Posts - CLL Support | HealthUnlocked

CLL Support

23,337 members•40,046 posts

All posts for July 2023

Anyone familiar with the ingredient Lepticore

It is explained as a "hormone produced by our fat cells." It is also an ingredient in cookies designed to help you lose weight. It is a nutraceutical. Is it...

It is explained as a "hormone produced by our fat cells." It is also an ingredi...

bayside64

•1 year ago

1 Reply

Windermere

I had FCR in 2012 was in remission until 2018. Then started ibrutinib and still on it, how long is it likely to keep me in remission.

I had FCR in 2012 was in remission until 2018. Then started ibrutinib and still ...

Windemere

•1 year ago

6 Replies

Ibrutinib bone , joint pain

Now like most of us I experienced bone and joint pain when I first started ibrutinib over 6.5 years ago, which after a few months went away as my body adapted....

Now like most of us I experienced bone and joint pain when I first started ibrut...

cartwheels

•1 year ago

6 Replies

Want to take advantage of all our features? Just log in!

Is my sore lower back pain a side effect of Acalabrutinib ?

I was diagnosed with CLL 3 months ago and have been on Acalabrutinib since then with excellent results that put me close or into the normal range - white blood...

I was diagnosed with CLL 3 months ago and have been on Acalabrutinib since then ...

Lalitpur

•1 year ago

10 Replies

Not anemia? Lab results question.

It's been a couple months since my last iron infusion. Last week, I had labs drawn, and results included: [H] WBC (18.1), RDW (16.4), Platelets (614),...

It's been a couple months since my last iron infusion. Last week, I had labs ...

hollywollydoodle

•1 year ago

5 Replies

Collarbone lump

A couple months ago, I discovered a lump on my left clavicle, against the side of my neck. It feels mashable? and sort of fits in the palm of my cupped hand,...

A couple months ago, I discovered a lump on my left clavicle, against the side o...

hollywollydoodle

•1 year ago

37 Replies

Targeted therapy drugs

I am interested in people who have taken Zanubrutinib. Did you half to go through a lot of hassle getting the drug? How many preliminary’s are involved before...

I am interested in people who have taken Zanubrutinib. Did you half to go throu...

Tupelomojo

•1 year ago

13 Replies

Purpura on w&w?

Since diagnosis 3 years ago, while on W&W, I have had presume purpura spots come and go on my left arm, but today, after reaching in to tomato cages to capture...

Since diagnosis 3 years ago, while on W&W, I have had presume purpura spots come...

Vlaminck

•1 year ago

17 Replies

V&O treatment

Hi all I am now over 7 months of my years treatment with , V&O and doing OK after several bumpy rides. Just wondering when they will start decreasing...

Hi all I am now over 7 months of my years treatment with , V&O and doing OK...

Stavrou1

•1 year ago

19 Replies

Thank you

Thank you for all your comments...ive got so many things wrong with me apart from CLL. Ive got spinal stenosis, chiari malformation, heart failure, its just...

Thank you for all your comments...ive got so many things wrong with me apart fro...

welshlady52

•1 year ago

11 Replies

Help in understanding flow cytometry results, anyone??

My husband just received his flow cytometry results, and his appointment with his oncologist isn't for another three weeks. We're combing the internet for...

My husband just received his flow cytometry results, and his appointment with hi...

keikikumu

•1 year ago

5 Replies

Alternative to open eye taping re Bells Palsy'.

Hi All, I don't know if I am in the right community for this query, but I'll give it a try. As I stated in an earlier Post, I had Bells Palsy' diagnosed...

Hi All, I don't know if I am in the right community for this query, but I'll giv...

Vindicatrix

•1 year ago

5 Replies

Chemotherapy

Hi guys, not been here for a while. My heamotologist rang this morning saying my red cells are low,and I'm anaemic even though I take an iron tab every day....

Hi guys, not been here for a while. My heamotologist rang this morning saying my...

welshlady52

•1 year ago

50 Replies

Interpretation

Hi . I’ve had a letter through from my CNS ( I’m on treatment with O and V) There are a couple of things I haven’t seen before and wonder if anyone can tell...

Hi . I’ve had a letter through from my CNS ( I’m on treatment with O and V) T...

jillybird13

•1 year ago

2 Replies

Bruising

I get alot of bruising, mostly on my arms hands and sometimes on my stomach they go away after a few weeks and then they come back some weeks later. I have...

I get alot of bruising, mostly on my arms hands and sometimes on my stomach they...

Kmegood

•1 year ago

32 Replies

Vertigo and Venclexta?

My husband is starting cycle 12 of Venclexta, reduced to 200mg /day due to 2 bouts of Neutropenia, and has recently experienced Vertigo twice. The first time,...

My husband is starting cycle 12 of Venclexta, reduced to 200mg /day due to 2 bou...

lisakc1

•1 year ago

9 Replies

so tired…

Good morning. I was diagnosed in December 2022 with mild CLL. My problem is that I am so tired all the time I just don’t feel myself. But the doctors tell me...

Good morning. I was diagnosed in December 2022 with mild CLL. My problem is tha...

LG1948

•1 year ago

48 Replies

Bubbling Spleen?

I'm 2.5 years out since starting BTK inhibitors at diagnosis for unmutated accelerated SLL. I live with spleen pain even though it is (or was) not enlarged....

