Posts - CLL Support | HealthUnlocked

CLL Support

23,337 members•40,046 posts

All posts for May 2021

anyone have experience with pre existing bowel problems starting Acalabrutinib

age 77 recent sugery

tatly

•3 years ago

5 Replies

Side effects from obinutuzumab

Hi has anyone had any admissions to hospital due to temperature when starting obinutuzumab

Hi has anyone had any admissions to hospital due to temperature when starting ob...

Hd07

•3 years ago

18 Replies

Bruising

How do you define normal and 2 much. I get bumped around alot because of my occupation. I can say that the bruises could be justified however I have several on...

How do you define normal and 2 much. I get bumped around alot because of my occu...

showdog

•3 years ago

20 Replies

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Does getting annual flu shot help fight against Covid-19?

Was wondering about this question and planning to ask my CLL and GP docs what they knew. Plus given all the HU posts on antibodies testing/protection against...

Was wondering about this question and planning to ask my CLL and GP docs what th...

Pin57

•3 years ago

6 Replies

Has anyone had a reaction to Moderna vaccine?

Has anyone gotten sick after second Moderna shot? My husband caught a cold after his second shot that he ended up having to take antibiotics for. Now it...

Has anyone gotten sick after second Moderna shot? My husband caught a cold aft...

blur81

•3 years ago

6 Replies

COVID19 Jab questionable

I’m taking the medical exemption. At 40-50% efficacy I don’t think even Fauci would have approved the vaccine......

I’m taking the medical exemption. At 40-50% efficacy I don’t think even Fauci wo...

TJG_CLL17P-

•3 years ago

53 Replies

Thank you T-cells

does this for us? https://www.youtube.com/watch?v=mzOf6Cj3T-8

zaax

•3 years ago

1 Reply

Anemia While on Ibrutinib

Wondering if anyone has had anemia while on ibrutinib? Not from bleeding caused by ibrutinib. But just drug related anemia, or disease related anemia without...

Wondering if anyone has had anemia while on ibrutinib? Not from bleeding caused ...

Davidcara

•3 years ago

10 Replies

Update: New Total Ab #

I posted earlier about my LLS/LabCorp antibodies test results showing my Total Ab # 1837. At the time I was puzzled by the high # but since have seen other...

I posted earlier about my LLS/LabCorp antibodies test results showing my Total A...

louie48

•3 years ago

9 Replies

CLL 17p - Rituximab/Imbruvica then Rituximab/Venetoclax or enter in a clinical trial ?

First of all I would like to thank you for responding to my previous post... It really helps me ! My mom had an appointment last Thursday 27th in another...

First of all I would like to thank you for responding to my previous post... It ...

Noham027

•3 years ago

5 Replies

Has anyone had a rash with calquence?

Calquence Rash

Mackiec1108

•3 years ago

6 Replies

COVID TEST - NO ANTIBODIES AT ALL?

I'm pretty depressed at the result I received from Quest Labs just before I left for a two week trip to the California Coast to celebrate my wife's 60th. I...

I'm pretty depressed at the result I received from Quest Labs just before I left...

wizzard166

•3 years ago

92 Replies

Proctitis and Venetoclax

I have been on Venetoclax since September 2020. In late November developed symptoms of Tenesmus. In February my GP referred me for investigations....

I have been on Venetoclax since September 2020. In late November developed sympt...

Lady_Lymington

•3 years ago

6 Replies

Re vaccine and outcome for CLL you might find this interesting

Today, the first results of a key study on vaccine responses in leukaemia patients has been published. I this blog, our Patient Advocacy Manager, Charlotte,...

Today, the first results of a key study on vaccine responses in leukaemia patien...

Lookintomyeyes

•3 years ago

24 Replies

Acalabrutinib and early morning headaches

I have been on Acalabrutinib for 2weeks after 3.5 years of ibrutinib. I now frequently get headaches (mid forehead) about 4:00 a.m. I get out of bed at 7:00...

I have been on Acalabrutinib for 2weeks after 3.5 years of ibrutinib. I now fre...

Agatesup

•3 years ago

6 Replies

Research: Covid & CLLers

Reminder: links never open in the app....

Yuck

•3 years ago

4 Replies

What’s the next step.

Hi folks Bloods have doubled over past few months and was Tod yesterday I’ve relapsed. I’m 8 years post FCR and now being prepped to commence one of three...

Hi folks Bloods have doubled over past few months and was Tod yesterday I’ve re...

Billys60

•3 years ago

4 Replies

Sudden swelling

Hi there I was wondering whether any of you have experienced sudden swelling of all their extremities from cll or their treatment ? My dad has just come home...

Hi there I was wondering whether any of you have experienced sudden swelling of ...

