Posts - CLL Support | HealthUnlocked

If you know what PSA blood test is and if you or your male partner has had a recent blood and physical test, you can probably leave this question now. If you...

Administrator•11 years ago

1 Reply

Can you afford to ignore me?

If you know what PSA blood test is and if you or your male partner has had a rec...

Hidden

•11 years ago

18 Replies

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Hi, Has anybody got any information about people with CLL being out in the sun?

Any tips about travel insurance for people with CLL

john133

•11 years ago

5 Replies

Fingers crossed!

Hi all .... just thought I would add my tuppenceworth and share my experience of CLL treatment. Diagnosed in Oct 2009 at age 47 with 'Watch & Wait' (lymphocyte...

Hi all .... just thought I would add my tuppenceworth and share my experience of...

Timobeanie

•11 years ago

30 Replies

Can't pronounce the name of your medicine? Here's why!

Many of us would know that mab in a drug name means the drug is a Monoclonal AntiBody and this logical approach generally extends for other drug's generic...

Many of us would know that mab in a drug name means the drug is a Monoclonal Ant...

Administrator•11 years ago

I'd like to compare notes with other people experiencing this investigation which is based in Liverpool; and especially with anyone who has already experienced...

RIAltO: I am about to take part in a Randomised Investigation of Alternative Ofatumumab: designed to compare ofatumumab with chlorambucil.

I'd like to compare notes with other people experiencing this investigation whic...

johnpollard37

•11 years ago

6 Replies

normal value of vitD3

anishkhalid

•11 years ago

4 Replies

Smoking or eating marijuana is not a cure for cancer

"There’s a modern myth that marijuana (cannabis sativa), in its natural form, is effective at both preventing and treating cancer. This myth has become ever...

"There’s a modern myth that marijuana (cannabis sativa), in its natural form, is...

I should have asked the pharmacist or doc but keep forgetting until I take my 11 tablets then think "Oh beggar!"

Administrator•11 years ago

1 Reply

daft question, but when taking Cyclophosphamide on an empty stomach - how soon can I have breakfast?

I should have asked the pharmacist or doc but keep forgetting until I take my 1...

djgolding

•11 years ago

14 Replies

Happiness and its causes - you might be surprised!

Our level of happiness (or more accurately life satisfaction or well-being) definitely takes a hit when we are diagnosed with CLL, which is reflected by quite...

Our level of happiness (or more accurately life satisfaction or well-being) defi...

Administrator•11 years ago

I posted here some months ago when our world fell apart and a number of you lifted us and helped us to get our head around the shocking news. We then had the...

Complete Remission!

I posted here some months ago when our world fell apart and a number of you lift...

Summer5

•11 years ago

38 Replies

Haemoglobin

Had my check up 2 weeks ago and the WBC was 56 and haemoglobin 12. The Dr said 12 is low. I was disappointed as I have been taking iron tablets for a year. Is...

Had my check up 2 weeks ago and the WBC was 56 and haemoglobin 12. The Dr said 1...

Spiritlove

•11 years ago

9 Replies

Important Privacy Improvements coming to HealthUnlocked - a Must Read!!

Below is HealthUnlocked's release about planned changes that will enable you to restrict the audience of what you consider to be personal information, which I...

Below is HealthUnlocked's release about planned changes that will enable you to ...

Administrator•11 years ago

It seems that it's vital whether the CLL is unmutated or mutated but I can't seem to find that information anywhere on my FISH test results.

I am trying to find out if I am unmutated or mutated. My results show IgM positive and IgG negative. What's the difference?

It seems that it's vital whether the CLL is unmutated or mutated but I can't see...

splashsplash

•11 years ago

7 Replies

How we can use viruses to treat serious diseases including CLL (CAR-T therapy)

Dave Hawkes, a postdoctoral researcher in the Peptide Neurobiology group at the Florey Institute of Neurosciences and Mental Health in Melbourne Australia, is...

Dave Hawkes, a postdoctoral researcher in the Peptide Neurobiology group at the ...

