Posts - CLL Support | HealthUnlocked

Following feedback, HU have changed the display of the Community home page ( https://healthunlocked.com/cllsupport ) back to how it used to be, i.e. it again...

Administrator•10 years ago

8 Replies

New HU Features for the News feed and Community Pages

Following feedback, HU have changed the display of the Community home page ( ht...

Administrator•10 years ago

Amazing. No side effects and a visible reduction in the very enlarged lymph nodes all round my neck. I hope there will also be a reduction in the heavily CLL...

IBRUTINIB - One week on

Amazing. No side effects and a visible reduction in the very enlarged lymph nod...

Haileybury

•10 years ago

13 Replies

Want to take advantage of all our features? Just log in!

13q deletion - what is it?

I wonder if anyone can help. My recent bone marrow aspiration and biopsy indicated 13 q deletion and P53 unmutated. I asked my consultant what this meant and...

I wonder if anyone can help. My recent bone marrow aspiration and biopsy indica...

Graham2222

•10 years ago

6 Replies

IBUTRINIB Help

I am finishing my second month on Ibutrinib and for the last couple of weeks I have had A LOT of bone/joint pain. I am a young 63 but feel like an old...

I am finishing my second month on Ibutrinib and for the last couple of weeks I h...

nancyjo

•10 years ago

22 Replies

Hemoglobin

4 months on imbruvica ...not making rb cells or hemoglobin. ..on epo's now.....terrible fatigue. ...any suggestions. ..thanks my friends

4 months on imbruvica ...not making rb cells or hemoglobin. ..on epo's now.....t...

shvantz

•10 years ago

Published in Cancernetwork http://www.cancernetwork.com/print/201258?GUID=D5A13087-2D93-4C0D-B29E-FAD43BF7ABDB&rememberme=1&ts=20092014

10 Best Oncology Apps

Published in Cancernetwork http://www.cancernetwork.com/print/201258?GUID=D5A13...

shazie

•10 years ago

Friends The whole issue of late onset resistance to ibrutinib and other TKIs is a growing area of concern and research. I will posting more on it in my blog...

ASCO 2014: Dr. Furman Gives us Perspective on Resistance with Ibrutinib in CLL

Friends The whole issue of late onset resistance to ibrutinib and other TKIs is...

bkoffman

CLL CURE Hero•10 years ago

Hi friends, What a long strange trip it's been. 9 years since my diagnosis and feeling better than ever. A few highlights from the roller coaster ride on my...

Nine Years and Counting

Hi friends, What a long strange trip it's been. 9 years since my diagnosis and...

bkoffman

CLL CURE Hero•10 years ago

5 Replies

Navigating the health care system

When illness strikes, emotions begin to play a heightened role in the decision making process. No matter how well you think your know your health care system,...

When illness strikes, emotions begin to play a heightened role in the decision m...

mcints2

•10 years ago

"It’s important to publish all results – both positive and negative – if researchers are to avoid repeating old mistakes. But where is the glory in negative...

Positives in negative results: when finding ‘nothing’ means something

"It’s important to publish all results – both positive and negative – if researc...

Administrator•10 years ago

Friends, Cirmtuzumab, a ROR1 monoclonal antibody is finally here in a Phase 1 clinical trial at UCSD after years of promise. The hope is that it will be as...

ASCO 2014: Dr. Kipps Discusses ROR1 and Information about a New ROR1 Monoclonal Antibody (cirmtuzumab) Trial in Relapsed and Refractory CLL

Friends, Cirmtuzumab, a ROR1 monoclonal antibody is finally here in a Phase 1 c...

bkoffman

CLL CURE Hero•10 years ago

I feel very fortunate that after 2 courses of FCR which had to be stopped (pleural effusions, bone marrow and neutrophil problems), I have been referred to a...

First day on IBRUTINIB

I feel very fortunate that after 2 courses of FCR which had to be stopped (pleur...

Haileybury

•10 years ago

25 Replies

Clearing up confusion between correlation and causation

Those of us interested in attempts to identify the cause of cancers and the long term adverse impacts of exposure to drugs would be well aware of the...

Those of us interested in attempts to identify the cause of cancers and the long...

Administrator•10 years ago

Has anyone out there had this problem? I have excellent prognostics...hyper mutated, normal karotype, low 38 or is it 36 presence , 0 zap 70. No del 17...

Rapidly increasing lymphocytes

Has anyone out there had this problem? I have excellent prognostics...hyper mu...

