Posts - CLL Support | HealthUnlocked

CLL Support

23,337 members•40,045 posts

All posts for June 2019

Good article - doctor becomes cancer patient and gains better understanding of what his patients feel

https://elemental.medium.com/when-a-cancer-surgeon-becomes-a-cancer-patient-3b9d984066da

https://elemental.medium.com/when-a-cancer-surgeon-becomes-a-cancer-patient-3b9d...

Judyanne

•5 years ago

19 Replies

Hi everyone who had FCR chemo

I am to have it for the first time, is it likely to have side effects when I will get back home after the drip ? I live alone, how did You feel ?

I am to have it for the first time, is it likely to have side effects when I wil...

Ankakoza

•5 years ago

38 Replies

Leukeran

Hi to all Does anyone have any info or history on the use of leukeran to combat CLL , it would be nice to know if it is effective , how long you have to take...

Hi to all Does anyone have any info or history on the use of leukeran to combat ...

Robbob71

•5 years ago

17 Replies

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living with lukimia

hi, Iv been living with cll for one year have had my spleen removed chemo did not work and have been taking ibrutinib for three months and experiencing...

hi, Iv been living with cll for one year have had my spleen removed chemo did no...

bali103

•5 years ago

5 Replies

CLL Society Tribune!

Welcome to the Second 2019 Issue of The CLL Society Tribune....

lankisterguy

Volunteer•5 years ago

1 Reply

IGHV test limited to peripheral blood?

I’ve been told by my CLL specialist that the IGHV test only has established reliability with peripheral blood samples. Given that I have SLL and my peripheral...

I’ve been told by my CLL specialist that the IGHV test only has established reli...

Jemorgen

•5 years ago

17 Replies

Going to see my Rock Star Physician!

Happy Friday to all! I know I told everyone a few months ago that I'd be going to see Dr. Byrd at The Ohio State University in July. Well, the time is here....

Happy Friday to all! I know I told everyone a few months ago that I'd be going ...

sophia60

•5 years ago

17 Replies

Clinical trial results & reviews of new treatments for CLL written in easy to understand terms

Anyone interested in reading a weekly update of the latest breaking news for CLL may want to sign up to get emails from this source:...

Anyone interested in reading a weekly update of the latest breaking news for CLL...

lankisterguy

Volunteer•5 years ago

11 Replies

Forgotten about

I was diagnosed with CLL on 10.9.09, so nearly 10 years ago. I had to see a consultant at first but was discharged so I feel that I am not even a watch and...

I was diagnosed with CLL on 10.9.09, so nearly 10 years ago. I had to see a con...

dianemil

•5 years ago

13 Replies

Taking Imbruvica in Spain

I live in Spain and have been recently diagnosed with Sll/Cll 17p deletion. Ive been taking Imbruvica for three weeks. As yet no side effects and feeling a lot...

I live in Spain and have been recently diagnosed with Sll/Cll 17p deletion. Ive ...

Hidden

•5 years ago

2 Replies

Roundup

I was recently diagnosed with CLL. I am 70. I feel good but I had a UTI. Doctor did blood work. At this time, I am to go back for another blood test in two...

I was recently diagnosed with CLL. I am 70. I feel good but I had a UTI. Doctor ...

Llgarden

•5 years ago

5 Replies

Cold Sores

I was diagnosed in 2010 with CLL and on W&W. I am now troubled with persistant cold sores on my nose or mouth. Tried the usual creams but still come back. Does...

I was diagnosed in 2010 with CLL and on W&W. I am now troubled with persistant c...

AdaYoung

•5 years ago

10 Replies

Dr. Wang of Mayo on Richter's Transformation and my Irish Podcast on CAR-T

Hi, This week we published my interview with Dr. Wang from Mayo about Richter’s Transformation. This is increasingly a problem as we are living longer with our...

Hi, This week we published my interview with Dr. Wang from Mayo about Richter’s ...

bkoffman

CLL CURE Hero•5 years ago

2 Replies

New to Forum

I have CLL with TP53 deletion and 11q deletion. I am scheduled for ibrutinib for treatment . I was diagnosed in April. My symptoms started in early spring,...

I have CLL with TP53 deletion and 11q deletion. I am scheduled for ibrutinib fo...

Hectanooga

•5 years ago

20 Replies

Immune Function Improvements

Here are 3 separate videos from Patient Power by respected CLL experts explaining different aspects of our Immune Systems and what can be done to affect or...

Here are 3 separate videos from Patient Power by respected CLL experts explainin...

lankisterguy

Volunteer•5 years ago

2 Replies

CLLSA Bournemouth Members Conference report 18 May 2019 - videos embedded together with full report

The Bournemouth Members Conference summary report has now been updated to includes embedded videos of the presentations, nearly 10gb, of very interesting...

The Bournemouth Members Conference summary report has now been updated to includ...

Myrddin

•5 years ago

Be the first to reply

Is it the methatrexate or a rejection of Ibrutinib

It's been a while since I have posted, mainly because things have been going ok since being put on ibrutinib last September. Prior to that I was also on...

It's been a while since I have posted, mainly because things have been going ok ...

Mick491

•5 years ago

7 Replies

Webinar A Psychological Perspective: Dealing with the CLL Emotional Roller Coaster Monday, July 22, 2019, at 10:00 AM PDT / 1:00 PM EDT

Anxiety, anger, fatigue, depression, are just some of the emotions/symptoms we may experience after diagnosis. Join us to talk about what CLL patients may face...

