for GPs

Last year the Australian Leukaemia Foundation produced some A4 information cards...

Administrator•11 years ago

First Easter greetings to you all, and many thanks for the great articles you all post. I've been reading the site for a while, and thought it time to...

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Where to find CLL Patient Profiles

First Easter greetings to you all, and many thanks for the great articles you al...

Ernest2

•11 years ago

I found Nick's blog reporting the call for better services for cancer "Survivors", and the difficulties faced by CLL patients in this respect, incredibly...

Better Support for CLL "Survivors" - A Response

I found Nick's blog reporting the call for better services for cancer "Survivors...

jibs60

•11 years ago

It will be hard to have not seen today’s news reports highlighting the plight of cancer patients post treatment and how Macmillan is working with the...

Better support for soaring numbers of cancer survivors 29 March 2013. Post treatment cancer 'recovery package' urged

It will be hard to have not seen today’s news reports highlighting the plight of...

I'm sure we all wonder at times whether we are getting the appropriate level of care from our medical teams, particularly when we read of others' experiences...

Founder Admin•11 years ago

19 Replies

Why is there a variation in adherence to treatment guidelines?

I'm sure we all wonder at times whether we are getting the appropriate level of ...

Administrator•11 years ago

Gentle yet effective therapies are called for when treating patients with chronic lymphocytic leukemia (CLL) who are age 65 years and older. While there is no...

Seeking a Standard in the Treatment of Elderly Patients With CLL

Gentle yet effective therapies are called for when treating patients with chroni...

Top Poster CURE Hero•11 years ago

The latest news video from Andrew Schorr and Patient Power from the 9th European Congress on Hematologic Malignancies in Lyon, France: Is with Dr Susan...

Patient Power video - Dr Susan O’Brian on B-Cell Receptor Agents from The 9th European Congress on Hematologic Malignancies

The latest news video from Andrew Schorr and Patient Power from the 9th Europea...

Founder Admin•11 years ago

This study is about 6 months old, but I'm posting this very good article about epigenetic changes discovered in CLL...that drives this cancer. Originally...

Epigenetics...the complexity of CLL

This study is about 6 months old, but I'm posting this very good article about e...

Top Poster CURE Hero•11 years ago

This is breast and prostate, but similar work is being done in CLL. Study author Prof Doug Easton said: "We're on the verge of being able to use our...

DNA test reveals 80 markers for inherited cancer risk (Topic not CLL specific)

This is breast and prostate, but similar work is being done in CLL. Study aut...

Top Poster CURE Hero•11 years ago

Dr. Sharman briefly discusses the whys of the rather unique Watch and Wait 'treatment' decision for CLL, mentioning the relevance of clonal evolution, reports...

Dr Sharman on "Choosing first therapy in CLL"

Dr. Sharman briefly discusses the whys of the rather unique Watch and Wait 'trea...

This is an interesting overview of Roche and Rituxan/MabThera 'Roche faces its first big test at the end of this year when it loses exclusivity...

Administrator•11 years ago

5 Replies

Biosimilars coming... Rituxan/MabThera patent ending... impact?

This is an interesting overview of Roche and Rituxan/MabThera 'R...

Top Poster CURE Hero•11 years ago

Genmab A/S and GlaxoSmithKline (GSK) announced the approval of Arzerra (ofatumumab) by the Japanese Ministry of Health, Labor and Welfare (MHLW) for use in...

Arzerra (ofatumumab) approved in Japan for CLL

Genmab A/S and GlaxoSmithKline (GSK) announced the approval of Arzerra (ofatumum...

Top Poster CURE Hero•11 years ago

Some quotes from the New Scientist article: "Norovirus hit the headlines in the UK this winter when a million people caught it in just a couple of months."...

Norovirus: The perfect human pathogen (New Scientist article)

Some quotes from the New Scientist article: "Norovirus hit the headlines in t...

Administrator•11 years ago

'The molecule, called a monoclonal antibody, is being readied for human clinical trials for CLL "in the not-too-distant future," said lead researcher Thomas J....