Wetumpka

•10 years ago

15 Replies

Ibrutinib and headaches

Has anybody experienced persistent headaches while taking Ibrutinib? I've been on the medication for about two months now and although I haven't had any...

Has anybody experienced persistent headaches while taking Ibrutinib? I've been o...

SycamoreN

•10 years ago

9 Replies

FDA Grants Special Protocol Assessment to Phase III Ublituximab/Ibrutinib Study

"TG Therapeutics has reached an agreement with the FDA regarding a Special Protocol Assessment for a phase III clinical trial exploring ublituximab (TG-1101, a...

"TG Therapeutics has reached an agreement with the FDA regarding a Special Proto...

Tim Dean, Philosopher at the University of New South Wales, Australia argues the power of scientific research, using the example of how medical research into...

Administrator•10 years ago

5 Replies

Why research beats anecdote in our search for knowledge

Tim Dean, Philosopher at the University of New South Wales, Australia argues the...

Administrator•10 years ago

i had test of my platelet count and i get 2.2 what is the for me ?

for me

yeeh

•10 years ago

2 Replies

Dr Sharman's Idelalisib (Zydelig) Update based on European experience

There's been some concern on the FDA requirement for a black box warning on the use of Zydelig/idelasilib in the treatment of CLL while Imbrivica/Ibrutinib...

There's been some concern on the FDA requirement for a black box warning on the ...

Gwyneth Stafford CLL & Lymphoma Nurse Specialist at Cambridge University Hospitals gives her perspective on the challenges that CLL patients experience when...

Administrator•10 years ago

2 Replies

Video, Gwyneth Stafford discusses managing CLL symptoms

Gwyneth Stafford CLL & Lymphoma Nurse Specialist at Cambridge University Hospita...

HAIRBEAR_UK

Founder Admin•10 years ago

Be the first to reply

European Commission Grants Marketing Authorization for Gilead’s Zydelig® (Idelalisib) for the Treatment of Chronic Lymphocytic Leukemia

Gilead press release European Commission Grants Marketing Authorization for Gilead’s Zydelig® (Idelalisib) for the Treatment of Chronic Lymphocytic...

Gilead press release European Commission Grants Marketing Authorization for ...

HAIRBEAR_UK

Founder Admin•10 years ago

HU have just informed me of two new features just released: 1) In platform notifications 2) Top post last month on community homepage For (1), you'll notice...

New HU Site Features released - Notifications and Top Monthly post

HU have just informed me of two new features just released: 1) In platform noti...

Administrator•10 years ago

Hi everyone, has anyone any info on the icille trial ?

Iciclle trial of ibrutinib

norahmaria

•10 years ago

27 Replies

ONCOLOGY Review Articles: September 2014 Issue‏. Plenty of interesting reading

Free membership of The Cancer Network will provide you with a monthly Oncology Review:...

Free membership of The Cancer Network will provide you with a monthly Oncology R...

Nial Wheate, Senior Lecturer in Pharmaceutical Chemistry at University of Sydney, Australia writes an interesting and informative article on what's been...

Administrator•10 years ago

Be the first to reply

Nutraceuticals are often big on promise but fail to deliver

Nial Wheate, Senior Lecturer in Pharmaceutical Chemistry at University of Sydne...

Administrator•10 years ago

I am confused. Just had my hemo/oncology visit today. When I got home I looked at my blood work. It had two that I have never seen before..... NRBC# 3.6 CH...

NRBC# & NRBC%

I am confused. Just had my hemo/oncology visit today. When I got home I looked...

LouLou1976

•10 years ago

2 Replies

MRD results

For anyone struggling with chemo or needing to know its all worth it I have just had my Scan/BM Biopsy results having finished chemo 4 months ago. Complete MRD...

For anyone struggling with chemo or needing to know its all worth it I have just...

grizzlebear

•10 years ago

13 Replies

Gall bladder part 2

I'd just like shout My gall bladder is out But it's left me feeling quite low Recovery feels quite slow Two open wounds to heal An abscess too has added to the...

I'd just like shout My gall bladder is out But it's left me feeling quite low Re...

wroxham-gb

•10 years ago

Of interest to those concerned about future sepsis treatment options, a team led by Donald Ingber, a bioengineer at the Wyss Institute for Biologically...

Artificial Spleen coming soon?

Of interest to those concerned about future sepsis treatment options, a team led...

Administrator•10 years ago