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CLL Support

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All posts for May 2017

LAB REPORTS

My lab reports came back today with my Lymphocyte count up to. 7.98 K/uL from 6.61 only 5 month ago...My WBC 12.92 compared to 12.21 5 months ago.. Anyone have...

My lab reports came back today with my Lymphocyte count up to. 7.98 K/uL from 6....

CLL12345

•7 years ago

14 Replies

Living with CLL since 2004, no treatment, no information!

Hello, I was diagnosed with CLL in 2004 and have been trying to control or eliminate it with a mostly vegan diet (I am now 65 years old). But as time has gone...

Hello, I was diagnosed with CLL in 2004 and have been trying to control or elimi...

julienpr

•7 years ago

8 Replies

Impact of chemo on orthopedic healing process?

Hi, Was diagnosed CLL in 2010 and have been on WW since. However my ALC has increased from mid 20's to mid 40's in the last 6-9 months which has prompted my...

Hi, Was diagnosed CLL in 2010 and have been on WW since. However my ALC has inc...

Redlion

•7 years ago

8 Replies

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C3d Protein Reverses Tumor-Mediated Immune Suppression

This could be another breakthrough or is it just too good to be true? Note: nothing specific about CLL but also nothing stated that would mean it should not be...

This could be another breakthrough or is it just too good to be true? Note: noth...

ThreeWs

•7 years ago

1 Reply

Developing food allergies post chemotherapy

Over the course of my 20-year experience with CLL I have experienced three bouts of food allergies manifest by hives all over my body lasting for days until I...

Over the course of my 20-year experience with CLL I have experienced three bouts...

gardening-girl

•7 years ago

1 Reply

Is There Good Summary/List of the Genetic Tests Needed?

I have seen Youtube videos with some of this information about the importance of genetic testing to determine mutational status to select the right treatment....

I have seen Youtube videos with some of this information about the importance of...

PlanetaryKim

•7 years ago

5 Replies

In Scotland ; SMC approves Ibrutinib

Apologies for my tardy post but the Scottish Medicines Consortium has mimicked the earlier NICE decision to approve Ibrutinib as a second line treatment. See...

Apologies for my tardy post but the Scottish Medicines Consortium has mimicked t...

Mild-Rover

•7 years ago

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Food Intolerance

My husband seems to have developed an intolerance to fish and crustaceans in the couple of years following his FCR chemotherapy. I was wondering if anyone else...

My husband seems to have developed an intolerance to fish and crustaceans in the...

teragramb

•7 years ago

8 Replies

ATTENTION CLL + SLL PATIENTS AND CAREGIVERS

Lymphoma Canada and the CLL Patient Advocacy Group (CLLPAG) is preparing a submission for the pan¬Canadian Oncology Drug Review (pCODR) for: Venetoclax for the...

Lymphoma Canada and the CLL Patient Advocacy Group (CLLPAG) is preparing a submi...

LCAdmin

•7 years ago

8 Replies

Finally I become of Imbruvica's family

My fifth day Imbruvica. What to expect and what to keep as a young patient ? Blood picture from today- chronic progressive ;) Still on corticosteroids 2*4 mg...

My fifth day Imbruvica. What to expect and what to keep as a young patient ? Blo...

Cervus_dama

•7 years ago

10 Replies

Car-T TV special. National Geographic break through series.

1 hour on Car-T. Main guy discussed had CLL. It is totally gone now!!! Great show. On TV currently or can be watched online I think, The Show is called...

1 hour on Car-T. Main guy discussed had CLL. It is totally gone now!!! Great s...

Hoffy

•7 years ago

32 Replies

Thks

Thanks for all the welcomes. It asked me which i wanted to post to and it didnt have a "all of the above button". so just took the first one.Just out planting...

Thanks for all the welcomes. It asked me which i wanted to post to and it didnt ...

betmaxbaby

•7 years ago

1 Reply

How long prior to Vit D & B12 test should I stop taking these supplements?

I plan to get my Vitamin D & B-12 levels checked soon. They were last checked 20 months ago, and I have been taking oral Vit D & sublingual B-12 pretty...

I plan to get my Vitamin D & B-12 levels checked soon. They were last checked 20...

PlanetaryKim

•7 years ago

10 Replies

introduce myself.....Judy

Im 74, white, retired hair dresser after 50 years at it.I have Heard disease, bypass at 57 plus 5 stints since then. I have COPD for along time. On oxygen at...

Im 74, white, retired hair dresser after 50 years at it.I have Heard disease, by...

betmaxbaby

•7 years ago

19 Replies

Carpet Cleaner Brands Recalled for Bacteria Contamination

Hi Folks, I ran across this warning by accident today but it looks like it is probably still relevant to us immune compromised folk. Several brands of dry...

Hi Folks, I ran across this warning by accident today but it looks like it is p...

Foggymind

•7 years ago

9 Replies

Just diagnosed.

Hello everyone. I have been reading posts from last couple of weeks and have now decided to introduce myself. I was diagnosed on 13th April with stage A CLL. I...

Hello everyone. I have been reading posts from last couple of weeks and have now...

Satsuma12

•7 years ago

11 Replies

CLL with LIVER Infiltration

Hi members I am worried as my Haematologist informed me yesterday that my CLL is spreading into my liver in a central spot of liver, it's rare condition, he is...