Out of the blue My gp has told me this week that my blood count is abnormal I.e. Total white cell count 19.5 Lymphocyte count 12.7 These are uk readings .ive...

Administrator•11 years ago

1 Reply

Does anyone have chronic aching of the legs, sometimes with a hot and tingling sensation of the feet?

Parramatta

•11 years ago

11 Replies

New member Help please

Out of the blue My gp has told me this week that my blood count is abnormal I.e....

Terryjb

•11 years ago

26 Replies

Do the risks of vaccination outweigh the benefits?

With CLL predominantly affecting those of us who have gone through life suffering from diseases rarely seen today like polio, measles, mumps, rubella, and...

With CLL predominantly affecting those of us who have gone through life sufferin...

Administrator•11 years ago

Prior to having successful FCR treatment for CLL in 2010 I was suffering with severe headaches up to 15 times a month. After the FCR treatment they...

Headaches

Prior to having successful FCR treatment for CLL in 2010 I was suffering with se...

Mick491

•11 years ago

More advice on what constitutes a good diet: http://thenewdaily.com.au/life/2014/03/12/forget-fad-diets-this-is-what-you-should-really-eat You'll find the...

Forget fad diets – this is what you should eat

More advice on what constitutes a good diet: http://thenewdaily.com.au/life/2014...

I've previously provided plenty of warnings to our membership still using Windows XP (and I know that there are still plenty of you out there). Time is fast...

Administrator•11 years ago

39 Replies

Windows XP users, you have 3 weeks left before your computer enters a heightened risk of malware attack

I've previously provided plenty of warnings to our membership still using Window...

Those with CLL in Australia are eligible for a free flu vaccination. Given it takes several weeks to become effective and there are early indications that...

Administrator•11 years ago

4 Replies

2014 Season Flu Vaccine now available in Australia

Those with CLL in Australia are eligible for a free flu vaccination. Given it t...

Administrator•11 years ago

Hi Friends On my blog today http://bkoffman.blogspot.com I share my ASH interview with Dr. Sharman where we discussed the data on FCR versus BR. While this...

ASH 2013: Dr. Jeff Sharman Discusses FCR versus BR in CLL

Hi Friends On my blog today http://bkoffman.blogspot.com I share my ASH intervi...

bkoffman

CLL CURE Hero•11 years ago

Decades ago, researchers identified that there was a higher risk of children developing leukaemia if they lived in the proximity of high voltage powerlines....

Power Lines and Childhood Leukaemia - A Cautionary Tale

Decades ago, researchers identified that there was a higher risk of children dev...

Administrator•11 years ago

fever and ended up in my hematologist's office. After the visit he ordered a blood CBC and my ANC had tripled. It was .9 in Jan. (and sinking) and now is at...

Recommendations for CLL doctors in South Australia?

brad7

•11 years ago

5 Replies

Hello all, I didn't' expect to be posting a neutrophil question again so soon, but I came down with a digestive bug last week, spiked a big

fever and ended up in my hematologist's office. After the visit he ordered a blo...

Chicagogirl

•11 years ago

I was diagnosed 6 months ago and have seen the haematologist once. I've previously had cancer that required massive and life changing surgery, have suspected...

When to have additional (prognostic indicator) tests done?

I was diagnosed 6 months ago and have seen the haematologist once. I've previous...

Susanjc

•11 years ago

6 Replies

I have not gotten any posts from HealthUnlocked for a few months ??? Have I been ostracized?? fish 61

Recently I was given an rx for Valtrex.,( to go with Ibrutinib) and I started taking it (stupid me , I usually check side effects and reactions ) this time i...

Recently I was given an rx for Valtrex.,( to go with Ibrutinib) and I started ta...

fish61

•11 years ago

We frequently read about the benefits of getting into better shape physically to improve our quality of life, help us live better with CLL and have an easier...

Why weight reduction diets usually fail

We frequently read about the benefits of getting into better shape physically to...