GreatDad

•3 years ago

5 Replies

‘My cancer means the Covid vaccine doesn't work - so I face shielding indefinitely’

Baroness Nicola Mendelsohn thought the vaccine would provide salvation, but the Facebook vice-president found uncertainty instead....

Baroness Nicola Mendelsohn thought the vaccine would provide salvation, but the ...

zaax

•3 years ago

40 Replies

Rising Calcium

I know calcium is very very tightly regulated mineral in the body and I know it can't be much out of range without causing some serious problems but I'm just...

I know calcium is very very tightly regulated mineral in the body and I know it ...

Cgolen99

•3 years ago

8 Replies

CLL + Trisomy 8?

Was diagnosed with CLL in 2018 at 45yrs old, started treatment in 2019 and just finished my 19th month of Obinituzamab, Venetoclax, and Ibrutinib trial. Had...

Was diagnosed with CLL in 2018 at 45yrs old, started treatment in 2019 and just ...

RyStock

•3 years ago

3 Replies

Encouraging: see 2nd-to-last paragraph

Not sure if this has been posted. Monoclonal antibodies:...

Yuck

•3 years ago

3 Replies

Trigger finger & costochondritis from Acalabrutinib?

Hi Everyone My trigger finger recurred after cortisone jab in February. Recently developed symptoms similar to costochondritis (painful sternum and tight...

Hi Everyone My trigger finger recurred after cortisone jab in February. Recent...

Seok

•3 years ago

5 Replies

COVID 19 IMMUNITY TEST

Positive results for COVID I’m so relieved, I have CLL Watch & Wait. I did the TestingForAll came back with > 2500 U/mL results. I don’t understand the numbers...

Positive results for COVID I’m so relieved, I have CLL Watch & Wait. I did the T...

Pekingese

•3 years ago

6 Replies

Calling UK CLLers - Is government about to abandon support for protective monoclonal antibodies?

There is ample evidence now that many CLL patients don't respond well to vaccination against the SARS-COV2 virus. At least, a sizeable fraction don't develop...

There is ample evidence now that many CLL patients don't respond well to vaccina...

bennevisplace

•3 years ago

33 Replies

Loxo 305 + Venetoclax trial MRD Negative but with extras ....

Despite this being my 3rd treatment I’m usually quite well, however I’ve been feeling really unwell since March with Chronic Sinusitis, which developed into a...

Despite this being my 3rd treatment I’m usually quite well, however I’ve been fe...

Billarina

•3 years ago

7 Replies

Sweating

I have been recently diagnosed with Stage A CLL. No other issues other than the increased white blood cell count. On W&W. Concern I have is about sweating. I...

I have been recently diagnosed with Stage A CLL. No other issues other than the ...

Strech51

•3 years ago

12 Replies

England’s NHS plans to share patient records with third parties

Does anyone have more details on this intent to share all data from the NHS? Will all data shared be anonymized AND Aggregated? It looks quite concerning to...

Does anyone have more details on this intent to share all data from the NHS? Wil...

Me2AsWell

•3 years ago

20 Replies

Shared B cell memory to coronaviruses and other pathogens varies in human age groups and tissues

https://science.sciencemag.org/content/372/6543/738

zaax

•3 years ago

3 Replies

Nails after/with Ibrutinib

Yes, ladies and gentlemen, you can have nails after (or in my case still on low dose) Ibrutinib. Almost 4 years on Biotin and on only 140 Ibrutinib a day and...

Yes, ladies and gentlemen, you can have nails after (or in my case still on low...

BeckyLUSA

•3 years ago

6 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for May 2021

anyone have experience with pre existing bowel problems starting Acalabrutinib

Side effects from obinutuzumab

Bruising

Does getting annual flu shot help fight against Covid-19?

Has anyone had a reaction to Moderna vaccine?

COVID19 Jab questionable

Thank you T-cells

Anemia While on Ibrutinib

Update: New Total Ab #

CLL 17p - Rituximab/Imbruvica then Rituximab/Venetoclax or enter in a clinical trial ?

Has anyone had a rash with calquence?

COVID TEST - NO ANTIBODIES AT ALL?

Proctitis and Venetoclax

Re vaccine and outcome for CLL you might find this interesting

Acalabrutinib and early morning headaches

Research: Covid & CLLers

What’s the next step.

Sudden swelling

‘My cancer means the Covid vaccine doesn't work - so I face shielding indefinitely’

Rising Calcium

CLL + Trisomy 8?

Encouraging: see 2nd-to-last paragraph

Trigger finger & costochondritis from Acalabrutinib?

COVID 19 IMMUNITY TEST

Calling UK CLLers - Is government about to abandon support for protective monoclonal antibodies?

Loxo 305 + Venetoclax trial MRD Negative but with extras ....

Sweating

England’s NHS plans to share patient records with third parties

Shared B cell memory to coronaviruses and other pathogens varies in human age groups and tissues

Nails after/with Ibrutinib

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