Hi members I am worried as my Haematologist informed me yesterday that my CLL is...

ezabella

•7 years ago

17 Replies

Ibrutinib and fever

I am on my 11th month of Ibrutinib. Have not had any side effects except for itchy skin, but suddenly started developing diarrhoea and fever just above 37...

I am on my 11th month of Ibrutinib. Have not had any side effects except for it...

Mayor44

•7 years ago

2 Replies

Low Animal Protein Diet

I'm wondering if there's anyone in our community who has switched to a plant-based low animal protein (less than 5%) diet after having eaten a "regular" diet...

I'm wondering if there's anyone in our community who has switched to a plant-bas...

Joygee

•7 years ago

25 Replies

Treatment Tradeoffs. Very good Video. Debate: Is it appropriate to treat patients with CLL earlier in the era of novel agents? Dr. Furman

Published on Apr 23, 2017 In this presentation from the 2017 Great Debates & Updates in Hematologic Malignancies, Dr. Richard R. Furman argues that, in the...

Published on Apr 23, 2017 In this presentation from the 2017 Great Debates & Up...

Hoffy

•7 years ago

18 Replies

Ocular Lymphoma

Weird as it sounds, I apparently have lymphoma in my right eye. I'm in the care of of an outstanding team of specialists at Johns Hopkins Hospital in the US...

Weird as it sounds, I apparently have lymphoma in my right eye. I'm in the care ...

Eagle5327

•7 years ago

9 Replies

Pin ball pain

What a week! Joint pain bouncing around my body like a pin ball machine. Wednesday night left knee starts to hurt leaving me in pain all day yesterday...

What a week! Joint pain bouncing around my body like a pin ball machine. W...

KAS8

•7 years ago

11 Replies

Imbruvica

I am 81 and am about to start tomorrow morning taking Imbruvica, I see the side effects and wonder if at my age it is worth the pain of it? Is there anyone...

I am 81 and am about to start tomorrow morning taking Imbruvica, I see the side...

Brian1935

•8 years ago

20 Replies

Need Suggestions - high platelets, ALP and Creatinine

I have just had my latest blood tests and my platelets are 505, Alkaline Phosphatase 143U/L and Serum Creatinine 1.29 mg/dl, What you will suggest for me,...

I have just had my latest blood tests and my platelets are 505, Alkaline Phospha...

javedsiddiqui

•8 years ago

2 Replies

Tired of being tired (cll)

Hi there. Just had a few days of feeling ok but then woke up today feeling like im wading through mud. So, so tired, aching neck & throat, headache and a dull...

Hi there. Just had a few days of feeling ok but then woke up today feeling like ...

Henny5

•8 years ago

15 Replies

"Living Well With CLL: Treatment & Research News" Replays Available!

Attention CLL community! The replays are now available from Saturday’s town meeting in Denver. Hear our expert panel’s perspectives including Dr. Burke from...

Attention CLL community! The replays are now available from Saturday’s town mee...

tclementi

•8 years ago

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Neutropenia - Antibiotics good idea before dental work?

My neutrophils are quite low right now. I have not been having problems with infections. I will be going in for some dental work - a cleaning and then later a...

My neutrophils are quite low right now. I have not been having problems with inf...

PlanetaryKim

•8 years ago

18 Replies

Dept of Energy and CLL

Any references for chemicals and CLL

robert_d

•8 years ago

10 Replies

ASH 2016: Dr. Mato on real world data on ibrutinib

Hi, This week I'm posting an interview that I had with Dr. Anthony Mato from U Penn when we talked at ASH 2016 about the real-world research he has been doing...

Hi, This week I'm posting an interview that I had with Dr. Anthony Mato from U P...

bkoffman

CLL CURE Hero•8 years ago

7 Replies

Blood test results

I'm looking for some advice on my blood test results the receptionist rang me this afternoon saying I need my blood tested again in two weeks,the blood test I...

I'm looking for some advice on my blood test results the receptionist rang me th...

Rosie2poppy

•8 years ago

4 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for May 2017

LAB REPORTS

Living with CLL since 2004, no treatment, no information!

Impact of chemo on orthopedic healing process?

C3d Protein Reverses Tumor-Mediated Immune Suppression

Developing food allergies post chemotherapy

Is There Good Summary/List of the Genetic Tests Needed?

In Scotland ; SMC approves Ibrutinib

Food Intolerance

ATTENTION CLL + SLL PATIENTS AND CAREGIVERS

Finally I become of Imbruvica's family

Car-T TV special. National Geographic break through series.

Thks

How long prior to Vit D & B12 test should I stop taking these supplements?

introduce myself.....Judy

Carpet Cleaner Brands Recalled for Bacteria Contamination

Just diagnosed.

CLL with LIVER Infiltration

Ibrutinib and fever

Low Animal Protein Diet

Treatment Tradeoffs. Very good Video. Debate: Is it appropriate to treat patients with CLL earlier in the era of novel agents? Dr. Furman

Ocular Lymphoma

Pin ball pain

Imbruvica

Need Suggestions - high platelets, ALP and Creatinine

Tired of being tired (cll)

"Living Well With CLL: Treatment & Research News" Replays Available!

Neutropenia - Antibiotics good idea before dental work?

Dept of Energy and CLL

ASH 2016: Dr. Mato on real world data on ibrutinib

Blood test results

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