RG7356 New Monoclonal Antibody

'The molecule, called a monoclonal antibody, is being readied for human clinical...

Top Poster CURE Hero•11 years ago

LONDON - Leukaemia & Lymphoma Research The leukaemia & lymphoma research impact day will be held at the tower hotel, London on 13th April 2013 from 9.00am...

Lymphoma and Leukaemia Patient/Carer Conference alternatives for the 13th of April 2013

LONDON - Leukaemia & Lymphoma Research The leukaemia & lymphoma research imp...

Founder Admin•11 years ago

After being told he had cll my husbands diagnoses was changed at the next hospital visit to MZL but he was told it was similar watch & wait then at the next...

change of diagnoses

After being told he had cll my husbands diagnoses was changed at the next hospit...

landlady

•11 years ago

This is one of my favorite interviews as it tells the story of the phase 1 trials of ibrutinib and idelalisib (CAL 101) by Dr. Furman who was the investigator...

ASH 2012 Interview with Dr. Rick Furman

This is one of my favorite interviews as it tells the story of the phase 1 trial...

bkoffman

CLL CURE Hero•11 years ago

Having completed my six cycles of Chemo I'm now trying to get back into life. One of the by-products of my situation is I've changed roles which means I won't...

CLL and travel

Having completed my six cycles of Chemo I'm now trying to get back into life. On...

Oleboyredw-uk

•11 years ago

4 Replies

CLL and Hypertension

Has anyone seen anything relating CLL to Hypertension/High Blood Pressure. I was diagnosed with Hypertension about a month before being diagnosed with CLL....

Has anyone seen anything relating CLL to Hypertension/High Blood Pressure. I ...

Oleboyredw-uk

•11 years ago

I'd appreciate any tips from anyone that has found a remedy that eases the discomfort from temporarily swollen lymph nodes around their neck. Usually my nodes...

Remedies for swollen neck node discomfort

I'd appreciate any tips from anyone that has found a remedy that eases the disco...

UK CLL clinical trials information leaflet..The article has been written for patients and their carers and assumes almost no prior medical knowledge...

Administrator•11 years ago

20 Replies

UK CLL Clinical Trials Portfolio November 2013

UK CLL clinical trials information leaflet..The article has been written for pat...

Founder Admin•11 years ago

Does anyone know anything about the suggested connection of HPV and secondary cancer? 53% samples from B-cell CLL who had secondary cancers tested positive to...

Human Papilloma Virus

Does anyone know anything about the suggested connection of HPV and secondary ca...

Tanagergreen

•11 years ago

4 Replies

NASA-developed household air cleaner claimed to neutralize mold, fungi, pollen, dust mites, viruses and bacteria.

According to Airocide, the company selling these for the home market for an off the planet price of US$799 plus US$99 for replacement chambers (yearly...

According to Airocide, the company selling these for the home market for an off ...

BMJ article released today in views and reviews: How may this impact on us and ours? The new somatic symptom disorder in DSM-5 risks mislabeling many...

Administrator•11 years ago

5 Replies

The new somatic symptom disorder in DSM-5 risks mislabeling many people as mentally ill

BMJ article released today in views and reviews: How may this impact on us and ...

Founder Admin•11 years ago

The word disease is actually dis-ease. Its about the illness in a person because of a lack of health. The person has had health taken from them. This bit isn't...

does any member have p17-deletion and what treatment have they had?? thankyou

lartington

•11 years ago

9 Replies

Health and Disease

The word disease is actually dis-ease. Its about the illness in a person because...

jangreen

•11 years ago

I am searching for sensitive markers for monitoring efficacy of therapy. I need help please.

JerryW

•11 years ago

One of the questions I get asked most frequently is to explain how prognostic markers are used clinically. I recommend the follow article by Parker and Strout...

Prognostic Indicators in Clinical CLL/SLL and Impact onTreatment

One of the questions I get asked most frequently is to explain how prognostic ma...

Top Poster CURE Hero•11 years ago