Posts - CLL Support | HealthUnlocked

CLL Support

22,367 members38,474 posts

All posts for June 2019

Good article - doctor becomes cancer patient and gains better understanding of what his patients feel

https://elemental.medium.com/when-a-cancer-surgeon-becomes-a-cancer-patient-3b9d...
Judyanne profile image

Hi everyone who had FCR chemo

I am to have it for the first time, is it likely to have side effects when I wil...
Ankakoza profile image

Leukeran

Hi to all Does anyone have any info or history on the use of leukeran to combat ...
Robbob71 profile image
Want to take advantage of all our features? Just log in!
or

living with lukimia

hi, Iv been living with cll for one year have had my spleen removed chemo did no...
bali103 profile image

CLL Society Tribune!

Welcome to the Second 2019 Issue of The CLL Society Tribune....
lankisterguy profile image
Volunteer

IGHV test limited to peripheral blood?

I’ve been told by my CLL specialist that the IGHV test only has established reli...
Jemorgen profile image

Going to see my Rock Star Physician!

Happy Friday to all! I know I told everyone a few months ago that I'd be going ...
sophia60 profile image

Clinical trial results & reviews of new treatments for CLL written in easy to understand terms

Anyone interested in reading a weekly update of the latest breaking news for CLL...
lankisterguy profile image
Volunteer

Forgotten about

I was diagnosed with CLL on 10.9.09, so nearly 10 years ago. I had to see a con...
dianemil profile image

Taking Imbruvica in Spain

I live in Spain and have been recently diagnosed with Sll/Cll 17p deletion. Ive ...
Hidden profile image

Roundup

I was recently diagnosed with CLL. I am 70. I feel good but I had a UTI. Doctor ...
Llgarden profile image

Cold Sores

I was diagnosed in 2010 with CLL and on W&W. I am now troubled with persistant c...
AdaYoung profile image

Dr. Wang of Mayo on Richter's Transformation and my Irish Podcast on CAR-T

Hi, This week we published my interview with Dr. Wang from Mayo about Richter’s ...
bkoffman profile image
CLL CURE Hero

New to Forum

I have CLL with TP53 deletion and 11q deletion. I am scheduled for ibrutinib fo...
Hectanooga profile image

Immune Function Improvements

Here are 3 separate videos from Patient Power by respected CLL experts explainin...
lankisterguy profile image
Volunteer

CLLSA Bournemouth Members Conference report 18 May 2019 - videos embedded together with full report

The Bournemouth Members Conference summary report has now been updated to includ...

Is it the methatrexate or a rejection of Ibrutinib

It's been a while since I have posted, mainly because things have been going ok ...
Mick491 profile image

Webinar A Psychological Perspective: Dealing with the CLL Emotional Roller Coaster Monday, July 22, 2019, at 10:00 AM PDT / 1:00 PM EDT

Anxiety, anger, fatigue, depression, are just some of the emotions/symptoms we m...
lankisterguy profile image
Volunteer

Zanubrutinib-Gazyva Shows Promise for CLL/SLL

June 25, 2019 Zanubrutinib (BGB-3111) is an investigational small molecule inhib...
Jm954 profile image
Administrator

You can’t get influenza from a flu shot – here’s how it works

..while you might sometimes get sick after having a flu shot, it’s a myth that h...
AussieNeil profile image
Administrator

Tips on finding good Primary Care doctor

I have a great Oncologist I am seeing, now that I have been diagnosed with CLL. ...
Hkh1 profile image

Positive things that you have done since getting CLL

Going out on a bit of a limb here, and hope it doesn't offend anyone. But I thou...
fugazi profile image

Dr Brian Koffman recent Irish radio interview about CAR T

Dr Brian Koffman and his wife Patty have been very busy over the last few weeks ...
Irishcll profile image

Chimeric antigen receptor-modified T cell therapy in chronic lymphocytic leukemia

Journal of Hematology & Oncology, November 2018 CAR-T therapy, a promising adopt...
Jm954 profile image
Administrator

More on Cytokine Release Syndrome toxicities associated with CAR-T-cell therapy.

May 2019, not specific to CLL but adds to our understanding of CAR-T treatment. ...
Jm954 profile image
Administrator

How are Helper T-Cells Made? And Yes, It’s Important.

A bit about those marvelous T helper cells. The overall task of a T-cell is to r...
Jm954 profile image
Administrator

Taste

Hi all, This site is a godsend, even though I am in early stage CLL. I am as a...
Lellycat1 profile image

Issues After Imbruvica

I started 3 140mg tabs of Imbruvica in January of 2017. I tolerated it very well...
Louie_CC profile image

Imbruvica Rosa

Well, I started my fist pill of Imbruvica yesterday at 6pm. Went to bed, everyt...
oso7672 profile image

Mediport placement today

I asked by Dr for a Mediport and had it placed today in interventional radiology...
CLLmoxie profile image