I'm 2.5 years out since starting BTK inhibitors at diagnosis for unmutated accel...

Amberesque

•1 year ago

10 Replies

Hope this helps!

Hi everyone, I do not have CLL but I do have the itchy, pins and needles prickly feeling on my upper arms at night when I cover up. Once it starts it's...

Hi everyone, I do not have CLL but I do have the itchy, pins and needles prickly...

MiaRiley21

•1 year ago

1 Reply

Relative risk for secondary bone marrow cancer within 5 years after initial CLL chemoimmunotherapy treatment (typically BR or FCR)

In countries where targeted therapies ('brutinibs, venetoclax, obinutuzumab/rituximab) are now available, the remaining reason that FCR...

In countries where targeted therapies ('brutinibs, venetoclax, obinutuzumab/ritu...

AussieNeil

Administrator•1 year ago

25 Replies

This one is a bit "left field" but here goes...

"Can any one hear me", says the Robin? OK! Infatuation with Robins aside... After my spectacular successful knee replacement I decide to buy myself a new...

"Can any one hear me", says the Robin? OK! Infatuation with Robins aside... Afte...

JigFettler

Volunteer•1 year ago

14 Replies

Borderline prominent lymph nodes

I had a CT done and they saw this Borderline prominent lymph nodes in the right neck with transverse measurements of 1.2 cm at level Ib and 1.1 cm at level...

I had a CT done and they saw this Borderline prominent lymph nodes in the right ...

ColeM23

•1 year ago

15 Replies

blurry vision Venetoclax

Since I have taken the 200mg Venetoclax my vision become blurry. Is this something to worry about? I also started to have feelings of nausea since I have...

Since I have taken the 200mg Venetoclax my vision become blurry. Is this somet...

MalcT

•1 year ago

14 Replies

in our discussions about cause of CLL

Good morning . in our discussions about what causes our CLL there were a number of theories with some emphasis on diets , but of course no one knows .. i...

Good morning . in our discussions about what causes our CLL there were a number ...

craterlake

•1 year ago

20 Replies

reprise de la maladie après 7ans d’ibrutinib

après 7 ans les résultats sont dégradés . Le docteur va passer au venetoclax Est que quelqu’un est dans ce cas ?

après 7 ans les résultats sont dégradés . Le docteur va passer au venetoclax Es...

COLENO

•1 year ago

2 Replies

CLL then long remission and now Myeloma

After a long remission of about 8 years , I was diagnosed with Myeloma in August 2022. I was treated with Chemotherapy again (Bortezimib,...

After a long remission of about 8 years , I was diagnosed with Myeloma in Augus...

keepfit123

•1 year ago

23 Replies

Question: Any difference in Calquence (Acalabrutinib) capsules vs tablets

Recently, when we picked up my hubby's acalabrutinib pills and the pharmacy gave him pills vs capsules. My husband is doing quite well on the capsules....

Recently, when we picked up my hubby's acalabrutinib pills and the pharmacy gave...

spi3

•1 year ago

22 Replies

up coming treatment with rituximab for pure red blood cell aplasia and CLL

Hi All I was diagnosed with CLL in 2019 and never had much issues with bloods only being slightly elevated and some under arm lymph nodes. The start of this...

Hi All I was diagnosed with CLL in 2019 and never had much issues with bloods ...

Jimmy_9

•1 year ago

3 Replies

Floradix and Hemoglobin

Has anyone had experience using Salus forumula "Floradix" Fer + plantes to help support healthy hemoglogin levels in someone with CLL? My husband's iron...

Has anyone had experience using Salus forumula "Floradix" Fer + plantes to help ...

Minou1

•1 year ago

20 Replies

Private Doctors for Rituximab

Hi, my brother is at stage 4 with Hodgkins Lymphoma. For various reasons he doesn't want to go through with salvage chemo, which is the only option he is...

Hi, my brother is at stage 4 with Hodgkins Lymphoma. For various reasons he doe...

Lemonbaby

•1 year ago

1 Reply

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for July 2023

Anyone familiar with the ingredient Lepticore

Windermere

Ibrutinib bone , joint pain

Is my sore lower back pain a side effect of Acalabrutinib ?

Not anemia? Lab results question.

Collarbone lump

Targeted therapy drugs

Purpura on w&w?

V&O treatment

Thank you

Help in understanding flow cytometry results, anyone??

Alternative to open eye taping re Bells Palsy'.

Chemotherapy

Interpretation

Bruising

Vertigo and Venclexta?

so tired…

Bubbling Spleen?

Hope this helps!

Relative risk for secondary bone marrow cancer within 5 years after initial CLL chemoimmunotherapy treatment (typically BR or FCR)

This one is a bit "left field" but here goes...

Borderline prominent lymph nodes

blurry vision Venetoclax

in our discussions about cause of CLL

reprise de la maladie après 7ans d’ibrutinib

CLL then long remission and now Myeloma

Question: Any difference in Calquence (Acalabrutinib) capsules vs tablets

up coming treatment with rituximab for pure red blood cell aplasia and CLL

Floradix and Hemoglobin

Private Doctors for Rituximab

Search posts

Pinned Posts

Latest poll

Part 2 of How well do you know HealthUnlocked's features? Rate yourself on this multichoice poll. Answers later or you can check Help!

Topics

Archive