Anxiety, anger, fatigue, depression, are just some of the emotions/symptoms we m...

lankisterguy

Volunteer•5 years ago

3 Replies

Zanubrutinib-Gazyva Shows Promise for CLL/SLL

June 25, 2019 Zanubrutinib (BGB-3111) is an investigational small molecule inhibitor of Bruton’s tyrosine kinase (BTK). Gazyva is a monoclonal antibody...

June 25, 2019 Zanubrutinib (BGB-3111) is an investigational small molecule inhib...

Jm954

Administrator•5 years ago

16 Replies

You can’t get influenza from a flu shot – here’s how it works

..while you might sometimes get sick after having a flu shot, it’s a myth that having a flu shot can give you the flu : How the immune...

..while you might sometimes get sick after having a flu shot, it’s a myth that h...

AussieNeil

Administrator•5 years ago

7 Replies

Tips on finding good Primary Care doctor

I have a great Oncologist I am seeing, now that I have been diagnosed with CLL. Any tips on finding a knowledgeable Primary Care or General Practitioner? My...

I have a great Oncologist I am seeing, now that I have been diagnosed with CLL. ...

Hkh1

•5 years ago

4 Replies

Positive things that you have done since getting CLL

Going out on a bit of a limb here, and hope it doesn't offend anyone. But I thought a bit of sharing about the positive things you have done in response to...

Going out on a bit of a limb here, and hope it doesn't offend anyone. But I thou...

fugazi

•5 years ago

25 Replies

Dr Brian Koffman recent Irish radio interview about CAR T

Dr Brian Koffman and his wife Patty have been very busy over the last few weeks with talks at EHA and for CLL Ireland national information day on June 8th. He...

Dr Brian Koffman and his wife Patty have been very busy over the last few weeks ...

Irishcll

•5 years ago

3 Replies

Chimeric antigen receptor-modified T cell therapy in chronic lymphocytic leukemia

Journal of Hematology & Oncology, November 2018 CAR-T therapy, a promising adoptive T cell immunotherapy, has become more and more important in the...

Journal of Hematology & Oncology, November 2018 CAR-T therapy, a promising adopt...

Jm954

Administrator•5 years ago

2 Replies

More on Cytokine Release Syndrome toxicities associated with CAR-T-cell therapy.

May 2019, not specific to CLL but adds to our understanding of CAR-T treatment. Extracted from a paper comparing neurological CRS grading assessments....

May 2019, not specific to CLL but adds to our understanding of CAR-T treatment. ...

Jm954

Administrator•5 years ago

5 Replies

How are Helper T-Cells Made? And Yes, It’s Important.

A bit about those marvelous T helper cells. The overall task of a T-cell is to respond to markers, called antigens, left behind by invaders, which stick to...

A bit about those marvelous T helper cells. The overall task of a T-cell is to r...

Jm954

Administrator•5 years ago

10 Replies

Taste

Hi all, This site is a godsend, even though I am in early stage CLL. I am as a person naturally inclined to want to know about the struggles and prefer to be...

Hi all, This site is a godsend, even though I am in early stage CLL. I am as a...

Lellycat1

•5 years ago

4 Replies

Issues After Imbruvica

I started 3 140mg tabs of Imbruvica in January of 2017. I tolerated it very well with the normal side effects of cramps and brittle nails. Venetoclax 400 mg...

I started 3 140mg tabs of Imbruvica in January of 2017. I tolerated it very well...

Louie_CC

•5 years ago

3 Replies

Imbruvica Rosa

Well, I started my fist pill of Imbruvica yesterday at 6pm. Went to bed, everything was fine. Got up early, had a few sips of coffee & a banana and within 3...

Well, I started my fist pill of Imbruvica yesterday at 6pm. Went to bed, everyt...

oso7672

•5 years ago

10 Replies

Mediport placement today

I asked by Dr for a Mediport and had it placed today in interventional radiology. It can stay in almost indefinitely (10 plus years), if desired or be removed...

I asked by Dr for a Mediport and had it placed today in interventional radiology...

CLLmoxie

•5 years ago

16 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for June 2019

Good article - doctor becomes cancer patient and gains better understanding of what his patients feel

Hi everyone who had FCR chemo

Leukeran

living with lukimia

CLL Society Tribune!

IGHV test limited to peripheral blood?

Going to see my Rock Star Physician!

Clinical trial results & reviews of new treatments for CLL written in easy to understand terms

Forgotten about

Taking Imbruvica in Spain

Roundup

Cold Sores

Dr. Wang of Mayo on Richter's Transformation and my Irish Podcast on CAR-T

New to Forum

Immune Function Improvements

CLLSA Bournemouth Members Conference report 18 May 2019 - videos embedded together with full report

Is it the methatrexate or a rejection of Ibrutinib

Webinar A Psychological Perspective: Dealing with the CLL Emotional Roller Coaster Monday, July 22, 2019, at 10:00 AM PDT / 1:00 PM EDT

Zanubrutinib-Gazyva Shows Promise for CLL/SLL

You can’t get influenza from a flu shot – here’s how it works

Tips on finding good Primary Care doctor

Positive things that you have done since getting CLL

Dr Brian Koffman recent Irish radio interview about CAR T

Chimeric antigen receptor-modified T cell therapy in chronic lymphocytic leukemia

More on Cytokine Release Syndrome toxicities associated with CAR-T-cell therapy.

How are Helper T-Cells Made? And Yes, It’s Important.

Taste

Issues After Imbruvica

Imbruvica Rosa

Mediport placement today

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